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Author Topic: Just checking in  (Read 7389 times)

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Offline Theyer

  • Member
  • Posts: 2,543
  • Current ambition. Walk the Dog .
Re: Just checking in
« Reply #50 on: June 09, 2014, 05:07:24 PM »
For a while I get really mad at something healing before the appointment which is mad in itself. I love the sun but increasingly it does not seem to love me 80+ and I am mogadon michael without the dribbling,got that to look forward too.

Every summer I have spent on Orkney there is always the Day when I forget all the past summers and try swimming in the sea. Every year I discover that the cold is such I cannot breath and swim .

Have plenty more dips Ray , and Alan check them spots as you do.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline J.R.E.

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Re: Just checking in
« Reply #51 on: June 09, 2014, 05:49:34 PM »


Speaking of Summertime, check out the porkchops :  ;D


http://www.youtube.com/watch?v=wvUQcnfwUUM



Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Just checking in
« Reply #52 on: June 25, 2014, 03:41:41 PM »
LOL I haven't thought about Mungo Jerry in ages!   

Saw the periodontist; I do have some minor bone loss in one spot, so she's going to do surgery on that, sometime in July or August.   I (stupidly) didn't ask "where does the bone come from that you will graft?"   I assume it comes from lower down on the jawbone?  I guess I'd better be finding out!  Has anyone had bone-loss gum surgery?

HUGS,
Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline aztecan

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  • 29 years positive, 57 years a pain in the butt
Re: Just checking in
« Reply #53 on: June 30, 2014, 11:24:10 PM »
Hey Alan,

I've never had that particular surgery done.

I will keep you in my thoughts and prayers.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Just checking in
« Reply #54 on: July 16, 2014, 11:31:51 AM »
Hi

I had the periodontal surgery last Friday; I think I am healing quite well.   The surgery itself was no fun, but I did o.k. -- was in the chair approx. 2 hours.   The gums were 'split open', and the Periodontist spent about one hour scraping, filing, grinding, and picking at the exposed bone.  Then cadaver bone was grafted (glued) in place, the dead gum tissue 'trimmed', and then the gums were sewn back together.  This is at UAB's School of Dentistry, so it is a teaching situation; I had two sets of hands in my mouth, and one young lady was there strictly to photograph each step of the process.  My lips were sore and split open in the corners from having so much jammed in my mouth (no wise cracks from the peanut gallery!) and it was pretty sore the first couple of days, but I'm doing quite well with it now.  I'll return next Monday for follow up.

The irony of it all is:   I have THOUSANDS of dollars worth of dental work in my mouth; if it were on wheels, it would be a Mercedes!   But I don't have "pretty teeth", by any stretch of the imagination.  You'd think I should (by now) have a movie star smile; at least a very WHITE set of teeth! Oh well, at least I have all my own teeth (plus crowns, etc). 

HUGS !!!   Alan

PS - try eating without using one whole side of your mouth, and not brushing your teeth on one whole lower quadrant!   You'd think I might lose some weight..... >:(
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Miss Philicia

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Re: Just checking in
« Reply #55 on: July 16, 2014, 11:47:08 AM »

The irony of it all is:   I have THOUSANDS of dollars worth of dental work in my mouth; if it were on wheels, it would be a Mercedes!   But I don't have "pretty teeth", by any stretch of the imagination.  You'd think I should (by now) have a movie star smile; at least a very WHITE set of teeth! Oh well, at least I have all my own teeth (plus crowns, etc). 

My mouth is the same Alan -- thousands $$ of work though like you I go to a university for the work. I hope I don't have to do the gum thing next like you. They did an assessment of it earlier this year and they thought my gums, while not great, weren't horrid. I definitely think long-term use of multiple medications for HIV and non-HIV things take their toll on the  daily production of saliva, which in terms is not good for dental health.

Like you I still have all my teeth but wonder where I'll be in another decade considering everything that's been done in the past decade.

I hope the healing process goes well for you.
"Iíve slept with enough men to know that Iím not gay"

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: Just checking in
« Reply #56 on: July 16, 2014, 12:45:35 PM »

Hi Alan,

Hope your healing continues to go well ! Years ago, I had a stubborn wisdom tooth, that refused to come out.  Long story short, they ( took 2 of them) , finally got it out after struggling with it,  but not without me feeling a cracking sensation on the left side of my face.

My jaw was sore for about 3 months, and I am convinced to this day, that's how my TMJ had started.  Fortunately,  I haven't had any issue with TMJ , for probably 12 years or longer.

I need to schedule a cleaning soon, I received the notice card in the mail the other day.


Take Care----Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Just checking in
« Reply #57 on: July 16, 2014, 01:02:42 PM »
They told me that I can't have my teeth "scaled" (cleaned) for at least six months in the area of the graft....  kinda yucky, also!
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline mitch777

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Re: Just checking in
« Reply #58 on: July 16, 2014, 04:49:35 PM »
I feel for you Alan. Last year was my turn for major dental work. Not fun, not fun in the least. Sorry the timing was bad while I was in Alabama. Speedy healing!
32 years hiv+ (oct. 2013) with a curtsy.

Offline wolfter

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Re: Just checking in
« Reply #59 on: July 16, 2014, 05:18:23 PM »
That all sounds horrid Alan, but at least you're through with it.  Hope it all heals nicely so you'll be permanently done.

Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Miss Philicia

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Re: Just checking in
« Reply #60 on: July 16, 2014, 05:19:17 PM »
I've been to the dentist 20 times in the past three years -- half of that was the past 12 months. And I still have one more crown to be done.

That's better than the 35 visits with my podiatrist though, same time period.
"Iíve slept with enough men to know that Iím not gay"

Offline Jeff G

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  • How am I doing Beren ?
Re: Just checking in
« Reply #61 on: July 16, 2014, 05:31:18 PM »
 Hang in there Alan and hope to see you soon .... this weekend I hope .  ;D .

Offline BT65

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Re: Just checking in
« Reply #62 on: July 16, 2014, 07:41:48 PM »
Alan, so sorry about what you're going through.  I can relate to dental issues, believe me.  I had to have whatever teeth hadn't been knocked out (I used to fight a lot lol), or rotted out, all pulled out in 1989.  The lab couldn't get my dentures right, so, when I was 24, I had to go without any teeth for practically a whole summer.  Not fun.

I hope you heal quickly and as painless as possible.  Please take care sweetie, you deserve a break!

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline aztecan

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  • 29 years positive, 57 years a pain in the butt
Re: Just checking in
« Reply #63 on: July 17, 2014, 12:12:55 AM »
Hey Alan,

I am glad the surgery went well. I haven't had that surgery as yet, but I have to go every three months for scaling and cleaning.

No matter how often I brush or floss, the stuff seems to accumulate.

Keep us posted on how you are doing.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Just checking in
« Reply #64 on: August 04, 2014, 01:35:00 PM »
Hi guys,

Just wanted to let you know that I have done very well with this procedure.  It healed up nicely, and I was not ever in major pain, just some discomfort the first few days, and the aggravation of not being able to eat on that side of my mouth.

I hope this is not a "preview of coming attractions"....my Dad had gum disease, and eventually had to get dentures.  My oldest brother (74) is currently going through the process of getting dentures; he has his upper plate, and they are pulling teeth on the lower now. 

I hope everyone is having a good summer!  My dear friend of 30+ years, Jim from Oklahoma came to visit us a few weeks ago.   We had a great time.   I had not seen him in 10 years, so we were WAY overdue for a visit.  Mercifully, this summer has been much cooler than normal here in the deep South.

HUGS all around,
Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline mitch777

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Re: Just checking in
« Reply #65 on: August 04, 2014, 08:07:33 PM »
Hey Alan, So glad to hear that it wasn't the ordeal you thought it might be. I HATE DENTAL WORK but it's a necessary evil.

Hope your summer remains cool. Well, cool for the south anyway.

32 years hiv+ (oct. 2013) with a curtsy.

Offline AlanBama

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  • Alabama: the 'other' 3rd World Country!
Re: Just checking in
« Reply #66 on: August 14, 2014, 02:26:48 PM »
Hi gang,

I'm doing pretty good these days.   Not too many complaints, aches and pains.  However, it is TOUGH as hell for me to get up out of the bed on workdays.  I've always hated getting up in the morning though, so I think that's an "Alan thing" and not a LTS thing.   :P

My urologist added Finesteride (Proscar) to my Alfuzosin (Uroxatrol) for my BPH earlier this summer.  I don't  think it was helping, but I have noticed that I have become EXTREMELY nauseated all the time.  I haven't had to deal with that in quite awhile!  I inquired about it, and was told "Oh, it couldn't POSSIBLY be that, it can't make you nauseous".  So this week, when I set up my drug box, I left the Proscar out.  So far, I have had ZERO nausea.  I wish I had a doctor (as I did for 18 yrs) who would LISTEN to what I say, and take me seriously.   As it is now, I am almost 'afraid' to bring up problems, because they are going to try to paint me as a hypochondriac, or a doddering old fool.  So I mainly keep my mouth shut.   Right now, I would like a referral to an ENT, for these HUGE knots/lymph nodes in my throat and neck, that aggravate me quite a bit most days.  But I've already been told "oh everybody has a sore throat, it's allergies".   ::)

HUGS TO ALL, hope you're having a good summer!

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline AlanBama

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Re: Just checking in
« Reply #67 on: October 12, 2014, 12:16:16 PM »
this is my THIRD attempt to post; twice I have typed up a long post, then for some reason it disappears....spooky.

I have a malignant tumor in the base of my tongue.   Not sure how much lymph node involvement.   It's been a rough few days; left hospital after biopsy surgery without having peed; had to go to ER that night, sat for over 3 hours before I could get catheterized.  Pure agony.

Thanks for your thoughts and prayers.  I will let y'all know what is going on, or will have Jeff post on my behalf.

LOVE, Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Jeff G

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  • How am I doing Beren ?
Re: Just checking in
« Reply #68 on: October 12, 2014, 12:20:28 PM »
Alan has had a very rough few weeks and my heart goes out to him and his partner Layne.
They both have been handling this tough diagnosis like champs but I am happy that he has posted so his forum family can offer support as well . Love you guys ! 

Offline bubba53

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Re: Just checking in
« Reply #69 on: October 12, 2014, 12:48:34 PM »
Hi Alan,
You have every bit of good energy I can muster up sent your way,
My thoughts and prayers are with you and yours, you are very brave.
I hope you get some encouraging news soon .   
   All My Best , Wade
                                                                         

Offline leatherman

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Re: Just checking in
« Reply #70 on: October 12, 2014, 01:48:29 PM »
hugs and kisses, Alan.
best wishes persevering through yet more issues  :-*
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline J.R.E.

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  • Joined Dec-2003 Living positive, since 1985.
Re: Just checking in
« Reply #71 on: October 12, 2014, 02:11:28 PM »


Hang in there Alan,... We're keeping you in our thoughts !


Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline deibster

  • Member
  • Posts: 155
Re: Just checking in
« Reply #72 on: October 12, 2014, 07:13:40 PM »
We're pulling for you Alan.
 Sending prayers & positive energy your way.
  Big Hugs from Provincetown, Deiby
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasocort, Centrum, Flax Oil, Fish Oil

Offline mitch777

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Re: Just checking in
« Reply #73 on: October 12, 2014, 07:49:39 PM »
You will be in my daily thoughts Alan. Hoping along with you for some better news to come. Hang in there.

Hugs,
Mark
32 years hiv+ (oct. 2013) with a curtsy.

Offline Miss Philicia

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Re: Just checking in
« Reply #74 on: October 13, 2014, 07:26:07 AM »
Hey Alan, I hope that turns out OK for you and will be thinking of you.

David
"Iíve slept with enough men to know that Iím not gay"

Offline wolfter

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Re: Just checking in
« Reply #75 on: October 13, 2014, 08:35:08 AM »
You're definitely in my thoughts and I hope this nightmare ends soon.

take care of yourselves.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline BT65

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Re: Just checking in
« Reply #76 on: October 14, 2014, 10:02:14 AM »
Wow Alan. I am so, so sorry you're going through this. I am definitely keeping you and your partner in my thoughts and prayers. You are always such a huge supporter for everyone else here, I hope we can reciprocate.  Take care of yourself sweetie, be gentle. I love you, Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline AlanBama

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Re: Just checking in
« Reply #77 on: October 15, 2014, 03:18:38 PM »
Thanks guys, and Betty -- Love you too, honey.

I'm doing o.k., my throat's pretty wacked right now, from the biopsies.   Taking liquid hydrocodone, which to me, doesn't do a lot...and am back at work.

My next visit with the oncologist is Oct 23rd.  By then, ALL biopsy results should be in, and my case will have come before the "Tumor Board" at UAB, where they will plan out the best strategy for treatment.   The doctor did mention surgery and radiation, either one or both.  Will know more a week from tomorrow.

Thanks for your prayers and concerns.

Love & hugs, Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline OneTampa

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Re: Just checking in
« Reply #78 on: October 15, 2014, 05:12:42 PM »
Alan,

Just want to give you my best wishes.

Take care of yourself.

OT
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline Buckmark

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Re: Just checking in
« Reply #79 on: October 15, 2014, 06:40:18 PM »
Alan,

I'm so sorry you're having to go through this.  I know first-hand that treatment for cancer isn't fun, neither chemo nor radiation nor surgery.  But you can get through it.  And every cancer is different -- I have a friend who had BOT cancer, and just got his second "all clear" a few days ago, and he still has his complete tongue.

I'm glad a board of physicians will be reviewing your case, and particularly your biopsies.  I wish I had gotten a second opinion right off the bat, as my cancer turned out to be a slightly different variant than my oncologist thought.  It was only by luck that I still received the right treatment.  The biopsies and the pathology work on them are so, so important to getting the right diagnosis, and thus the right treatment.

Don't be afraid to ask questions of your doctor(s), including what other treatment regimens they might consider.  It's your body, your decision.  You're fortunate to have your partner at your side as you go through this.  I'll be thinking of you and praying for you.

Hugs,

Henry
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline AlanBama

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Re: Just checking in
« Reply #80 on: October 16, 2014, 03:38:01 PM »
Thanks, OT and Henry, I appreciate it guys!

I'll take all the prayers/ positive thoughts/ good vibes/ good energy I can get!

Waiting today to see if I can get a refill on my liquid hydrocodone for pain; now that they've made it a giant pain in the ass to try to get some pain meds.  They will have to mail me a written Rx, as we have no plans to return to Birmingham until the appointment next Thursday.

HUGS -- Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Theyer

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Re: Just checking in
« Reply #81 on: October 20, 2014, 08:15:20 AM »
Oh Alan Buggerthemoorhenandfucktheduck I am sorry to read your news. Hope you very quickly get things going so drug availability is not a problem and the care and treatment you need is as loving and easy as Possible. Keep posting lots off love
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline AlanBama

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Re: Just checking in
« Reply #82 on: October 22, 2014, 02:46:25 PM »
thanks Michael.

Tomorrow is "D Day", so I should have something to report after that.

HUGS,
Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline mitch777

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Re: Just checking in
« Reply #83 on: October 22, 2014, 05:35:36 PM »
Best wishes from me to you tomorrow Alan.
32 years hiv+ (oct. 2013) with a curtsy.

Offline AlanBama

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Re: Just checking in
« Reply #84 on: Yesterday at 10:03:23 AM »
Hello!

Just wanted to let you all know what is going on:   We went to the throat surgeon yesterday; they hit us with so much information, we were overwhelmed and just stunned.    Through all of it, I think we have come up with a plan.

If things go as scheduled, I will have TORS (trans oral robotic surgery) on Nov 7th.   If they are unable to clearly removed the tumor with the robot, they will STOP and pull out.

At this point, the other option was for them to split my jawbone open between my center bottom teeth, and fold back the right side, so they could have access to the tongue; then, remove the tumor, and try to 'rebuild' the tongue, from tissue from my arm or stomach.   I just would not agree to this; I can imagine that after something like that, I would never be "right" again.   It's just too drastic.

I am not 100% clear on this, but I think that then I will go through 7-8 weeks of radiation, every day, along with chemo.
What I'm not clear on, is if they DO successfully remove the tumor, will the length of time be less for radiation....or will it be the same either way?

I will be seeing the Radiation Oncologist, Dr. Sharon Spencer of UAB as soon as they can work me in.   I will know a lot more about the chemo/radiation portion of my treatment after I see her.

My prayer now is that they can successfully remove the tumor robotically on Nov 7th.

Will keep you all posted.   Thanks again for your prayers, concerns, and positive thoughts.

LOVE --   Alan

"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Jeff G

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  • How am I doing Beren ?
Re: Just checking in
« Reply #85 on: Yesterday at 10:28:58 AM »
You and Layne will be in thoughts daily . I do appreciate the updates . 

Offline wolfter

  • Member
  • Posts: 4,647
Re: Just checking in
« Reply #86 on: Yesterday at 11:02:04 AM »
OH Alan, simply can't express appropriate sentiments.  You will definitely be in my thoughts and I'm sending the most powerful positive thoughts I can muster.

Take care of yourself and know you're in many peoples' thoughts.

huge ole hugs
greg
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

 


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