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Author Topic: Nucleomax -- Trouble getting in contact with Tabs and More  (Read 7515 times)

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Offline ZCorker

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Nucleomax -- Trouble getting in contact with Tabs and More
« on: September 02, 2006, 12:09:14 PM »
    I have been trying to place an order for Nucleomax with the company called Tabs and More, but I have encountered difficulty.  All of my e-mail is coming back rejected as spam.  I have tried calling them during normal business hours, but their answering machine doesn't accept voice mails.  I have even tried sending e-mails to their hostmaster for their internet service in hopes of getting their hostmaster to forward an e-mail to them on my behalf, but their hostmaster refused to do it.

   Has anyone been able to get in contact with them?  The new data on Nucleomax has confirmed the original findings published in Europe and confirms that the product can reverse genetic damage to the liver and other tissues.
It is quite pricy.  However, the product will probably be covered by insurance once it is FDA approved.  It is currently in Phase III trials in the US.

   I am wondering why no one has persued Triacetyluridine as a competing agent?  It might get the cost down.
 :P
   
« Last Edit: September 16, 2006, 11:16:38 AM by ZCorker »

Offline panda

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #1 on: October 07, 2006, 04:00:48 PM »
info@nucleomaxx.com <info@nucleomaxx.com> -

try yjis above email address for this company i have corresponded with them and always got a reply. let me know how is it going with this product, i do want to start, i am female , 32 years, having meds for about 10 years , all kind including crixivann and zerit, now i am on viread, videx and kalerta and i wonder with these current meds, will it be able to help me as well ?

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Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #2 on: October 10, 2006, 10:14:36 PM »
  I did finally get in contact with Tabs and More.  Apparently it just took a really long time because their spam filter was filtering a lot of stuff out.

  It is very important people continue to persue additional trials with both Triacetyluridine as well as Nucleomax.  Unfortunately the current Nucleomax study is only to show fat is regenerated and as a result, the study may fail.

  Simply because it doesn't produce fat doesn't mean it isn't highly usefull.  I hope this message serves as a warning to other hiv patients of the urgency and need to do an addtional ACTU study with both Nucleomax and Triacetyluridine for repairing and preventing additional neurological damage in hiv patients.  I would appreciate people sharing their responses with me.  I haven't found the folks ACTU headquarters all that receptive to suggestions.  Has anyone else had a different experience? :-[

Offline blondbeauty

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #3 on: October 11, 2006, 10:47:30 AM »
Used for neuropathy since June 1993 in Spain. Uridine. Price: 8.90 euros.

[attachment deleted by admin]
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933

Offline panda

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #4 on: October 11, 2006, 04:21:42 PM »
I wanted to start with the nucleomax , i wanted to order , its very expensive , about 80 - 100 euro per month ... my dr. could not recomand it as he doesn't know enought about this product , i also coresponded with the comapny for a while trried to get as much info as possible , the thing is i am longer on one of the meds this product suppose to cover / help , but i was .. i took zerit for years and damage is done ! so i wanted to try it anyway, but i dr. said that since i am planing on getting pregnant soon , its not recomended as i can not tell and there is no research for how nucleomax effect pregnant woman .. so i guess i will have to wait .. but i do want to know how it effect on other pepole who reied this product.

Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #5 on: October 13, 2006, 01:12:35 AM »
Would you please provide us the name of the drug manufacturer and contact information for a distributor?  It doesn't surprise me that the price is reasonable.  Triacetyluridine is not particularly expensive or difficult to make.  So who in Europe has this. 

I have often felt that we are being gouged by the makers of Nucleomax.  Triacetyluridine may be an alternative.

Used for neuropathy since June 1993 in Spain. Uridine. Price: 8.90 euros.

Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #6 on: October 13, 2006, 01:36:45 AM »
Hello Panda:

   You are not alone and initially I encountered the same resistance from my doctor.  The way you get around this is to inundate your physician with volumes of data on Triacetyluridine and Nucleomax.  Keep in mind that Nucleomax may not have the same efficacy as Triacetyluridine.  Triacetyluridine was first studied in the US about 20 years ago and was initially used by Oncologist as a bailout for Fluorescene.  You should bring your doctor several pounds of paper.  At least 1/2 full inch of technical, sophisticated, and trustworthy medical data on the studies done with Uridine.  Keep in mind that uridine has many recent noteworthy studies published -- including preventing neurological damage in Huntington's Disease, and regenerating certain brain cells in Alzheimers. 

    I had the same problems as you and finally my doctor wrote a prescription and even made a comment that he didn't think it would hurt me.  Inspite of that fact, youi should use extreme caution and note that some of the early studies of Nucleomax showed that HDL went down.  You should never let your HDL fall below 40.  You can get away with it for 7 years, but after that time you run the risk of developing artero schlerosis.  Like most hiv patients, I am currently taking time release Niacin, but Niacin doesn't solve the underlying problem and midly increases insulin resistance.  Each case is individual and you will have to carefully look at your lab values to get an idea of what you need.

   Also, you should be aware that John Hopkins recently published a study announcing that they have successfully regenerated nerve tissue using a combination of stem cells and chemicals in mice.  I have a copy of the article if you want it.

   Besides loading up your doctor, you should also send a letter to the FDA and let them know how D4T damaged you.  Your case sounds a lot like mine.  Also, keep in mind that once you develop damage from D4T, your ability to use 3TC is greatly impaired and increases the chance of brain damage when using 3TC.  There is much you can do about all of this.  When writing the FDA, you should demand a postmarketing study from Bristol Meyer Squibb -- including but not limited to paying for repair of your damage.  You may post your comments to the FDA either on their website here --> http://www.accessdata.fda.gov/scripts/cder/pmc/index.cfm or by sending them an e-mail to --> <pmcweb@cder.fda.gov> ; specifically you should ask them to pay money for the cost of a clinical trial at John Hopkins for nerve regeneration.  Use the article on the net to cite that this really works.  Bristol Meyer Squibb should not be allowed to get away with this.

   One of the biggest frauds going on right now is how several doctors and neuro specialist are trying to make it look like it is the disease and not the drug that is causing brain damage and dementia.  I can assure you first hand that this isn't true.

   Also, you should place a long distance call at your own expense to the Brazilian Consulate and request that they contact a Generic Brazilian Drug manufacturer on your behalf and request assistance in getting Triacetyluridine made in Brazil.  You are allowed to import a 90 day supply for your own personal use under US Law -- provided the drug is not already legally available here.  I don't know where you live and you should use the Brazilian Trade Office closes to where you live.  I live in Seattle and Los Angeles is the closes trade office to me.  Their telephone number is (323) 651-2664 e-mail is <trade@brazilian-consulate.org>.  You will probably have to call them.  I think their spam filter is filtering everything out.

   Another thing you can do is contact the headquarters for ACTU back east and demand that they modify their study of Nucleomax to include genetic damage and repair and prevention of mitochondrial damage.  At this time they are only testing the drug in the US for purposes of growing fat.  As a result there is a good chance that it will never become FDA approved.  The contact information for the ACTU folks is Dr. Carl Fichtenbaum <carl.fichtenbaum@uc.edu> or his telephone number at 513-584-6361.  Keep in mind that the folks at headquarters don't like talking to patients.  They don't think we know anything and would prefer a suggestion made by a doctor.  Don't be surprised if they brush you off?  Or get arrogant.

   Another strategy is to lookup manufacturers of Triacetyluridine and ask them if they would sponsor a clinical trial.  You will probably have to look at the European Index because I don't think anyone in the US is making it except for laboratory studies.

   I was wondering if you would be willing to work with me on some of these issues?  I have done everything that I have preached and seeing your message leaves me some inspiration to do some more.  I am a full time student online, am highly resistant to all known medications, and I am still keeping going.  It took me 3 years before I could get someone to give me Pioglitazone for the sunken face (lypodystrophy syndrome), elevated blood sugar and elevated triglycerides.

   The moral to this story is that no one is going to give you treatment.  Instead you have to go and get it and the moment you are unwilling to do this, you won't be here very long.  There isn't one drug on the marketplace today that wasn't as a result of hiv patients getting active, calling drug companies, etc.  Be carefull about some of the organized groups that are supposedly going after the drug industry.  Several of them are heavily funded by the drug companies and you may encounter a conflict of interest if you get involved with them.  On the other hand, I am not in any way insinuating that you shouldn't join them nor that your involvement with them wouldn't be beneficial.  My comments were only intended to alert you to the fact that you may have to be carefull about what you say and who you talk to when you join the groups or run the risk of being tossed out.

   If you would like to contact me, look up my address on Yahoo.  It is the following word spelled in reverse rekrocz at yahoo.  I have to write it this way on here because the spammers have spiders that are digging for addresses and posting my address on here is an open invitation to them.  Also, I am the webmaster for IEEE Computer Society Seattle and you can find my address by looking on that site as well.  Keep in mind that the webmaster for IEEE is different than the Seattle Computer Society.

Hope this helps

I wanted to start with the nucleomax , i wanted to order , its very expensive , about 80 - 100 euro per month ... my dr. could not recomand it as he doesn't know enought about this product , i also coresponded with the comapny for a while trried to get as much info as possible , the thing is i am longer on one of the meds this product suppose to cover / help , but i was .. i took zerit for years and damage is done ! so i wanted to try it anyway, but i dr. said that since i am planing on getting pregnant soon , its not recomended as i can not tell and there is no research for how nucleomax effect pregnant woman .. so i guess i will have to wait .. but i do want to know how it effect on other pepole who reied this product.
« Last Edit: October 13, 2006, 01:40:33 AM by ZCorker »

Offline panda

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #7 on: October 13, 2006, 08:14:41 AM »
Hi , Wow ... So may information ... I must admit I got lost. If I didn't metion, I am from Israel, not from the USA and therefore its hard for me to follow all these infor u just gave me ...
I do want to give it a chance , but still do not understand the difference between nucleo maxx to thr other product u mentioned   Triacetyluridine and how do I get it ? I also want to know if there isme one you know who tried this ? The main reason for me wanting to try this is the lipo ! U mentioned before u got the Pioglitazone for the sunken face .. can I get it as well ? I told my dr. about this product but he said he checked and it can not help with lipo symptoms .. did it help u ?

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Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #8 on: October 13, 2006, 12:06:50 PM »
Hello Panda:

   I forgot that you were in Israel.  With respect to the Lypodystryophy syndrome, it isn't as simple as that.  More than one hormone produces fat.  When evaluating your situation, you need to look at not only your lypodystrophy, where on the body the lypodystrophy is occurying as well as your blood work.  Do you have elevated blood sugar? Elevated triglycerides (>150)? Depressed hdl cholesterol <40?  Do you run 30 minutes at least 5 times per week?  You have elevated c-reactive protein?  All of these questions need to be evaluated before making a decision to go to Pioglitazone.  In addition, you need to be aware that Pioglitazone is not without its risk.  You have any history of heart disease?  Pioglitazone can not be given to Class 3 or 4 heart patients and a growing body of medical experts believe it shouldn't be given to class 2 heart patients as well.  You should thoroughly read through Medlines reported case histories of adverse events with the glitazone class before making any decision.  When I say thoroughly, I mean reading the entire body of every report.  There were at least 32 of them when I checked 18 months ago.

   Keep in mind that Human Growth Hormone, Leptin, and Pioglitazone all create fat, but for different purposes.  Where is your lypodystrophy located?  Is it a sunken face?  Or do you have skinny legs?  Or both?  Do you have an extended stomach?  Do you have a buffalo hump?  Each one of these Lypodystrophy syndromes could indicate that a different treatment is in order?

   Since you are in Israel, you should send an e-mail to Teva and Taro and see if they would be interested in marketing Triacetyluridine.  Historically they usually only went after expiring patents on drugs in the US and elsewhere, however Triacetyluridine is a highly attractive drug with a wide range of clinical applications.  Previously I did contact Taro and Teva, but I didn't find them proactive with respect to this area of science.  However, that doesn't mean that you won't get any help if you do contact them.  You can look up their phone and e-mail on the internet.  And depending on where you live in Israel, you might even be able to and visit them.

   With respect to the difference between Nucleomax and Triacetyluridine, the answer is that we have been led to believe that they are similar, but in actuality I don't know.  Nucleomax is supposed to be a pro-uridine formulation (a form of uridine).  Triacetyluridine is supposed to be the most powerfull and purest form of uridine.  It is a highly usefull drug and is considered in the neuro protective class.  There is data that demonstrates that it can prevent and repair mitochondrial toxicity (genetic damage) caused from a number of hiv medications, but not DDI.
Triacetyluridine was first used in the US over 20 years ago to help cancer patients suffering from toxicities associated with chemotherapy.  Since that time it has been used in drugs to help mental health patients -- mainly manic depressives.

   The previous Aidsmeds.com website had a lot of information and links on uridine supplementation.  I don't know if that information was transfered over to the new board.  However, you should be able to find a fairly descent amount of information on uridine by reading or looking up postings on natap.org  Natap has a lot of up-to-date and scholarly information.  Also, you should be able to look up a substantial amount of clinical information on medline, another internet resource.

   I wouldn't let being in Israel discourage you from starting a clinical trial.  Like everyone else, Israel has plenty of hiv patients -- both Ichiloff Hospital and Telashamir Hospital and a couple of others have hiv caseloads.  You should see if you can start or pluggin to a group of other hiv patients to organize researchers and clinicians to become investigators.  And most importantly see if you can find a drug company to sponsor a trial.  One advantage that you have in Israel is that the approval and regulatory process is quicker because it is a much smaller country.

  Another possible resource that you might explore is contacting Diane Cenko with St Francis Hospital in San Francisco.  Her e-mail address is <DCenko@chw.edu>  She has a newsletter that comes out with updated information.  Still another resource for you would be to contact Rita Reports in Houston.  They have a weekly newsletter that has up-to-date information.  You may contact them at <rita@centerforaids.org> or by logging on to their website at certerforaids.org or something like that. 

   Also, you may want to look into the newsletters that are coming out of England.  I have heard that there are a couple of newsletters that can give you information about clinical trials in England. 

   What is the status of organized efforts among hiv patients to bring forth better treatments in Israel?
« Last Edit: October 13, 2006, 12:12:29 PM by ZCorker »

Offline panda

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #9 on: October 13, 2006, 05:29:15 PM »
Hi, Boy , u knows a lot .. where do u have all the knowledge and information ?
I am trying not so drawn into this frustration , but its very hard. I started seeing lipo already when I started fist taking the meds. 10 years ago... started with Crixivan and few month later I FELT MUY BELLY GETTING BIGGER (ALWYS HAD FLAT BELLY) and my legs getting skinner and from that point it only got worst, can u imagine 10 years suffering lipo which is getting worst? I have been thru Crixivan, and zerit ... Now I am taking Kaletra and viread and videx, then thing is i am trying to get pregnant, and i used to take stocrin but u can not take stockring due pregnancy and i didn't want to take the kaletra so my Dr gave me viramune but once i started taking it i got this"Steven johnson"- have u herd about it? i nearly passed away and managed to stay alive .. have no idea how?doctors says it a miracle.I quit with the zerit around 2 years ago , switched to viread , i hoped the lip will get better , but unfortunately it didn't. It effects everything. started with skinny legs, huge belly, breast, no buttocks, skinny arms and then I had this fat accumulation at upper arms area (had this off on a suction surgery as it was too much to take). my face... well , i think they are getting thinner, it was most noticeable after the Steven Johnson when i lost 7 kg. even now, 10 years after lipo started, i still can not accept how i look and fight it in order to find something which might help me...
most bothring me is the way my legs are ... god !will there ever be a cure for this? i started doing weight training, trying to build muscle... i used to walk but its too hot, i will get back to it in a month when winter will start.i am trying to keep my fat profile as normal as possible , its so hard, i am drinking this wheat grass , it helps.
I would love to get from you some more tips.

As for your question ... don't think that being hiv+ in Israel is easier just cause we are small country, we are a small country with so many problems , wars never ending , so every year when governments trying to cut the cake equal its starting all over again where  most of the budget goes to the army and security and while we are waiting for new meds to come into the market we are facing disappointments... mostly when I have resistance to most of the meds and i relay want to take the videx off cause its contribute to the lipo as well, so my Dr. said that reyataz might be possible to replace the videx but unfortunately its not approved here yet so I am stucked.
I am now 32 years old (female) got infected 12 years ago, believe it or not the first to years where most easier for me cause i looked normal , looked good ... u could never tell there was something wrong with me, but the years after, its become harder from year to year cause of the lipo and sometimes I feel like I can not take it any longer and I break down and cry... it happens a l lot. Its very hard ! Very ...

Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #10 on: October 14, 2006, 12:44:46 PM »
   The skinny legs is often caused from a loss of fat -- not muscle.  I am aware that Israel is a tough place to be with hiv because of limited public resources.
However, drug companies and not the government usually pay for trials that are more quickly approved; at least that has been the case in the US and elsewhere.  Calling and organizing the drug companies in Israel is going to get you a lot more mileage than trying to get the government to pay for something.  DDI isn't much better than Zerit and it to causes permanent neurological damage.  All of the drugs have their own problem.  I can no longer take D4T, DDI or 3TC and suffer from severe neurological distruction.

   Viread is usually not associated with the Lypodystrophy syndrome, but Kaletra is well known for creating insulin resistance and diabetes.  On the other hand, Kaletra doesn't appear to be very toxic to the liver and quite effective at slowing the virus down.  As stated previously, making an assessment on which treatment to use for the lypodystrophy depends on more than just a visual factor.  Is your fasting blood sugar elevated or on the high side of normal?   Is your triglycerides above >150?  Is your HDL less than 40?   Do you have elevated c-reactive Protein?   Do you get a copy of your lab work every time you visit your doctor?  If you don't, then you should start doing it because doctors sometime forget to discuss things that you should know or would want to know.  Your last message didn't address something of these things.

    I wouldn't get too bummed out about what the drugs make you look like. 
It comes with the territory.  The main thing is to do something about it.  One thing for certain, cosmetic surgery will do you no good, put you at risk of infection, and won't address the underlying metabolic abnormalities.  Some people benefit from a very low dose of Pioglitazone (anti-diabetic medication).  About a year ago, there was a large scale study completed in both Australia and France that demonstrated that Pioglitazone was safe and effective in reversing some of the symptoms you describe.  The doctors found that there was a thickening of the skin in both the arms and the face.  Although the study was for a full year, the study also mentioned that hiv patients were still dissatisfied with the result and didn't think it adequately restored facial fat.
In any event, there are also an earlier and smaller study with Rosiglitazone that demonstrated that the facial lypodystrophy syndrome could be prevented.  I believe that study was completed in 2004.  Pioglitazone is a safer and more effective medication than Rosiglitazone and you should contact natap.org to get some information on it.  Pioglitazone raises HDL by up to 8% during the first two months you take it while Rosiglitazone can initially lower HDL.  Both medication are a big load on the liver but considered standard anti-diabetic medication.  Keep in mind that there is some risk with any of the glitazone class.  However, the risk is usually more prevalent with people with existing heart disease or who are taking insulin concurrently.

   Have you had any luck in contacting natap.org for information?  The US still leads the arena when it comes to cutting edge technology, but health insurance is very expensive here.  Some states have insurance continuation programs, but they have waiting lists to get into those programs and federal assistance is running out because of severe financial problems. Health insurance is more affordable in places like Brazil, England, Holland.  You should keep an eye on clinical trials in England. 

    Have some faith.  I believe in the future the wars will end in Israel once and for all, but it is going to take some time.  As long as the European Union and adjacent neighbors offer financial assistance to countries that sponsor aberrant behavior, war in the middle east will continue.  If you buy health insurance outside of Israel, you could possibly import Reyataz into Israel.  You would have to purchase health insurance from a state with a high risk pool and offer a local address.  Although this sounds a bit challenging, I think it is the route that I would go if I was in your situation.  I have an uncle who lives in your area of the world and although he was born in Israel, he never actually became a citizen.  He has carried health insurance from the State of New York for the past several years. 

   Without putting much effort into it, I found a private company on the net that looks for insurance for you  at --> http://www.best-insurance-deals.net/?OVRAW=which%20states%20have%20high%20risk%20health%20insurance%20pools&OVKEY=high%20risk%20insurance%20pool&OVMTC=advanced

   You may want to send an e-mail to Diane Cenko at <DCenko@chw.edu> and ask her if she might know of a resource or data file on a comparison of high risk health insurance pools in the US.  It is very expensive and don't be shocked if you are quoted more than $1100/mo.  Some of the southern states might be a little cheaper and it might be possible to get something in places like Texas for about $600-700.  I know California is about $1100.
Stay away from anything that is an HMO or PPO.  It won't do you any good.  What you need is a plan that says the words "high risk pool". Don't be afraid to tell them you have hiv disease.  As a general rule, high risk pools are a payer of last resort for those who are uninsurable. Be prepared to give them a zip code in the US and consider the notion of taking legal steps to be insurable.

   The US doesn't allow hiv patients to travel here.  However, if you are paying for your own insurance and are tight lipped about it, and have done all applications legally, what they don't know won't hurt anyone.


 

 

Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #11 on: October 14, 2006, 11:02:48 PM »
Dear Panda:

   For the moment, your best strategy is to put aside vanity and do everything in the world to go undetectable.  Be carefull, Viread is associated with kidney toxicity and virtually all doctors don't run kidney function test often enough.  For that reason, taking a larger dose of Kaletra than what is recommended is not advisable when taking Viread.  There are published reports online about the need to run kidney function tests once per month -- including Creatinin, Phosphorous, Magnesium, and other tests.

   I have some ideas that might help you.  Why don't you contact me at my Yahoo address.  I think I might know of a way you could access some other drugs.  If your liver can tolerate it, Pioglitazone should temporarily halt the lypodystrophy syndrome you are describing, but I don't want to play doctor and you need to do some reading before you jump on your doctor about this.  In the US, they are starting to use this drug at a much earlier stage instead of waiting for full blown diabetes.  I think the factors they are now using in some Phase IV studies are HDL < 40, Triglycerides > 150, and blood sugar >110.   

  Contact me on Yahoo.  I posted the address in a previous message on here in a rather cryptic method.  You should be able to figure it out.  Just identify yourself as Panda when you send the message.

Hi, Boy , u knows a lot .. where do u have all the knowledge and information ?
I am trying not so drawn into this frustration , but its very hard. I started seeing lipo already when I started fist taking the meds. 10 years ago... started with Crixivan and few month later I FELT MUY BELLY GETTING BIGGER (ALWYS HAD FLAT BELLY) and my legs getting skinner and from that point it only got worst, can u imagine 10 years suffering lipo which is getting worst? I have been thru Crixivan, and zerit ... Now I am taking Kaletra and viread and videx, then thing is i am trying to get pregnant, and i used to take stocrin but u can not take stockring due pregnancy and i didn't want to take the kaletra so my Dr gave me viramune but once i started taking it i got this"Steven johnson"- have u herd about it? i nearly passed away and managed to stay alive .. have no idea how?doctors says it a miracle.I quit with the zerit around 2 years ago , switched to viread , i hoped the lip will get better , but unfortunately it didn't. It effects everything. started with skinny legs, huge belly, breast, no buttocks, skinny arms and then I had this fat accumulation at upper arms area (had this off on a suction surgery as it was too much to take). my face... well , i think they are getting thinner, it was most noticeable after the Steven Johnson when i lost 7 kg. even now, 10 years after lipo started, i still can not accept how i look and fight it in order to find something which might help me...
most bothring me is the way my legs are ... god !will there ever be a cure for this? i started doing weight training, trying to build muscle... i used to walk but its too hot, i will get back to it in a month when winter will start.i am trying to keep my fat profile as normal as possible , its so hard, i am drinking this wheat grass , it helps.
I would love to get from you some more tips.

As for your question ... don't think that being hiv+ in Israel is easier just cause we are small country, we are a small country with so many problems , wars never ending , so every year when governments trying to cut the cake equal its starting all over again where  most of the budget goes to the army and security and while we are waiting for new meds to come into the market we are facing disappointments... mostly when I have resistance to most of the meds and i relay want to take the videx off cause its contribute to the lipo as well, so my Dr. said that reyataz might be possible to replace the videx but unfortunately its not approved here yet so I am stucked.
I am now 32 years old (female) got infected 12 years ago, believe it or not the first to years where most easier for me cause i looked normal , looked good ... u could never tell there was something wrong with me, but the years after, its become harder from year to year cause of the lipo and sometimes I feel like I can not take it any longer and I break down and cry... it happens a l lot. Its very hard ! Very ...

Offline panda

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #12 on: October 15, 2006, 11:23:04 AM »
Hi Zcorker,

I tried to contact you at Yhoo but it gave me about milion options , how can I kmow which one is you ? Can I give you my messanger address ?

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Offline panda

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #13 on: October 15, 2006, 03:50:17 PM »
HI, I did last blood test 2 weeks ago , so I supposed to get the results any day, but before I took it on june, and my fat profiles as follow:
Cholesterol:225
Tryglic. : 185
HDL:48.3
LDL:140

Offline ZCorker

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Contacting me
« Reply #14 on: October 21, 2006, 12:40:19 AM »
Hello Panda:

   All the information you need to figure out how to contact me is in this message.  You do not need to do a Yahoo search. You may contact me at  <rekrocz at yahoo dot com>
Keep in mind that rekrocz is spelled backwards.  So what you need to do is take a pen and paper and write out the reverse for rekrocz and replace the "at" with the "a and the circle"  around it (this is the upper case of the number 2 on US keyboards) and then write yahoo and replace the dot with the punctuation symbol for what the word dot stands for and then after dot comes com.  If you are still having trouble, you could do an internet search for the webmaster at IEEE Computer Society Seattle Section and you will find the same yahoo address there. I am listed on the officers page and I am the Webmaster for the society.  The way you do the Yahoo search from Israel is type the following in a Yahoo Internet Search box  "Contact Computer Society Seattle Section" and I am listed as the webmaster for IEEE Seattle. 

   Sorry for making you go through all of this and being so cryptic, but this is necessary to keep out spiders and spammers which are crawling the web for e-mail addresses and unwanted intrusion.  Just posting the e-mail or contact information on here is a guaranty of unwanted spam.  If all else fails, I could post it in evreet, but don't want to offend people that don't speak the language. 

   Looking at your cholesterol figures, your total cholesterol is too high and your LDL is too high as well.  However, your HDL is fine. Nothing to be to excited about.  It is easy to control cholesterol. You need to lower your total cholesterol.  Each situation requires a very individual plan.  There is no such thing as one size fits all.  A few of the following questions would give me more information:

   1)  Do you do at least 30 minutes of hard running every day?
   2)  How much animal products do you eat per day?
   3)  Do you have a family history of high cholesterol?
  4)  What is your fasting blood sugar (no food 12 hours before)?
  5)   What medications are you taking?
  6)   Do you take Acetyl L-Carnitine?

   There is data that shows that Acetyl L-Carnitine lowers can lower total cholesterol and raise T-Cells as well.  Typical doses range from 1,000 to 2,000 miligrams on an empty stomach.  You should make sure that you advise your doctor that you are taking this.  In some cases, people need even a higher dose of Acetyl L-Carnitine.  Acetyl L-Carnitine or L-Carnitine must be taken on an empty stomach. 

    Make sure you drink lots of water with all of this stuff that you are taking.  You can buy Acetyl L-Carnitine over the counter at any health food store.  In the US, there is a precription form of L-Carnitine which is chemically similar and will have much of the same effect as Acetyl L-Carnitine.  The only reason I mention this is that if you are short for cash, you might be able to get your doctor write you a prescription for L-Carnitine or Acetyl L-Carnitine so that you don't have to pay for it out-of-pocket or at least not as much.  I am not currently aware of what is over the counter and what is prescription in Israel these days and haven't been back your way in about 8 plus years.

   Assuming you are doing everything you should and the L-Carnitine helps you, there might be a possibility you will need to take something else to lower your cholesterol.  The most common medications are statin drugs, but it is a real trick to find one that won't interact with your current medications.  In addition, all statin drugs deplete CoQ10, an important enzyme in the body.  What this means is that you have to take additional CoQ10 while on statins.  It is usually a good idea to take a very low dose of CoQ10 anyway.  If you don't take CoQ10 with statins, you will start feeling muscle cramps all over your body and put yourself at a very high risk of a heart attack.  For this reason, you should try the L-Carnitine first and rigorous exercise.  However, don't hesitate to supplement this with other measures if the L-Carnitine doesn't do what it needs to do.  A lot of hiv patients take L-Carnitine.

   I am in mid term exams right now and they won't be overwith until November 1, 2006, but I will be checking my mail on a regular basis.  I am currently 10 hours behind you in the Pacific Time zone and I live in Seattle.  I am attending school online in Texas and will be making a trip to Texas in December of 2006.  Texas is only 8 hours behind you.  I am exploring the possibility of moving to Texas in December 2006. After you log on to my yahoo account, I will tell you more.

  Contact me at Yahoo.  If you still have trouble, you could call me and I could call you back at my expense.  I have a cheap calling card that is specially designed to call your area of the world.  My telephone number is (Arba, Steim,
Hamesh) Steim, Steim, Sheish -- Sholosh Shomneh Achad Steim.  Don't forget to put in the calling code and other necessary codes in front of the numbers that I have posted.  I am ten hours behind you.  Friday evenings my time is usually a good time to reach me.

   I look forward to hearing from you.

Randal
 ::)

 


   
« Last Edit: October 21, 2006, 12:49:36 AM by ZCorker »

Offline Merlin

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  • As My WILL, So MOTE It Be !
Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #15 on: October 21, 2006, 02:19:09 AM »
Hi Randal:

Reading through this thread, shows what a gracious and generous soul you are and God Bless you for your kindness. Thank you for being you. Stay well and be at Peace always. :)

Blessed Be !
Michael
I'll leave Hatred to those not strong enough to Love.

                            +++

Believe & The Power Of The Mind Transforms.
Make It Happen...

                            +++

I blame them for nothing.
I forgive them for everything.

---->> Mary J. Blige on dysfuctional parents

Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #16 on: October 21, 2006, 09:00:18 PM »
Hey Michael:

   If you read this I would like to bring to your attention that we need urgent help.  The FDA is considering an application to approve human growth hormone in hiv patients, but they are wondering whether or not to approve it because the latest study shows a loss of limb fat that was worse than when the patients started human growth hormone.

  I need you and everyone else who is reading this e-mail to strongly consider picking up the telephone and/or e-mailing the FDA and tell them to support the approval of human growth hormone, but with additional post-marketing studies to address the issue of loss of limb fat.

   The loss of limb fat doesn't at all surprise me because human growth hormone increases insulin resistance, but can be administered in very small doses successfully without causing problems.  Virtually all of the patients were on Protease in this study which means that their Adiponectin levels are depleted.  For this reason the study doesn't make as much sense unless there is a standardized test to measure Adiponectin levels.

   The message I told the FDA was to approve the use of human growth hormone with postmarketing studies to address the loss of limb fat -- including the creation of a standardized test for Blood Serum Adiponectin and possibly Leptin.  We already know that facial and some limb fat is improved slightly in virtually all patients who normalize Adiponectin levels.

   We don't want this opportunity to slip by us.  If human growth hormone is not approved, it will be a major setback to hiv patients and probably a real discouragement to future development by the drug industry.  Human growth hormone does stimulate T-Cell production and the immune system.  We don't want to miss an opportunity so please consider sending a message to the FDA today.

  My e-mail to the FDA acting commissioner came back bounced.  I sent the message to <andrew.voneschenbach@fda.gov>.  Perhaps you could post the correct e-mail for us on here.

zcorker
« Last Edit: October 21, 2006, 09:03:07 PM by ZCorker »

Offline panda

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #17 on: October 22, 2006, 01:19:05 PM »
Hi zcorker !

First of all thanks a million for your time and patient. I did follow your instruction and it gave  me this message that the page is invallid.Damm....

Wanted to update you that latest blood test showd my cholesterol is 193 which is good I think cause the normal isbelow 200 ... the tryig. is still hight at 183 ... still undetactable and cd4 around 840.
Dont have other info u mentioned, I asked my dr. to send me a copt of the blood test and then I will be able to specify ...

So about this  L-Carnitine and q10 , no I am not taking , and no , I am not running 30 minutrs evey day, i dont run at all, I used to walk but then it become very hot outside so... i did started this weight traning , bt i feel its not enough, i am vegi so i don't meet any animels ...
I want to take sometihng else to help my body rebuilt ny legt and buttocks , but i don't know what?? Wht about the nucleomax?is it worth tryinhg? what about the gh ? herd it can be gangerous to the liver,
I am currently with videx+viread+kaletra.
I will give you my email address, its an add acount i opened , not my main email address, so i have no problem giving it to you :
emilio37@walla.com , i am not sure if its ending with dot co.il or dot com , try both.
How do u know to spell hebrew digits .. good for you.
I'll try call you anyway, but just incase i'll miss you, u have my email address now , so u can write me ...

I have so many questions and i am longing for getting some more helpfull information.

Hope to hear from you soon.

panda



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Offline ZCorker

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Re: Nucleomax -- Trouble getting in contact with Tabs and More
« Reply #18 on: October 23, 2006, 10:15:25 AM »
Good morning Panda:
 
   Glad to hear your cholesterol has improved.  It is still to high.  During the past ten years, specialist who work in preventive cardiology have now recommended a much lower total cholesterol than what they used.  Your goal should be to get your cholesterol below 160 and preferably below 150.

   Resistance training is beneficial, but the aerobic component of exercise can not be ignored and is considered one of the key factors in lowering cholesterol and keeping your HDL healthy.  You may want to consider running on a tread mill in a gym.  I can certainly understand not wanting to run outside when it has been hot.  Your area of the world gets quite warm in the summer.

   Thanks for providing me your e-mail address; I will contact you.  Also, do feel free to contact forum moderator to have your e-mail address removed from this site; otherwise you may receive an unmercifull amount of spam.  The forum moderator can be reached at <editor@aidsmeds.com>.  His contact information is posted on this site.

   I have received some data forwarded to me by Diane Cenko's newsletters that seems to indicate that Nucleomax actually helps the liver.  However, since this is not an FDA approved medication, caution is warranted.  Considering the fact that one of the developers of Nucleomax is also involved with doing some of the trials, having a neutral unbiased 3rd part opinion is warranted.  Nucleomax will probably not get FDA approved in the US because american investigators only persued it for fat generation, a problem not previously addressed by pro-uridine formulations.   There is a lot of beneficial data on Triacetyluridine.  However, it is unknown on how chemically similar these two compounds are.

   Are you familiar with ICQ?  ICQ is a free chat client that has multi-language support.  You will want to be sure that you put yourself into invisible mode with ICQ or run the risk of getting hit with spammers.  Also, you should download a plugin and send your conversations encyrpted.  I will e-mail you my ICQ number.

:)
   

 


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