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Author Topic: FALL of the WEEK  (Read 986 times)

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Offline Theyer

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FALL of the WEEK
« on: November 03, 2014, 05:45:19 AM »
This is planned as an Open Thread , that way we can build a record to one off the very few things in life one can trust Gravity.

Week ago Sunday 3am I tumbled back and fell 10 thankfully thick carpeted stairs , nought broken but enough bloody bruising to fully disable me for 4 days,

I now understand why bent scraggy old men coming out off the desert / forest walk with Staths . Doctor appointment tomorrow where I will ask wether treatment. For blackouts depends on actually breaking bones coz I am sick to me back teeth with the amount off time I have spent this year in PAiN .and being told I was lucky not to break anything
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

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Re: FALL of the WEEK
« Reply #1 on: November 03, 2014, 07:13:06 AM »
OH Michael, not sure what to say.  Please take care of yourself and make they figure out what the hell is going on. 

hugs buddy
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Online Jeff G

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Re: FALL of the WEEK
« Reply #2 on: November 03, 2014, 10:04:01 AM »
I echo what Greg just said ... you simply must get to the bottom of why this is happening.
Hugs and hope you feel better soon . 

Offline BT65

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Re: FALL of the WEEK
« Reply #3 on: November 04, 2014, 07:17:55 AM »
Michael, no! I hate that you keep hurting yourself. Please get to the root of the problem. 

Jeff and I have talked about a rest home for all of us and as I hear more stories like yours, it has me more convinced.   Please take care and I love you!

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Online Miss Philicia

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Re: FALL of the WEEK
« Reply #4 on: November 04, 2014, 07:56:28 AM »
Michael, I hope they get this sorted out for you. This must also really wear on you mentally and cause endless anxiety. So, as I am a bit unclear, you are having repeated fainting/black outs that are causing these repeated falls?

I know you have a trusted team of specialists so I know you're ultimately in good hands, but unfortunately it can be frustratingly and agonizingly long for them to zero in on a cause for something, and I certainly empathize with you in that respect.

Plus I know you're living situation is like mine -- single, dependent on public transport and/or walking to fetch all food, etc. so things like this are doubly hard are they not? Well, the walking part not the public transport which is of course convenient except for the endless staircases.

Take care and I hope your next post finds some resolution to present to the rest of us.
"Iíve slept with enough men to know that Iím not gay"

Offline mitch777

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Re: FALL of the WEEK
« Reply #5 on: November 04, 2014, 04:35:58 PM »
Michael, I don't have much to add. How frustrating! Take care and I hope you get some answers. :(
32 years hiv+ (oct. 2013) with a curtsy.

Offline Theyer

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Re: FALL of the WEEK
« Reply #6 on: November 06, 2014, 01:13:34 PM »
As usual your posts have comforted and in David,s case hit the nail on the head.

It's been distressing getting angry at my Health Team as I have never felt that my case was getting "lost" as I have at the moment.

When an inpatient for the broken foot ankle I was referred to the Neurology Team who where to start investigating after the cast came off.

So my HIV Docs secretary rang this am to say he had not been able to make the contact with the Neurologist would I rather see him a week today after he has.
Almost like he knew I would be somewhat cross to hear off yet no progress.

So I agreed to that, gave her the news off the Blackout 2 weeks ago to pass on to the Doc and went back to bed.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

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Re: FALL of the WEEK
« Reply #7 on: November 06, 2014, 02:46:33 PM »
I know you've probably addressed this, but have they considered it might be your hiv meds?  Before I switched off Isentress, I was having regular blackout like episodes.

Again, take care Michael
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Theyer

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Re: FALL of the WEEK
« Reply #8 on: November 07, 2014, 05:05:35 AM »
I know you've probably addressed this, but have they considered it might be your hiv meds?  Before I switched off Isentress, I was having regular blackout like episodes.

Again, take care Michael

Well I am on Isentress , is this now a recognised side effect one off the one in 1000000 , ones? I will go a internet searching , and yes the drugs have been looked at by the pharmacy at the hospital, given the all clear with the caveat that the pain killer cocktail would not be the ideal choice for any one. But as my Pain control Doc said that caveat applies to all her Patients theoretically.
.

However Drug changes are on the horizon as the Bone , HIV , are all looking at the drugs plus we are awaiting , Lordy are we waiting , the Neurologists might have a view

Rattling on
M
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline wolfter

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Re: FALL of the WEEK
« Reply #9 on: November 07, 2014, 07:32:39 AM »
I don't know about recognized side affects, but just what I experienced personally.  That drug was a wonder drug for quite a while but then I slowly started developing all sorts of issues.  Insomnia, loss of balance, confusion, cognitive decline and so forth.  Because I had been on Isentress for so long, it took some trial and error to discover it was probably the root cause.

Since going off this drug, most of the issues have gone away.  I always had difficulty explaining the episodes but I would have these episodes where I'd "black out" for just a moment often times resulting in falls if I didn't snap out of it quickly enough. 

Anyways, I certainly hope you get this figured out fast.

best wishes buddy.
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Theyer

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Re: FALL of the WEEK
« Reply #10 on: November 07, 2014, 09:58:26 AM »
Been on my present combo so long I would have to have access to my medical file to give a correct answer.
It is a concern for me , the long term effects as there is no generation in front of us , we are the Test subjects.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Theyer

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Re: FALL of the WEEK
« Reply #11 on: November 08, 2014, 05:02:30 AM »
Oh joy awoke this morning , made coffee back to bed and then realised-----no pain .
So that fall took 2weeks with first week awfal 2nd week manageable though very very tiring . In preparation for Dr appointment next week I am going to have a time that I have been disabled by pain due to fall injuries this year.

Because I do not go to the Doc,s for bruising it does not show up on my medical records . More than once heavy hints have been dropped that this does not help me as there is no pester power so I intend to take in my own record in the form off a letter to my Doc summing up the past year and then that will have to be placed in the file.

"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Online Miss Philicia

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Re: FALL of the WEEK
« Reply #12 on: November 08, 2014, 09:00:45 AM »
Michael, perhaps it would be helpful to begin maintaining a medical diary of sorts -- there are various apps out there that would also integrate written diary entries along with photo documentation if you use a smartphone. PM me if you need any recommendations.
"Iíve slept with enough men to know that Iím not gay"

Online aztecan

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Re: FALL of the WEEK
« Reply #13 on: November 11, 2014, 12:00:01 PM »
Hey Michael,

Sorry I am late to the game, so to speak. The fall you took was pretty serious. I am grateful nothing was broken.

I agree with much that has been said about looking at meds, etc., and the concerns with the blackouts.

I can't really add to what David, et al, have said, but I wanted to let you know you are in my thoughts and that I am sending positive energy to you,

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Theyer

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Re: FALL of the WEEK
« Reply #14 on: November 11, 2014, 04:07:34 PM »
Michael, perhaps it would be helpful to begin maintaining a medical diary of sorts -- there are various apps out there that would also integrate written diary entries along with photo documentation if you use a smartphone. PM me if you need any recommendations.

I thought I had replied to this , but
I see there is no evidence off my reply.

Thank you David
I would be grateful for app advice one suitable for an I- pad mini , smart phone is on my want list but having to pay a small contribution to my daily hour off health care house work ,morning coffee bought to bed side has eaten into the left over money so I must wait.
All the best
M
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Theyer

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Re: FALL of the WEEK
« Reply #15 on: November 11, 2014, 04:11:43 PM »
Hey Michael,

Sorry I am late to the game, so to speak. The fall you took was pretty serious. I am grateful nothing was broken.

I agree with much that has been said about looking at meds, etc., and the concerns with the blackouts.

I can't really add to what David, et al, have said, but I wanted to let you know you are in my thoughts and that I am sending positive energy to you,

HUGS,

Mark


Thanks Mark and you do not have to have anything new to say
I get a lot from folks saying Hi keep on keeping on and if there is a hug as well there are no complaints from me.
All the best
M
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Online Miss Philicia

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Re: FALL of the WEEK
« Reply #16 on: November 11, 2014, 04:11:50 PM »
I thought I had replied to this , but
I see there is no evidence off my reply.

Thank you David
I would be grateful for app advice one suitable for an I- pad mini , smart phone is on my want list but having to pay a small contribution to my daily hour off health care house work ,morning coffee bought to bed side has eaten into the left over money so I must wait.
All the best
M

Evernote is free, but I use it mostly for making to-do lists but I think it could function for diary purposes.

https://evernote.com

DayOne is specifically for journalling, but it's not free

http://dayoneapp.com
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: FALL of the WEEK
« Reply #17 on: November 14, 2014, 05:29:02 AM »
Thank you David.

Plus for the conclusion I hope to my bit in this thread see my new thread ---New Drugs!
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

 


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