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Author Topic: Has anyone on disability gone back to work  (Read 1064 times)

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Offline LiveWithIt

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Has anyone on disability gone back to work
« on: October 27, 2014, 09:46:39 AM »
and how has it affected your benefits, medical costs (doctor visits and labs)  and medication costs?
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

Offline wolfter

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Re: Has anyone on disability gone back to work
« Reply #1 on: October 27, 2014, 10:01:54 AM »
This is a very broad question and could lead to irrelevant tangents.  Perhaps share where you're currently at and what you're considering doing? 

I've been on disability a few different times since diagnosis.  I always went back to work whenever I got well again.  I lost all benefits each time and was required to to exist like any other person in the workforce.  I always had the assurance that I could easily get SSD again in my condition worsened.

The 2nd time I got sick, I got approved almost immediately.  Stayed on it for about a year until I got well again.  Again, I got well and returned to work and had a long run of almost 15 years.  Got sick again and it took forever to get approved again. 

So my impressions of stopping SSD once approved has changed.  I would love to return to the workforce again but don't have the strength to fight again if I ever needed it in the future.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline BT65

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Re: Has anyone on disability gone back to work
« Reply #2 on: October 29, 2014, 06:17:16 AM »
I have gone back to work. Started off part time, went full time and lost SSDI, then had to go back to part time. It was a nightmare getting back on SSDI.  I had to have a couple government offices intervene on my behalf, and I believe that's why I was able to get back on it.

Now I send in copies of my pay stubs every other month. I was told that if I went over SGA, even by $1, that I would be deemed "not disabled," and would lose my benefits.

SGA this year is $1070.  I don't know if it will go up next year or not; doesn't matter since I don't make close to that in my current job positions.

If you are thinking about returning to work and are on SSDI, I would suggest contacting your local vocational rehabilitation office and tell them you want to work with a benefits counselor. (S)he can work with you and advise on how to work and keep your benefits.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline mitch777

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Re: Has anyone on disability gone back to work
« Reply #3 on: October 29, 2014, 05:01:38 PM »
Live,

I hate to discourage people from getting back to work if they think it's  likely to be long-term as you can see by the above posts it can be a stressful experience. They both went through so much getting back in the system. (It really sucks the way it's set up for these kind of situations. It would seem to me that the SSA should be delighted to see people head back to work, and maybe they are but getting back on disability not so much. ha!)

I've never been on disability but applied over 2 1/2 years ago and won't know my fate until January, 2015. If you do decide to get back into the workforce I would be aware and KEEP aware of changes is the SSA as well as making sure you are covered financially for the waiting period.

Best of luck to you in whatever direction you choose. 

ps- I don't recall your age if it were ever mentioned and can't remember current health issues.
« Last Edit: October 29, 2014, 05:04:46 PM by mitch777 »
32 years hiv+ (oct. 2013) with a curtsy.

Offline wolfter

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Re: Has anyone on disability gone back to work
« Reply #4 on: November 11, 2014, 05:45:21 PM »
What's the point of starting a thread and not bothering to participate? 
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline initforlife

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Re: Has anyone on disability gone back to work
« Reply #5 on: November 11, 2014, 05:55:42 PM »
ok I have a question   how do you know if your ssd is a temporary thing or long term. I know nothing about this and from everyone talking about how long it took them for theirs I'm thinking mine might be that I got sick in Jan apply in feb and got approve in June fast. but it wasn't  for hiv at the time I had two Pe in lungs and dvt in my leg then in march I found out I was hiv+ so I guess what im wondering if that other issues clear up and get better will they want me to go back to work? 
sometimes it is best to say nothing at all. then to offend

Offline zach

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Re: Has anyone on disability gone back to work
« Reply #6 on: November 11, 2014, 05:57:51 PM »
even if the OP has moved on, its still a relevant topic, i know i've watched with interest and would love to hear more voices

it is something i'm thinking about doing, i simply dont make enough to do anything more than maintain. and unfortunately, my current situation is unsustainable, it is inevitable that i have to move in the next few years.

Offline wolfter

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Re: Has anyone on disability gone back to work
« Reply #7 on: November 13, 2014, 05:00:03 AM »
even if the OP has moved on, its still a relevant topic, i know i've watched with interest and would love to hear more voices

it is something i'm thinking about doing, i simply dont make enough to do anything more than maintain. and unfortunately, my current situation is unsustainable, it is inevitable that i have to move in the next few years.

It is very relevant, I agree.  It's a difficult decision that many of us face.  I personally think it's just bad form to start a new thread with a one line question and never return to participate even though they've started other, newer threads.

Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Miss Philicia

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Re: Has anyone on disability gone back to work
« Reply #8 on: November 13, 2014, 07:21:19 AM »
ok I have a question   how do you know if your ssd is a temporary thing or long term. I know nothing about this and from everyone talking about how long it took them for theirs I'm thinking mine might be that I got sick in Jan apply in feb and got approve in June fast. but it wasn't  for hiv at the time I had two Pe in lungs and dvt in my leg then in march I found out I was hiv+ so I guess what im wondering if that other issues clear up and get better will they want me to go back to work? 

Find your SSA initial approval letter. I'm sure it will say on there under what grounds you were approved.

But if you are asking if SSA automatically is notified that you are now HIV+ when you were not approved for that initially then I'm quite sure the answer is no.
"Iíve slept with enough men to know that Iím not gay"

Offline initforlife

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Re: Has anyone on disability gone back to work
« Reply #9 on: November 13, 2014, 10:14:29 AM »
No I know they know im hiv + now because when they called for me to get my paper work back in right away I was waiting on my test results from the health dept to see if I was +  and wrote it on paper work when I sent it back in.. but like I said the dx on the letter when I was approve for my ssd didn't have the dx of hiv+ so it was for my other dx of the PE and DVT and possible cancer which we are still watching me closely for . But I will see if I can find the paper work I was very sick at the time and they sent me so much shit I don't remember if it was temp or not. Heck I didn't get the letter of approval until after money was deposited in my checking account that's How I knew I got it at first. then a week later I got the letter lol
sometimes it is best to say nothing at all. then to offend

Offline zach

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Re: Has anyone on disability gone back to work
« Reply #10 on: November 13, 2014, 12:32:30 PM »
wolfie, agreed, bad form

init, ms p is right

i pulled mine out  :o and i have two letters, one is a medical determination of disability, and then the official notice of award arrived in the mail a week later

the determination of disability lists the medical reasons considered in the decision, for me it goes into detail about HIV and which OIs I have had and was being treated for at the time. the notice of award doesn't have any medical information on it, it simply states the date that i became disabled under their rules, and that i am entitled to benefits

*note to all reading*
the notice of award is a vital record, keep it safe with your birth certificate and such
« Last Edit: November 13, 2014, 12:35:15 PM by zach »

Offline initforlife

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Re: Has anyone on disability gone back to work
« Reply #11 on: November 13, 2014, 01:32:22 PM »
Heck I can't find it I guess I threw it away didn't know I was suppose to keep it . lol but like I said I was very sick at the time and still trying to work 12 hrs a day I finally had to quit in may couldn't do it anymore and run to the dr once aweek for blood work plus I was exhausted. oh well im sure they will tell me before they kick me off  just I hope I have time to go back to school and figure out what I want to do next.
sometimes it is best to say nothing at all. then to offend

Offline BT65

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Re: Has anyone on disability gone back to work
« Reply #12 on: November 13, 2014, 01:37:16 PM »
I've been on SSDI so long I have no idea where the notice of award letter is other than knowing I don't have it anymore.  But, when I look up my SS account online it goes back to the beginning and lists every single payment I've gotten in over 20 years. 

I am a more organized letter keeper now, and kept everything from the last go around with SS, including the letters from the government officials who got involved. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline wolfter

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Re: Has anyone on disability gone back to work
« Reply #13 on: November 13, 2014, 01:57:13 PM »
Heck I can't find it I guess I threw it away didn't know I was suppose to keep it . lol but like I said I was very sick at the time and still trying to work 12 hrs a day I finally had to quit in may couldn't do it anymore and run to the dr once aweek for blood work plus I was exhausted. oh well im sure they will tell me before they kick me off  just I hope I have time to go back to school and figure out what I want to do next.

You can contact the SSA and ask for a copy of your award letter.  You'll receive it pretty quickly.  Even if you're determined to be totally permanently disabled, there is still a chance they'll review your case from time to time.  I believe I read something about  regular 5 year reviews.  Other things that can prompt a review is showing income during any period of disability.  I also read that participating in the back to work program (can't recall the exact name of the program) can also trigger your case to be watched and monitored.

Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline BT65

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Re: Has anyone on disability gone back to work
« Reply #14 on: November 13, 2014, 02:35:19 PM »
Yes, being determined "totally and permanently" disabled doesn't mean you're free from review.  It means there's a longer time span in between reviews.  You can actually find it on SS's website. I believe totally disabled is like 7-10 year reviews, the middle level is 3-5 year reviews and the last one is like a year.

The "Ticket to Work" program is through SS and was designed to do one thing-get people off disability.  They won't review someone while he/she is going through the program, but once completed, they will. 

I don't encourage or advise anyone to participate in that program unless the person is sure they will not need disability any longer, or for the rest of their lives.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline zach

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Re: Has anyone on disability gone back to work
« Reply #15 on: November 13, 2014, 02:48:31 PM »
if you have SSI or SSDI, take the time to set yourself up on the website

https://secure.ssa.gov/RIL/SiView.do

for return to work information, the name of the program is "ticket to work"

www.socialsecurity.gov/work/

and from all anecdotal reports i've heard, wolf is right, i am hesitant to even contact them for information until i am 100% ready to follow through

betty, these levels you're referring to, i can't find any reference to such in my paperwork (it is in hand)

could you elaborate on how i tell which level of disability they consider me?
« Last Edit: November 13, 2014, 03:05:56 PM by zach »

Offline initforlife

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Re: Has anyone on disability gone back to work
« Reply #16 on: November 13, 2014, 03:02:56 PM »
Thanks I would love to work but not sure i'm able yet. a lot of health issues other then the hiv.. hell who knew when one turned 50 their damn body would fall a part so fast. Just not one who sits around gets me to damn depressed which Iam today left my darn anti depression meds at my daughters the other day. oh well knew ones come in Monday.
sometimes it is best to say nothing at all. then to offend

Offline Miss Philicia

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Re: Has anyone on disability gone back to work
« Reply #17 on: November 13, 2014, 05:00:44 PM »
Heck I can't find it I guess I threw it away didn't know I was suppose to keep it . lol but like I said I was very sick at the time and still trying to work 12 hrs a day I finally had to quit in may couldn't do it anymore and run to the dr once aweek for blood work plus I was exhausted. oh well im sure they will tell me before they kick me off  just I hope I have time to go back to school and figure out what I want to do next.

You can call SSA and request another copy of your initial award letter -- ask them to send whatever documentation they sent you regarding the medical determination. Either that or you can go in person and request it.

I'm not sure where mine is either -- but I have a large SSA file and I'm sure it's in there somewhere. But if not and I needed it I'd know where to go to get another copy.
"Iíve slept with enough men to know that Iím not gay"

Offline LiveWithIt

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Re: Has anyone on disability gone back to work
« Reply #18 on: November 17, 2014, 12:20:53 PM »
Thanks for the responses and info everyone.
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

 


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