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Author Topic: How do you Live as a LTS w/ HIV/AIDS share your story  (Read 3324 times)

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Offline denb45

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  • Posts: 5,051
  • "1987 Classic Old School POZ+"
How do you Live as a LTS w/ HIV/AIDS share your story
« on: November 27, 2013, 10:21:36 AM »
1 Rent
2 Own
3 live w/ someone, roomate, otherhalf
4 live alone
5 live w/ parents, Mom or Dad
6 Subsidy HUD Sec 8, HOPWA
7 Do you still work
8 Disability
9 Homeless, live in a shelter
10 Jail or Prison

ME: 1,3 & 8
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline mitch777

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  • Posts: 3,542
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #1 on: November 27, 2013, 03:38:31 PM »
#2
#3
working on #8.
31 years hiv+ (oct. 2013) with a curtsy.

Offline Joe K

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  • 31 Years Poz
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #2 on: November 27, 2013, 07:22:08 PM »
Hey Dennis,

I'm confused on why you are asking for this information.  The fact that I rent, live alone and receive disability is but a small portion of how I live my life and it certainly doesn't shed any real light on how I live as a LTS.

Joe

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #3 on: November 27, 2013, 11:52:08 PM »
Oh, I was just trying to revive an old Poz mag article I remembered about 10 maybe 12 yrs. ago

titled give me shelter or something like that, I'm sure some of you might recall that one, or maybe not, that one was way back there about 1999 or maybe it was 2000

not important at all, don't mind me, I'm just being nosy......lol

HUGS

DEN
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline bear60

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #4 on: November 29, 2013, 01:14:10 PM »
I'm working on #10.
Poz Bear Type in Philadelphia

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #5 on: November 29, 2013, 02:31:03 PM »
I'm working on #10.

 :o  Hey Joel,  well lets hope not  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline bear60

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #6 on: November 30, 2013, 04:48:23 PM »
Dennis
Honey, my patience is running low these days.  I am so gonna deck someone who is blabbing on a cell phone or texting or whatever they do on those things now.  Its not a phone anymore!  It can even monitor what is happening at home.
Now, someone called me not long ago, and the ID on the phone was KYWTV (local Tv).  I, being excited that maybe I had won something, picked it up to find out that, no, it was this friend of mine whose lover had been in jail.  I swear it was a stolen phone! I went off.  I hope he never calls me again.  I
Poz Bear Type in Philadelphia

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #7 on: November 30, 2013, 07:46:51 PM »
Yeah I understand how you feel, however I own a smartphone..........

smartphones aren't that bad, it's just that some people ( younger folks)  think that their life is so damm important when it's really NOT  ::)

and they also have NO respect for everyone else on the road, that's when I get PISSED OFF!!  >:(
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline bear60

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #8 on: December 01, 2013, 12:16:18 PM »
I think its actually againt the law in Philadelphia to use a "phone" while driving.
Poz Bear Type in Philadelphia

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #9 on: December 01, 2013, 01:28:58 PM »
I think its actually againt the law in Philadelphia to use a "phone" while driving.

Same hear in ABQ, but, that doesn't stop them from doing it  ::)

haven't they heard of hands-free Blue-tooth,

most phones come with that now, and most newer cars on the road  ;)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline bear60

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #10 on: December 02, 2013, 11:40:04 AM »
Seems bike riders are out to top driving and texting.  Yesterday we saw a guy riding  his bike (in a bike lane) no hands, texting with both thumbs.
Poz Bear Type in Philadelphia

Offline weasel

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #11 on: December 18, 2013, 02:35:05 PM »


      Den , We own a home , it has too much land . Neither I nor Bob
   Have the energy to keep up with the encroaching woods  :(

    The winters here in Missouri are  cold and clammy , I do not do cold and clammy
   The price of gas has begun to keep us rather home bound .

    I though living in the woods would be cheap , Not so .   I would rather live in a city and not have to deal with paying insurance on vehicles .

  The older or longer I live with AIDS the less energy I have to do what needs to get done !

    I have found straight people are not so much afraid of my HIV  . But Gay guys   do not want to be exposed  .   They tend to know association will bring others to think they have HIV also  :o

   It is a very lonely life , even having a partner for over 30 years does not make for fun times .   I miss seeing people and having friends . I do not see my old age as getting any more social .    I find happiness where it comes .
   Certainly money is a concern , as all things are getting more and more expensive .     
    We're snow covered right now so I am getting cabin fever , It's been a few weeks snice I could get my truck out of the driveway .

  Such is the life of Ozark Woodsmen  :)

                                                        Weasel

    P.S.  : Still glad we are in a quiet zone , no matter how lonely ...
" Live and let Live "

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #12 on: December 19, 2013, 09:48:14 AM »
Well,  bob & I are just gonna have to come visit you & Bob sometime this spring, bob wants to go back east to see his folks, and you are on the way back & forth, I don't know when, but I'll be sure to let you know

BTW I hope that cheers you up some, I think it will be FUN  :)


HUGS

DEN
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline weasel

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #13 on: December 20, 2013, 10:09:54 AM »

   That would be fun Den  :)
" Live and let Live "

Offline deibster

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #14 on: December 22, 2013, 04:12:08 PM »
Hubby owns a condo but it's rented out, too many steps.
So #1, 3, 8 & a small pension
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasocort, Centrum, Flax Oil, Fish Oil

Offline cjmchgo

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  • Posts: 38
  • Dx 1992
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #15 on: December 25, 2013, 08:15:01 AM »
I just try to eat good, exercise, and be aware of how I treat myself and my body. And of course, take my meds daily. I mean, what else can you do???? It's going on 22 years for me and I feel great physically, it's the mental thing that bothers me from time to time.
April/May, 1992: Infected at age 21
Aug 31, 1992: Tested positive
Sep 8, 1992 T-cells 977, 43%
1993-1998: T-cells 675-800
1999-2001: T-cells 500-600
2000-2004: T-cells 425-525 23% VL 500-2000
2005-2008: T-cells 275-375, 20%, VL 950-2500
December 2008: Started Atripla
Dec 2009: T-cells 637, 33%, VL UD
Dec 2010: T-cells 544, 35%, VL UD
Dec 2011: T-cells 596, 41%, VL UD
January 2, 2012 stopped Atripla (CNS issues)
January 4, 2012 started Isentress/Truvada
March 25, 2014 Still on I/T t-cells 673, VL undetectable

Offline denb45

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  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #16 on: December 26, 2013, 11:04:56 AM »
it's the mental thing that bothers me from time to time.

Welcome  :D


yes that seems to be the ugly under-belly of this disease  :-\

and please don't believe anyone that says that they don't 

suffer form any of that, it's simply not true at all   ???

I like many other(s) struggle with this everyday

sometimes I do ok, but other times, i do not  :-[

again welcome  ;)

HUGS

DEN
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Jr

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  • Posts: 6
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #17 on: December 27, 2013, 01:43:22 PM »
1,3 and 8 for me.  Also, I just try to take one day at a time.  I quit tracking my labs a long time ago and stopped chasing the latest test tube cure.  With the exception of taking my meds daily, and going in for check-ups, I just try to exist as normally as I can. Might be apathy or indifference about my illness that has set in after all these years, but it is what gets me through the day.

Jr

Offline neb_top

  • Member
  • Posts: 8
  • lts and alone
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #18 on: January 11, 2014, 08:51:50 PM »
hello;

for the ones that don't have much energy or ambition, i have suggestion.

go to gnc store, for example, and get a powder supplement that has LOADS of amino acids and some caffeine and some protein.
people with hiv and aids don't have certain amino acids in their body. so i use it with 1% milk and drink 1 serving per day as 2 servings might give you too much jitters and too hyper. i get moderate amount of energy back and if i drink it too late in the day, it will effect my sleep.

if you want to google amino acids and one of the url's lists all the amino acids and information about each one and how people with hiv are missing some.

if you have the money i'd suggest giving it a try and see if you get some energy back in your day. i buy the 1.2 pound plastic bag, personal reasons. it costs about $36 for the 1.2 pound bag.

my lack of energy might be multiple reasons. including the hiv meds.

if you want to share your feedback i'd like to read it.

regards, 



Offline harleymc

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  • Posts: 214
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #19 on: January 30, 2014, 08:05:41 PM »
Took me ages to reply to this thread.. The original post really only asked two questions, where do you get your money and what is your housing situation.

So those are the two questions about living with HIV I find the least interresting.
Here's the stuff that makes my life good and not so good.

The bad: depression and anxiety, chronic pain, erectile disfunction, being in a society with so many inequalities, stigma and  bigotry of all kinds.

The good: friends, playing softball, cycling, volunteering, dance lessons, music, Viagra, physiotherapy, hiking (just a little bit these days because of the back pain), my sisters, cognitive behavioral therapy, neuro-linguistic programming, counselling, gardening, people who combat stigma and or bigotry, people who care, people who create I could go on and on....


Offline forestsong

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  • Posts: 3
Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #20 on: February 01, 2014, 12:15:39 AM »
Hi all,
I guess for all the LTS that been around I was know as GLS(Godlostsoul). I stop for earthlink so lost my email address. I started coming here when it was just a dating site.  My brother and I must got around 1983, you know sex was ez back then. My like brother die Aug 1, 1987. It hit him fast and then he was gone. I pass out in 1982 and was taking to the hospital...my number was 3 and 480,000.

I like with my brother and his wife and my little girl 14. I work full time for now, I turn 55 Jan 20, so I fall under the 85 rule. Age plus year in company make 85. Yes I been at the same company for 35 years.

I don't get sad anymore, I think of being Poz as just another pill. I would like to meet more Poz people. I guess what keep me going all these years is I got two kids and I love playing Wow.(LOL)

Norvir, Isentress, Prezista,Lamivudine

Brooklyn NY
Forestsong         

Offline forestsong

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Re: How do you Live as a LTS w/ HIV/AIDS share your story
« Reply #21 on: February 01, 2014, 12:24:22 AM »
sorry correction ....pass out in 1992....lol can't type

 


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