Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
November 22, 2014, 04:39:03 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 646909
  • Total Topics: 49281
  • Online Today: 194
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: How I found out I had AIDS  (Read 4566 times)

0 Members and 1 Guest are viewing this topic.

Offline Almost2late

  • Member
  • Posts: 375
  • The grumpier you are, the more assholes you meet
How I found out I had AIDS
« on: March 10, 2014, 11:51:48 AM »
I went to the Hospital ER back in January cause I just had it with this pneumonia. Then I saw my Doctors assistant and he said I tested positive for HIV.. I was in shock, scared and confused. When my wife showed up, I just whispered it in her ear and she looked like felt. I didn't cry and I don't know why, neither did she. I guess we figured we'd find a solution to this problem but there were none. Now I'm worried if my wife was sick and so was she. Hours later, after being admitted an ID Doctor told me I had "full blown aids" and that my CD4 was 13, I had no idea what the f*** was a cd4? I was going crazy! I kept thinking I was going to die! my life was over! and I felt super guilty I would take my wife with me.. The next day, the Pulmonary Doctor told me that I can make it through this, that this wasn't like years ago but I had lost about 20lbs. and a little naive on medical issues.. I left the hospital a week later, and my wife tested negative which was some good news but this disease sat inside me for twelve years at least and didn't touch my wife, thank god.. Now I'm done with the other meds and only using atripla, my head sometimes hurts and I got these swollen glands by my ears and these weird long raised bumps around my neck that concern me... Does anyone get these? I'll be seeing my ID doc for the first time on Friday and my Pulmonary doc tomorrow.. maybe its nothing serious. I have found much inspiration through the stories I've read here on this website, thank you all..Frank
http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.”
― Nostradamus

Offline Peterdenmark

  • Member
  • Posts: 80
Re: How I found out I had AIDS
« Reply #1 on: March 10, 2014, 05:26:59 PM »
Hi Frank,

Thank you for posting yr story - and yes, you really have low cd4 count.
Same u I had swollen glands, and strange spots all over the body.
The glands was swollen due to TB infection - and the skin issues can be 100 things.
When cd4 is close to zero, our skin can really have some strange issues.

I lost a lot of weight too - and was at hospital 5 weeks, because of Oi and TB
After that i my cd rise quickly from zero to 120 - and i was actually stabil.

Im married same U, and been married for 5 years - and same u my wife didnt get the virus - thank U god

Today 10-11 months later I feel completely "normal"

This forum, my wife and my good doctors helped me to come through the tuff period.
Just be adherent with the meds, and take care yourselve - then everything will come back to U - good life awaits U :-)

If U smoke, then stop - u need to take good care about yourself.
Best of luck from me

Peter

Offline Almost2late

  • Member
  • Posts: 375
  • The grumpier you are, the more assholes you meet
Re: How I found out I had AIDS
« Reply #2 on: March 10, 2014, 08:07:20 PM »
Thanks Peter,
Your story gives me lots of hope.
What kind of meds did you take? Do you think I should exercise?
I use to smoke but not anymore and don't miss it one bit.
Tomorrow I see my Pulmonary Doctor, he's been the one who prescribed my meds through-out my hospitalization.. hopefully he'll give me some good news about my cd4 and vl .. I still have not seen an ID doctor, the one in the hospital does not take my health insurance so I have to wait till friday to see this new guy..hopefully he's good.. thank you so much Peter, you made my day :)

Frank
http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.”
― Nostradamus

Offline mecch

  • Member
  • Posts: 12,037
  • red pill? or blue pill?
Re: How I found out I had AIDS
« Reply #3 on: March 10, 2014, 08:33:02 PM »
Today 10-11 months later I feel completely "normal"

This forum, my wife and my good doctors helped me to come through the tuff period.
Just be adherent with the meds, and take care yourselve - then everything will come back to U - good life awaits U :-)

If U smoke, then stop - u need to take good care about yourself.
Best of luck from me

Peter

I agree with what peter says.
And welcome to he forums..  ;D
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Almost2late

  • Member
  • Posts: 375
  • The grumpier you are, the more assholes you meet
Re: How I found out I had AIDS
« Reply #4 on: March 10, 2014, 08:55:31 PM »
Thanks mecch :D
http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.”
― Nostradamus

Offline 2tcells

  • Member
  • Posts: 103
Re: How I found out I had AIDS
« Reply #5 on: March 10, 2014, 10:07:56 PM »
My story is like yours I never thought about hiv or getting it. I found out after getting sick and i thought it would pass and it just kept getting worse for 2 months I went to general dr. Gastro dr. They couldnt figure it out I decided I was dieing and better goto the er after I went from 200lbs to 140 in 2 months I couldnt eat and had no energy felt horrible.  I stayed for a week the said maybe it was aids and I had cd4 of 2 they didnt confirm it until after I left. I thought it must be something else but it wasnt. Long story short its 8 months later I feel much better most the time besides when I get a cold or cough I think the worst but its always nothing. Went from cd4 of 2 and vl of 220000 to cd4 62 and ud vl. Wife and kids didnt catch it either. Now It dosnt bother me I just take my meds ontime and it could be something much worse
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline 2tcells

  • Member
  • Posts: 103
Re: How I found out I had AIDS
« Reply #6 on: March 10, 2014, 10:12:38 PM »
And like someone else said the low cd4 will show up in all sorts of ways on your skin I was having skin problems for a couple years before I found out I have aids.
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline Almost2late

  • Member
  • Posts: 375
  • The grumpier you are, the more assholes you meet
Re: How I found out I had AIDS
« Reply #7 on: March 10, 2014, 10:35:52 PM »
Thanks 2T's for sharing that with me.. I'm hoping for better days down the road.. Has your skin cleared up yet?
http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.”
― Nostradamus

Offline 2tcells

  • Member
  • Posts: 103
Re: How I found out I had AIDS
« Reply #8 on: March 10, 2014, 10:59:59 PM »
Well I had 2 rashes on my legs for at least 6 months that both finally went away but the redness on my face hasnt gone away its been like that for about 3 or 4 years it gose away for a few days and comes back from what I read it will go away around 300 cd4
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline Almost2late

  • Member
  • Posts: 375
  • The grumpier you are, the more assholes you meet
Re: How I found out I had AIDS
« Reply #9 on: March 10, 2014, 11:18:39 PM »
Looking back at it now, I was also having problems with my skin before my diagnoses but brushed off as just getting old..
http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.”
― Nostradamus

Offline Peterdenmark

  • Member
  • Posts: 80
Re: How I found out I had AIDS
« Reply #10 on: March 19, 2014, 05:15:34 PM »
Thanks Peter,
Your story gives me lots of hope.
What kind of meds did you take? Do you think I should exercise?
I use to smoke but not anymore and don't miss it one bit.
Tomorrow I see my Pulmonary Doctor, he's been the one who prescribed my meds through-out my hospitalization.. hopefully he'll give me some good news about my cd4 and vl .. I still have not seen an ID doctor, the one in the hospital does not take my health insurance so I have to wait till friday to see this new guy..hopefully he's good.. thank you so much Peter, you made my day :)

Frank
Hi Frank

Sorry i am late with my reply......

Today i take Isenstress and Truvada, and its really good for me.
I started with another combo, but it wasnt good for me.

Plz remember that nowadays the docs really know what they are fighting, and if u will catch an OI, the meds and U willbeat it

Best of luck - and hugs
Peder

Offline Almost2late

  • Member
  • Posts: 375
  • The grumpier you are, the more assholes you meet
Re: How I found out I had AIDS
« Reply #11 on: March 19, 2014, 10:03:18 PM »
Thank you Peter  :)
http://www.youtube.com/watch?v=ZBkwPYq4nhQ

“Nothing in the world can one imagine beforehand, not the least thing, everything is made up of so many unique particulars that cannot be forseen.”
― Nostradamus

Offline sanitex

  • Member
  • Posts: 388
Re: How I found out I had AIDS
« Reply #12 on: April 22, 2014, 12:55:30 AM »


hello 2tcells, I'd like to ask you something I thought it's always disturbing me but I don't know maybe becuase I started with low cd4 20 vl 1million.my quastion is, do you always felt tired whenever you play hard assuming play football or anything not lifting weights just like when you fight or let me use wrestling like if you're playing with a friend after you most finished just a few minutes then you realise that heart or lungs is not getting enough air?
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 24%
24/7/14 change to Teevir
24/9/14 cd4 517 vl <40 22%

Offline Theyer

  • Member
  • Posts: 2,578
  • Current ambition. Walk the Dog .
Re: How I found out I had AIDS
« Reply #13 on: April 22, 2014, 08:48:23 AM »

hello 2tcells, I'd like to ask you something I thought it's always disturbing me but I don't know maybe becuase I started with low cd4 20 vl 1million.my quastion is, do you always felt tired whenever you play hard assuming play football or anything not lifting weights just like when you fight or let me use wrestling like if you're playing with a friend after you most finished just a few minutes then you realise that heart or lungs is not getting enough air?


Is this just not appropiate exersion strain ?
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Theyer

  • Member
  • Posts: 2,578
  • Current ambition. Walk the Dog .
Re: How I found out I had AIDS
« Reply #14 on: April 22, 2014, 08:50:55 AM »
Hi Frank

Sorry i am late with my reply......

Today i take Isenstress and Truvada, and its really good for me.
I started with another combo, but it wasnt good for me.

Plz remember that nowadays the docs really know what they are fighting, and if u will catch an OI, the meds and U willbeat it



Hey Peter,

I was hoping you would return for this poster.

Best of luck - and hugs
Peder
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline 2tcells

  • Member
  • Posts: 103
Re: How I found out I had AIDS
« Reply #15 on: April 22, 2014, 02:43:44 PM »
I have always felt I get tired faster than other people when running and exercising and stuff like that even when I was a kid I didnt ever notice it get worse except of course when I was very sick before I found out I was poz. But after taking meds I did feel like I had more energy than ever before
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline sanitex

  • Member
  • Posts: 388
Re: How I found out I had AIDS
« Reply #16 on: April 23, 2014, 12:46:51 AM »


  thanks 2tcells, maybe my problem might be from anxiety  disorder or maybe from my past sickness TB when I was daignosed.
27/12/07 cd4 20 vl 1million
10/4 /08 cd4 86 vl 63
1/7/08  cd4 186 vl undetectable
16/10/08 cd4 196 vl undet
23/1/09 cd4 248 vl un
10/9/11 cd4 418 vl <40 %22
13/12/11 cd4 410 vl undet 23%
24/2/12 cd4 545 vl undet 26%
on 22/2/12 change truvada to Recovir-EM
due to no stock on Truvada.
10/9/11 cd4 418 vl <40 %22
7/7/12 cd4 359 vl <40 22%
23/8/12 cd4 400 vl <40 23%,
testosterone test 7.5 ng/ml and
thyroid (TSH)1.32 ulu/ml creatinine.eGFR blck 1.5 all fasting test morning.
13/12/2012 cd4 523 24% vl <40
18/3/2013 cd4  513  23% vl <40
regimen ATRIPLA
03/8/2013 cd4 429 22% vl <40
13/11/2013 cd4 455 23% vl <40
Anti-HBs test (quantitative ) Anti-HBs positive
Titer 16.95 mlu/ml <10.00
22/3/14 cd4 396 vl <40 24%
24/7/14 change to Teevir
24/9/14 cd4 517 vl <40 22%

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.