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Author Topic: Zach's in the Hospital  (Read 9945 times)

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Offline tednlou2

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Re: Zach's in the Hospital
« Reply #50 on: March 30, 2014, 11:00:09 PM »
Head bolted down and a mask?  That would be like torture.  You are a strong person to get through that.  I've had a few-- for back and pneumonia.  I had to take some Xanax for the back scans.  I never got the music some say they got. 

The one for the pneumonia was the worst.  I had pleuritic effusion around the lung that hurt worse than the back surgery.  It took all I had to lie still with the pain, on top of breathing issues, on top of the anxiety of being in the tube.  They did not want me to have any sedative, since I had breathing problems.  I just had to try to take my mind someplace else.  I can't imagine having my head restrained and a mask over my face.  You are one tough fighter to just get through that.

I guess the open-sided are not as effective or much more expensive, and that's why the majority are still the tube.

Offline zach

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Re: Zach's in the Hospital
« Reply #51 on: March 31, 2014, 05:08:32 AM »
Am I, with TB, seems the million dollar question. My question, based on limited internet research. How does an antisocial shut in that avoids people, acquire TB? Can it be environmental, say from house mold or something

I really wish I got a picture of that head cage. Like silence of the lambs. What a cool avatar that would have been
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: Zach's in the Hospital
« Reply #52 on: March 31, 2014, 06:22:19 AM »
Glad you are keeping a positive (pardon the pun) attitude and sense of humor about things Zach - that goes a long way toward a successful recovery.

Thank you for providing updates on how you are doing.

I have been keeping you in my thoughts.

So, if you dream of palm trees and sandy beaches, just know that someone in Florida is thinking about you and wishing you a speedy and full recovery.

Phil
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Ann

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Re: Zach's in the Hospital
« Reply #53 on: March 31, 2014, 06:31:36 AM »

How does an antisocial shut in that avoids people, acquire TB? Can it be environmental, say from house mold or something


Not environmental per se, but in the UK people have been contracting it from pets.

Cat to human TB link

I don't know if there have been any pet-to-human cases in the US.

TB does usually require close contact. "Close contact" in this case can mean close enough to inhale expelled tiny droplets of sputum when an infected person coughs - which is actually up to several feet away.

However, it can lie "dormant" for years without a person knowing they have it. That's why you have to get a TB test (here in the UK anyway) if you're going to be working with the public in any type of health or child care setting. They're looking for asymptomatic TB.

One environment-associated lung problem that you can have problems with is aspergillosis, caused by a fungus found in most homes. I had a mild case of that once (pre-meds) and mild was not nice, so I'd hate to have a bad case of it.


Have they said anything yet about when you can get back on hiv meds? Soon I hope!

Huggles....
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Theyer

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Re: Zach's in the Hospital
« Reply #54 on: March 31, 2014, 07:59:34 AM »
Theyer, I have no idea what some of what you say means, knackered is tired? Yeah, mri sucked. Halo cage with bolts keeping my head from moving, and a mask. A lot like torture. I can leave my room, even leave the floor but still have to wear the mask outside my room. Best they'll say about the TB, nonagressive. Still giving sputum samples, think they'll liked one I just coughed up. They still may knock me out tomorrow, go down my throat and take a p piece of lung. They aren't playing, I get how serious tb is

Welcome to my world with a portion off aidsmed. I did think about using plain old tired but then thought naw he,s bored what better time to expand knowledge off international colloquiums . Zach I am in no doubt that your understanding of TB and a whole lot more is tip top , sorry if in some way I implied it was not.

As to how a shut in gets it well I have heard the same story twice while in Hospital , all I know is that there is a significant % off folk with low T cell HIV who develop symptoms and that TB generally is making a steady rise up the charts again. Often from what I have read the environmental aspect off TB is down to factors such as density off population numbers , therefore greater numbers per 100000 in Urban areas than rural . And from what I understand the reason the numbers are higher for Urban poor is because there health is generally lower and that's what TB likes to have to go from inactive to active , physical density greater so transmission is easier. the pet human transmission route is a new one to me . Though as I live for part off the year surrounded by cows , and that is a exact description , Bovine TB is dreaded by the Farmers and there herds are regularly checked for it , I have not heard that cow to human is a route.

Anyway that's more than enough TB for one Post, especially when there are folk waiting with baited breath wondering is Zach getting his Porn yet ? did Intaglio rerouting instructions work ?   

I am just gob - smacked daft that you have enough energy to  think off Porn ,

All the very best to you Zach
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline zach

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Re: Zach's in the Hospital
« Reply #55 on: March 31, 2014, 09:16:47 AM »
Well, MRI pics are fascinating. Brain has a shadow spot I can sort of see. No theories on what type ofk infection. Something on spine,  signed lumbar puncture consent. Had to do something fun today, why not a spinal tap. Lung did not look good at all. Whatever it is, won't be good. One freakishly large cavity, a few smaller ones. Broncoscope moved to in the morning. Lung Dr will be talking to me today.

So, maybe eight or more weeks of treatment. Maybe survivability %s. Maybe maybe, maybe sometime this week they'll move from tests and theories to diagnose and treat.

They were surprised I led a house build two weeks ago. Didn't believe I was up and active

Youtube softporn booty shaking vids. Brilliant! Trazadone gives you wood, who knew. Bwahahaha

gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline zach

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Re: Zach's in the Hospital
« Reply #56 on: March 31, 2014, 10:59:55 AM »
Ladies and gentlemen, and every tranny I've ever loved.

THIS IS SPINAL TAP!!!

Dr is gonna trip when she hears the soundtrack for this procedure.
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline mitch777

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Re: Zach's in the Hospital
« Reply #57 on: March 31, 2014, 11:09:47 AM »
Ladies and gentlemen, and every tranny I've ever loved.

THIS IS SPINAL TAP!!!

Dr is gonna trip when she hears the soundtrack for this procedure.

too funny. 

31 years hiv+ (oct. 2013) with a curtsy.

Offline Jeff G

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Re: Zach's in the Hospital
« Reply #58 on: March 31, 2014, 11:12:35 AM »
Ladies and gentlemen, and every tranny I've ever loved.

THIS IS SPINAL TAP!!!

Dr is gonna trip when she hears the soundtrack for this procedure.

Don't forget the zucchini when they scan you again . 

Online Buckmark

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Re: Zach's in the Hospital
« Reply #59 on: March 31, 2014, 11:27:40 AM »
When I go for my spinal taps lumbar punctures for chemo, the tech always asks me if I want to listen to any music from her iPod.  She listened to alt-metal typically -- not the most soothing  :o   I always wanted to ask her if she had any show tunes.   ;)   But she already has my number:  at my last LP, she proudly announced she had been to her first gay bar, had a great time, and if there were any others I'd recommend.  This from a married woman with *5* children.   ::)

Anyways, don't fret the LP -- it just sounds way worse than it is.  But do make it a point to rest in bed (horizontal) to avoid any post-LP headache.

"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline zach

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Re: Zach's in the Hospital
« Reply #60 on: March 31, 2014, 12:44:11 PM »
Five attempts, not as bad as my back tattoos. But no joy for fluid. So, tomorrow, trying again with some sort of imaging procedure at the same time

Dr says she'll hook me up with good pain meds in a minute. I guess I was very patient, maybe they say that to all the girls

When my first son was three days old, I held him, his body taped to a board while they did this. He looked me in the eyes, screaming murder. He made it, I'll make it again
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline zach

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Re: Zach's in the Hospital
« Reply #61 on: March 31, 2014, 12:47:32 PM »
And buck, women love gay bars, universal truth
. My exwife and I used to go. She was REALLY into it
« Last Edit: March 31, 2014, 12:51:22 PM by zach »
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Offline zach

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Re: Zach's in the Hospital
« Reply #62 on: March 31, 2014, 05:13:17 PM »
They went ahead and did it again. Success. Fluid was clear, that's good at least. Hope labs on it are good news too. Should have asked what the record number of tries is. I'm going for excellence here. And the nice nurse shot me with morphine, twice, I love her

Feels like it's all starting to happen now. Good or bad, let's get it on
gonna go up to the mountain, for to find a little peace
looking over the valley, for the beauty i see
out across the hills, forevermore

Online buginme2

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Re: Zach's in the Hospital
« Reply #63 on: March 31, 2014, 05:18:36 PM »
You either have the patience of a saint or they are giving you some good drugs.  Six attempts at a lumbar and your still in good spirits. 

Hang in there

Offline BT65

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Re: Zach's in the Hospital
« Reply #64 on: March 31, 2014, 05:29:35 PM »
You're amazing Zach!  You're continuing on in my daily anxieties.  :-*

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline mitch777

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Re: Zach's in the Hospital
« Reply #65 on: March 31, 2014, 05:45:48 PM »
Funny, I just called my doc this morning to find out when my appointment is for my LP. 6 tries? hmmm...

Sleep tight Zach and keep on the good side of that nurse.



31 years hiv+ (oct. 2013) with a curtsy.

Online Buckmark

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    • Henry's Home Page
Re: Zach's in the Hospital
« Reply #66 on: March 31, 2014, 06:17:42 PM »
Zach,

It took them 6 attempts for your LP?  Amateurs!  They should have a fluoroscopy machine available in the room so they can get a precise picture of needle placement -- shouldn't need to poke you more than once.  They had trouble getting spinal fluid out of me a couple of times, so the doc had me roll over from my stomach to my side *while* the needle was in me.  Doh!   Not painful, just anxiety-inducing.

I'm glad they got your fluid, and that it is clear, and that you received some great pain meds.

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline zach

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Re: Zach's in the Hospital
« Reply #67 on: March 31, 2014, 07:46:25 PM »
Is that what that was called. Learned a lot today. Weird thing is, she said they were running into scar tissue, she popped through that under the flower scope. That delt likek the best back crack of my life. Asked when I'd broke my back? Never as far as I know
    gonna go up to the mountain, for to find a little peace
    looking over the valley, for the beauty i see
    out across the hills, forevermore

    Offline Jeff G

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    • How am I doing Beren ?
    Re: Zach's in the Hospital
    « Reply #68 on: March 31, 2014, 07:54:17 PM »
    Is that what that was called. Learned a lot today. Weird thing is, she said they were running into scar tissue, she popped through that under the flower scope. That delt likek the best back crack of my life. Asked when I'd broke my back? Never as far as I know

      You are far to young to be made of gristle  ;) .

      Offline Theyer

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      • Current ambition. Walk the Dog .
      Re: Zach's in the Hospital
      « Reply #69 on: April 01, 2014, 07:08:30 AM »
      Is that what that was called. Learned a lot today. Weird thing is, she said they were running into scar tissue, she popped through that under the flower scope. That delt likek the best back crack of my life. Asked when I'd broke my back? Never as far as I know

        I am pretty sure you would remember breaking your back but I am beginning to wonder if you have ever felt physical pain Zach . You continue to amaze . Clear fluid very good news . Henry,s LP device sounds very high tech .My Ist LP was at a week-end newly qualified Doctor it was traumatic for both off us ,by the end he was covered in a sweat. Decent bloke though as he came to check on me next day. Keep on keeping on .
        "If we can find the money to kill people, we can find the money to help people ."  Tony Benn

        Offline Jeff G

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        Re: Zach's in the Hospital
        « Reply #70 on: April 01, 2014, 09:45:17 AM »
        I had a LP when I was about 6 and all the adults were so freaked out they had me terrified . They also had me convinced that if my head left the pillow my head would explode .

        It took me about 45 minutes after the procedure to realize I could have any thing in the world I wanted that could be dragged into a hospital bed and I went for it with gusto .

        Zach ... Thanks for all the progress reports, you are really handling whats before you in such a way its inspiring .   

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #71 on: April 01, 2014, 10:07:26 AM »
        All the good drugs wore off last night. Nurse woke me at fkn 3am to change out my IV. Back soreness came flooding in. No food or drink today, Broncos thing later

        I'm on like the 12th floor, have an awesome view of east Atlanta, the old mill, and cabbagetown. Two red tailed hawks gotta be nested just above, been watching them fly all morning

        The updates are as much for me as you guys. Gives my sanity something to do. And when I get out, I can put it all back together. I figured out SSs game, I'll kill them with paperwork
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #72 on: April 01, 2014, 10:16:03 AM »
        And hey. I'd be a remiss asshole if I didn't say this.

        Thank you Tim.

        I wouldn't be here if it wasn't for him. All my hassles with IDP, went away with one well placed phone call. And even getting such a great Dr over there, I think had Tim's finger in it.

        His family is facing their own issues right now, but he still took the time to make it happen for me

        I owe you a hug man
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #73 on: April 01, 2014, 01:58:25 PM »
        Bronchoscopy was nothing. Await test results from that

        In good news, negative for cryptococcus or any other meningitis.

        I keep waiting for the axe to fall with bad news. I'm sure that's the last step
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline Jeff G

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        Re: Zach's in the Hospital
        « Reply #74 on: April 01, 2014, 02:09:57 PM »
        That's a good report so lets go with it ! .

        Offline Theyer

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        Re: Zach's in the Hospital
        « Reply #75 on: April 01, 2014, 02:37:10 PM »
        All the good drugs wore off last night. Nurse woke me at fkn 3am to change out my IV. Back soreness came flooding in. No food or drink today, Broncos thing later

        I'm on like the 12th floor, have an awesome view of east Atlanta, the old mill, and cabbagetown. Two red tailed hawks gotta be nested just above, been watching them fly all morning

        The updates are as much for me as you guys. Gives my sanity something to do. And when I get out, I can put it all back together. I figured out SSs game, I'll kill them with paperwork

        The updates are important, Zach , pre Combo drug regime too many people knew what it was like to be ill or have loved ones ill post combo drug regime,s not enough people know what it,s like....IMO. Hospital time does blur into a wedge if you don,t keep a record , ill time out off hospital too, for me keeping my record in LTS is also so I can post the good things , grab all chances to celebrate say I.

        It is very ,cant find word,wonderful that the forum resulted in Tim,s intervention.

        Its useful to have a picture off where you are and a pair off Red Tail Hawks , maybe at this time off year doing mating flight must be a  beautiful sight. Big improvement on battle scarred London Pigeons huddling near warm air ducts.
        "If we can find the money to kill people, we can find the money to help people ."  Tony Benn

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #76 on: April 01, 2014, 09:03:22 PM »
        The updates are important, Zach , pre Combo drug regime too many people knew what it was like to be ill or have loved ones ill post combo drug regime,s not enough people know what it,s like....IMO.

        I'm ok with being a cautionary tale. Take your meds kids. Do whatever it takes to get and keep medical care. ASO bureaucracy is extremely slow, start the process and follow through. Diagnosis is a mind fuck, it got me, and it got me here

        Nothing about this ride is easy or fun. The choice is, live, or die sick
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline Theyer

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        Re: Zach's in the Hospital
        « Reply #77 on: April 02, 2014, 02:07:02 AM »
        And cover that cock...have your own works.

        Its not the cautionary tale angle that motivated me , more the need for the complet picture please.  it was the fact that when I looked through the various HIV publications and saw the Drug company adverts it appeared to be that to have HIV and being on meds lead to parachute jumps, Rock climbing, loving partnerships, buff bodies , fantastic family relationships and very cool apartments.

        Plus it had come at a time when it would also seem that everyone with insulin dependant diabetes was just gagging to swap it for HIV.

        As at the time I weighed so little you could trace the outlines off my internal organs and was living in a Hospice I felt that there might be a need for a tinsy winsey bit off the fact that the wards I had been on where still always full.
        "If we can find the money to kill people, we can find the money to help people ."  Tony Benn

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #78 on: April 02, 2014, 06:26:08 AM »
        Agree 100% Theyer

        In news, on all the antieverything meds again. Zithro, bactrim, Levaquin, mepron. Hopefully that clears up PvP at least

        Back is feeling miles better. Sleep is easy and restful on trazadone.

        Worst thing I've had to deal with. My father. He can't cope. Every time I'm in hospital he loses his grip. Discloses, and updates people that I would have died and burned before I told. Has completely invaded my privacy everytime. Two bedrooms of the old  house we live in are mine. He literally did a full inventory last time of everything I own. Creepy. Goes into my email, and Facebook. He has always had severe anxiety problems, and is powerless to his compulsion s. Addicted to lottery for the past 20 years has financially broken him. I'm really not sure what to do. I want to move back to ellijay. Something prehistoric has him terrified of ever going back to where we're from. I've thought for years he did something that ruined his name there. This whole thing weighs heavy on my mind. In a way and time I just don't need.
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline Theyer

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        • Current ambition. Walk the Dog .
        Re: Zach's in the Hospital
        « Reply #79 on: April 02, 2014, 10:51:08 AM »
        Having a close family member with little or no boundaries is the last thing you need at the moment.Its hard enough managing ones dear ones with all the emotion hot and heavy, as off course it must be at such a time as this.

        Sounds like Dad has some active compulsion problems , to say the least, are you in effect his carer? Any brothers and sister,s around , anybody at all who can manage him to allow you the space you need.

        Family mysteries, how old where you when you left Ellijay ? Can you do any internet sleuthing to put your mind at rest, ask other family members. I know that in some situations anything straight forward is out off the question.

        Presumably with your Father worried about you his other behaviours will or potentially will be increased . Does he have any insight? I am guessing little .

        You really only need your self to look after at the moment , that,s a tough one .You could off course lie, seen it done on the ward one guy,s hysterical Mother was told by all that her Son had to have special visiting hours as strict rest was vital , that took the ward to agree .If you where in the UK i would advise you to speak to the Social Work dept about your Dad but I am un clear about appropriate help routes if they are out there use them coz you have to be NO1 at the moment.

        Till the next missive Zach,
        The very best of the best to you
        Theyer

        Glad your sleep is good you need it at a time like this.
        "If we can find the money to kill people, we can find the money to help people ."  Tony Benn

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #80 on: April 02, 2014, 12:08:29 PM »
        Ah the clergy. Gotta love em. The Chaplin from IDP just dropped in. We had a very nice discussion on my spirituality, and why I left the Catholic church. I told him the story of genesis by drawing sacred geometries flower of life.
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline wolfter

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        Re: Zach's in the Hospital
        « Reply #81 on: April 02, 2014, 12:36:10 PM »
        So sorry I'm late to replying.  After reading through the thread, I'm "awed" at your attitude.  Absolutely am sending the best positive energy I can muster and spare at the moment.   ;)

        Oh the clergy in the hospital thingy.  In the early 90's, I was deadly sick in the hospital.  Pretty much, every organ had shut down and I was a beautiful shade of orange.  I could hear the staff discussing with Bill that it was time to call in any family who wanted to visit before my passing.

        For several days, I was in and out of counsiousness and at one point I awoke to some dude real close to my face make weird gestures and talking gibberish.  I later learned it was a priest giving me last rites.  And I'm not catholic!!!!   ;D

        Take care of yourself and stay positive.

        best wishes
        greg
        Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

        Offline rjoh

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        Re: Zach's in the Hospital
        « Reply #82 on: April 02, 2014, 01:29:17 PM »
        They go through your nose for the bronchoscopy, not sure if that makes it better or worse though ...  :-\ 



        Eeeek....the Egyptians go through the nose when they mummify....correlation?

        Anyway, get better soon, Zach.....

        Offline zach

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        • not fade away
        Re: Zach's in the Hospital
        « Reply #83 on: April 02, 2014, 02:50:18 PM »
        Things are cracking on now ;-) New meds. 11of them, personal best. Food continues to amaze. Grady gets a bad rap in a lot of ways.

        Neurologists visited, hit me with hammers and tuning forks. Long talk about the mri vids, glad I got to watch those yesterday, I was able to be active in the conversation.

        Pip pip cheerio, is that a real one?
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #84 on: April 02, 2014, 03:02:33 PM »
        Wolf, I had last rites when I was first in the hospital. There is a nice monastery outside Atlanta my gran used to drag my heathen ass to. They sent one of th  younger, not yet fully jumped into the gang monks. He was Spanish, ironic because I always liked Spanish Mass and my best friend, a Peruvian, has a bathtub Mary in his yard. I love that thing

        So... Viao con Dios
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #85 on: April 02, 2014, 06:09:53 PM »
        Drum roll..... Proposed regimen, truvada/prezista/norvil and isentress twice daily. Plus prophylaxis for awhile. No word on when this will begin. Sometime after treatment for TB.

        Thoughts? Anyone on this combo? Horrible side effects to watch for?

        Pleased that I have something to research now
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Online Miss Philicia

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        Re: Zach's in the Hospital
        « Reply #86 on: April 02, 2014, 06:23:57 PM »

        Thoughts? Anyone on this combo? Horrible side effects to watch for?


        I'm on the exact same combo and have been seven years. Side effects are possible with any regimen, obviously, but IMO the numbers of people that have them on these meds are very minimal.

        They are putting you on a standard regimen plus one extra retroviral either because of what they see in your geno/phenotype resistance results or because you numbers are so low they want some extra "umph" at the beginning and might subtract a med down the road once you are better. I suppose you could ask them about that.
        "I’ve slept with enough men to know that I’m not gay"

        Offline nixsmail

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        Re: Zach's in the Hospital
        « Reply #87 on: April 02, 2014, 07:17:31 PM »
        am on the truvada/norvir/prezista and have been since starting meds. other than an occasional bought with diarrhea (and that's probably my fault with my diet) i have had absolutely no problems. also have had TB with MAC and am still on two of those meds for prophylaxis, but can't drink alcohol with one of them i forget which one.
        i have gained cd4's and viral load is undetectable, took a while to get there but seems to be maintaining. and all in all once a day dosing. it does sound like you're getting better and they apparently think so to since they're going about the what after scenario. so hope you keep getting better!
        09/05/07 Officially diagnosed +4yrs at the time
        11/06/07 CD4 624 (18%) VL 43,200
        05/04/09 CD4 272 (15%) VL 521,190
        06/10/09 CD4 127 (13%) VL 626,376 Started Truvada/Prezista/Norvir
        07/15/09 CD4 849 (20%) VL 379
        09/09/09 CD4 594 (21%) VL 68
        01/28/10 CD4 706 (23%) VL 127
        05/27/10 CD4 655 (22%) VL 322
        07/29/10 CD4 750 (22%) VL 220
        10/22/10 CD4 669 (23%) VL 65
        12/27/10 CD4 720 (24%) VL 270
        03/08/11 CD4 644 (23%) VL 631
        07/27/11 CD4 694 (23%) VL <20
        03/09/12 CD4 601 (20%) VL UND
        11/07/12 CD4 693 (23%) VL UND
        04/17/13 CD4 559 (23%) VL UND
        11/07/13 CD4 846 (24%) VL UND
        03/28/14 CD4 869 (24%) VL UND

        Offline guitargal

        • Member
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        Re: Zach's in the Hospital
        « Reply #88 on: April 03, 2014, 03:47:33 AM »
        wow, everyone is so concerned and thoughtful and informative for you.!
        get well soon ok?
        I was in isolation 2 times.. at least a private room! and can't believe the LP thing.. had it last year, they missed, 2 x and my back really hurt for a few days..what a trooper with 6!  now i feel like a sissy.. some of the tests are really strange.  once they strapped me to a slab and ran nukes in me and then something to make my gallbladder spasm so they could take pictures.. hurt like hell. when the spasm would happen... 45 minutes i layer there.. ugh.. can;t think of the name of the test right now.. everything was negative.. probably didn't need it!

        i wonder about the TB and the basically shut in type of person..
        they never check me for TB..

        i once had 13 t cells.. back in like 1995 or so..prior to protease with pneumonia.. then DDI pancreatitis in '98 and 30 days in the hospital got the protease and bounced back..
        still here!

        you are getting all the tests and care now and hope your dx and treatment plan gets up home soon!

        best to you!
        D





        Offline Ann

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          • Num is sum qui mentiar tibi?
        Re: Zach's in the Hospital
        « Reply #89 on: April 03, 2014, 06:49:41 AM »

        Drum roll..... Proposed regimen, truvada/prezista/norvil and isentress twice daily. Plus prophylaxis for awhile. No word on when this will begin. Sometime after treatment for TB.

        Thoughts? Anyone on this combo? Horrible side effects to watch for?


        I'm on Truvada, Prezista and Norvir (no Isentress) and I like it. No major side effects, just **Truvada fartsTM and occasional worse-than-usual diarrhea. But I've had hiv-related diarrhea dire-rear for years anyway, so no biggie really. I'm used to it and know how to deal with it.

        **My ex unexpectedly walked into my house a week or so ago (via the front door), just after I'd let rip with an almighty Truvada fartTM, paused and sniffed the air, then asked me if someone nearby was burning tires. I shooed him out the back door to look for black smoke while I opened a window and started trying to fan the fug away with a folded newspaper. ;D

        Unless I've missed something, this is the first mention of TB treatment. What are they putting you on for that? (I know you mentioned TB earlier, but I don't remember mention of treatment.) Did they say how long you'll have to treat?

        I'm really happy to hear that the food is good where you're at. When you mentioned it before, I thought you were being sarcastic! It's rare that hospital food is good. The food at the Royal in Liverpool sucks big time.

        Keeping you in my daily anxieties... :)
        Condoms are a girl's best friend

        Condom and Lube Info  



        "...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

        Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

        HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

        Offline mecch

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        • red pill? or blue pill?
        Re: Zach's in the Hospital
        « Reply #90 on: April 03, 2014, 08:22:19 AM »
        Hi Zach
        When I took Prezista i did have a yellow tint, and it did stick around. Other people don't get that. Evenually, I was allergic.
        As for Isentress, been on it a few years and no effects.
        As for the renowned Truvada farts, I don't get them. Or don't notice them as truvada farts.  :o 8) ???

        Im sorry you have to be going through this. I was reading back in your history to understand the situation.  Is this somewhat correct: you were having family and financial strains multiplied by mood swings (bipolar?) so you went off your treatment?  Seems to me you had eventually climbed above 200, and then it went to hell again after you stopped?
        “From each, according to his ability; to each, according to his need” 1875 K Marx

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #91 on: April 03, 2014, 09:55:06 AM »
        Mecca, you've got half the story nailed, I'll post a full explanation when I have a keyboard. I accept my part in it all, but other factors also at play

        Ann,

        To save me typing on this thing. Google RIPE Therapy, that's four for TB, no word on exactly how long, a haul though. With B6
        And
        Mepron for PCP
        Azithromycine for MAC

        And HIV Myelopathy in my spine will be untreated, relying on ARVs and time
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

        Offline mecch

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        • red pill? or blue pill?
        Re: Zach's in the Hospital
        « Reply #92 on: April 03, 2014, 10:01:15 AM »
        Maybe the forum can help you figure out a solution to stick to the treatment going forward. All the best. I don't like being in hospitals but one good part is being around nurses who are almost always great people.
        “From each, according to his ability; to each, according to his need” 1875 K Marx

        Offline Ann

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          • Num is sum qui mentiar tibi?
        Re: Zach's in the Hospital
        « Reply #93 on: April 03, 2014, 11:35:44 AM »

        When I took Prezista i did have a yellow tint, and it did stick around. Other people don't get that. Evenually, I was allergic.


        Are you sure that wasn't Reyataz? Prezista isn't known for raising bilirubin levels (bilirubin is what makes you yellow), but Reyataz is. They're both PIs, but Reyataz is the only one I've ever heard of making people yellow.

        Thanks for the info, Zack. I'll go google "RIPE" in a bit.

        I hope they can start you on ARVs sooner rather than later. Did your doctor know about Tivicay (dolutegravir) playing nice with TB meds?
        Condoms are a girl's best friend

        Condom and Lube Info  



        "...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

        Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

        HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

        Offline thunter34

        • Member
        • Posts: 7,314
        • His name is Carl.
        Re: Zach's in the Hospital
        « Reply #94 on: April 03, 2014, 01:02:38 PM »
        Had to be away from here for a couple of days because my Dad, who we all thought was about to die, has rebounded and is on his way home this very minute, but anyway....


        I am on the same combo (minus the Isent.) and I have LOVED it. It has kept my numbers UD and virtually zero sides (although I have just learned that I am going to have to restart cholesterol and triglyceride meds because of issues with that).

        It's multi-pill, but still essentially a once-a-day combo for me. 

        Hope you are doing well.  Tried to call you again the other day, but got no answer.
        Will try to visit you very soon, but have to get Pops squared away here first.
        AIDS isn't for sissies.

        Offline mecch

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        • red pill? or blue pill?
        Re: Zach's in the Hospital
        « Reply #95 on: April 03, 2014, 01:08:51 PM »
        Are you sure that wasn't Reyataz? Prezista isn't known for raising bilirubin levels (bilirubin is what makes you yellow), but Reyataz is. They're both PIs, but Reyataz is the only one I've ever heard of making people yellow.
        Yes thanks for the correction it was indeed Reyataz not Prezista.
        “From each, according to his ability; to each, according to his need” 1875 K Marx

        Offline thunter34

        • Member
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        • His name is Carl.
        Re: Zach's in the Hospital
        « Reply #96 on: April 03, 2014, 01:09:34 PM »
        I'm ok with being a cautionary tale. Take your meds kids. Do whatever it takes to get and keep medical care. ASO bureaucracy is extremely slow, start the process and follow through. Diagnosis is a mind fuck, it got me, and it got me here

        Nothing about this ride is easy or fun. The choice is, live, or die sick


        There.  Love. 
        AIDS isn't for sissies.

        Offline Theyer

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        • Current ambition. Walk the Dog .
        Re: Zach's in the Hospital
        « Reply #97 on: April 04, 2014, 06:27:25 AM »
        Morning Zach,

        All this re starting off the drugs is good news , we share Isentress 400 x 2 , Neviraine 400 1 s/r Ritonovir 100 x 2 Atazanavir 400 x 2  That little bundle was salvage therapy 10 plus years ago now after I threw an almighty strop and came off  Sustavia which we found out later had reduced my REM sleep to almost nil and hence the almighty strop.

        I hope the ride is settling down a wee bit now without so many sudden jolts , though hospital life can be boring a wee bit off boredom is required for maximun healing.
        Hope the Hawks continue to entertain all the best for now.
        Theyer
        "If we can find the money to kill people, we can find the money to help people ."  Tony Benn

        Offline J.R.E.

        • Member
        • Posts: 7,180
        • Joined Dec-2003 Living positive, since 1985.
        Re: Zach's in the Hospital
        « Reply #98 on: April 04, 2014, 08:37:28 AM »


        Wishing you the best Zach, Every time I do a search involving HIV and TB I ultimately am directed back to this link from the CDC :

        I am not sure if this link needs to be updated, but there's quite a bit of info here.

        http://www.cdc.gov/tb/publications/guidelines/tb_hiv_drugs/recommendations02.htm


        In the above article:

        "Therefore, because of its potency, simplicity, and proven clinical efficacy, use of efavirenz 600mg with 2 NRTIs, along with rifampin-based tuberculosis treatment is the preferred strategy for co-treatment of HIV and tuberculosis (Table 1a).



        Hang in there Zach !  You are on the road to recovery, and you are in good hands. Things take time. Back in 2003, I went through a rough 18 months, but it paid off.

        You do what the doctors say, and make sure to take all medications when you are supposed to. I also know that at times this can be tough, but there's no other choice.


        Take care---Ray

        Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
        Metoprolol tartrate 25mg



        http://forums.poz.com/index.php?topic=40802.0

        http://forums.poz.com/index.php?topic=45159.0

        http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

        http://forums.poz.com/index.php?topic=46806.0

        http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


         In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

         As of 8/2514,  t-cells are at 402, Viral load <40

         Current % is at 11%

          
         62 years young.

        Offline zach

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        Re: Zach's in the Hospital
        « Reply #99 on: April 04, 2014, 09:05:11 AM »
        Damn Theyer, just read your current issues in LTS. Was going to post there just to mess with Ann. Thanks for your support and humor. I had no idea you were dealing with your own problems

        Colonoscopy Monday, joy joy. Some kind of med to make me piss. They want me to cathederize myself 3 times a day at home. I'm not sure about all that.

        I really want to thank everyone. Feeling so much support during this has made it more tolerable
        gonna go up to the mountain, for to find a little peace
        looking over the valley, for the beauty i see
        out across the hills, forevermore

         


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