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Confused - appreciate perspective

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SteveS:
Hey -

I am newly diagnosed. Over the past several weeks, I feel like I have been seeing every two or three days major announcements regarding HIV on various fronts. Just a few I remember are Callimune, some gene (MX2?) they discovered in England, the virus clearing in monkeys (Picker?), something about "scissors", something about zinc / fingers, etc, and several more.

To my great surprise - this forum (and any other I am familiar with) don't seem to be discussing these nearly as much as I thought would happen? There is a thread here and there - but not to the degree that I feel like the announcements are warranting.

MY QUESTION - I realize any potential "cure" is years away (testing, approval, etc) and that there is a history of over-hyped bad press, (I tested poz right when the "HIV Cure is 3-6 months away" story hit. Major disappointment. BUT - is ANY of this legit? Why aren't "we" talking about it more? Do you all who have lived with this for SO much longer than me have hope for a cure? 5 years? 10 years?

I realize there is no crystal ball, but many of you walked through the medicine upgrades and are SO smart in how you are tracking this.....I would love some perspective....

Thanks -



Jeff G:
I have been poz for 3 decades , I'm tired of saying 30 years LOL .

I hope for a cure and think the research is promising on lots of fronts . I came up poz in the day where we were told we were going to die , sorry nothing can be done . There were no support groups , no ASO , no doctors that knew what it was or how to manage back to back infections .

I can only speak from my experience but I feel the same as I did back then as I do now and that what can I do today to make my life and others in similar circumstances better . I have to do that because I don't know any other way .

I read and digest the latest good news just like the person who found out they were living with HIV last week but I still see people coming here newly infected , I see people hurting and afraid because of stigma , so I know the cure isn't here today and there is work to be done .

I cant make heads or tails out of some of the research findings and reports but I can get someone to test and I can tell them why they don't need to test and give them the risk factors so that they know how to protect themselves and they know that hugging or even having sex with a person living with HIV is not going to harm them once they are armed with the facts .

I like the word living with in the sentence living with HIV , it means we are not simply existing and that we are moving on in life despite HIV or maybe even to spite HIV . I want a cure but I will not wait for one because I know a cure tomorrow does not make today one bit better .   

Tadeys:


Since being dx in November, 2011, I have been OCDing about a cure, sometimes daily, POZ.com being one of my daily stops...:)

  Four years ago, 99% of HIV scientist would have never used HIV and cure in the same sentence. When it comes to the cure pipeline today,  I--and most HIV scientist--feel very confident we will have a cure. When? Don't know. But I think that it will be a gradual thing...therapies initially curing a low percentage of people until the technology is tweeked.

I have seen sooo much cure potential published on this forum since nov, 2011 that I sleep like a baby at night. Perhaps 30/40 different approaches to a cure (gene therapy, stem cells, drugs, therapeutic vaccines) are currently in diferent phases. Just one of these has to work...

And remember, we are in 2013....today science is way better at predicting success than say 10 years ago.

Ciao

Trout:
Just curious...how was it back in '95/96 when protease inhibitors introduced? Was it a complete surprise? I realize times were different then without the internet.

mecch:

--- Quote from: SteveS on September 22, 2013, 04:57:55 PM ---Hey -

I am newly diagnosed. Over the past several weeks, I feel like I have been seeing every two or three days major announcements regarding HIV on various fronts. Just a few I remember are Callimune, some gene (MX2?) they discovered in England, the virus clearing in monkeys (Picker?), something about "scissors", something about zinc / fingers, etc, and several more.

To my great surprise - this forum (and any other I am familiar with) don't seem to be discussing these nearly as much as I thought would happen? There is a thread here and there - but not to the degree that I feel like the announcements are warranting.

MY QUESTION - I realize any potential "cure" is years away (testing, approval, etc) and that there is a history of over-hyped bad press, (I tested poz right when the "HIV Cure is 3-6 months away" story hit. Major disappointment. BUT - is ANY of this legit? Why aren't "we" talking about it more? Do you all who have lived with this for SO much longer than me have hope for a cure? 5 years? 10 years?

I realize there is no crystal ball, but many of you walked through the medicine upgrades and are SO smart in how you are tracking this.....I would love some perspective....

Thanks -

--- End quote ---

Go to the research threads and talk about cure news, what's stopping you?

As I consume a lot of media, I'm going to know when someone has been cured.
I'm going to know when that cure is rolled out to the public.
I'm going to know when it's available to my friends and myself.

Cure news is a compelling topic for some HIV+, others (like me) are fine with letting the specialists do their thing and just keeping our ears open for anything truly spectacular. 

In the meantime, there's Syria and Miley and the new television season...

There's providing support here for people dealing with crisis in this very moment.

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