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Author Topic: My very own lymphoma  (Read 14845 times)

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Offline Buckmark

  • Member
  • Posts: 1,574
  • Would you like to tie me up with your ties, Ty?
    • Henry's Home Page
My very own lymphoma
« on: November 13, 2013, 01:23:23 PM »
Folks,

If perhaps anyone has noticed that I haven't posted much lately, it's because I was recently diagnosed with non-Hodgkins lymphoma (Burkitts).  It started back in September when a lump appeared under my chin, virtually overnight.  Through a series of scans and biopsies, I found that it was lymphoma.  I then was referred to an oncologist (who I like very much) and have been through a series of diagnostic procedures, plus a surgery to implant a port in my chest for chemo, which I started last week.

The good news is that this is a "high grade" lymphoma which is very susceptible to chemotherapy.  I'm at Stage 3, as the cancer is also in another lymph node in my abdomen.  It's not present in my spinal fluid or bone marrow (huzzah).  The bad news is that my chemo is delivered over the course of a week through a portable pump that I take home with me, and I go back for a refill every day that week.  I'll repeat this cycle every 3 weeks, including "prophylactic" chemo for my spine / brain via a lumbar puncture.  Having been through two lumbar punctures already, I can say they are not nearly as bad as they sound (but still unnerving).

I'm grateful for my family and friends who have rallied around me.  My sister spent the past 2 weeks here in Austin with me while I went through my first round of chemo.   My other sister is coming to visit for my next round I've got a long road ahead, but at least I now have some idea of what to expect.

I implore everyone with HIV to pay special attention to any lumps or bumps they noticed on their body.  Lymphomas are commonly associated with HIV+ folks, especially long-term survivors, and you need to act quickly and decisively if you suspect something is wrong.  Even if your HIV is controlled and your viral load and CD4 counts are perfect as mine are, you have to be vigilant

Oddly, this all started in September about the same time as another of our forums members here (hope_for_a_cure) who also posted about having Hodgkins lymphoma.  We're going to kick butt together, and could use all the positive thoughts, energy and prayers you can send our way.

Hugs,

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline 2tcells

  • Member
  • Posts: 114
Re: My very own lymphoma
« Reply #1 on: November 13, 2013, 01:53:05 PM »
How big was that lump.? And how big are these lumps and bumps we are supose to be looking for? I have 2 tinny bumps like the size of the tip of a ball point pen on my upper leg is that something to worry about?
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline Miss Philicia

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  • Posts: 24,516
  • celebrity poster, faker & poser
Re: My very own lymphoma
« Reply #2 on: November 13, 2013, 02:21:57 PM »
2tcells, if something like this concerns you merely point them out to your doctor on your next visit. The good thing about having HIV is that we all are seeing doctors regularly. He will be better able to assess your concerns.

I would caution other newly diagnosed members not to become paranoid from reading Henry's thread, or the fact that two long-term survivors have been diagnosed in the past month with lymphoma. It is all too easy to become overly anxious.
"I’ve slept with enough men to know that I’m not gay"

Offline Jeff G

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  • Member
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  • How am I doing Beren ?
Re: My very own lymphoma
« Reply #3 on: November 13, 2013, 02:38:43 PM »
I agree with Miss P . Henry , Im glad you decided to post . You are loved by all who know you and being able to support you and let you know we care is a true blessing . Jeff .

Offline Fisher

  • Member
  • Posts: 283
Re: My very own lymphoma
« Reply #4 on: November 13, 2013, 02:58:26 PM »
Sorry you have to deal with this, Buck. Sounds like a bit of a hassle. Hope the Chemo doesn't drain you too much. Thinking of you and your smile and wonderful disposition.
- fisher
09/22 CD 385 %22 VL UD
07/14 CD 391 %20 VL UD
04/14 CD 486 %23 VL <20
11/13 CD 351 %21  VL <20
10/13 CD 390 %16  VL <20
06/13 CD 315 %19  VL  22
02/13 CD 396 %14  VL <20
12/12 CD 392 %13  VL 320
11/12 CD 428 %13  VL 1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 – Western Blot
05/83 – 04/98 - Monogamous Partner Being Negative
ARS - LA '82

Offline buginme2

  • Member
  • Posts: 3,291
Re: My very own lymphoma
« Reply #5 on: November 13, 2013, 03:12:39 PM »
So sorry Buckmark
Don't be fancy, just get dancey

Offline wolfter

  • Member
  • Posts: 4,741
Re: My very own lymphoma
« Reply #6 on: November 13, 2013, 03:19:15 PM »
My heart sunk a little after reading - I'm truly so sorry.  Perhaps you and James can reach out to each other for mutual support.  He too recently had the port installed and started his chemo.

I'm definitely sending you both all the positive energy I can garner.  Feel free to reach out if you ever need an ear.

hugs and luv
Greg
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline hope_for_a_cure

  • Member
  • Posts: 1,502
Re: My very own lymphoma
« Reply #7 on: November 13, 2013, 03:24:19 PM »
Hey man!  Glad to see your post on here today.  My oncologist emphasized that especially during the early treatments, we should drink LOTs of water.  Those tumors are already being dissolved and as you may guess, the small particles are going to pass out of our body when we void.  LOTS of purified water will make it easier on our kidneys.... we need them for more fun stuff as you know.

I hope you are getting decent rest too.  Yes, we will kick the crap out of this and lets plan to have a victory dinner when we get together next summer at AMG!


Best!

James

 


Offline mitch777

  • Member
  • Posts: 3,736
Re: My very own lymphoma
« Reply #8 on: November 13, 2013, 03:50:42 PM »
Hi Henry,

Ugh. :(

I've been staring at this screen not knowing what to say.
Just know that I will be thinking of you during the coming months and I'm so sorry that you have to go through this muck.

I hope you will keep in touch here so we can route you on along the way.

(((((((Hugs!)))))))

Mark

32 years hiv+ (oct. 2013) with a curtsy.

Offline tednlou2

  • Member
  • Posts: 5,083
Re: My very own lymphoma
« Reply #9 on: November 13, 2013, 04:13:16 PM »
Henry,

I know you will kick some ass.  I am glad to hear the prognosis is good.  I have known a few with this.  One was a childhood friend.  Being HIV neg, the swollen nodes sent off immediate alarm bells.  He said they had checked for everything, including HIV, so that's how I know he was neg.  So, I do wonder how many poz folks, and their docs, would dismiss this as just HIV-related.  Good to be vigilant, without being obsessive.

Take care, rest, and we will wait for the all clear.  My friend just posted this week that he was getting his chemo port removed.  This surprised me and was educational.  He was given the "all clear" months ago.  I guess they wait and monitor for several months, in case he should need it again. 

Edited for spelling

Offline WillyWump

  • Member
  • Posts: 7,277
Re: My very own lymphoma
« Reply #10 on: November 13, 2013, 04:49:23 PM »
Oh Geez no :( I hate that this is happening to one of the nicest people I've ever met.

I'm so sorry you are having to deal with this Henry. But I know you will kick some Lymphoma ass and get through it. We are all here for you buddy, and remember I am only an hour or so away and more than happy to help day or night if you need it. If you are up for a quick visit this weekend maybe I will bring you a World Famous Wump Casserole  ;)

I'm praying for you (and Hopey too!)

Big super hugs!
-Will
« Last Edit: November 13, 2013, 05:15:12 PM by WillyWump »
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Alain

  • Member
  • Posts: 680
  • I am.
Re: My very own lymphoma
« Reply #11 on: November 13, 2013, 04:56:37 PM »
Henry,

I am very sorry that you have to go through all of this, and I know that you will give it your best.

Your affirmation "my very own lymphoma" is what caught my eyes, and as it might sound weird to others, its telling me that you are in charge sort of speak and determined to do whatever you have to.

I am glad that your family is around helping you. Please know that you are not alone.

With fondest thoughts,

Alain


Offline Theyer

  • Member
  • Posts: 2,592
  • Current ambition. Walk the Dog .
Re: My very own lymphoma
« Reply #12 on: November 13, 2013, 05:02:46 PM »
Ah Henry I am so sorry you have to go throe the treatment , but very glad that you have posted , If the Gods will accept a prayer from this sinner then theres one more gone up for you.
Lots off Love and every good wish there is Henry
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Lou-ah-vull

  • Member
  • Posts: 954
Re: My very own lymphoma
« Reply #13 on: November 13, 2013, 05:33:47 PM »
Henry,

I too am so sorry for this turn of events for you.  I hope all of our prayers, warm thoughts, and well wishes will help you through the healing process.  I am typing this in the airport lounge in Newark waiting to board an overnight flight for an eight day pilgrimage to Jerusalem and Israel.  Now that I know about your condition, you will be on one of those slips of paper I will insert into the Western Wall in Old Jerusalem (the Temple Mount)-- of the most sacred and holy places in the world.  I hope things will be much improved by the time we gather in San Diego.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD
06/14:  823 (47.2%), UD

Offline bmancanfly

  • Member
  • Posts: 605
  • Medicare For All !
Re: My very own lymphoma
« Reply #14 on: November 13, 2013, 06:32:47 PM »
Damn.  :(      Sorry you have to go through this.  I hope the treatment goes well and is not too unpleasant.

"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,093
Re: My very own lymphoma
« Reply #15 on: November 13, 2013, 06:41:21 PM »
I love you Henry.  Just so you know.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline OneTampa

  • Member
  • Posts: 2,314
  • "Butterflies are free."
Re: My very own lymphoma
« Reply #16 on: November 13, 2013, 08:10:57 PM »
Henry,

I am so sorry to read about your cancer challenge.

Sending super strength good vibes to you and hoping you kick the pest
over the fence and out of sight.

Take care.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline J.R.E.

  • Member
  • Posts: 7,280
  • Joined Dec-2003 Living positive, since 1985.
Re: My very own lymphoma
« Reply #17 on: November 14, 2013, 07:37:05 AM »
Hey Henry,..

Ed and I are sending you positive energy and keeping you in our daily thoughts.

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 12/10/14,  t-cells are at 350,  Previous 8/25/14--- 402/ Viral load remains <40

 Current % is at 13% / Previous 8/25/14 11%

  
 63 years young.

Offline bocker3

  • Member
  • Posts: 3,458
  • You gotta enjoy life......
Re: My very own lymphoma
« Reply #18 on: November 14, 2013, 11:32:20 PM »
Henry,

So sorry to hear this news.  Of course, you will kick this lymphoma right out.  Your calm and steady nature will certainly help.  Glad you have solid support - do not be afraid to ask for help when you need it. 

Will send all the positive thoughts that I can down your way (as well as James way too).

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Online leatherman

  • Member
  • Posts: 6,327
  • Google and HIV meds are Your Friends
Re: My very own lymphoma
« Reply #19 on: November 15, 2013, 01:32:24 AM »
oh my. i'm very troubled to hear this news. Best wishes to you as you get chemo-ed for a speedy easy recovery :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline GSOgymrat

  • Member
  • Posts: 5,052
  • HIV+ since 1993. INTJ
Re: My very own lymphoma
« Reply #20 on: November 15, 2013, 10:49:52 AM »
I hate that you are having to deal with this. I hope chemo goes well and that side effects are minimal.

Offline LiveWithIt

  • Member
  • Posts: 414
Re: My very own lymphoma
« Reply #21 on: November 15, 2013, 07:47:22 PM »
So sad to hear about this new illnes, hope you beat it quickly. 
Pray God you can cope
I know you have a little life in you yet.
I know you have a lot of strength left.

Offline NY2011

  • Member
  • Posts: 141
Re: My very own lymphoma
« Reply #22 on: November 19, 2013, 09:17:45 PM »
i wish you the best. please stay strong and fight this. 
10/26/2011 - SEROCONVERSION (hi fever+rash)
10/31/2011 - CD4= 154  VL>500,000 
10/31/2011 - started on Truvada+Prezista+Norvir
12/14/2011 - CD4= 750 VL=6412 (45%)
01/27/2012 - switched to Atripla
04/23/2012 - CD4=1,221 VL= 140  (47%)
06/22/2012 - CD4=1,224 VL= ud    (49%)
12/18/2012 - CD4=1,031 VL= ud    (51%)
09/16/2013 - CD4=1,151 VL= ud   ( 49%)
03/26/2014 - CD4=1,050 VL= ud
11/25/2014 - CD4=1,335 VL= ud

Offline denb45

  • Member
  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: My very own lymphoma
« Reply #23 on: November 20, 2013, 05:03:31 PM »
Henry  :(    I'm at a loss for words, and didn't know just what to say about all of this, I do know that when I 1st meet you @ AMG D.C. I thought that you were such a nice guy, I know you can beat this, and I think your a lot stronger than you may think, so please be well, and keep up your treatments as I know you will, and I'd like to see you again at another future AMG, just like I did before  ;)



HUGS


DEN  8)
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Jody

  • Member
  • Posts: 1,843
Re: My very own lymphoma
« Reply #24 on: November 20, 2013, 06:01:08 PM »
Dearest Henry, I am sorry I missed this post until now but please know I too hope that the chemo kicks butt and that you will be in remission very soon.  You are indeed one of the very nicest guys around and you deserve the best. 

And to our friend James, also a speedy and full recovery.

Keep on truckin' guys.

Jody
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline Lou-ah-vull

  • Member
  • Posts: 954
Re: My very own lymphoma
« Reply #25 on: November 22, 2013, 02:52:50 AM »
Henry...just got back from eight days in Jerusalem a few hours ago.  I actually put your name on a slip of paper and placed it in the famous Western Wall (aka the Wailing Wall) at the Temple Mount.  One would be hard pressed to find a holier place on this planet!  I even wore (as all men who go to the wall do) a yarmukle (a first for me!)

Keep reminding yourself how many people are thinking of you and supporting you through this.

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD
06/14:  823 (47.2%), UD

Offline WillyWump

  • Member
  • Posts: 7,277
Re: My very own lymphoma
« Reply #26 on: November 22, 2013, 10:11:31 AM »
.  I actually put your name on a slip of paper and placed it in the famous Western Wall (aka the Wailing Wall) at the Temple Mount. 

This is so cool Gary.
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Theyer

  • Member
  • Posts: 2,592
  • Current ambition. Walk the Dog .
Re: My very own lymphoma
« Reply #27 on: November 23, 2013, 07:11:18 AM »
^^^^^^
agree

Finding my self often thinking how you are Doing  Henry, when you have finished and recovered from the chemo I would be intersted in  hearing  more about your chemo regime .

So here's to your last chemo day Henry.

Michael

"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Buckmark

  • Member
  • Posts: 1,574
  • Would you like to tie me up with your ties, Ty?
    • Henry's Home Page
Re: My very own lymphoma
« Reply #28 on: November 25, 2013, 11:47:08 AM »
I've tried to follow-up on this thread a few times, but it has been hard to find the right words to tell everyone how much your support and prayers mean to me.  To know that so many people are thinking of me and care so much really lifts my spirits.  I still have a long way to go with my chemo, and I'll look back here when I'm having a down day (or week).  Fortunately, this week seems pretty good, certainly better than last week.

And for Gary, for you to put my name in the Western Wall is just so cool and thoughtful and amazing.  I still cry when I think about it.  Thank you so much for taking the time to think of me.

My love and hugs to you all...

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Jeff G

  • Administrator
  • Member
  • Posts: 13,238
  • How am I doing Beren ?
Re: My very own lymphoma
« Reply #29 on: November 25, 2013, 12:56:25 PM »
Hi Henry , you are not alone . Its hard to find the right words in this kind of situation but I hope we both can take comfort knowing how much everyone on this forum cares about you and loves you . You are always one of the first to offer support and now its your turn to feel the love . 

You can rest assured that every day positive energy is coming your way .

Offline mitch777

  • Member
  • Posts: 3,736
Re: My very own lymphoma
« Reply #30 on: November 25, 2013, 04:12:16 PM »
Glad to hear you are feeling a bit better this week Henry. Hope you are feeling up to a nice Thanksgiving surrounded by family, friends, and good food. :)

Not a day goes by that I don't think about you.

m.
32 years hiv+ (oct. 2013) with a curtsy.

Offline WillyWump

  • Member
  • Posts: 7,277
Re: My very own lymphoma
« Reply #31 on: November 25, 2013, 08:45:51 PM »
Love you BUNCHES Henry.

((( Extra big hugs ))

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline bocker3

  • Member
  • Posts: 3,458
  • You gotta enjoy life......
Re: My very own lymphoma
« Reply #32 on: November 25, 2013, 10:27:55 PM »
Henry,

Thinking about you every day.  So glad you are having a good week.  When a bad one comes along, just know that we are all here sending positive energy your way Thank goodness there are soooo many positives here!! (I read that humor is therapeutic -- even bad humor).

Sending hugs down to Texas.......   :-* :-*

Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline tednlou2

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Re: My very own lymphoma
« Reply #33 on: November 25, 2013, 11:02:24 PM »
Henry,

Glad to hear this week is starting better for you.  Even though we've never met personally, know that you're in my thoughts. 

Offline Theyer

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Re: My very own lymphoma
« Reply #34 on: November 28, 2013, 06:16:42 AM »
Oh Henry how great it is to read a Post from you and off course it is beautifully worded. You are right Henry ( about many things ) when you say many people have you in there daily thoughts and are wishing you well. I know its a fucking awful struggle at times Henry and am delighted that this week is somewhat better.

Keep on keeping on Henry and be sure that many are wishing you well.

Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline BT65

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Re: My very own lymphoma
« Reply #35 on: November 28, 2013, 12:10:22 PM »
Henry, I love to read your posts.  Whatever seems to be going on, you always have something sweet to say. 

I'm thinking of you, and wishing you the very best with this treatment.  {{Hugs from Hoosierville}}
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Basquo

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Re: My very own lymphoma
« Reply #36 on: November 29, 2013, 09:07:40 PM »
Henry I just read this last night and it's taken me until tonight to reply...yet I just don't know what to say that hasn't been said already. I think you have had a lot of challenges before and maybe they were just toughening you up for this one. You know I work not too far from you so if you need anything from the store or a light bulb changed or just want to talk, give me a call. Santi and I are thinking of you.

Hugs,
Creighton

Offline Lou-ah-vull

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Re: My very own lymphoma
« Reply #37 on: December 15, 2013, 11:42:57 PM »
Henry,

Just arrived in Las Vegas tonight for a little R & R before the madness of Christmas and New Years and had reason to remember our great time here a few AMGs ago.  I know you are facing difficult challenges and I wanted to remind you that you are always in my thoughts and prayers.  Hoping that things are already beginning to get better….

Gary
Diagnosed Oct. 2005
10/05:  367 (26.2%), 24556 VL
01/06:  344 (24.6%), 86299 VL
04/06:  374 (22.0%), 87657 VL
05/06:  Began HAART 05/15/06, Combivir/Kaletra
07/06:  361 (27.8%), 1299 VL
10/06:  454 (32.4%), 55 VL
01/07:  499 (38.4%), UD
02/07:  Switched to Atripla 2/8/07
04/07:  566 (37.7%), UD
08/07:  761 (42.3%), UD
06/08:  659 (47.1%), UD
01/09:  613 (43.8%), UD
07/09:  616 (47.4%), UD
01/10:  530 (44.2%), UD
07/10:  636 (48.9%), UD
01/11:  627 (48.2%), UD
07/11:  840 (52.5%), UD
01/12:  920 (51.1%), UD
07/12:  857 (50.4%), 40
10/12:  UD
01/13:  710 (47.3%), UD
07/13:  886 (49.2%), UD
01/14:  985 (46.9%), UD
06/14:  823 (47.2%), UD

Offline Jody

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Re: My very own lymphoma
« Reply #38 on: December 16, 2013, 09:36:00 PM »
Here's hoping this year's holiday season will bring good news for you dearest Henry and that a complete recovery is near for you.

Hugs,

Jody
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline skeebo1969

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Re: My very own lymphoma
« Reply #39 on: December 17, 2013, 09:45:43 AM »


   I've looked at this white box for 10 minutes now, and nothing seems appropriate.  I can only draw from the courage you show to say I am very concerned.  I'll keep you in both my thoughts and prayers.
I despise the song Love is in the Air, you should too.

Offline Buckmark

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Re: My very own lymphoma
« Reply #40 on: December 17, 2013, 10:16:54 AM »
Henry,

Just arrived in Las Vegas tonight for a little R & R before the madness of Christmas and New Years and had reason to remember our great time here a few AMGs ago.  I know you are facing difficult challenges and I wanted to remind you that you are always in my thoughts and prayers.  Hoping that things are already beginning to get better….

Gary

Hope you enjoy your R & R, Gary.  You deserve it! 

To give everyone a quick update, my week is starting out on the upswing, after a down week last week.  I'm anticipating the holidays will go well.  My next treatment is scheduled to start December 30th, and my sister Louise from New Jersey will be arriving then to help me through it.

My sincere thanks to everyone for their words and thoughts and prayers of support.

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Jeff G

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Re: My very own lymphoma
« Reply #41 on: December 17, 2013, 10:22:57 AM »
I'm so happy you are doing so well . We never know how tough we are until we experience something like this and you have been one tough guy through this . Whats next Henry, alligator or bear wrestling ? 

Offline mitch777

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Re: My very own lymphoma
« Reply #42 on: December 17, 2013, 01:03:32 PM »
I'm thinking alligator wrestling. He has that cute boonie hat. ;)

Glad you are feeling better lately Henry and that the break between treatments came during the holidays.

xox,

m.
32 years hiv+ (oct. 2013) with a curtsy.

Offline thunter34

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Re: My very own lymphoma
« Reply #43 on: December 17, 2013, 01:09:05 PM »
Not a day goes by without thinking about you, Henrietta.  Thanks for the update, and have yourself a merry little Christmas.
AIDS isn't for sissies.

Offline BT65

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Re: My very own lymphoma
« Reply #44 on: December 17, 2013, 03:12:30 PM »
Henry, I hope you're able to relax, lay back, eat, and enjoy the holidays.  Still thinking about you, and wishing you the best!
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Buckmark

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Re: My very own lymphoma
« Reply #45 on: December 17, 2013, 04:26:14 PM »
I'm so happy you are doing so well . We never know how tough we are until we experience something like this and you have been one tough guy through this . Whats next Henry, alligator or bear wrestling ?

How did you know?  My first step is to line up an internship with The Turtleman from "Call of the Wildman".    :o
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline Jeff G

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Re: My very own lymphoma
« Reply #46 on: December 17, 2013, 04:37:48 PM »
How did you know?  My first step is to line up an internship with The Turtleman from "Call of the Wildman".    :o


I think he may want an internship with you my friend .

Offline bocker3

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Re: My very own lymphoma
« Reply #47 on: December 17, 2013, 07:37:03 PM »
Henry -

You continue to be in my thoughts.  I do hope you are able to enjoy the holidays with some relaxing and general "me" time......

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

Offline weasel

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Re: My very own lymphoma
« Reply #48 on: December 18, 2013, 02:09:21 PM »


    Henry ,
                I hope your Holiday Season is good for you and the
      New Year brings you a cure for you cancer .

                                 Praying for the best ,
                                                                      Weasel
" Live and let Live "

Offline Growler

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Re: My very own lymphoma
« Reply #49 on: December 23, 2013, 02:53:55 AM »
Henry and James, keep up the good fight  ;)

Growler
“If loving someone is putting them in a straitjacket and kicking them down a flight of stairs, then yes, I have loved a few people.”

 


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