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Author Topic: Newly pos dx but still have questions, test results not making sense  (Read 559 times)

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Offline JayBush

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  • Posts: 4
I was tested pos back in Dec however my dr cannot explain my rare test results so I am hoping maybe someone here can offer advice?

My antibodies test came back reactive
My antigen p24 (which I am told is the Actual virus) was non reactive
RNA <20, <1.3 copies per ml
genotyping indeterminate (which dr said makes sense bc no antigen was found)
All of Cbc results were normal wbc/rbc/lymphs counts
Cd4 is 1810- yes that is correct, extremely high

At first my dr said he assumes I'm showing a false positive but then since they still can't figure it out he's now changed to I must have but my system is supressing extremely well which is almost unheard of.  He may even want me to go to special testing with a bigger university/hospital.

I haven't started treatment since I'm showing as undetected.

Has anyone else heard of such an odd thing?

Thanks for any help :)

Offline JayBush

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  • Posts: 4
Re: Newly pos dx but still have questions, test results not making sense
« Reply #1 on: February 03, 2015, 05:52:25 PM »
Just to clarify I have not started treatment per dr advice.  I've also spent over $1600 in testing to be getting nowhere, it's quite frustrating :(

Offline AusShep

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  • Posts: 320
Re: Newly pos dx but still have questions, test results not making sense
« Reply #2 on: February 03, 2015, 10:46:13 PM »
What country are you in?  Are you seeing an Infectious Disease (ID) doctor?  Has HIV been confirmed with Western Blot or anything else since your viral load is undetectable?  It doesn't sound like your Dr has given you a definitive HIV diagnosis yet.

Lack of p24 isn't a big deal, it is often undetectable after seroconversion, and if you really do have antibodies, that ship has sailed.  Sometimes p24 won't show up again until late in an untreated infection, such as those diagnosed at the AIDS stage via a hospitalization.

What's the plan for retesting VL or confirming HIV?

Offline JayBush

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  • Posts: 4
Re: Newly pos dx but still have questions, test results not making sense
« Reply #3 on: February 04, 2015, 12:04:17 AM »
I'm in the US, yes seeing an infectious disease dr.  I've had a million different tests done and all come back the same that's why it's so confusing to them.  They Are all reactive to the antibody but not the antigen (actual virus).

Forgot to mention above that I would have had to contract at least 5+ years ago as my fiancÚ now tested negative and we have been with no one else and together 4 years. So it seems really odd to me to have non detected virus and such a night Cd4 if really had for so long?

Next apt is in a couple weeks to have counts checked again to see if any different.

Offline AusShep

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  • Posts: 320
Re: Newly pos dx but still have questions, test results not making sense
« Reply #4 on: February 04, 2015, 01:11:01 AM »
I think you just need to clarify with your Dr what tests they're running and get copies of the results.  As I said, no p24 is not a big deal, especially if it's not a new infection, so the fact that anyone is confused about that is strange.  p24 was absent on my last test.

Here's some data and a quote from that page:
http://mobile.aidsmap.com/p24-antigen/page/1322964/

Antibodies to p24 are produced during seroconversion, rendering p24 antigen undetectable after seroconversion in most cases. Therefore, p24 antigen assays are not reliable for diagnosing HIV infection after its very earliest stages.

I'll pop out of this thread now until your Dr tells you what's going on or categorizes you as as an elite controller or something.
 

Offline JayBush

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  • Posts: 4
Re: Newly pos dx but still have questions, test results not making sense
« Reply #5 on: February 04, 2015, 01:55:43 AM »
I had the western blot confirmatory test done a couple times so thats where the pos result came from.
Thanks for the info on the other, since I'm so new I don't really know a whole lot.

Offline zach

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  • Posts: 2,215
Re: Newly pos dx but still have questions, test results not making sense
« Reply #6 on: February 04, 2015, 02:27:03 AM »
Well, did the Western Blots confirm a positive diagnosis? If so, I'm very sorry to say, you are HIV positive. The roller coaster of up and down labs on any number that may follow can confound everyone, but doesn't change that fact.

Welcome to the boards. :-)

Sounds like your baseline CD4 level is high. You're probably young and physically fit? That is certainly a good place to start from. Bodes well for the future.

Things are going to be ok. Take it as it comes, and post anything you need in here.


An honest tune with a lingering lead has taken me this far

 


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