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Author Topic: sleep help  (Read 2867 times)

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Offline mikeyb39

  • Member
  • Posts: 938
sleep help
« on: October 06, 2013, 11:42:21 AM »
anyone had any expreicnce with over the counter melotonin for sleep?  any other remedices.    i'm taking over than the presxcription drugs
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD

Offline ad2san

  • Member
  • Posts: 189
Re: sleep help
« Reply #1 on: October 06, 2013, 11:49:57 AM »
did not helped me at all (5mg time released) ...

Cheers
Feb   2009 CD4 358 VL 2000 16%
May  2009 CD4 305 VL 3069  14% <---- Started TVD+ATZ/r
Jul  2009 CD4 512 VL <50   18%
Jul 2010 CD4 418 VL <50 24%                     
Switched to Kivexa (Epzicom) + Norvir + Reyataz (due to sleep problem)
Aug 2010 CD4 606 VL <50 25%
Jul 2011 CD4 494 UD 23%
Switched to Kivexa (Epzicom) + Viramune XR (due to kidney problems)
January 2012 CD4 564 UD 31%
October 2012 CD4 684 UD 29%
January 2013 CD4 594 UD 26%
Switched to Kivexa (Epzicom) + Isentress due to BIG increase GammaGT
Feb 2013 CD4 699 UD 28%
May 2013 CD4 385 UD 28%
July 2013 CD4 CD4 636 UD 25%
Oct 2013 CD4 588 UD 39%
Aug 2014 CD4 639 UD 25%

Offline GoForIt

  • Member
  • Posts: 109
Re: sleep help
« Reply #2 on: October 06, 2013, 12:14:51 PM »
http://www.soap.com/p/natrol-melatonin-fast-dissolve-3-mg-90ct-410301?site=CA&utm_source=Google&utm_medium=cpc_S&utm_term=ASN-014&utm_campaign=GoogleAW&CAWELAID=1372830485&utm_content=pla&adtype=pla&cagpspn=pla

These are the ones I took a few weeks ago when having some anxiety trouble before bed.  They worked for me....  Just let em dissolve on your tongue ...within a minute or two its dissolved.  Do this while in bed, lights off, ready to sleep.  It sort of kick starts your dreaming and put me to sleep....

I have stopped taking them because I just started my ART therapy 20 days ago and wanted to not take any sleeping aids to see how ART would affect my sleep.  I have no problem getting to sleep but find myself waking up halfway through the night every night having to use the bathroom...

Before ART I was also taking about half a .25 xanax to get tired and go to sleep.  Those would buy me 4-5 hours of sleep but the anxiety that comes later on was not worth it.  Xanax would give me a great feeling when I took it but the next day I would go through a panic attack if I did not take it....so I weened myself off and stopped taking Xanax entirely because I don't like the panic attack feeling.

I am now exercising in the evening so that I use up all my energy and am tired by bed time and just zonk out.  I think exercising each day is really key to being sleepy at night, otherwise your just full of energy, anxiety, and thoughts which keep you from falling asleep.
« Last Edit: October 06, 2013, 12:24:32 PM by GoForIt »
08/09/2013   Diagnosed WB positive
08/20/2013   CD4-506(28%)  VL-10,800
09/12/2013   CD4-391(28%)  VL-14,900
09/17/2013   Start ART (Truvada & Tivicay)
10/11/2013   CD4-377(26%)  VL-UD
12/20/2013   CD4-590(??%)  VL-UD
03/18/2014   CD4-660(29%)  VL-UD
07/22/2014   CD4-613(29%)  VL-UD
08/01/2014    Start TAF Clinical Trial
10/09/2014   CD4-498(29.5%) VL-UD

Offline mikeyb39

  • Member
  • Posts: 938
Re: sleep help
« Reply #3 on: October 06, 2013, 12:25:58 PM »
I thought about trying melatonin, but I take ambien now,but wanna try something more natural.....will see I guess.  I hear mixed reviews from folks
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD

Offline LukasFRA

  • Member
  • Posts: 11
Re: sleep help
« Reply #4 on: October 06, 2013, 01:30:49 PM »
I took Melatonin to overcome the jet lag for the last couple of days when returning from Canada to Europe. I Checked it before with my doctor for any x effects with Eviplera (Complera). I took 3mg and they helped me go into the deep sleep phase quickly. Normally Melatonin helps to have a good deep sleep phase but does not knock you out as e.g. valium does (ok, if you take 10 mg you might be out for a longer period...).

As GoForit does I also try to do as much exercise as possible during the day so that my body is as tired as my brain after a day or work. This also helps to avoid anxiety ....

Lukas

Offline buginme2

  • Member
  • Posts: 3,131
Re: sleep help
« Reply #5 on: October 06, 2013, 02:00:10 PM »
Melatonin gave me nightmares. 

Offline marcmoral16

  • Member
  • Posts: 95
  • Me and my Partner
Re: sleep help
« Reply #6 on: October 06, 2013, 02:04:28 PM »
I too have sleep issues, my doctor tells me its because of everything that's happen this year to me. She gave me benadryl does not help nothing helps. So I'm in the same boat trying to figure out what to do to get sleep.

Only way I sleep is if I over medicate myself and that's a hazard on its own.
Tested Positive Jan 16 2013
CD4 119 6% VL 23980
Started Complera Feb 2013
March CD4 199 9% VL 1000
May CD4 255 12% VL 334
June CD4 284 15% VL 172
Switched to Stribild middle June 2013
July CD4 325 22% VL 51
October CD4 341 23% VL UD!!
Jan 2014 CD4 343 20% VL <20
July 2014 CD4 450 26% VL <20

Offline witch

  • Member
  • Posts: 59
Re: sleep help
« Reply #7 on: October 08, 2013, 10:53:40 PM »
marcmoral16, did you have sleep issues on Complera?

If not, most probably your sleep issues are due to Stribild. I could not fall asleep and dream at all on Stribuild, but on Complera sometimes I fall asleep because I remember dreams in the morning.

If Stribuild is the reason, you may ride it for 1-2 months until it makes you undetectable and then switch back to Complera, unless there was a problem with Complera - I notice your viral load was dropping a little too slow on Complera suggesting either resistance or low absorption of the drug - it has to be taken with large fatty meal.
« Last Edit: October 08, 2013, 11:08:24 PM by witch »

Offline marcmoral16

  • Member
  • Posts: 95
  • Me and my Partner
Re: sleep help
« Reply #8 on: October 09, 2013, 12:06:34 AM »
marcmoral16, did you have sleep issues on Complera?

If not, most probably your sleep issues are due to Stribild. I could not fall asleep and dream at all on Stribuild, but on Complera sometimes I fall asleep because I remember dreams in the morning.

If Stribuild is the reason, you may ride it for 1-2 months until it makes you undetectable and then switch back to Complera, unless there was a problem with Complera - I notice your viral load was dropping a little too slow on Complera suggesting either resistance or low absorption of the drug - it has to be taken with large fatty meal.

I actually didn't have sleep issues on complera BUT it made me gassey and nauseas all the time I probably had low tolerance to it because several times I threw up my pill. So the absorption rate was reduced greatly. I don't have those issues on Stribild. I just can'tget a ccomfortable sleep at all and its so bad. I work retail hours so its all over and I get agitated so easy now.

I'm seeing my doctor tomorrow will discuss more and fill you guys in.
Tested Positive Jan 16 2013
CD4 119 6% VL 23980
Started Complera Feb 2013
March CD4 199 9% VL 1000
May CD4 255 12% VL 334
June CD4 284 15% VL 172
Switched to Stribild middle June 2013
July CD4 325 22% VL 51
October CD4 341 23% VL UD!!
Jan 2014 CD4 343 20% VL <20
July 2014 CD4 450 26% VL <20

Offline life2

  • Member
  • Posts: 34
Re: sleep help
« Reply #9 on: October 09, 2013, 01:00:00 AM »
When I was first diagnosed I had a horrible time trying to get to sleep.  I was also started on Complera. 

I used ZZZQuil and it worked great for me.  The generic name is diphenhydramine and it's the ingredient in NyQuil that causes the 'NyQuil coma' for many.  It's available over the counter in both liquid and tablet form and is fairly inexpensive.

Hope this helps.

Offline marcmoral16

  • Member
  • Posts: 95
  • Me and my Partner
Re: sleep help
« Reply #10 on: October 09, 2013, 01:16:58 AM »
Life2

Yea it's basically Benadryl, I wish it helped me more!

How long have you been on it I think my body is to used to it now :-( sucks
Tested Positive Jan 16 2013
CD4 119 6% VL 23980
Started Complera Feb 2013
March CD4 199 9% VL 1000
May CD4 255 12% VL 334
June CD4 284 15% VL 172
Switched to Stribild middle June 2013
July CD4 325 22% VL 51
October CD4 341 23% VL UD!!
Jan 2014 CD4 343 20% VL <20
July 2014 CD4 450 26% VL <20

Offline life2

  • Member
  • Posts: 34
Re: sleep help
« Reply #11 on: October 09, 2013, 01:39:34 AM »
Sorry to hear that.

I used it nightly for two to three weeks then less frequently.  I use it very rarely as regular exercise does the trick for me now.  I'm working very late tonight but when my head hits the pillow in a few minutes I'll be out cold in no time at all.

Offline J.R.E.

  • Member
  • Posts: 7,218
  • Joined Dec-2003 Living positive, since 1985.
Re: sleep help
« Reply #12 on: October 09, 2013, 02:28:21 AM »
anyone had any expreicnce with over the counter melotonin for sleep? 



I use the 10mg dose capsule ( not the time release) , of melatonin. CVS carries it. The 10mg dose is also the largest dose that made of melatonin.  I swear by it. I don't use it often, but when I do, I take it about 1/2 hour, before I go to bed, and it always puts me out.

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline witch

  • Member
  • Posts: 59
Re: sleep help
« Reply #13 on: October 09, 2013, 08:58:10 AM »
I actually didn't have sleep issues on complera BUT it made me gassey and nauseas all the time I probably had low tolerance to it because several times I threw up my pill. So the absorption rate was reduced greatly. I don't have those issues on Stribild. I just can'tget a ccomfortable sleep at all and its so bad. I work retail hours so its all over and I get agitated so easy now.

I'm seeing my doctor tomorrow will discuss more and fill you guys in.

I have a mild "Irritable Bowel Syndrome" meaning reacting to food with gas and diarrhea but have no digestive problems with Stribild or Complera. Maybe because I always take them with a large meal (not protein shake or substitutes).

If Complera makes you nauseas, its a good idea to take it with a large meal before bed. That may make you sleep better actually or at least you can sleep over the side effects.

Offline elf

  • Member
  • Posts: 616
Re: sleep help
« Reply #14 on: October 09, 2013, 10:22:24 AM »
I can't sleep without melatonin. :-[
It does not give me nightmares.
Nightmares occur only when I forget to take it (because of REM rebound).

Online mitch777

  • Member
  • Posts: 3,596
Re: sleep help
« Reply #15 on: October 11, 2013, 10:04:12 AM »
Melatonin didn't do anything for me. I then went on to Lunesta. Worked great but my doc didn't like the idea of staying on it long term. (he said the same about Ambien which I never tried) I switched to Trazodone 100mg (50mg didn't work) and after about a week or so it worked well. Insomnia is not fun.
32 years hiv+ (oct. 2013) with a curtsy.

Offline mikeyb39

  • Member
  • Posts: 938
Re: sleep help
« Reply #16 on: October 11, 2013, 10:58:30 AM »
I never understand why its ok to take trazadone long term and not ok for lunesta or ambien.  Hmmmm
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD

Offline mikeyb39

  • Member
  • Posts: 938
Re: sleep help
« Reply #17 on: October 11, 2013, 11:01:43 AM »
I bought some melatonin but haven't tried it yet.  I dont have much confidence in them that it will do anything
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD

Online mitch777

  • Member
  • Posts: 3,596
Re: sleep help
« Reply #18 on: October 11, 2013, 02:35:47 PM »
I never understand why its ok to take trazadone long term and not ok for lunesta or ambien.  Hmmmm
I think my doc said that one is more likely to build up a resistance to Lunesta and Ambien. I hope the melatonin works. Can't hurt to give it a try.
32 years hiv+ (oct. 2013) with a curtsy.

Offline BT65

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  • Member
  • Posts: 9,975
Re: sleep help
« Reply #19 on: October 11, 2013, 02:39:02 PM »
Ambien and Lunesta have that nasty side effect of people getting up during the night, doing something foolish, then not remembering it the next day.  They can also be addictive.  Trazadone is not addictive.  Many addiction doctors give it to, well, addicts who cannot sleep.  Trazadone is actually an antidepressant that used to be sold as Deseryl.  Just has that good sleep effect.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: sleep help
« Reply #20 on: October 21, 2013, 05:14:41 PM »
A friend who is very cautious about drugs uses Melatonin to reduce the effect off jet lag. Swears by it. Also swears when he runs out.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline RobbyR

  • Member
  • Posts: 333
Re: sleep help
« Reply #21 on: October 22, 2013, 04:12:59 PM »
I can relate to sleep issues, I have had them on and off for years. It depends, everyone is different. I recently was diagnosed Bipolar I so come to find out many of my sleep problems happened when I was in a manic episode, I am taking Seroquel for that now which helps. But if you just have basic trouble sleeping, I would recommend Melatonin. It's safe, cheap, & it always helped put me to sleep which was my problem, & ZERO side effects. I could often take 1-3 mg and I would feel sleepy. It's great.

I tried Trazodone in the past for sleep, it will put you out, but for me personally I didn't like it after awhile because I woke up feeling really hungover, & it just wasn't worth feeling like crap the next day.

I think HIV meds can contribute to sleep problems, for me Atripla has worked ok mostly. I tried Complera way back and it was AWFUL I had terrible depression & insomnia with it. So I'm going to stick to my Atripla.

If all else fails and your doctor okays it, try Ambien or Lunesta, but personally I wouldn't want to because I've heard they tend to not last very long & they can mess up your sleep even more in the long run.

Lastly, I've found that if I take a Xanax at night it works wonders for sleep it puts me right out! I take it for anxiety & sleep too sometimes.
Started Atripla August, 2010.

Offline eric48

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  • Posts: 1,192
  • @HIVPharmaCure & tinyurl.com/HIVPharmaCure
Re: sleep help
« Reply #22 on: October 23, 2013, 05:19:36 PM »
Hi,

I side by Ray' s observation: Melatonin works for me ; same effect 1/2 hour after taking it: I am Kaputt.

Based on this, I tried one Melatonin containing combination, that worked wonders, but since it includes St John Wort (which NNRTIs users, like myself, SHOULD NOT take), I referred to my doc. I have also contacted the manufacturer

My anxiety disorder is clinically severe, but since I have been using these, my anxiolytic consumption has drastically decreased. My Doc also allowed me to half the anti depressant which we hope to discontinue in a few months

In my Doc's opinion, the combo includes all the OTC that you might think of and that may help for sleep

I have just received a special order comprising a complete set of gel capsules with each component separatly (or paired 2 or 3) in order to rebuild the original (very good but not compatible with my current treatment(s)) but with out the St John's wort.

I'll prepare a post with all detailled components after the trials and I hope everyone can play safely until the right mix is found.

I think a one-fit-all would be better but we should avoid drug interactions and uber-medication

So you have to do a bit of trial and error.

Also I found that some Vit. B1 & B6 (manufactured by Bayer) prescribed by my doctor did NOT work on me.

BUT, as part of the combinaisons I have been trying (I included these as they where left over anyway), ON and OFF, I now think it works...

My Mini-Combo is melatonin 2 mg + B1/B6 + slow released asprin

Then I will work the ladder up adding Griffonia, Valeriana (doc recommended) , Magnolia, Eschscholtzia in order to mimic the original combo (but without St John's Wort)

While cost is not a prime concern, if this works, I'd like to come up with something reasonable, since , depending on combinaison cost may go from $ 1 to $ 3 per night

I'll post a complete set of recommendations and suppliers (but Google might be even more helpfull...) once I can list and share a (subjective but honnest) rating and ranking.

Melatonin will be on top of my list

Hope this helps

Eric   
NVP/ABC/3TC/... UD; CD4 > 1000; CD4/CD8 ~ 2.0   safety stock : 3 months (2013: FOTO= 5d. ON 2d. OFF)

Offline witch

  • Member
  • Posts: 59
Re: sleep help
« Reply #23 on: October 24, 2013, 12:43:02 AM »
Melatonin does absolutely nothing for me, even when I was not on hiv drugs and had occasional problems.

From the herbs you mentioned eric48, the most active one responsible for the effect is probably Eschscholtzia (California Poppy) which has morphine-like alcaloids.

The second best guess would be Griffonia which acts on the serotonin system just like most antidepressants. Correspondingly, it may lead to the same sexual problems as antidepressants.

 


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