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Author Topic: Chronic fatigue synndrome or General anxiety disorder  (Read 922 times)

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Offline hadasinparis

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  • Posts: 75
Chronic fatigue synndrome or General anxiety disorder
« on: September 24, 2013, 02:53:19 PM »
Hello

My blood work is good...And my cd4 count is high. I am undetectable...But it is three years now that I live in a glass ceiling unable to run...do exercice..extreme fatigue ..have anxiety...Well it will be hard to make a list of what I ve been through. But I managed to do a lot despite this condition. Hello Meech

Offline mecch

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  • red pill? or blue pill?
Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #1 on: September 24, 2013, 06:02:17 PM »
Hi dear, no improvement?
Have you had a doc insist you go through graded exercise??  If so, no help?
Thats the thing that got me out, 3 times. And the 2nd n 3rd times were much faster than the first.
Wishing you well.
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline hadasinparis

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  • Posts: 75
Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #2 on: September 25, 2013, 01:50:38 PM »
Hello Meech

I tried horseriding, swimming and I think any exerxice makes my CFS to flare up.

Thanks

Offline newt

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Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #3 on: September 25, 2013, 04:23:35 PM »
Do you smoke?

- matt
"The object is to be a well patient, not a good patient"

Offline mecch

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  • red pill? or blue pill?
Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #4 on: September 25, 2013, 04:27:05 PM »
Well about two years ago, there was research that indicated a retro-virus was behind CFS.  My new doctor (new back then), a renowned virologist and professor in Geneva, Switzerland, told me it was likely and furthermore, that HAART (for HIV) was probably effective against this virus.
More recently, some of research on which exact retro-virus might be an agent, has collapsed...  :(
I have not suffered CFS since the 90's, so I don't keep up much with what is going on and its not a consideration in my treatment for HIV.
I guess the point I'm making is that there are still serious clinicians who do believe there is a viral cause. The bad news is that there isn't any consensus on this, and furthermore, there is (compared to many other syndromes) very little money being put into the research.

Personally I believe that it is some sort of existential crisis that, combined with some sort of pathogen (maybe several?) does produce the CFS.  I know that is lame but it is what it is.  I was definitely screened for depression at the times I did suffer, and that was ruled out..  My GP at the time, also believed in a pathogen.  She coincidentally went on to be specialist in HIV and got to be a big wig in NYC... So, there are docs who will take on the case and try to find solutions...

If you would indulge me a bit, perhaps you can comment on what you have done in recent years about the question of "will" in managing this condition. 

I found I had to "will" it away, in tandem with the graded exercise program that has worked for others, as well. 

I simply could not suffer from the disease, because I HAD to work, and work hard, and I had many ambitions and goals, besides...  I feel that it was triggered in situations of high anxiety and frustration, in fact, about my job, finances, situation and my goals.  In moments I felt "blocked." 

Graded exercise is not doing intense exercise hither nither.  It is, rather, making DAILY challenges, incremental, to getting back to the "base level" functioning that is required and desired in life.

As I suggested before, I can only share my own experience. Which was - work through the fatigue, the sweating, etc, because I wanted to do well 9-5, and achieve other things in my life.  It was the only way forward....

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline mecch

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  • red pill? or blue pill?
Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #5 on: September 25, 2013, 04:31:15 PM »
If you have access to pretty comprehensive care, perhaps you can get your HIV doc and a shrink on the case. It may be that the anxiety has to be decreased. Also answering the existential questions...
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline hadasinparis

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Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #6 on: September 26, 2013, 10:10:00 AM »
Thanks .....

Offline Theyer

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Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #7 on: September 27, 2013, 05:08:50 AM »
Given what is known about CFS at the moment , the route Mecch describes appears to be the one way out off this conundrum.

Good luck with it all.
m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline loscang

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  • Posts: 10
Re: Chronic fatigue synndrome or General anxiety disorder
« Reply #8 on: December 02, 2013, 10:25:19 PM »
I suffer from Fibromyalgia and as part of that chronic fatigue as well.

Mine has dramatically been worsened by the ARV's and taken a real toll. Trying hard to really get to grips with living in a fog and in pain...

You definitely need experts

 


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