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Author Topic: Tivicay  (Read 12666 times)

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Offline Freon

  • member
  • Posts: 1
Re: Tivicay
« Reply #50 on: November 21, 2013, 11:15:48 AM »
I don't have the past history to know if switching is a good thing, but I started with Truvada+Trivicay as my first treatment. It's been 6 weeks, and after the usual follow up a month later all my labs were fine for liver, VL undetectable in less then a month, and I don't really think I've had any side effects. Except the first 2 weeks sometimes I'd feel a little lightheaded and then it would pass. 
I don't understand the big push for a single pill though, both are really small, taken at the same time together, and that's about it.  I take it on the way to bed and don't feel anything.  It's been so dramatically effective that I don't need a checkup until after the new year.
11/01/13 VL-UD CD4-205 28 days later.
10/04/13 Start Truvada+Trivicay VL-18k CD4-255
02/04/13 VL-35k CD4-750
11/05/12 VL-12-k CD4-550
04/17/12 VL-1250 CD4-505
2/1/12  RNA Confirmation VL-12500
1/11/12 WB Intertiminate, 5 bands and a phone call on the road while working out of state
12/26/11 Fever, Odd kidney function, Merry Xmas

Offline Schnauzer

  • Member
  • Posts: 37
Re: Tivicay
« Reply #51 on: November 21, 2013, 12:03:16 PM »
ViiV Healthcare just submitted its application to the FDA for a dolutegravir/abacavir/lamivudine once-a-day combo pill.  Barring any complications, it should be available at your local pharmacy by summer 2014 possibly under the name "Trii".

http://www.viivhealthcare.com/media/press-releases/2013/october/viiv-healthcare-announces-us-regulatory-submission-for-a-single-tablet-regimen-combining-dolutegravir-with-abacavir-and-lamivudine-for-people-living-with-hiv.aspx
One good turn gets most of the blankets.

Offline oksikoko

  • Member
  • Posts: 680
  • Writing the congressman again
    • the treatment cascade
Re: Tivicay
« Reply #52 on: November 21, 2013, 07:52:33 PM »
I don't understand the big push for a single pill though, both are really small, taken at the same time together, and that's about it.  I take it on the way to bed and don't feel anything.  It's been so dramatically effective that I don't need a checkup until after the new year.

Personally, I agree about multiple pills not being a big deal, but due to insurance weirdness, some people pay per pill. Also a lot of people have trouble with adherence, especially as time goes by. Every little thing that makes it easier, like having to remember only 1 pill, helps.

Lee
Code: [Select]
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

Offline wolfter

  • Member
  • Posts: 4,460
Re: Tivicay
« Reply #53 on: November 22, 2013, 05:12:24 AM »
I don't have the past history to know if switching is a good thing, but I started with Truvada+Trivicay as my first treatment. It's been 6 weeks, and after the usual follow up a month later all my labs were fine for liver, VL undetectable in less then a month, and I don't really think I've had any side effects. Except the first 2 weeks sometimes I'd feel a little lightheaded and then it would pass. 
I don't understand the big push for a single pill though, both are really small, taken at the same time together, and that's about it.  I take it on the way to bed and don't feel anything.  It's been so dramatically effective that I don't need a checkup until after the new year.

I read through the entire thread and didn't see any comments about the convenience of a one a day pill.  For many of us, the number of pills isn't an issue.  Imagine having to take a handful of pills every 4 hours thinking that was a life-line.  Nothing like hearing an alarm going off at 4:00 am.  :)

Oh and btw, I had to walk 4 miles uphill through several feet of snow to get my first meds.. :o
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline EmilyRay

  • Member
  • Posts: 5
Re: Tivicay
« Reply #54 on: December 04, 2013, 10:34:31 AM »
My girlfriend just started taking tivicay four days ago and now has terrible diarrhea! She was on isentress before and had similar issues with it, but not to this degree. I hope that this is just an adjustment period problem. I am not sure why they switched her to the new medication; she has no resistance to the isentress and her numbers have been good. It seems to me like her Dr is just using her to play guinea pig with a new toy. I understand why some people are switched to it, just not understanding why she was.

EmilyRay

Online Miss Philicia

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  • celebrity poster, faker & poser
Re: Tivicay
« Reply #55 on: December 04, 2013, 12:04:16 PM »
Is there a reason that your girlfriend doesn't ask her doctors these questions? A doctor/patient relationship is a two-way street.

I seriously doubt the doctor is just "playing guinea pig" with their patient. I've yet to encounter any Josef Mengele types in the past two decades.

If the diarrhea is so bad why doesn't your girlfriend go buy some imodium at a drugstore? Better yet, since this issue was occurring in lesser fashion of some sort on the previous regimen why doesn't she press the issue with her doctor and get a prescription for something like loperamide, which would save money instead of buying OTC meds at a drugstore (assuming you have little to no co-pays for generics). Also, it's possible there could be some other cause if she has persistent diarrhea -- again, she should be forcing the discussion with her doctor -- he can run a stool test, etc. to eliminate other possible causes. A doctor is only as good as what can be gleaned from patients discussions -- they can not read minds.

If she sincerely doesn't like the med change then most likely she can return to Isentress. What other HIV medications is she on with these?
« Last Edit: December 04, 2013, 12:11:02 PM by Miss Philicia »
"I’ve slept with enough men to know that I’m not gay"

Offline EmilyRay

  • Member
  • Posts: 5
Re: Tivicay
« Reply #56 on: December 04, 2013, 01:30:51 PM »
The NP who made the change just did it without any discussion with my GF. It was actually the pharmacy that told her what was happening and they said Isentress was being withdrawn from the market. She has been taking imodium or loperimide for four years. She is also taking percocet for hiv related pain which usually leads to constipation in others. She has been to a gastroenterologists and had all the usual testing with no additional Diagnosis found. Earlier this year her gastric motility was so slow that she was vomiting twice a day until I gave her erythromycin which temporarily increases gastric motility. I am not at all happy with her quality of care, but she is not very assertive with her providers and resents my encouragement to be more so.

If the side effects remain at this level she will demand to be put back on isentress

Truvada is the other hiv med.

EmilyRay

Online Miss Philicia

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  • celebrity poster, faker & poser
Re: Tivicay
« Reply #57 on: December 04, 2013, 02:02:23 PM »
EmilyRay -- that's just total bullshit. Isentress is absolutely not being withdrawn from the market. I am on Isentress myself.

I rarely say this on this forum because there's always two sides to a story, but it really sounds like the care she is receiving is sub-par in the extreme. Are you in the US? A nurse practitioner in my opinion should never be the one to make major HAART regimen changes, only an infectious disease specialist or similar GP internal medicine doctor should do this, fully in consultation with the patient and with a full explanation of why he/she feels this is the best measure to take.

As far as your girlfriend's gastrointestinal issues, yes they indeed sound intractable if she's done the full round of specialists. Sometimes HIV patients just have diarrhea from the HIV virus itself as it does quite a number on the small intestines. I am such a patient myself and must take six loperamides daily and six Creon tablets (delayed-release synthetic pancreatic enzymes)
"I’ve slept with enough men to know that I’m not gay"

Offline surf18

  • Member
  • Posts: 525
Re: Tivicay
« Reply #58 on: December 08, 2013, 10:35:23 AM »
I have been on this new drug for about a month. It is really cool not having to worry about taking that night time pill. More freedom. I truly admire the men and woman before us who had such different treatment options than those of us at this time are so fortuante to have. The size of the pill is so amazingly small.
Anyways, I take the pill in the morning with Truvada and thank god I feel good. Maybe slightly more agiated or it could be just my employees going through a dumb fuck phase that is pissing me off. ha
I have my doctor appoitment on Weds after I had blood work done last week to make sure everything is working as it should.

Offline Cluffmasta

  • Member
  • Posts: 20
Re: Tivicay
« Reply #59 on: February 09, 2014, 01:04:08 AM »
Thought I would give a little update! Been on Truvada and Tivicay for about 6 months now and loving it! No side effects and just got my labs back, VL undetectable and CD4 650 %45. I'm still super pleased with this regimen :) hoping everyone else is doing well on it also!

Offline Turtle-12

  • Member
  • Posts: 23
Re: Tivicay
« Reply #60 on: February 13, 2014, 09:23:51 PM »
Hi there,

I have been taking tivicay and truvada combination for exactly one month (first time on meds) and they are both great, no noticible sode effects and they worked great for me.... My VL went from 192000 to 42 and my cd4 count up from 156 to 264 in one month.... Best combination to get you back in track.... Only negative thing dr told me is making sure you are compliant and taking it as prescribed cause you can becone resistant easily and be forced to take other combinations.... Good luck and keep us posted about your progress...

Offline guitargal

  • Member
  • Posts: 52
Re: Tivicay
« Reply #61 on: February 14, 2014, 02:55:48 AM »
i start tivicay and epzicom tomorrow..

here we go again…
my cds went down to 638 from 900 on stribuld and the tenofovir i think screwed my kidneys.. see other post..i was not aware.. oh everything is fine they said…
now i get all my records and learn what it all means. i can't trust them.

lets hope the abacavir is ok to take a second time.. was on it 18 moths ago with Isentris and Edurant? worried about the 3tc also as i want to be able to WALK.

Offline Turtle-12

  • Member
  • Posts: 23
Re: Tivicay
« Reply #62 on: February 15, 2014, 12:27:40 AM »
I have been on Truvada/Tivicay for exactly 1 month (first time on meds) and it is working quite well, almost non existent side effects, I actually get an energy rush after taking it, but not headaches, or other discomforts. I had my labs done this week and my results were GREAT, my VL went down from 192,000 to 40 and my Cd4 went up from 156 to 264 in 30 days... at this rate DR said i should be undetectable next time she sees me... according to her this is the best combo to reduce VL and increase cd4 in a short time, only bad thing according to her is that if you miss doses you can become resistant quicker than with other combos...not sure if true as I am very new to all this... I just only recently found out not only that I had the virus but that i was on the AIDS category, even though I had/have no symptoms at all, i probably had it for years and never knew... I am just glad i found out I had it and started taking meds before it was too late, my feeling is that probably a lot of people in the world die of related causes without ever knowing they have hiv... I am happy my results are good, hopefully they will be better next time :)

Offline guitargal

  • Member
  • Posts: 52
Re: Tivicay
« Reply #63 on: February 16, 2014, 02:31:55 AM »
glad for you turtle 12!

in the old days a VL of 200 was  considered excellent..that was as low as the test could count then…so…you are good to go. eat well and get your exercise  best to you!

Offline lucinda29

  • Member
  • Posts: 3
Re: Tivicay
« Reply #64 on: March 07, 2014, 08:16:52 PM »
Hello,

I started Trivicay  about 3 weeks ago. It has been good to me so far. I was taken issentress and Truvada prior to the change. Now,  I take Trivicay and Truvada once a day. My only issue with Trivicay so far seems to be watery mouth  for a little after taking the pill and being thirsty.  I did have a few headaches when I first started with Trivicay in the first week, but I will take that over the constant headache I used to have with issentress. 

P.S.  I have been HIV Positive for the past 3 years and has been undetected for over 33 months. I started on y meds as soon as I found out. I notice that there is a lot of questions being asked about as soon should you start taken meds. Please just do it.

If you are out there and have been told that you are positive, I know it is heartbreaking, but there is life after the news.  Find a great doctor with whom you are comfortable with, that  that is extremely important because you will be dealing with that person a lot (every 3 months).  You just need to start taking care of yourself, take your meds on time everyday. It's not an option, it is now your way of life.  you need to monitor your eating habits, any health issues and report anything you don't understand to your doctor. If a pill does not work for you or if it's giving you a lot of problems, talk to your doctor because he/she can change your meds.

Hang around positive and educated people who is well-informed about HIV and then go on with your life.  There is life after HIV as you long as you take care of yourself.

We have come a long way. I thank the Lord for all the progress that has been made on this issue.  Now we are taking just 2 pills/day where the people before us used to take 25-30 pills/day. So don't you dare feel sorry for yourself, get up and live.  This disease does not control you, but you do.  We have a lot of life to live. Take care you all,  until next time stay strong; we can do it.

Offline NormanO

  • member
  • Posts: 1
Re: Tivicay
« Reply #65 on: April 16, 2014, 01:35:15 PM »
I started with Truvada & Isentress two years ago - will start easter saturday with TIVICAY. Had no sides effects yet but sometimes headache/migraine - sounds here that Isentress may have caused this problems so hope to feel better with TIVICAY now. Also a huge benefit for me will be only once a day two pills...
Greetings from EUROPE/Germany
Norman

Offline Cluffmasta

  • Member
  • Posts: 20
Re: Tivicay
« Reply #66 on: April 17, 2014, 12:58:56 AM »
Hey Norman! Been on Truvada/Tivicay since August 2013 and have loved it, no side effects at all. I myself use to be on Isentress for 4 1/2 years, had terrible headaches and diarrhea..those stopped once I started Tivicay! Wishing you the best, let us know how it works for you :) keep us updated! From SLC, Utah

 


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