Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 26, 2014, 02:15:57 AM

Login with username, password and session length


Members
  • Total Members: 23787
  • Latest: rvarona
Stats
  • Total Posts: 643608
  • Total Topics: 48971
  • Online Today: 159
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: An on-going thread  (Read 21485 times)

0 Members and 1 Guest are viewing this topic.

Offline zach

  • Member
  • Posts: 1,599
  • built to last
Re: An on-going thread
« Reply #100 on: June 01, 2014, 08:04:53 AM »
However get me a ton off hash , diazepam, a little champagne and I will diligently work my Way through it , it,s my one thing that I am addicted all things leaf , therefore i buy small amounts and have big gaps between them.

ha! i just knew you were a pothead
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #101 on: June 01, 2014, 08:15:26 AM »
Michael, I discovered I didn't even drink that much.  Both bottles of zin are still corked.  I only had a couple of drinks (vodka and cranberry) at work and then a couple of beers while sitting on the porch. 

Smoking does me in quicker than anything.  I really don't even enjoy it that much.  I imagine a lot of us LTS have used it as script in the past?  When I was deadly sick with the meningitis, my brother brought me some and insisted I use it.  At that point, I couldn't even hold water down, let alone think of eating.  It did allow me quite a bit of comfort and improved my appetite.

Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #102 on: June 01, 2014, 08:26:56 AM »
ha! i just knew you were a pothead
[/quote

OOh like one had to be Sherlock to work that out Son off Colombo , any way I am not a pot head I am a Canaboid Aficionado
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: An on-going thread
« Reply #103 on: June 02, 2014, 07:30:21 PM »
Went to the bone doc's office today for follow up on this "healthy bones" thing his office has.  The nurse practitioner does it.  Anyway had a bone scan a couple weeks ago.  Showed severe osteoporosis, and I will most likely be starting Forteo in the next month.  Hopefully this will help. 

When I was in the office today, my blood pressure was 80/52.  No wonder I have waves of dizziness.  :o
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: An on-going thread
« Reply #104 on: June 02, 2014, 09:52:08 PM »
Hey Betty,

Sorry to hear about the osteoporosis problem. We are starting to do DEXA scans on everyone now. It seems HIV causes bone loss even when well controlled.

I will be getting one soon, myself.

Hope you do well with the new med.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline AusShep

  • Member
  • Posts: 225
Re: An on-going thread
« Reply #105 on: June 02, 2014, 11:11:54 PM »
I've been planning to ask my doc to schedule a full body DEXA scan in my appointment next month.  My current insurance only covers it for 50+, but I think nearly 20 years of HIV and a metric ton of Truvada should get me a waiver. 

My vitamin D levels are good through supplementation, and surprisingly my testosterone is better than it was in 2008 or 2009 when I had a testosterone Rx for several years, maybe the zinc is helping, so I'm hoping things aren't too bad...

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: An on-going thread
« Reply #106 on: June 03, 2014, 02:35:21 AM »
My vitamin D levels are in a good range, also.  And the bone loss seems to be worse in my back than in my right hip (strangely, even though I broke my left hip in Feb). 

I guess this is not surprising.  I've had bone issues in my back, starting with scoliosis, since 1st grade.  Besides the Forteo, weight bearing exercises were of course also recommended. 

In talking with the people at the specialty pharmacy the Forteo is mixed up at, I was told this med could be used no longer than 2 years.  But it's the only one that actually builds up the bones.  I feel like I was given so much info yesterday, especially one about the para-thyroid I'm going to have to re-read, that my head was spinning by the end of the day.

It seems my para-thyroid is abnormal.  I was told this was much different than the thyroid that I take Synthroid for.  I have to have an appointment with an ENT doctor for a scan, to make sure there are no tumors, prior to starting the Forteo. 

Wish me luck with this.  I should be getting a call today with an appointment for the ENT.  I'm surprised my head is clear enough to post this, since it is only 2:35 am here, and I"m up for the day (thanks, insomnia).
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline AusShep

  • Member
  • Posts: 225
Re: An on-going thread
« Reply #107 on: June 03, 2014, 02:55:06 AM »
Dang, that's a lot to take in.  Hope you get clearance from the ENT for the Forteo and get some bone mass back.

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #108 on: June 03, 2014, 07:51:19 AM »
Not the sort off news you want , still a good one to get if that is the case Betty . I am interested in the drug you have been offered , Forteo is it a new one?

It will not be long before I will be taking a Dictaphone to my med meetings , I already jot notes down insitu

So apart from breaking your hip, knees that create agony and osteo how are you dear. Hopefully the universe will start to smile upon thee.SOON
love
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Jeff G

  • Administrator
  • Member
  • Posts: 12,203
  • How am I doing Beren ?
Re: An on-going thread
« Reply #109 on: June 03, 2014, 07:54:08 AM »
Best of luck Betty . When you found out a while back that your hip was not healing properly I think you suspected your bone health was worse than you had initially thought if I'm remembering correctly . I still have to giggle every time you say you are going to the healthy bone clinic ... Don't know why but that cracks me up . 

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #110 on: June 03, 2014, 10:20:45 AM »
I imagine you're not too surprised Betty.  This will be a new wave of issues us oldsters have to deal with.  I've said it enough times that I hope it starts clicking with people.  My dear doctor indicates that he's seeing a large % of patients who are dealing with this issues regardless of the regimen they're taking.

I'm confused about the med you're on.  It's the only one that helps build bone mass?  Then I'm going to ask my doc why the hell I'm on Boniva.  Also, my vit B and calcium levels are fine but I still developed the ole osteo issues. 
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline mitch777

  • Member
  • Posts: 3,596
Re: An on-going thread
« Reply #111 on: June 03, 2014, 11:21:34 AM »
Betty, good luck with all of the bone stuff but I'm wondering about your blood pressure. 80/52 ? What's up with that?
32 years hiv+ (oct. 2013) with a curtsy.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: An on-going thread
« Reply #112 on: June 03, 2014, 07:31:10 PM »
Well, other than the bone issues, I'm okay.  I do have these white bumps on the inside of my mouth, most near the corners of my mouth, which are cracked.  These have not responded to either Diflucan or Nystatin swish and swallow so my doctor wants me to make an appointment.  The inside of my cheeks feel like they're on fire.  Don't know what's going on with that.

Have not heard yet on an appointment for the para-thyroid.  But I'm sure that will happen next week (hearing about the appointment, not the actual appointment).  I was not surprised to hear about the severe osteo.  I know we long term'ers are facing this more and more. 

Mitch, I have no idea what's going on with the low BP.  When I got out of surgery for the hip, it was like 52/30.  They kept giving me more IV fluids in hopes of bringing it up, and then it only came up to like 80/40.  I'm on 1/2 a Lopressor every day, but for heart issues, not BP.  Don't know if that is causing such a low dip or not but if I remember I will discuss with the doctor when I have my appointment.

That's it.  Sorry for such a long post.  If I can get these white bumps gone, the burning stopped, and my bone mass built back up, I will be a happy camper. Oh and Michael, yes, the Forteo is a brand new med.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: An on-going thread
« Reply #113 on: June 03, 2014, 11:20:26 PM »
We have to change health insurance. The company we had is closing down and we have been transferred to Blue Cross/Blue Shield.

Upon discussion with the agent today, I discovered my copays for each of the HIV meds will go to $100 a pop. Same for the Advair I use to try to keep the COPD from getting worse too soon.

All told, my copays will go up to $370 a month in July.

I am less than enthused.

When I asked the rep about it, she suggested I go on the mail order program, that way I could get three months for the price of two copays.

I asked her if she had a spare $740 laying around. She didn't appreciate my humor.

I spoke with my doctor. He didn't know what to do either, with the exception of possibly dropping my COPD med.

I guess I can try it and see what happens.

I have a coupon for the Isentress that is good until October. I am not sure if it will be renewable, but it would help with one of the copays. That will still leave me at $270 a month.

I am going to try to qualify for the insurance assistance program through the state. I make more than usually allowed, but sometimes they will make an exception for those facing a hardship.

If that doesn't work, I will have to do some severe belt tightening and probably still have to cut out some of the meds.

I am so tired of dealing with this stuff. I just went through several months of trying to get people either on Medicaid or covered through HIX.

Now, if nothing gives, I will be looking at doing with a lot less and, in some cases, doing without.

What the hell, breathing is overrated anyway.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: An on-going thread
« Reply #114 on: June 04, 2014, 03:27:22 AM »
Wow Mark, that's awful.  It should be illegal to charge such a high co-pay for meds.  I hope you're able to renew the Isentress card.  Is there any type of help you can get with the Advair? 

I hope something is able to be worked out.  I hope you're able to get help through the state.  Good luck and please let us know how things work out. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #115 on: June 04, 2014, 09:33:24 AM »
Mark I am sorry and angered at the cruel situation you find yourself in and it is horrible irony that it comes after your own work to secure a degree off care for your clients.

It seems just intolerable that any Health company can close without any effort to cover there client group, still my disbelief is not going to help you get back your enjoyment in breathing , which I see as top priority for all of us.

Keep on Posting to us Mark , if only to argh!!! and vent , I hope that a workable solution is discovered , wish I had some knowledge off the US system , other than it seems hugely complicated and differs from state to state.

Take great care off yourself Mark , lots of love
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Jeff G

  • Administrator
  • Member
  • Posts: 12,203
  • How am I doing Beren ?
Re: An on-going thread
« Reply #116 on: June 04, 2014, 11:36:24 AM »
Mark ... I am so sorry you are going through this ... its brutal and unfair . Getting healthcare and providing for myself has been a lifetime struggle for me so I feel for you and understand what this means and what you are up against . There is not much I can say that can change your circumstance but please know you are in my thoughts .

Offline Jeff G

  • Administrator
  • Member
  • Posts: 12,203
  • How am I doing Beren ?
Re: An on-going thread
« Reply #117 on: June 04, 2014, 02:54:49 PM »
I just had lunch with Alanbama and Layne ... We discussed all of our LTS stuff like where does it hurt ... all over is the same answer to the same old story .

If we were not able to laugh about it a little it would be truly sad . I see allot of us struggling with the same issues, we have to go see specialist to find out if the fatigue and pain are caused by something new or is it a nasty cancer that's making life miserable .

We can appreciate the fact that we are grateful just to be alive and cope with the fact we have been damaged and try to keep laughing and smiling when we find our new normal and quality of life has been chipped away at the edges again .

We had a very good visit and its great to be around my fellow LTS friends who are able to talk about these things and not feel burdened by it all because even though we are damaged we know damn well we are the lucky ones who are still here and still kicking .

Not trying to be vague or talk in riddles but I just bet some of you know exactly what I am saying .   
« Last Edit: June 04, 2014, 03:00:07 PM by Jeff G »

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #118 on: June 04, 2014, 03:08:07 PM »
I just had lunch with Alanbama and Layne ... We discussed all of our LTS stuff like where does it hurt ... all over is the same answer to the same old story .

If we were not able to laugh about it a little it would be truly sad . I see allot of us struggling with the same issues, we have to go see specialist to find out if the fatigue and pain are caused by something new or is it a nasty cancer that's making life miserable .

We can appreciate the fact that we are grateful just to be alive and cope with the fact we have been damaged and try to keep laughing and smiling when we find our new normal and quality of life has been chipped away at the edges again .

We had a very good visit and its great to be around my fellow LTS friends who are able to talk about these things and not feel burdened by it all because even though we are damaged we know damn well we are the lucky ones who are still here and still kicking .

Not trying to be vague or talk in riddles but I just bet some of you know exactly what I am saying .   


Oh yes indeedee Plain as a Pikestaff understand 100%toe gotcha erhuh without a doubt YES.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #119 on: June 04, 2014, 04:45:52 PM »
That's a most excellent sentiment Jeff.  I imagine a lot of LTS laugh about a lot of what we deal with as it certainly beats the alternatives.  In a selfish way, it's comforting to know others suffer the same ailments as it indicates it's not a unique individualized problem.

I try to put it into perspective whenever I start to bitch and complain.  All I have to do is remember the beautiful faces of all those I lost at such a young age. 

I do get to mention a new issue I had last night.  After several hours of working, my feet started aching badly.  I kept working and then it started to feel like fire ants were biting me all over my feet.  It's lessened a bit today but a little burning sensation remains.  I might just take it easy for a while and see if it's something I can dismiss as an anomaly.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 12,203
  • How am I doing Beren ?
Re: An on-going thread
« Reply #120 on: June 04, 2014, 04:59:46 PM »
That's a most excellent sentiment Jeff.  I imagine a lot of LTS laugh about a lot of what we deal with as it certainly beats the alternatives.  In a selfish way, it's comforting to know others suffer the same ailments as it indicates it's not a unique individualized problem.

I try to put it into perspective whenever I start to bitch and complain.  All I have to do is remember the beautiful faces of all those I lost at such a young age. 

I do get to mention a new issue I had last night.  After several hours of working, my feet started aching badly.  I kept working and then it started to feel like fire ants were biting me all over my feet.  It's lessened a bit today but a little burning sensation remains.  I might just take it easy for a while and see if it's something I can dismiss as an anomaly.

One thing we talked about was how we can't afford to assume new symptoms are from old injury's and we have to get it checked out ... but I see it all too often how nerve damage and pain with fatigue are a common LTS experience .

I tell you what I really feel bad about and that is what Mark posted today ... that really hits me in a very personal way when I hear about him spending his whole adult life getting people the care they need and end up being pushed out of treatment options simply for working... and its a sad irony that he is going to have to do without meds that he makes sure others can get  ... its just so fucked up and makes me spitting mad .

The same old crap that happened to Betty when she made a few measly $$$ than the limit and lived for over a year waiting to find out if she was going to have healthcare and income the next month . end rant .

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #121 on: June 04, 2014, 05:41:52 PM »
It makes me wonder where are the investigating journolists now? You get them POSTING on the trawl for sensationalist lies , material that is happening gets completely ignored .
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline mitch777

  • Member
  • Posts: 3,596
Re: An on-going thread
« Reply #122 on: June 04, 2014, 06:09:48 PM »
Feeling beat today once again and reading this thread hits home. Not much to add to what's been said. Jeff described it best, being chipped away at the edges. Humor keeps me going.

I too am mad as hell about Mark's situation. Shame on this country for allowing it to happen.

...And I'm still worried about Betty's blood pressure let alone her new mouth issues.

Greg, hope it was just an odd day for your tootsies.

Glad you had a nice day with Alan and Layne.

I had a date with a snapping turtle in the pond today. Took all day but he/she has found a new home on the other side of the river.

32 years hiv+ (oct. 2013) with a curtsy.

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: An on-going thread
« Reply #123 on: June 05, 2014, 04:53:40 AM »
We all have to keep humor in mind it seems.  Mitch, don't be concerned about my blood pressure.  My mouth seems stable at the moment. 

I also am very pissed off about Mark's issue.  I would only hope someone there would step up and try to help him as he's helped so many others.  Like Theyer said, where is the reporting?  These stories need to get out.

Since starting the women's support group, one of the ladies I have become close with is a LTS'er, and is blind from CMV.  However, she lives by herself, is independent, even wears beautiful outfits.  I asked her how she puts her clothes together, if someone comes over to help her.  She said no, she tells by the feel.  I have no idea how she does it.  Blindness has always been a fear of mine, I can't imagine living alone being blind, not being able to see what's going on. 

I guess we never know what we can deal with until it's dealt to us.  I always think "I can't take on anything else," until something else happens, and I think "well, what other choice do I have besides to deal with it."  It gets so tiring, but as you all have said, it beats the alternative.

I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline harleymc

  • Member
  • Posts: 231
Re: An on-going thread
« Reply #124 on: June 05, 2014, 05:41:41 AM »
Betty sorry to hear about your osteo issues.
Mark sorry to hear your insurance scheme is leaving you so out of pocket.


Offline harleymc

  • Member
  • Posts: 231
Re: An on-going thread
« Reply #125 on: June 05, 2014, 05:51:19 AM »
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #126 on: June 05, 2014, 07:59:54 AM »
Mark, so sorry I missed your post....that is absolutely freaking awful.  I certainly hope they make some sort of concession for you.  How horrible to have to deal with this after all you've done to assist others.

This is another prime example of why it's difficult to chose to work instead of relying solely on SSDI.  Made that mistake in the past and it scares the heck out of me at the thought of ever loosing access to medication.

huge hugs buddy
greg
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 12,203
  • How am I doing Beren ?
Re: An on-going thread
« Reply #127 on: June 05, 2014, 09:03:30 AM »
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!

That is horrifying . I was thinking how awful the be assaulted with a cleaver or knife ... Here in America that probably would not happen, you and your friend would have been shot and killed most likely . There is no rational way to compare the two but the thought of getting knifed is really frighting to me . I got stuck with something in Chicago when I was mugged but it was a pin knife and didn't even bleed that much . The police said I was lucky because if the guys had a gun it would have been the end of me   ... I'm happy you were able to dodge the assault and I'm afraid you would not have been so lucky here ... very sad .   

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: An on-going thread
« Reply #128 on: June 06, 2014, 07:24:00 AM »
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!

My God, that's horrible.  So glad the idiot missed you all.  That would most likely keep me inside for a couple weeks. 

I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline mitch777

  • Member
  • Posts: 3,596
Re: An on-going thread
« Reply #129 on: June 07, 2014, 01:16:05 PM »
Last Thursday I'd been to "The Quarterly" a 4 times a year get together for Poz folks in Sydney.

I was walking back to the train station afterwards with another LTS. There was a guy approaching from the opposite direction and at about 2 meters / 6 feet distance I notice a reflection off metal. I pushed my friend Paul to the side as the stranger swung at him and the meat cleaver (as we later discovered it was)  missed Paul by about 15 cm/ 6 inches.

I called the cops, they caught their man trying to hold up a liquor store a few minutes later. No one hurt so it's all good.

Sometimes it's good to walk with a friend!

Yikes!! Glad you had the wits to see it coming! I think I would have just fainted.
32 years hiv+ (oct. 2013) with a curtsy.

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: An on-going thread
« Reply #130 on: June 07, 2014, 01:58:50 PM »
Wow, that must have been scary. I am glad you hjad the presence of mind to both detect it and act.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline AlanBama

  • Member
  • Posts: 3,642
  • Alabama: the 'other' 3rd World Country!
Re: An on-going thread
« Reply #131 on: June 07, 2014, 05:28:20 PM »
Mark, I am appalled that this is happening to you.   As we've discussed, every year that passes our healthcare situation seems to get WORSE.   Like Jeff, I am very P.O.'d that you are having to face this.   It is so WRONG, on so many levels.

Meanwhile, I have been reading my POZ magazine 20th anniversary issue.  Seems that everyone is a "somebody", in the world of HIV/AIDS.   Well, here's a message from a "nobody" -  we've gone through it the same as every one of you, without our photos in magazines and articles written about our "amazing survival".  We go about our business, the business of surviving, day in and day out, with little help and no recognition or accolades about our "grand accomplishments".  Sorry if I sound a little bitter, but I think I'm entitled to it.

I'm missing the voice of Daddy Tim here, and Lisa, and Ric, and RAB -- and all those we have lost along the way.

Jeff, it was so good spending time with you.  We both love you, my friend.   Mark, all I can say is I am thinking of you, and wishing you nothing but the best, always.  Know that you are much loved and respected. 

Keep the faith, keep fighting back.   We may go down, but let's go down swinging.

Alan 
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline aztecan

  • Member
  • Posts: 5,399
  • 29 years positive, 57 years a pain in the butt
Re: An on-going thread
« Reply #132 on: June 07, 2014, 10:19:40 PM »
As Alan just said, I have no intention of going down without a fight.

To wit, I have decided what is sauce for the goose is sauce for the gander.

I completed enrollment paperwork to enroll myself in the agency for which I work.

This sounds really bizarre, but, with new increased income limits, I can qualify.

I also spoke to my supervisor, who agreed to write the hardship letter to the state to allow me to have assistance for my med copays.

There are still no guarantees, but it is still worth a shot.

HUGS,

Mark
« Last Edit: June 07, 2014, 10:22:16 PM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Jeff G

  • Administrator
  • Member
  • Posts: 12,203
  • How am I doing Beren ?
Re: An on-going thread
« Reply #133 on: June 07, 2014, 10:27:30 PM »
Thanks for the update Mark ... you have been on my mind .

Offline AlanBama

  • Member
  • Posts: 3,642
  • Alabama: the 'other' 3rd World Country!
Re: An on-going thread
« Reply #134 on: June 08, 2014, 03:27:26 PM »
Mark, I hope your enrollment is approved, and that this works out as a solution for you.

Unfortunately, we gotta have those MEDS !!! 

HUGS,  Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline BT65

  • Global Moderator
  • Member
  • Posts: 9,975
Re: An on-going thread
« Reply #135 on: June 09, 2014, 05:51:35 AM »
Good luck, Mark.  I don't see any reason why you shouldn't be eligible for assistance through your ASO, whether you work there or not.  You're an HIV consumer.  Please let us know how it goes.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #136 on: June 09, 2014, 09:14:45 AM »
It most certainly is worth a shot Mark , Good luck with it all
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #137 on: June 09, 2014, 10:17:53 AM »
I would be shocked if they didn't figure out a way to make you qualify Mark.  In the mean time, I can spare some of my back-up supply.  We're on the same meds and I have plenty if you need something to hold you over until the process is completed.

I also really need to focus on logging out of the dang computer.  Haven't been around for a couple of days and realized I was still active. ;D
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #138 on: June 15, 2014, 05:58:58 AM »
Have been working feverishly to get my new place ready to move into.  Luckily, my beloved former hairdresser (Mrs. Karen) spent the entire week helping me finish the damn painting and all the little things.  She's my former hairdresser as I no longer anything more than complete buzzes that I can do myself with my dog trimmers.  :)

For 6 months now, every time I entered the damn master suite, I became overwhelmed at the amount of work to be done.  A complete tear out to the joists with having to redo the work that I paid a "contractor" to do.  Another "you get what you pay for" lesson.

I think I'm still on schedule to be completely in before the end of the month so I can throw a birthday party for myself.  The last one in my 40's.  Not too bad considering what I was told on the day I tested positive; "I could possibly live to be 30 if everything goes well".  That statement has stuck in my brain like a nagging hourglass, slowly waiting for the sands of time to run out.

Thankfully, advancements in research has allowed my hourglass to be refilled many times.  :) 

Mrs. Karen gave me the strangest look when I indicated that I'd repaint the place after I got settled.  Being color blind, you'd think I wouldn't be able to tell the color of the place.  Well, I can't and the gray on gray walls look too blue on blue. 


Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Miss Philicia

  • Member
  • Posts: 24,229
  • celebrity poster, faker & poser
Re: An on-going thread
« Reply #139 on: June 15, 2014, 07:12:11 AM »

I think I'm still on schedule to be completely in before the end of the month so I can throw a birthday party for myself.  The last one in my 40's.

You're younger than I am? Impossible.
"Iíve slept with enough men to know that Iím not gay"

Offline weasel

  • Member
  • Posts: 1,686
Re: An on-going thread
« Reply #140 on: June 15, 2014, 07:36:58 AM »
Have been working feverishly to get my new place ready to move into. 

I think I'm still on schedule to be completely in before the end of the month so I can throw a birthday party for myself. 

   Good luck with that   :)
     That is very exciting !   Hope it's a great party !!!!   I'm heading into a new decade in August , starts
 with a 6  :o
   Speaking of color !!!!! My niece had as stroke when I suggested painting the inside of the kitchen french
  door " Cantaloupe "   It looks lovely  ;D   

      I've finally got Kitchen cupboards up @ThebeachHouse  ;D   
   Only the uppers .   The new  solid Oak floors go in on the 18th !    We are working feverishly on getting
   all painting done ; then we need to place all the appliances on the deck  , the flooring guy says one day
 to do the whole house   . It's little .   I will get a break from traveling 90 miles a day to work , but will be painting all the cabinet doors . The floors need three days to cure , when we are ALL done they will come back and put a final coat of glopp on the floors .
    Have to order the counter tops  this week , I REALLY doubt that installing them will  be my project  :-\
  I am so tired and achy , the thought of driving back to Missouri sounds dreadful  :(

                                                        It's 7:30 AM Sunday !

                                                          Waiting on my twin to wake so we can go go go

                                                                                                 Carl

   P.S.  Bob says my pool looks wonderful  ;)  ..... and I need to mow .....
" Live and let Live "

Offline leatherman

  • Member
  • Posts: 6,273
  • Google and HIV meds are Your Friends
Re: An on-going thread
« Reply #141 on: June 15, 2014, 09:14:35 AM »
A complete tear out to the joists with having to redo the work that I paid a "contractor" to do.  Another "you get what you pay for" lesson.
ah! no wonder you wanted me to come up and "visit". After the front-wall-to-back-wall remediation/remodel we did here, I have the skills. Although when I didn't have the skills, I did have the most awesome contractor - my baby brother! We still have the two bathrooms to finish up at some point; but I'll be able to do most of the work in those rooms - except for the showers.

" Cantaloupe "   It looks lovely  ;D   
sigh! My mom and I have had some serious arguments during the last of this remodeling, which are basically me "explaining" that white, cream and beige are NOT colors. Cantaloupe (which are very yummy) sounds beautiful!

in other news, I'm still UD but my tcells fell below 300. sigh!
It's going to be hotter than blue blazes this week, so I'll be over at the water park in Carowinds a lot!  8)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #142 on: June 16, 2014, 04:51:06 AM »
Oh no Carl, I painted all the 6 panel doors a bright high gloss white along with all the trim.  :)  I would NEVER put color on such things.  Hopefully you'll get the project done soon.  I know how much you've been dealing with.  Isn't cantaloupe like yellow?  I've had to try and stay neutral in case I decide to sell this place in the future.

@ Mikey, I still have the 3rd bedroom to finish.  After you get your remodeling done, your visit will be greatly appreciated and we can knock out my last room in no time and then enjoy a great visit.  ;)

I purposely decided to misbehave last night.  I drank things I've never heard of before and smoked some much needed medication.  I was so far out there and it felt great to numb myself beyond all cognition.  :)  Still trying to piece things together ie...why did I undress on the deck?  Did I pretend I was young and decide to streak like it was the 70's?  Did I have company who brought all these Coors lite beer cans?  I guess it sometimes is better to not remember all the details....lol
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Miss Philicia

  • Member
  • Posts: 24,229
  • celebrity poster, faker & poser
Re: An on-going thread
« Reply #143 on: June 16, 2014, 07:52:14 AM »
Still trying to piece things together ie...why did I undress on the deck?  Did I pretend I was young and decide to streak like it was the 70's?  Did I have company who brought all these Coors lite beer cans?  I guess it sometimes is better to not remember all the details....lol

You became so messy you took off all of your clothing? Charming.
"Iíve slept with enough men to know that Iím not gay"

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #144 on: June 16, 2014, 07:59:10 AM »
You became so messy you took off all of your clothing? Charming.

Like most of us haven't gotten blitzted and taken off clothes?.... :)
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: An on-going thread
« Reply #145 on: June 16, 2014, 09:44:47 AM »
ON Friday night I  broke/cracked my left rib on bathroom tub ledge must off past out after getting up from Lav, off my face thankfully at the moment, can walk with two sticks but opiates do not aid my posting . Feels better than yesterday but I am still crying out coz it hurts so .dam it .

Quite Michael on FORUMS while he is so medicated
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Miss Philicia

  • Member
  • Posts: 24,229
  • celebrity poster, faker & poser
Re: An on-going thread
« Reply #146 on: June 16, 2014, 09:54:08 AM »
ON Friday night I  broke/cracked my left rib on bathroom tub ledge must off past out after getting up from Lav, off my face thankfully at the moment, can walk with two sticks but opiates do not aid my posting . Feels better than yesterday but I am still crying out coz it hurts so .dam it .

Quite Michael on FORUMS while he is so medicated

That sounds awful. Please take care.
"Iíve slept with enough men to know that Iím not gay"

Offline zach

  • Member
  • Posts: 1,599
  • built to last
Re: An on-going thread
« Reply #147 on: June 16, 2014, 02:23:00 PM »
i now realize, the bathroom is trying to kill us all
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline Joe K

  • Global Moderator
  • Member
  • Posts: 3,797
  • 31 Years Poz
Re: An on-going thread
« Reply #148 on: June 16, 2014, 02:27:25 PM »
i now realize, the bathroom is trying to kill us all

Zach,

This forum is for members who tested poz PRIOR to 1996 only.  No harm done, but please do not post in this forum anymore.

Thank you for your cooperation.

Joe

Offline wolfter

  • Member
  • Posts: 4,650
Re: An on-going thread
« Reply #149 on: June 16, 2014, 04:31:18 PM »
Damn Michael, that is dreadful.  They can't even do anything for broken ribs and it takes so damn long to heal.  And definitely remember, even when the pain subsides and you think you're healed, you still have to be cautious for about 2 months.  I was a month into recovery with a broken rib when I reinjured it had to start the healing all over again.

take care and best wishes
greg
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.