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Author Topic: Dayummmm Syphilis  (Read 56243 times)

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Offline newt

  • Member
  • Posts: 3,885
  • the one and original newt
Re: Dayummmm Syphilis
« Reply #300 on: March 28, 2012, 05:04:49 PM »
bump - matt
"The object is to be a well patient, not a good patient"

Offline WillyWump

  • Member
  • Posts: 7,184
  • your ramblings bore Yamaguchi Kitteh
Re: Dayummmm Syphilis
« Reply #301 on: March 28, 2012, 09:46:05 PM »
Dayummm... I think Florida just found out she got Syphillis too!

Hope you and Florida get better Phil  ;)

POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline Neil

  • member
  • Member
  • Posts: 20
Re: Dayummmm Syphilis
« Reply #302 on: April 05, 2012, 07:29:47 PM »
Can anyone tell me if gonorrhea can be recurring in hiv?

Offline phildinftlaudy

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  • Posts: 2,965
  • sweet Ann what you think babe...
Re: Dayummmm Syphilis
« Reply #303 on: April 16, 2012, 01:42:13 PM »
Latest response from my doctor to an email I had sent her regarding the status of the dayummmm syphilis....

"Hi well, I spoke with Jose Castro, who is the director of the DOH STD clinic here in Miami.
We had an interesting discussion, and I compiled all of your serological and CSF findings since 2010 for him to have a look at.
Awaiting his response, will let you know when I hear back from him.
 
Susanne"

And the follow-up once she got his response:

"OK!  I spoke with Jose after he reviewed the info.
He does not feel that the 1:16 is different enough from 1:8 to warrant additional therapy right now, and agrees that the CSF findings were not concerning.
He recommends to check again in July 2012 and see where you are at that point.
We had a long conversation and I can talk with you more about this at our next appt.
Best,
Susanne"

So the saga continues.... doesn't seem like I will no anything until I see the doc on June 20th.


 
 
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline alberche

  • Member
  • Posts: 212
  • a distancia del mundo incierto, saludo mi suerte
Re: Dayummmm Syphilis
« Reply #304 on: May 22, 2012, 03:41:42 PM »
Hi Phil!

I`ll also have a syph control next month. Apparently things should be OK, let's see what it comes from it. I guess no more cements!!!!

Glad you are doing well too!!

Kisses!
love is blindness...  a wonderful song!

Offline phildinftlaudy

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  • sweet Ann what you think babe...
Re: Dayummmm Syphilis
« Reply #305 on: June 01, 2012, 09:16:12 PM »
So, my inquiring mind wanted to know and I followed up via phone with my doctor today ahead of my scheduled appointment w/ her next week regarding the outcome of the RPR.

She reports that the RPR is back down to 1:4 - which is acceptable.

We will continue to make it a regular part of my labs - to monitor it as she reports that I may be one of those "lucky" rarities who will have occasional elevations in it and that if the elevations do not regulate and go down on their own, I will have to undergo further treatment.

How long will this go on?, I asked....

She said that from talking to her colleagues that are experts in this area - this may be a lifelong thing...  She actually says that she is going to have one of her colleagues at my appointment next week, as they want to talk with me and get my permission (via signature) to further study my case as the incidence of this occurring is quite small. She said it has nothing to do with resistance and there are researchers who are still trying to figure out why this occurs in the rare instances when it does.

As far as being infectious, she says that all of the research (which is limited, thus the reason they want to include me in monitoring and studying it further) is that the levels never go up to a point that makes it infectious to others... however, they still don't know if the back and forth in elevation causes adverse affects to the brain, heart, or other organs that are typically impacted by syphilis.

So, while I am happy that the RPR has come down, I am not feeling good about having this as an ongoing issue.....  Leave it to me to be "syphilis' special patient." 

I wonder if I could get Lifetime to make a movie about this? I'm thinking maybe Jeff Goldblum could play me; Cuba Gooding Jr. my partner/ex-partner; Sigourney Weaver my doctor; and perhaps, throw in a cameo appearance by David Spade as Ms. P......   Just thinking out loud here   ;D

That all said, at least now I know why I can't seem to find any type of information online or elsewhere that comes similar to my case. I'm kind of wishing that Dr. House M.D. was real....   of course, Omar Epps (ummm ummm ummm) would be an added benefit of having the Dr. House team investigate my case.

Ok, I haz ranted and vented enough.... back to our regularly scheduled programming.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline Rhaegar

  • Member
  • Posts: 102
Re: Dayummmm Syphilis
« Reply #306 on: July 19, 2012, 05:37:31 PM »
Dayummmm syphilis is right!  I just had my first RPR come back positive today with a titer of 1:16.

What do the different titer levels mean?

One penicillin butt injection down, 2 to go.  Makes me never want to have sex ever again.

-Kevin
« Last Edit: July 19, 2012, 05:52:59 PM by Rhaegar »
05/19/2011: Diagnosed.  CD4 159   VL 284,000.
04/29/2013:  CD4 789,   VL <20

Offline Raf

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  • Posts: 256
  • Bald by choice
Re: Dayummmm Syphilis
« Reply #307 on: July 19, 2012, 08:27:48 PM »
One penicillin butt injection down, 2 to go.  Makes me never want to have sex ever again.

-Kevin

Yep, it's been almost 4 years since my last sex encounter. since my Dx, I've become very afraid of all STDs, not only HIV. Seeing this thread sometimes puts me in paranoid state.

The only good thing about being "out of service" for so long, is that at least I don't need regular check ups, or having fear that a thing like Syph sneaked in.
Dx: 05/14/2008
Latest HIV Meds combo I've been taking:

Kaletra + Combivir (since 05/16/2008 - today)

Offline nickd

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  • Posts: 3
Re: Dayummmm Syphilis
« Reply #308 on: July 20, 2012, 01:12:45 PM »
What do the different titer levels mean?
Hi Kevin,


Just to answer your question about syphilis tests levels (or titers as they called in literature). These are results of quantitative serologic tests that show the lowest concentration at which syphilis antibodies are still detectable (i.e., yield a positive reading). Each next titer represents a twofold dilution, e.g. the first reactive one of 1:1, and then: 1:2, 1:4, 1:8, 1:16, 1:32 and so on.

It is more difficult or impossible to link the titer to disease stage, though, I have read a paper that stated the seroreactivity usually reaches a titer of at least 1:4 in primary syphilis, and rises usually to 1:32 or more in secondary or early latent syphilis.

Even after treatment the titers will take some time to get lower or become nonreactive (if ever). However, failure to achieve a fourfold decrease in titer within six months after treatment in primary or secondary syphilis suggests a treatment failure and/or reinfection, and warrants reevaluation of the case.

I hope this helps.


Nickd.

Offline phildinftlaudy

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  • Posts: 2,965
  • sweet Ann what you think babe...
Re: Dayummmm Syphilis
« Reply #309 on: September 30, 2013, 08:51:29 PM »
So, after the RPR titer holding at:

1:4   11/16/12
1:4   02/18/13

It has jumped to

1:8   09/20/13

I see the ID doc 10/16/13, however, we will probably not treat as 1:4 and 1:8 seem to be my syphilis bouncing ball (almost a pun) "norm."

Two different colleagues of my doc have looked at my case and are tracking my results along w/ some others as they try to figure out why some of us pozzies don't seem to clear this and the titer tends to bounce around....

If it follows its pattern, it should drop back to 1:4 on the next round of labs....

Dayummm syphilis.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline alberche

  • Member
  • Posts: 212
  • a distancia del mundo incierto, saludo mi suerte
Re: Dayummmm Syphilis
« Reply #310 on: November 03, 2013, 08:49:10 AM »
Dear Phill,

I'm my last two controls end of 2012 and mids this year, my RPR has repeated the same results (I don't remember the figures, but they were not as low as expected) the fact is  my doc did not give too much importance to this, and let any decision depending on results of the next screening.

I received treatment in October 2011 and in the first year the tites lowered a lot, but since then, they do not get any lower. I'll have next visit on December, so let's see what happens. I'll keep you posted.


Take care,

:-)

love is blindness...  a wonderful song!

 


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