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Author Topic: o hai guys! Let's chat about AIDS!  (Read 10446 times)

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Offline WillyWump

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Re: o hai guys! Let's chat about AIDS!
« Reply #50 on: February 18, 2014, 07:42:00 PM »
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Jeff G

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Re: o hai guys! Let's chat about AIDS!
« Reply #51 on: February 18, 2014, 07:46:11 PM »
That's great Willy ! . How did you get Miss P to butch it up for that photo ?

Offline wolfter

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Re: o hai guys! Let's chat about AIDS!
« Reply #52 on: February 18, 2014, 07:53:11 PM »
This is starting to remind me of the movie Death becomes Her . Pretty soon all of LTS are gonna be all Spackle and Bondo .

Not to mention nuts and bolts and screws oh my.  LTS status has its rewards.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline WillyWump

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Re: o hai guys! Let's chat about AIDS!
« Reply #53 on: February 18, 2014, 08:05:49 PM »
That's great Willy ! . How did you get Miss P to butch it up for that photo ?

I was sent the pic from an insider at the gym, apparently she was really trying to impress her man today with the rainbow fringe outfit  :P
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline pittman

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Re: o hai guys! Let's chat about AIDS!
« Reply #54 on: February 18, 2014, 08:43:57 PM »
Ah squats and bench press, the two best exercises for spotting.  ::)

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #55 on: February 20, 2014, 05:08:01 PM »
yet another update: After playing phone tag with my doctor (who no longer answers emails even though he states it's his preference and insists he should be getting them) I demanded he allow me to taper off of Lyrica: 1) it's not giving me any benefit in pain 2) it's caused me to gain 15 lbs (yes Jeff/Wumpass, that's a documented side effect) 3) I now am the proud owner of sexual/erectile dysfunction (yes Jeff/Wumpass, that's a documented side effect) and can't recall the last time I masturbated to completion. Actually I think if I try really hard I can get erect, but it takes so long to orgasm I give up; plus I have no interest whereas I used to perform daily or at least every other day. Note: my HIV doctor takes sexual issues very seriously saying it means the med simply isn't working, not that it's just some middling side effect and the patient should buck up and suck it in 4) it's causing acid reflux when I sleep though I forgot to mention that to my doctor -- my bad 5) a handful of narcotics with multiple refills were not thrown at me like a bag of breath mints

so... I have to taper off of it on a 7-day schedule, then (I think) my podiatrist prefers seeing what I feel like on nothing, then to perform a third nerve conduction test, then set the next treatment plan for my PN/tarsal tunnel pain. Another option down the road is to see another podiatrist for a second opinion, but thus far my HIV doctor doesn't find it necessary. I think I have some circulation issues coming into play but he fussed around taking a pulse on my foot and didn't agree, though he thinks my PN has really worsened to the point where I have a lot of sensory deficit on the front halves of my feet, top and bottom. As in he can pinch my foot in places and I can't feel it with my eyes closed, or it feels simply like he's touching my foot, etc.

Mind you, five years ago I didn't have PN at all or if I did it was very minimal. So are current meds causing this (I don't think so), is long-term HIV infection causing it, or did 90's era drugs fuck up mitochondria so bad that a patient can't see an effect like this for 15-20 years later?

Anyway, at this point I'm not even depressed about things, I'm basically just very angry. Oh, and bitter -- a bitter, angry Queen -- and since I was already one of those I guess I'm now a SuperTotes Bitter Angry Queen.
« Last Edit: February 20, 2014, 05:20:27 PM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline Jeff G

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Re: o hai guys! Let's chat about AIDS!
« Reply #56 on: February 20, 2014, 05:23:14 PM »
a bitter, angry Queen -- and since I was already one of those I guess I'm now a SuperTotes Bitter Angry Queen.


^^ Finally she got her diagnoses ... I been telling her this for years . ^^ .

Maybe your docs can figure out something to bring you relief and help you cope if it cant be cured . It sounds like you are doing everything you can . 

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #57 on: February 20, 2014, 05:24:20 PM »
a bitter, angry Queen -- and since I was already one of those I guess I'm now a SuperTotes Bitter Angry Queen.

You're not as SuperTotes as I am sweetheart -- you're too drugged up.
"Iíve slept with enough men to know that Iím not gay"

Offline intaglio

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Re: o hai guys! Let's chat about AIDS!
« Reply #58 on: February 20, 2014, 05:26:43 PM »
My wife sees a neurologist for her PN related to diabetes. They've done nerve conduction tests to see where the nerves stop working/start misfiring. Currently she uses neurontin to manage hers.

Maybe a neurologist is the better doctor for your PN than another podiatrist.

I haven't really paid attention through this thread. I just clicked the link for the second page Miss P. So if you've been this route, I apologize for being unhelpful :P.

Plus, I think you have every right to be angry when those who are charged with making your life better are not doing their job.
Reality is frequently inaccurate.

Offline Jeff G

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Re: o hai guys! Let's chat about AIDS!
« Reply #59 on: February 20, 2014, 05:30:40 PM »
You're not as SuperTotes as I am sweetheart -- you're too drugged up.

My doc gave me narcotics without asking when he found out we were frenemies .

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #60 on: February 20, 2014, 06:18:07 PM »
My wife sees a neurologist for her PN related to diabetes. They've done nerve conduction tests to see where the nerves stop working/start misfiring. Currently she uses neurontin to manage hers.

Maybe a neurologist is the better doctor for your PN than another podiatrist.

I haven't really paid attention through this thread. I just clicked the link for the second page Miss P. So if you've been this route, I apologize for being unhelpful :P.

Plus, I think you have every right to be angry when those who are charged with making your life better are not doing their job.

My HIV doctor was pretty adamant that a podiatrist is the right specialist for this. I'm not just having run-of-the-mill PN, I have that but more significantly sciatica and tarsal tunnel syndrome. But my podiatrist is part of a larger practice -- 3 or 4 podiatrists and they have an in-house Physiatrist (Physical medicine and rehabilitation specialist) that performs nerve conduction tests. The first time I had a nerve conduction test in 2011 it was by a neurologist at a hospital.

But I will include it in my conversation with my podiatrist whether or not I should also see a neurologist.

My HIV doctor did mention going to the Rothman Institute of Orthopaedics at Jefferson Univ. Hospital but decided they'd just send me to another podiatrist. I think right now he wants me to stay with who I am seeing at least until I get another nerve conduction test done and if it shows different results. Of course I will keep him up to date via email which he never responds to or reads. (actually I should not diss my HIV doctor because I've been with him a decade and really like him, I just think the clinic has become overwhelmed with newly diagnosed patients because the infection rate here has skyrocketed).

ps: I think Hendall is splitting and I will be utterly devastated this weekend. Pass the klonnies!
« Last Edit: February 20, 2014, 06:26:13 PM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline mitch777

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Re: o hai guys! Let's chat about AIDS!
« Reply #61 on: February 20, 2014, 06:29:35 PM »


Mind you, five years ago I didn't have PN at all or if I did it was very minimal. So are current meds causing this (I don't think so), is long-term HIV infection causing it, or did 90's era drugs fuck up mitochondria so bad that a patient can't see an effect like this for 15-20 years later?


That's odd that the PN would have just began 5 years ago or so. I'm thinking it's the earlier meds or the long-term HIV (although I can't remember hearing about fairly recent PN from other LTS).

I'm sure there will be more "surprises" in the years to come from many of us that have been living with this for decades. Everyone has had different meds, different timing, and different genes so I would suspect different physical crap.

It sucks.

I hope your newly self-applied Royal Crown is temporary and depression doesn't set in.  :)

...You have had so many surgeries on your feet that I'm thinking it is likely that that is a big player here.
« Last Edit: February 20, 2014, 06:35:01 PM by mitch777 »
32 years hiv+ (oct. 2013) with a curtsy.

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #62 on: February 20, 2014, 06:41:51 PM »
That's odd that the PN would have just began 5 years ago or so. I'm thinking it's the earlier meds or the long-term HIV (although I can't remember hearing about fairly recent PN from other LTS).

I'm sure there will be more "surprises" in the years to come from many of us that have been living with this for decades. Everyone has had different meds, different timing, and different genes so I would suspect different physical crap.

It sucks.

I hope your newly self-applied Royal Crown is temporary and depression doesn't set in.  :)

I'm thinking they're all full of shit about it being connected with HIV and it's mostly this tarsal tunnel syndrome -- when I read the description of it it's exactly what I have, huge compression issues on the front half of my feet, both laterally and whatever you call the downward thing -- it's like I have furniture sitting on the front of my feet and then there's also a vice grip tight on the sides.

I'm also reading neurologist and/or physiatrist nerve conduction tests do not always give a complete picture. Some also do ultrasounds and/or MRIs to rule out other things. It's also more prone to "active" people and I'd say this all really began five years ago, maybe more -- it's as if all the city walking and incessant climbing of stairs for 30 years has caused this instead of actually making me a healthier person like it was supposed to.

I need to research this more and draw up a list of things to be queried more extensively with my podiatrist. Previously we were always focusing on recovering from my surgeries -- which were all addressing something "mechanically deficient" in my feet an an entirely different issue. Seriously, all of this makes my head swim thinking about it because there just seem to be too many issues going on in one place simultaneously. I'm sure I could go to ten specialists and none of them would agree on what is going on, that is how I feel right now. I'm just tired of it.
"Iíve slept with enough men to know that Iím not gay"

Offline buginme2

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Re: o hai guys! Let's chat about AIDS!
« Reply #63 on: February 20, 2014, 07:00:22 PM »
 Man that really sounds horrible.   I'm sorry your dealing with this, hope they can do something.
Don't be fancy, just get dancey

Offline mitch777

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Re: o hai guys! Let's chat about AIDS!
« Reply #64 on: February 20, 2014, 07:09:53 PM »
and dreaded dental work to look forward to.  :(
32 years hiv+ (oct. 2013) with a curtsy.

Offline WillyWump

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Re: o hai guys! Let's chat about AIDS!
« Reply #65 on: February 20, 2014, 07:24:59 PM »
My doc gave me narcotics without asking when he found out we were frenemies .

Thats how I got mine too
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #66 on: February 20, 2014, 07:42:22 PM »
At least Dreamboat Mark, who I also saw today, is getting my legs in tip-top shape at the Bellevue Sporting Club. My calves are bulging. Too bad my feet look like an 80 year old's.

His taut, lissome buttocks looked so inviting today in his trim cut pants.
« Last Edit: February 20, 2014, 07:44:41 PM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline Jeff G

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Re: o hai guys! Let's chat about AIDS!
« Reply #67 on: February 20, 2014, 07:44:23 PM »
At least Dreamboat Mark, who I also saw today, is getting my legs in tip-top shape at the Bellevue Sporting Club. My calves are bulging. Too bad my feet look like an 80 year old's.

You have only been once and blew it off how many times ? He must be good if he can do that for you in one visit .

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #68 on: February 20, 2014, 07:46:16 PM »
You have only been once and blew it off how many times ? He must be good if he can do that for you in one visit .

Child please -- I didn't go during a 12-inch snowstorm when even the public transport partially shut down. I've been three times and I have two appointments next week. Seriously, go pop another pill.

More importantly he's satisfied with my performance and is seeing improvement. I'm sorry that you're so bitter that you can't move without creaking like one of your thrift store tchotchkes.
"Iíve slept with enough men to know that Iím not gay"

Offline WillyWump

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Re: o hai guys! Let's chat about AIDS!
« Reply #69 on: February 20, 2014, 07:52:48 PM »
You have only been once and blew it off how many times ? He must be good if he can do that for you in one visit .

BAHAHAHAHAHAHA! True dat
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #70 on: February 20, 2014, 07:55:02 PM »
BAHAHAHAHAHAHA! True dat

More irrational babbling from the anesthetized camarilla.
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #71 on: February 21, 2014, 06:16:04 PM »
Since today was one of my "off" days from Dreamboat Mark, I decided to go to the park and do some fitness activities on my own:

http://www.youtube.com/watch?v=o-50GjySwew

ps: I also was able to masturbate this morning -- thank goodness for tapering off Lyrica and back on Gabapentin. I also did four loads of laundry and scrubbed all of my floors.
« Last Edit: February 21, 2014, 06:28:49 PM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline WillyWump

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Re: o hai guys! Let's chat about AIDS!
« Reply #72 on: February 21, 2014, 07:40:09 PM »
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Jeff G

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Re: o hai guys! Let's chat about AIDS!
« Reply #73 on: February 21, 2014, 07:52:03 PM »
Can you PLEASE do something about your camel-toe. It's disgusting.



You think that's bad you should see the camel when its walking away .

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #74 on: February 22, 2014, 05:37:11 PM »
1) sexual function has returned
2) I have lost 5 lbs. and don't look as bloated
3) I walked 1.5 miles today
4) I am now tracking my walking with MapMyWalk app
5) I will hurt all over my body in the next few hours
6) I boycotted National Margarita Day because a) Cantina Los Caballitos was far too crowded with Passyunk Hipsters because it went up to 56F today and b) I probably should not consume alcohol while my liver numbers are elevated though I am sure I will at some point anyway
7) I am downloading more porn, having sushi for dinner and then catching up on my DVR recordings
« Last Edit: February 22, 2014, 05:41:00 PM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline BT65

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Re: o hai guys! Let's chat about AIDS!
« Reply #75 on: February 22, 2014, 06:04:47 PM »
So things are getting back to normal, save your poor feet, calves etc.   I really am starting to think your idea of you, I and Jeff living together is a good one. :)
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline mitch777

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Re: o hai guys! Let's chat about AIDS!
« Reply #76 on: February 22, 2014, 06:36:24 PM »
   I really am starting to think your idea of you, I and Jeff living together is a good one. :)

I must have missed something.  ??? LOL!  I think it would make the BEST reality TV show!  8)
32 years hiv+ (oct. 2013) with a curtsy.

Offline Jeff G

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Re: o hai guys! Let's chat about AIDS!
« Reply #77 on: February 22, 2014, 07:01:22 PM »
So things are getting back to normal, save your poor feet, calves etc.   I really am starting to think your idea of you, I and Jeff living together is a good one. :)

I have not heard this idea ... so this is how I find out HUH ? I reserve the right to moderate at home too or it aint happening LOL . 

Maybe we need a forum nursing home . 

Offline BT65

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Re: o hai guys! Let's chat about AIDS!
« Reply #78 on: February 22, 2014, 07:04:30 PM »
I must have missed something.  ??? LOL!  I think it would make the BEST reality TV show!  8)

It would make a great reality tv show, wouldn't it?  With all our different personalities together?  Fun fest lol!!

I have not heard this idea ... so this is how I find out HUH ? I reserve the right to moderate at home too or it aint happening LOL . 

Maybe we need a forum nursing home . 

Honey, you can moderate anywhere.  And yes a forum nursing home would be nice.  Hit up the guys at the top for funding, k?
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline WillyWump

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Re: o hai guys! Let's chat about AIDS!
« Reply #79 on: February 22, 2014, 07:25:42 PM »
Whenever I win the Lotto I am opening up a forums nursing home complete with scantilly clad houseboys, Friday night Strip Bingo and a 24hr Margarita Machine.

Edited to Add: Jsut to be clear, no residents will be stripping during Friday Night Bingo, only the houseboys (you're welcome)

« Last Edit: February 22, 2014, 07:31:18 PM by WillyWump »
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #80 on: February 22, 2014, 07:29:44 PM »
Betty and I decided that we need a singles-only SSDI-Golden Girls type place as we age with our multi-layered ailments. We just need to settle on a location now.

I'm thinking triple-wide trailer but all of the warm weather places have sucky HIV services.
"Iíve slept with enough men to know that Iím not gay"

Offline BT65

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Re: o hai guys! Let's chat about AIDS!
« Reply #81 on: February 22, 2014, 07:34:08 PM »
We need a good grant writer to get us funding, then we can reside anywhere. 

Seriously, don't you think if we stayed together we could really help each other?  We need a spa-type existence.  With the grant funding the majority of it, and the rest of the services adjusted to be affordable to those of us on SSDI.

Edited to correct spelling.
« Last Edit: February 22, 2014, 07:40:29 PM by BT65 »
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Jeff G

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Re: o hai guys! Let's chat about AIDS!
« Reply #82 on: February 22, 2014, 07:38:22 PM »
Aidsy Acres here we come .

Offline GSOgymrat

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Re: o hai guys! Let's chat about AIDS!
« Reply #83 on: February 22, 2014, 08:39:01 PM »
My goodness! I don't check the forum for a few days and Miss P has more ups and downs and ups than most people have in months.

Offline Denver Toad

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Re: o hai guys! Let's chat about AIDS!
« Reply #84 on: February 24, 2014, 06:59:29 PM »
Quote
ps: I also was able to masturbate this morning -- thank goodness for tapering off Lyrica and back on Gabapentin.

Are you serious? You can complete while on gabapentin? I'm on 900 of gabapentin 3x a day. I couldn't complete, much less rise to the occasion if I had to. I'm way too young to spend the rest of my days as a medicinal eunuch.

PN just as others. I've wobble like a weeble at the end of the day. Tried Lyrica and pffft, nothing. Gabapentin, excepting the headaches and dead wood, helps some.

Sorry for the hijack. I'm jealous and needed the vent.
Life is short, Break the rules, Forgive quickly,
Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile.

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #85 on: February 24, 2014, 08:19:01 PM »
I'm not on that high of a dose of gabapentin and also wasn't before trying Lyrica. I never had problems masturbating on 300mg x 3/day. We'll see what happens when/if they increase the dose.

Are you still taking it or did you stop because of this issue, and if so did things return to normal sexually?
"Iíve slept with enough men to know that Iím not gay"

Offline Denver Toad

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Re: o hai guys! Let's chat about AIDS!
« Reply #86 on: February 24, 2014, 11:42:16 PM »
I'm still on it.  Dr. preaches patience and give the meds time.  I  too was on 300's prior to end of January.  Dr and neuro wanted my dose increased. I'm not finding any relief, can't see any reason to continue. 
I appreciate your discomfort. I've always been active, there hasn't been a malady, ache or pain I couldn't exercise away. Now, exercise and activities only exacerbate the pain in my legs.  Don't know if I'm stubborn or stupid but I refuse to slow down. Cycle, run,  walk the dogs daily.  Damm the neurothopathic torpedoes full speed ahead.

Do you know of anyone that's had relief from B12?
Life is short, Break the rules, Forgive quickly,
Kiss slowly, Love truly, Laugh uncontrollably, And never regret anything that made you smile.

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #87 on: February 24, 2014, 11:57:27 PM »
I'm probably not the best person to discuss "just" PN, because I also have sciatica and tarsal tunnel syndrome going on plus some residual post-podiatry surgery nerve healing. Or so I am told.
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: o hai guys! Let's chat about AIDS!
« Reply #88 on: February 25, 2014, 03:39:24 AM »
I'm still on it.  Dr. preaches patience and give the meds time.  I  too was on 300's prior to end of January.  Dr and neuro wanted my dose increased. I'm not finding any relief, can't see any reason to continue. 
I appreciate your discomfort. I've always been active, there hasn't been a malady, ache or pain I couldn't exercise away. Now, exercise and activities only exacerbate the pain in my legs.  Don't know if I'm stubborn or stupid but I refuse to slow down. Cycle, run,  walk the dogs daily.  Damm the neurothopathic torpedoes full speed ahead.

Do you know of anyone that's had relief from B12?

Have you visited a Pain Control Doctor
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline eric48

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Re: o hai guys! Let's chat about AIDS!
« Reply #89 on: February 25, 2014, 05:14:35 AM »


Do you know of anyone that's had relief from B12?
I do ...
Mobile.eric
NVP/ABC/3TC/... UD; CD4 > 1000; CD4/CD8 ~ 2.0   safety stock : 3 months (2013: FOTO= 5d. ON 2d. OFF ; 2014: NCT02157311 = 4d. ON, 3d. OFF)

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #90 on: February 25, 2014, 07:51:55 AM »
I just wanted to say to Denver, if a drug makes you impotent/sexually dysfunctional then it's not working.
"Iíve slept with enough men to know that Iím not gay"

Offline Irish Eyes

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Re: o hai guys! Let's chat about AIDS!
« Reply #91 on: February 25, 2014, 09:38:50 AM »
Ryan White covers dental?
I just had a crown replaced $1615.00
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #92 on: February 25, 2014, 09:58:33 AM »
Ryan White covers dental?
I just had a crown replaced $1615.00

Ryan White covers dental but only if you go somewhere that accepts it -- generally these are dental schools of major universities, at least if you live in a large city. If you are on Ryan White for ADAP then you qualify, and should get a list of dental resources that accept it from your case manager.

Actually a good HIV specialist would be one that inquires about a patient's dental needs at least during the first year of diagnosis. It's important to go to the dentist regularly when you have a chronic infectious disease medical condition.
"Iíve slept with enough men to know that Iím not gay"

Offline Irish Eyes

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Re: o hai guys! Let's chat about AIDS!
« Reply #93 on: February 25, 2014, 10:06:27 AM »
Thx Gurl.
I have 3 appts today.  @ UCSD, PA, Pharm and starting retention survey thing.
If and when I start meds I've no intention of stopping but got a cold call last week from Ucsd mentioning retention os only 30%, don't know if she is referring to San Diego only or nationwide. Wil get clarifacation this am.
Take care.
 
10/30/13          Exposure
Mid-Nov-Jan    Seroconversion (7-8 rough wks)
12.26.2013      WB dx. HIV+
02.01.2014      OraQuick (result Negative?)
01.31.2014      VL 250700
02.03.2014      CD4  491  26%
02.26.2014      CD4  503  26%
03.05.2014      HLA B6701  not present
03.18.2014      VL 530873 (typical fluctuation)
03.21.2014      Start Stribild
04.14.2014      VL 104 after 24 doses
05.12.2014      VL 129 after 52 doses
06.10.2014      CD4 940 32%
06.11.2014      VL 87
07.22.2014      VL 20
09.23.2014      VL 43

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #94 on: March 15, 2014, 11:56:10 AM »
So, some updates -- after being in physical therapy for a month my PT has decided that I have NO strength issues at all, but tons of balance issues that he believes are neurological in nature, and that basically my leg muscles are in a near constant state of contraction -- hence why I crash midday on the sofa. So he wrote up an interim report and faxed it to my HIV doctor -- he was delayed due to be at CROI so after talking to him on Monday he has someone on staff setting me up with a neurologist at U-Penn. I've had tests run on me for this stuff back in 2011 and last May so we'll see what a third set of eyes shows. My PT is only going to do another week of sessions and then have me come back after we know the results of these tests and what if offered to me to resolve it, because as you may or may not know Medicare has an annual cap of ~$1900 for outpatient physical therapy, though in some severe cases this can be waived.

I had more liver tests run but I didn't get an alarming call from my doctor so I guess they were fine, and I forgot to ask about them when I talked to him on Monday so...  whatever. And I continue to lose some weight post-Lyrica and sexual function is totes fine now.

Otherwise, I finished my root canal on Thursday and we all posed for an obligatory selfie. I can't believe how long this process is -- the root canal was actually a two day process, so with the first day of picking out the old fillings and gunk, and now doing a "crown build up", then the crown mold and then the actual crown that will be six visits for one tooth. Then I'll still have a cleaning, followed by work on two other teeth one of which will be another crown. I'll be trekking to that damn place the remainder of the year.



Oh, and on top of all of this three weeks ago someone in my support group passed away, and then I haven't mentioned this at all except to some people privately one of my best friends that I've known for over 15 years passed away Monday night/Tuesday morning. Last Friday I made an emergency trip to NYC to see her in the hospital. She had gotten diagnosed with a very rare form of uterine cancer back in September, had two surgeries, then declined to do chemo because she was told it was state 1 (I'm kind of dubious of this) and since her and her partner with major au naturel types decided they could use a $2500 hydraulic juicer and juice their way to a cure. By the time I learned anything about her health it had spread to her lungs and elsewhere and she'd been in an out of the hospital for five weeks. It was not pretty at all, and by the time I got to the hospital she was barely conscious and could not even talk while I was in the room. I only sat with her for five minutes, but fortunately during the previous 10 days I'd spoken with her twice on the phone, mostly in a lucid state, so I knew it was super bad and what was coming. I've still not really processed it all and didn't go to the wake last night because it would have meant another trip to NYC. Life really has a way of sucking.
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: o hai guys! Let's chat about AIDS!
« Reply #95 on: March 15, 2014, 01:02:59 PM »
I, m sorry David , I too have met the Juice will cure us problem , take care , be good to your self. love m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline mitch777

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Re: o hai guys! Let's chat about AIDS!
« Reply #96 on: March 15, 2014, 05:00:27 PM »
David,

So sorry for the loss of your dear friend. I know there is nothing much more I can say other than yes, life can suck at times like this. 

(((Hugs)))
Mark
32 years hiv+ (oct. 2013) with a curtsy.

Offline WillyWump

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Re: o hai guys! Let's chat about AIDS!
« Reply #97 on: March 15, 2014, 07:58:55 PM »
Sorry about your friend, it sucks.

Glad your sexual function is back, maybe now you will spend more time masturbating instead of constantly trolling me via text.

Selfies in Dental chairs. Hmm.

POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline hope_for_a_cure

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Re: o hai guys! Let's chat about AIDS!
« Reply #98 on: March 17, 2014, 04:38:21 AM »
She had gotten diagnosed with a very rare form of uterine cancer back in September, had two surgeries, then declined to do chemo because she was told it was state 1 (I'm kind of dubious of this) and since her and her partner with major au naturel types decided they could use a $2500 hydraulic juicer and juice their way to a cure.

There seems to be a 'juicer' that will cure almost anything these days!  I had somebody recommend a special salad to me a few months back in lieu of chemo treatment. 

David, you have been through more these past few months than a body should have to deal with in a year or more.  I will say, you are not one to complain (although you have every right to).  All I can say is that I sure hope better times are coming for you soon. 

Again, I apologize for being so late to comment here.  My inward focus of late has kept me somewhat detached and please do not construe that as an effort to be indifferent.  Sending you my best and warmest wishes!

James

Offline Miss Philicia

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Re: o hai guys! Let's chat about AIDS!
« Reply #99 on: March 17, 2014, 02:00:35 PM »
Oh, and to the naysayers (Jefflina and Guilhermina) I have lost TEN POUNDS IN THREE WEEKS since getting off of Lyrica.
"Iíve slept with enough men to know that Iím not gay"

 


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