Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 21, 2014, 01:04:52 AM

Login with username, password and session length


Members
  • Total Members: 23510
  • Latest: yuanti
Stats
  • Total Posts: 639619
  • Total Topics: 48549
  • Online Today: 210
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 4
Guests: 142
Total: 146

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: 3 years to live?????  (Read 2640 times)

0 Members and 1 Guest are viewing this topic.

Offline MadisonTeddy

  • Member
  • Posts: 70
3 years to live?????
« on: December 28, 2013, 09:33:20 AM »
I just read this blogger on here (POZ) by Shaan somebody....He states:
"'I'm afraid because in comparison to White men who have sex with men (MSM), Black MSM are significantly less likely to be alive three years after testing HIV positive. ""  WTF...everyone on here says things will be fine...take the medicine blah blah and then I read this????  On POZ???? I just tested + and started meds 2 weeks ago....What is this guy talking about?????

Offline MadisonTeddy

  • Member
  • Posts: 70
Re: 3 years to live?????
« Reply #1 on: December 28, 2013, 09:35:00 AM »
Shaan Michael Wade...

Offline darryaz

  • Member
  • Posts: 450
Re: 3 years to live?????
« Reply #2 on: December 28, 2013, 09:39:11 AM »
Maybe he's afraid of George Zimmerman?

I don't know what he's talking about.

Offline emeraldize

  • Member
  • Posts: 3,348
Re: 3 years to live?????
« Reply #3 on: December 28, 2013, 09:46:00 AM »
I see Sean and Shawn but not Shaan on the bloggers list. Am I missing a location on POZ?

Okay. I went on Google and here's the source

http://www.poz.com/articles/shaan_michael_wade_2676_24644.shtml

And two sources for his reference
http://www.natap.org/2007/HIV/082207_03.htm
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1874211/

« Last Edit: December 28, 2013, 09:55:11 AM by emeraldize »

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 3 years to live?????
« Reply #4 on: December 28, 2013, 09:48:49 AM »
Ted, he is undoubtedly talking about people who never test and only find out they're hiv positive when their immune system has sustained heavy damage.

Can you provide a link so we can make give you more informed responses instead of speculating?
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 3 years to live?????
« Reply #5 on: December 28, 2013, 09:50:00 AM »
Maybe he's afraid of George Zimmerman?

I don't know what he's talking about.

Really? Too soon methinks.  ::) Sheesh.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline darryaz

  • Member
  • Posts: 450
Re: 3 years to live?????
« Reply #6 on: December 28, 2013, 09:51:14 AM »
Really? Too soon methinks.  ::) Sheesh.

Yeah, you're right.  Sorry about that.

Offline Jeff G

  • Administrator
  • Member
  • Posts: 11,783
  • How am I doing Beren ?
Re: 3 years to live?????
« Reply #7 on: December 28, 2013, 09:51:38 AM »
I haven't read the blog but its most assuredly speaking to the facts that the demographic group he is blogging about was less likely to test for HIV until very sick and less likely to follow up with treatment . 

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 3 years to live?????
« Reply #8 on: December 28, 2013, 09:56:03 AM »
I googled the name and it wasn't a blog you were reading, it was an opinion piece. http://www.poz.com/articles/shaan_michael_wade_2676_24644.shtml

From the article:

"I'm afraid because in comparison to White men who have sex with men (MSM), Black MSM are significantly less likely to be alive three years after testing HIV positive. I fear the looming battle against stigma he will face as a Black gay man with HIV. I fear he will lose his sense of self-worth, self-esteem, and perhaps even himself."

So yeah, it's the impact of stigma not only keeping people from testing in the first place, but also keeping people from following up with regular monitoring and treatment once they know they're positive, as Jeff mentioned.

A person who finds out they're hiv positive before their immune system is totally shot (ie at death's door) and accesses care and treatment will have good outcomes today, regardless of skin colour or any other demographic.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline emeraldize

  • Member
  • Posts: 3,348
Re: 3 years to live?????
« Reply #9 on: December 28, 2013, 10:01:51 AM »
I modified my post above earlier with the links and also found Shaan's source docs.

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 3 years to live?????
« Reply #10 on: December 28, 2013, 10:06:38 AM »
This phenomenon is known as "lost to follow-up" and is a big problem. Google it (hiv lost to follow-up) and you'll get plenty of studies and articles.

Many factors play a part, including mental health issues, substance abuse, "feeling well", and stigma. Stigma plays a very big part in the black community.

http://www.jwatch.org/ac200908030000001/2009/08/03/loss-follow-worsens-outcomes-hiv-patients-even

http://www.ncbi.nlm.nih.gov/pubmed/22531758

http://www.poz.com/articles/lost_followup_761_23979.shtml

Ted, keep attending your appointments and keep taking your meds every day and you'll be just fine. Seriously.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline MadisonTeddy

  • Member
  • Posts: 70
Re: 3 years to live?????
« Reply #11 on: December 28, 2013, 10:26:00 AM »
seriously?? He is using data from 2007???? POZ needs to screen this stuff...I am having a fucking meltdown in my kitchen reading stuff like that...Take the Pill...Take the Pill  Take the Pill...Hope you guys are right and NOT him... >:(

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 3 years to live?????
« Reply #12 on: December 28, 2013, 10:28:31 AM »
Teddy, please calm down. At this rate, anxiety is going to kill you long before hiv ever gets the chance.
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline buginme2

  • Member
  • Posts: 2,944
Re: 3 years to live?????
« Reply #13 on: December 28, 2013, 10:42:26 AM »
Yikes!  Hello.

Sorry about being newly diagnosed, it sounds like your a bit stressed out.

First, about these statistics.  While they may be true overall it's important to understand where they come from.  These statistics are skewed because black MSM as a group do not test for HIV as often as some other demographics therefore when they do test positive it's usually later in the course of the disease.   It is more common therefore for them to test positive with advanced disease progression. 

In addition, due to other factors such as stigma, financial, insurance reasons etc, there is a greater loss to follow up.  Meaning they may stop going to the doctor regularly and have more occasions of stopping their medications. 

These are problems with all hiv positive people not just black MSM however, this group may be experiencing these difficulties at a higher rate.  It shows us more work needs to be done to reach these people to ensure they test regularly and remain engaged in their care.

Don't take this overall situation and individualize it to yourself.  It's true, if you take your meds each day and remain engaged in your care by maintaining your doctors appointments as prescribed.  You will do fine.

Offline Dan0

  • Member
  • Posts: 416
Re: 3 years to live?????
« Reply #14 on: December 28, 2013, 01:01:42 PM »
You. Will . Be. Fine.

If you look on the internet  related to anything on HIV/AIDS you will soon find enough depressing ‘stuff’ that you’ll be searching for a bottle of Xanax and Vodka!  There is a lot of good information out there and a lot of bad information.  In most instances, it’s very easy to attribute what you READ to how you FEEL!

I think that everyone goes through this to some point when they start medication.  The itch that you develop may only be an ‘itch’ and have nothing to do with your medication.  The headache you have in the morning you think is the medication when, in fact, you were up all night staring at the computer trying to determine if the itch was really a medication induced rash!  Things just have a way of perpetuating themselves! Read the stuff that will be of value to you NOW – save the fluff for later!

It’s up to you to not only educate yourself but others.  Read things carefully. There are all sorts of quacks out there but they do have a following.  I just read somewhere about a farmer (somewhere) that offered a cure by injecting the blood of the person with HIV into the cow….and then the cow creates antibodies….and after that I’m not certain what you do with the cow. My vote is for steak!  At any rate, people were actually buying the cows because it obviously resonated with them and their hope and fear overrode their intelligence!

You’re too young to remember the Ebola scare 15 or more years ago.  Ebola is a horrible, gruesome disease that was quite the splash in the news!  I had an employee who was absolutely certain that he had it and had to go to the hospital.  I was certain he did not because I read up on it and the geography, symptoms, and the fact that he was STILL ALIVE didn’t support the fear he had. He knew this, too – but something in his mind would not let his intelligence override that conclusion.  All this from immersing himself in tabloid blather about the disease.

There is an article recently posted on here about nutrition. THAT’S good reading!  That is substantive and of value to someone / anyone with HIV. Don’t waste your time on the other stuff about cows, magic herbs and opinion pieces – especially opinion pieces. Sometimes, and itch is just an itch, a cow is just a cow, an herb is just a weed and an opinion piece is just some fags thoughts wrapped around a few carefully chosen statistics. It will drive you crazy. 

You. Will. Be. Fine.

You can be the ripest, juiciest peach in the world, and there's still going to be somebody who hates peaches.

"Honey, you should never ask advice from a drunk drag queen who has a show to do." - JG

06/2002 DX
10/2006 Atripla UD
10/2013 Stribild Still UD

Offline mecch

  • Member
  • Posts: 11,704
  • red pill? or blue pill?
Re: 3 years to live?????
« Reply #15 on: December 28, 2013, 01:02:34 PM »
I have never heard that genetic heritage of one sort or another has anything whatsoever to do with the efficacy of H.A.A.R.T.
If there are "statistically" significant differences for the success of HIV treatment related to ethnicity, its probably entirely about social factors, NOT the biochemistry of HAART in the body, assuming proper adherence.
I don't believe there is any such thing as race anyway.  And ethnicity is a cultural construct, for the most part.
Everyone HIV+ needs the correct H.A.A.R.T. at the right time and decent professional medical oversight.  This scenario is not a given! But assuming the ideal situation, I do think it is as "basic" as "take the pill"....   
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline skeebo1969

  • Member
  • Posts: 5,705
Re: 3 years to live?????
« Reply #16 on: December 28, 2013, 02:08:35 PM »


  Teddy, when you read articles like this your fear of the unknown keeps you from seeing the actual situation it brings up.  You're simply seeing it as saying "Black men have 3 years to live after being diagnosed", and being new to all this this is quite understandable.

  I've been there myself.  I sometimes think back.... and realize why I looked at the doom and gloom side of things.  I hated myself for becoming positive, and seeing the ultimate punishment, possible death, as the only viable outcome helped me to have a shitty attitude about life period.

  It takes strength to get through this phase.... that's about the only thing that makes me smile when I look back to 2005 when I was diagnosed.

  Tough shit to deal with, for some reason harder for a select few.  Wish I had the answer for why that is.

  On a side note... The article addresses an important issue, there are still a lot of African American people needlessly dying from AIDS, mainly in the inner city area. Whether it's related to stigma, religious views, or propaganda it keeps some from getting proper treatment to live. 
I despise the song Love is in the Air, you should too.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.