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Author Topic: Joint pain  (Read 2214 times)

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Offline Nic75

  • Member
  • Posts: 11
Joint pain
« on: October 31, 2013, 12:36:48 PM »
Hi

I was hoping some of you here in the forum can help me, I am dealing with stiff and sore joint, especially in my feet. Specially in the morning when I get up, or after sitting down for 30 minutes.

In the beginning my doctor thought it was the TB med that I got, but now I have been out of that med since mid September. They took some bloodsamples, but they did not show that something should be wrong.

Now they think it could be a side effect from my HIV med, I get Truvada and Veramune.

So my question is, has anyone experienced similar side effects from this combo?

Or do you think it could be something else?

Hug

Nic
Tested positive February 2013

2/27/13 CD4 10 VL 2.000.000
3/15/13 CD4 10 VL 1700
4/4/13 CD4 90 VL 350
5/13/13 CD4 70 VL UD
7/12/13 CD4 80 VL UD
9/6/13 CD4 80 VL UD
10/25/13 CD4 90 VL UD
11/22/13 CD4 120 VL UD
2/11/14 CD4 170 VL UD
4/19/14 CD4 110 VL UD
5/29/14 CD4 160 VL UD

Offline Miss Philicia

  • Member
  • Posts: 24,522
  • celebrity poster, faker & poser
Re: Joint pain
« Reply #1 on: October 31, 2013, 08:47:04 PM »
You had a low cd4 count upon diagnosis, so then you've had this possibly for decade.

Arthritis isn't uncommon in patients with long term infection, and it's from HIV itself --namely the constant inflammatory effects and the HIV medications. I'm surprised that your doctor didn't consider this first.
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

  • Member
  • Posts: 2,598
  • Current ambition. Walk the Dog .
Re: Joint pain
« Reply #2 on: November 02, 2013, 07:15:57 AM »
Joint Pain which led to Bone Pain was the first symptom I had with HIV. From my understanding this is not uncommon and there are many reasons for it. Including one in Latin that translates to something near General Bone Pain due to unknown sources.

In my case its a variety off conditions and side affects from at least 3 off the drugs.

The saving grace in all this was approx 15 years ago I was given a referral to a Pain control Doctor. Who through my exhaustive description off the Pains started me on a cocktail off drugs , including drugs not associated with pain control --in my case anti depressant used in a small does. There was a period off experimentation and to my delight If I struck to the cocktail I could be Pain free.

Now in the UK Pain controll Doctors are easily accessable to all and they have given back to me Pain Management way beyond the years before my referral . I have had at least one session with a visiting US Doctor , having a free Holiday in London on a study trip.

ED to add. Sorry assumed you where based in US , I would be surprised if you cannot access the Same in whatever Scandinavian country you are based in. In the UK the discipline grew out off 2 areas Anesthetics and the Hospice Movement.

Hope this helps in some way
Michael
« Last Edit: November 02, 2013, 07:22:48 AM by Theyer »
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline 2tcells

  • Member
  • Posts: 114
Re: Joint pain
« Reply #3 on: November 03, 2013, 05:25:13 PM »
i have been having pain in my back and knees im on truvada norvir and presista so maybe its the truvada
7-4-13 diagnosed cd4- 2      vl-220,600
8-3-13                     cd4- 4      vl- 448
9-3-13                     cd4- 40    vl- ud
11-3-13                   cd4- 54    vl-ud
1-9-14                     cd4- 62    vl- 43
4-3-14                     cd4- 110  vl-ud yay!
8-5-14                     cd4- 95    vl-ud boo
9-23-14                   cd4- 97    vl-ud

Offline Nic75

  • Member
  • Posts: 11
Re: Joint pain
« Reply #4 on: November 04, 2013, 02:55:59 PM »
Miss Philicia, Arthritis was checked and the results came back negative.

And Michael, thank you for sharing your experience, I will talk to my doctor about this.

2cells, one of my doctors also think it could be Truvada.

Today I was admitted to the hospital, due to high fever, and they are afraid that the TB is coming back, but in best case I only have Pneumonia. So tomorrow morning my doctor will come and see me, and I will ask about my problem once again, and I will have your comments in mind, so thank you very much.

English is not my first language, and after I got sick it seems like it has gotten even worse, so I am sorry that my comments are a little short, it seems like my level of patience and writing in English is just as low as my cd4!!
Tested positive February 2013

2/27/13 CD4 10 VL 2.000.000
3/15/13 CD4 10 VL 1700
4/4/13 CD4 90 VL 350
5/13/13 CD4 70 VL UD
7/12/13 CD4 80 VL UD
9/6/13 CD4 80 VL UD
10/25/13 CD4 90 VL UD
11/22/13 CD4 120 VL UD
2/11/14 CD4 170 VL UD
4/19/14 CD4 110 VL UD
5/29/14 CD4 160 VL UD

Offline Theyer

  • Member
  • Posts: 2,598
  • Current ambition. Walk the Dog .
Re: Joint pain
« Reply #5 on: November 04, 2013, 04:18:42 PM »
I am sorry to hear that you have had to return to Hospital,though it sounds like the best place for you at the moment.

Another paragraph from my own experiance----whenever I am ill the bone and joint pain increases.

Good luck with it all , your English is excellent , try not to bite any ones head off with your ohshitIambackinhospital mood .

Regards
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Joint pain
« Reply #6 on: November 04, 2013, 04:37:09 PM »
Best of luck to you dear Nicolaj,

Wish u a fast recovery, and u will beat this too. U have tried worse, being hospitalized. With zero cd4.

U are the best place now, and they will soon diagnose, and u will get treatment :-)

Warm thoughts from here to u :)

Hugs and love
Peter

Offline curious1here

  • Member
  • Posts: 29
Re: Joint pain
« Reply #7 on: November 04, 2013, 06:05:53 PM »
Hope you feel better soon. For joint pain inflammation, I take curcumin (tumeric extract) plus it helps with inflammation all around the body. Good thing about it strong as steriods without the side effects but natural, doesn't have contradictions too.

Offline Nic75

  • Member
  • Posts: 11
Re: Joint pain
« Reply #8 on: November 10, 2013, 09:21:45 AM »
Thursday I had a ct scan of my lungs, and they can see something in there, so on Friday they will take a biopsy to see what is hiding in there. They are working with two possibly scenarios, either it is the tb what is back, and then I need to go trough a 12 months period with tb meds, or it can be a fungus called Cryptococcosis, but I will not know for sure before the week after the biopsy....so maybe all my joint pain is because of all this that I'm going trough right now.

Did anyone here ever had this fungus in the lungs? It doesn't sound good, neither does the tb, because I had it before, and I was told that for HIV/aids patients if it returns after first treetment it will be more diffucalt, because it can be resistant to some if the meds that are used the first time.

Right now I feel like I have to start the nightmare I have been trough the past 8-9 months all over again...
Tested positive February 2013

2/27/13 CD4 10 VL 2.000.000
3/15/13 CD4 10 VL 1700
4/4/13 CD4 90 VL 350
5/13/13 CD4 70 VL UD
7/12/13 CD4 80 VL UD
9/6/13 CD4 80 VL UD
10/25/13 CD4 90 VL UD
11/22/13 CD4 120 VL UD
2/11/14 CD4 170 VL UD
4/19/14 CD4 110 VL UD
5/29/14 CD4 160 VL UD

Offline Theyer

  • Member
  • Posts: 2,598
  • Current ambition. Walk the Dog .
Re: Joint pain
« Reply #9 on: November 10, 2013, 02:12:46 PM »
Hi Nic,

I can well understand that you have the feeling off --here I go again----- I am sorry. However although there are similarities you are now more skilled at being a Patient, use that in the challenges to come . Whatever you learnt from the experiance use it .
My very best wishes to you , you can get through this and eventually consign it to your own personal history. Keep posting and doing whatever esle that improves the quality off the day, hour, minute.
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

 


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