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Author Topic: Ofuji skin disease  (Read 3216 times)

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Offline Peterdenmark

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  • Posts: 80
Ofuji skin disease
« on: October 23, 2013, 05:42:04 PM »
Hi there,

Just want to know if anyone here tried this shit....
My docs in Denmark have never heard about it - but luckily my dermatologist is clever and openminded.

Its normal in Asia - and I used to had some "fun" there - so everything makes sence now.

Any experiences from anyone on this forum ?

Kind regards,
Peter

Offline Theyer

  • Member
  • Posts: 2,496
  • Current ambition. Walk the Dog .
Re: Ofuji skin disease
« Reply #1 on: October 26, 2013, 06:19:03 AM »
Sorry Peter but what shit are you talking about having tried?

I am a bit lost.
m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #2 on: October 26, 2013, 12:50:58 PM »
Hi

Sorry if my english are bad, plz keep in mind its not my native language:)
What I would like to hear is:

Are there other people on this forum been diagnosed with a skindisease called
Ofuji ?

Is my question more clear now ?

Regards,
Peter

Offline Theyer

  • Member
  • Posts: 2,496
  • Current ambition. Walk the Dog .
Re: Ofuji skin disease
« Reply #3 on: October 26, 2013, 03:11:09 PM »
Yes now I understand completely, thank you.

Unfortunately its new to me , what are the Docs saying about it ?
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #4 on: October 26, 2013, 06:17:25 PM »
Yes now I understand completely, thank you.

Unfortunately its new to me , what are the Docs saying about it ?

They say its an aids defing disease. It comes frome Japan, named after the island Ofuji.
It attacks mainly the face, and give the strange look Im having lately.  Looks same very big and infected acne all over my face.  Google images, and then u can see.

The first dermatologis just looked at me 3 secs, and said it was MC. These new dermatologist are specialist, but. I was surprised too hear. I can have this disease from Asia

Good news is, that its not dangerous, but its not an easy fix to get rid of it - but should beeasier than. MC.
Its a kind of fungus.

I will get answers from biopsy next week, and will get some treatment, and hopefully they can balance my big meds supply,so that I can take these too.

I will come back with info after next meeting - sounds like noone here have tried this..

Kind regards

Peter
« Last Edit: October 26, 2013, 06:24:40 PM by Peterdenmark »

Offline Habersham

  • Member
  • Posts: 317
Re: Ofuji skin disease
« Reply #5 on: October 26, 2013, 06:38:14 PM »
Hey Peter - I am glad you found out what it really is. Dermatology is like an art sometimes. Some drs are much better than others. From what I read online it looks like its a combination of acne and a fungus all rolled into one.

Your English is excellent! I think you mixed a few people up though. You usually say that you have or had a disease or condition though. We try a new food or try a different restaurant. People don't usually say "that's an interesting rash - I think I will try it".  Figured you wouldn't mind the pointer since everything else you write is so good. :)

Let us know how it turns out.
Because I Can

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #6 on: October 26, 2013, 07:16:41 PM »
Hey Peter - I am glad you found out what it really is. Dermatology is like an art sometimes. Some drs are much better than others. From what I read online it looks like its a combination of acne and a fungus all rolled into one.

Your English is excellent! I think you mixed a few people up though. You usually say that you have or had a disease or condition though. We try a new food or try a different restaurant. People don't usually say "that's an interesting rash - I think I will try it".  Figured you wouldn't mind the pointer since everything else you write is so good. :)

Let us know how it turns out.

Thank you very much, I really appriciate it :)

I love to learn

Hgs
Peter

Offline Theyer

  • Member
  • Posts: 2,496
  • Current ambition. Walk the Dog .
Re: Ofuji skin disease
« Reply #7 on: October 27, 2013, 06:56:44 PM »
Yes Peter no problems reading the second post , and if you did it in Danish well Goggle translater would blow up.

Given that this is more common in one part off the world , there will presumably be treatment plans available for the Doc,s and you to look up. I once had to contact the Japanese embassy in London with a translation request, they where very helpful and gave me a web link with the article in English.

Where are you based?
All the best
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #8 on: October 27, 2013, 07:06:54 PM »
Hi again,

Im located in a suburb north of Copenhagen. Very nice small coastal town.
I dont use Google Translate, I just write- and when Im writing in english, Im still thinking in danish, which I have to stop :)

I will give feedback, after visit to my docs thursday and friday.

Ofcourse, I hope its good news.....

Hugs
Peter

Offline Theyer

  • Member
  • Posts: 2,496
  • Current ambition. Walk the Dog .
Re: Ofuji skin disease
« Reply #9 on: October 27, 2013, 07:14:36 PM »
And so do we , your English is great I was meaning I would make goggle blow up as I have no Danish . Anyway as you see if we do not understand we will always ask. I have just speed read your Posts. I agree the medical progress has been amazing , when I tested Pos there where no drugs just some rumours about a drug called AZT , which I got on , but thats another story.
Michael
UK LONDON
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Ann

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  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Ofuji skin disease
« Reply #10 on: October 28, 2013, 07:10:11 AM »
A little off-topic, but loosely related....

I find http://www.freetranslation.com/ to be pretty much the best online translator out there. In my experience, it's far better than Google, Yahoo or Babel-fish. I use it when I venture into Estoy Infectado on occasion, when Andy is off on his travels somewhere.

Provided I'm careful with my English spelling and grammar, the Spanish comes out quite good. I can put the Spanish text I get back through the translator (back into English) and it still makes sense, something that often doesn't happen when I use the same procedure with other translators I listed. This is what makes me trust it.

Peter, your English is quite good. Maybe I understand you easily because living on the Isle of Man, I'm surrounded by many people of Viking/Nordic/Danish decent. ;D

I'm glad you finally got a diagnosis for your skin trouble, and I hope it clears up now that you know what you're dealing with and can find a more appropriate treatment. Good luck!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline J.R.E.

  • Member
  • Posts: 7,120
  • Joined Dec-2003 Living positive, since 1985.
Re: Ofuji skin disease
« Reply #11 on: October 28, 2013, 09:45:35 AM »
Hello Peter,

I am not familiar with Ofuji skin disease, But I hope that soon your Dermatologist, will be able to get you started on the treatment, so you can be rid of this skin condition, and start feeling better.

From what I've read, there are several medications available to treat this,  so let us know what you Dermatologist suggest to you, and how the treatment is working.




Take care of yourself----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline buginme2

  • Member
  • Posts: 2,834
Re: Ofuji skin disease
« Reply #12 on: October 28, 2013, 11:33:12 AM »
Here's the wiki about this.  Seems to occur in HIV positive people with advanced disease with a low Tcell count.  Appears as though once your immune system improves the skin condition should also.

http://en.wikipedia.org/wiki/Eosinophilic_folliculitis

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #13 on: October 31, 2013, 11:51:51 AM »
Hi everybody,

Finally GOOD NEWS ;D

I was at dermatologist today, and they got the results back from biopsy.

There was only 1 bug in my skin, and it is Ofuji.(no Molluscum or anything else)

Doc already gave me some strong topical steroids, and tomorrow my HIV doc will see what antifungal meds they can balance, together with haart and TB meds.

So, Im very very happy.

Tomorrow I will also get my next cd4, hoping it will be better. The above mentioned meds for Ofuji I will have to take until i reach 250 in cd4.

Have a nice day everybody, and thx for listening to,me :)

Peter

Offline Nic75

  • Member
  • Posts: 11
Re: Ofuji skin disease
« Reply #14 on: October 31, 2013, 12:06:56 PM »
Hi Peter

I am so happy on your behalf, that you now finally got to know what was causing this skin issue, and even better that you got a doctor that actually are able to give you a permanent treatment

Hug

Nic


Tested positive February 2013

2/27/13 CD4 10 VL 2.000.000
3/15/13 CD4 10 VL 1700
4/4/13 CD4 90 VL 350
5/13/13 CD4 70 VL UD
7/12/13 CD4 80 VL UD
9/6/13 CD4 80 VL UD
10/25/13 CD4 90 VL UD
11/22/13 CD4 120 VL UD
2/11/14 CD4 170 VL UD
4/19/14 CD4 110 VL UD
5/29/14 CD4 160 VL UD

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #15 on: November 01, 2013, 12:42:00 PM »
Thx a lot Nicolaj,

Today I got my meds from hiv doc, its an nsaid named "Isomethadin" used against pain!
But due to internet, and lessons learned it really kills this Ofuji.

Hospital asked for my permit to tale pictures of my skin, Im their first case in DK, so finally after 50 years I became a supermodel  LOL :)

Furthermore my creme also help, after only 24 hours of treatment 50% is gone :-)
Im so happy, was so afraid I would look like an ugly horse forever.

Hugs to everybody for reading, and sending me warm thoughts.

Peter
« Last Edit: November 01, 2013, 12:50:05 PM by Peterdenmark »

Offline J.R.E.

  • Member
  • Posts: 7,120
  • Joined Dec-2003 Living positive, since 1985.
Re: Ofuji skin disease
« Reply #16 on: November 01, 2013, 02:32:05 PM »
Hello Peter,..

I am glad, that you are now on the medication needed to treat this !

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #17 on: November 01, 2013, 03:07:16 PM »
Hi Ray

Yes, the meds are really working - but not look same Brad Pitt, yet :-)
Thx, and Nice weekend to u :-)

Regards
Peter

Offline Theyer

  • Member
  • Posts: 2,496
  • Current ambition. Walk the Dog .
Re: Ofuji skin disease
« Reply #18 on: November 01, 2013, 07:05:16 PM »
Peter, aids meds can do a lot ,sadly making the men look like Brad Pitt , well its not even being researched !! It,s a scandal .
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Peterdenmark

  • Member
  • Posts: 80
Re: Ofuji skin disease
« Reply #19 on: November 01, 2013, 07:08:34 PM »
Lol thats good humor - i love it ;D

Offline Habersham

  • Member
  • Posts: 317
Re: Ofuji skin disease
« Reply #20 on: November 01, 2013, 07:35:35 PM »
Glad for all your good news!  It sounds like that drug may make you feel good too!  Don't drink too much wine with it!
Because I Can

Offline J.R.E.

  • Member
  • Posts: 7,120
  • Joined Dec-2003 Living positive, since 1985.
Re: Ofuji skin disease
« Reply #21 on: November 02, 2013, 04:34:53 AM »
Hi Ray

Yes, the meds are really working - but not look same Brad Pitt, yet :-)
Thx, and Nice weekend to u :-)

Regards 
Peter

 ;D ;D !  you have a good weekend also.  And congratulations on the increase in the Tcells !


Ray  8)
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 7,120
  • Joined Dec-2003 Living positive, since 1985.
Re: Ofuji skin disease
« Reply #22 on: November 02, 2013, 04:38:58 AM »
Lol thats good humor - i love it ;D

I've always stated that one needs a sense of humor, to help get through the difficult times.  Keep smiling !  :)



Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 6/4/14,  t-cells are at 423, Viral load <40

 Current % is at 13% 

  
 62 years young.

 


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