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Author Topic: 2nd Set of Labs are in...  (Read 1409 times)

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Offline racingmind

  • Member
  • Posts: 236
2nd Set of Labs are in...
« on: October 24, 2006, 11:45:53 AM »
hey everyone.

well just in from the ID doc and I got my 2nd set of numbers....

1st  CD4: 442 (28%)  VL: >100,000

2nd CD4: 350 (25%)  VL: 243,000

I'm a little uneasy and disappointed because my doctor started taking about meds.  He wants to wait for a 3rd set of labs that are to be taken in Mid November before proceeding on meds.  I think this a wise decision....

At the same time I'm torn between not wanting to rush into anything and doing something to stop the virus from replicating in my system....... 

I know that I have asked this question before, but that was before I got another set of labs.  Do 2 sets of numbers equal a trend?

If I'm going to have to go on medication should I be applying for an ADAP program now before I even have the prescription?

Any thoughts on these concerns of mine will be welcomed with desperate, open arms.

Thanks=)


Dxx
Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline Ann

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  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 2nd Set of Labs are in...
« Reply #1 on: October 24, 2006, 12:06:47 PM »
Hi Dxx,

No, two results can't show a trend. You need at least three to even begin to get the feel of a trend. You are still very early on in your infection and there is still a very good chance that your numbers will begin to improve on their own. Hang in there and don't let yourself be rushed into anything.

I can't tell you anything about ADAP - but someone will.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline MSPspud

  • Member
  • Posts: 613
  • Joined Mar 2005 - Formerly UofMurbs
Re: 2nd Set of Labs are in...
« Reply #2 on: October 24, 2006, 12:12:51 PM »
While your second set of labs is not encouraging, you still have some time to settle into the med scene.  I would see what November brings, however; if there is no improvement, I would begin meds shortly thereafter.  If I remember correctly though...  when I first was diagnosed with HIV, I received a slew of vaccinations.  I also remember you having posted just a few weeks ago.  Is it possible that you recently received a ton a vaccinations which may have played havoc on your numbers?  Also, take into consideration that the time between now and your first labs has been incredibly stressful.  I know it's tough but try to relax a little and get your rest before November.  

As for a trend, two tests, don't necessarily equal a trend unless they were sandwiched between others.  These are your first two, so a third test would be a lot more reliable, predictive and confirming.  

Hang in there.  You're still OK!

BTW, you should inquire as to whether your doctor performed a resistance test.  If you have no resistance, your prognosis is very good!

Finally:  Yes, sign up for ADAP now.  Even if you're years away, you should sign up for ADAP ASAP.

Offline racingmind

  • Member
  • Posts: 236
Re: 2nd Set of Labs are in...
« Reply #3 on: October 24, 2006, 03:42:16 PM »
Thanks Ann & Jason for your warm replies.

Jason, no I haven't received any vaccinations since being diagnosed.  When I first got tested, I was also tested for a bunch of STDs and hepatitis---and got the 1st two in a series of 3 Hepatitis vaccinations.  I am due for the 3rd and final Hep shot in Mid November, along with a Flu Shot.  My doctor said to get the next blood drawn before the those shots as to no mess up the results.  Also, yes, I did have the resistance test done and it predicted that I am not resistant to any of the drugs, which I was glad about.  I guess I will try to chill out and not worry until there is something more to worry about.  I have been feeling pretty good lately, but those numbers today knocked me down a peg or two mentally.  Time to regroup and get my spirits up and think about other things until next month....easier said than done...but I'm going to try my best.

Thanks for the encouragement! 

Dxx
Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 2nd Set of Labs are in...
« Reply #4 on: October 24, 2006, 06:13:39 PM »
Quote
and got the 1st two in a series of 3 Hepatitis vaccinations.  I am due for the 3rd and final Hep shot in Mid November, along with a Flu Shot.

Hi again Dxx,

Those hep vaccinations might have affected your second set of numbers. Try to get November's blood draw BEFORE you get the third hep round and the flu shot. That way you won't be wondering if there was an effect from them on your counts.

The hep vaccine kicked my ass - but then again I had a fairly rare auto-immune reaction to it that had nothing to do with the hiv (allegedly). ::)

Hang in there... ;)

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline Longislander

  • Member
  • Posts: 2,486
Re: 2nd Set of Labs are in...
« Reply #5 on: October 24, 2006, 06:20:19 PM »
Hi D-
Check out my #'s below. My doc was also talking meds after 349/9500, but I held off until the next labs. Glad I did, gave myself another 3 months without meds. After 1st diagnosed, that Dr explained to me that my body was fighting, and I would see a dip, then likely see better #'s. Hold off until you see that trend.

ANOTHER THING--between the 349 labs and the 507 labs, I found this site. I CANNOT tell you enough how reading all of the posts from these people, and also getting help from them , had reduced my stress level before the 507 labs. At this point, I'm a firm believer that stress is counterproductive. Do your best to destress.

Take care buddy,
Paul
infected 10/05 diagnosed 12-05
2/06   379/57000                    6/07 372/30500 25%   4/09 640/U/32% 
5/06   ?? /37000                     8/07 491/55000/24%    9/09 913/U/39%
8/06   349/9500 25%              11/07 515/68000/24     2/10 845/U/38%
9/06   507/16,000 30% !          2/08  516/116k/22%    7/10 906/80/39%
12/06 398/29000 26%             Start Atripla 3/08
3/07   402/80,000 29%            4/08  485/undet!/27
4/07   507/35,000 25%            7/08 625/UD/34%
                                                 11/08 684/U/36%

Offline Eldon

  • Member
  • Posts: 2,664
Re: 2nd Set of Labs are in...
« Reply #6 on: October 24, 2006, 08:34:30 PM »
Hi Dxx,

Ann, Paul and Jason said it clearly. Hold off until you see a trend in your numbers. I would definitely keep an eye on your Viral Load. It is like a wildfire that needs to be put out.

In the interim, Eat a diet high in fruits, vegetables, whole grains, lean protein, and low-fat dairy and avoid processed foods, saturated and trans fats. This will also help you maintain a healthy weight.

Exercise at least three times per week for a minimum of 30 minutes.

Make the BEST of each Day!

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: 2nd Set of Labs are in...
« Reply #7 on: October 25, 2006, 06:15:53 AM »
Hey Paul,

I'm glad you chimed in. I've refered a few new people (including Dxx) to your thread from a month or so ago because yours is a perfect example of the wisdom of waiting (when newly infected) to give your body a chance before jumping into the meds.

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline bocker3

  • Member
  • Posts: 3,386
  • You gotta enjoy life......
Re: 2nd Set of Labs are in...
« Reply #8 on: October 25, 2006, 07:45:49 AM »
Hi Dxx,

I think you have been getting very good advice so far, but I am going to add my own twist to it.  While it is true that a 3rd set of labs will give you a more reliable look at how things are trending, it would NOT be wrong to start meds sooner rather than later (of course, be clear here -- it would also NOT be wrong to wait).  There does appear to be a growing body of evidence that starting meds earlier may be better.  I think the key to when to start sits not only with your lab results but with your mind.  If you are NOT ready to commit to meds, then it probably is not time to start -- regardless of numbers.  Taking no meds is probably better than poor adherence.  I know the thought of starting meds causes fear, but my experience with them and the experience of many, many others is that it is not the "horror" I feared and, in fact, helped me feel even better than I was feeling (which wasn't bad at all).
So, bottomline -- wait or start -- the choice is yours (hopefully with some input from your doc), but I wanted to chime in here with a slightly broader view and make sure that you knew that starting would NOT be a bad choice either.

Hugs,
Mike
Atripla - Started 12/05
Reyataz/Norvir - Added 6/06
Labs - Pre-Meds
Sep05 T=350/25% VL98,559
Nov05 288/18%  47,564
Current Labs
May2013 691/31% <20

 


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