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Author Topic: GLORY HALLELUJAH!  (Read 8083 times)

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Offline Miss Philicia

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GLORY HALLELUJAH!
« on: July 24, 2013, 10:02:22 PM »
Miss P, in honor of Prince George Alexander Louis, will undergo his fourth foot surgery on Monday, September 16th, 2013 -- 23 months after the first foot surgery. Including my colonoscopy this will be my fifth time going totally under anesthesia!

Such fun, isn't it. This time I will not go home for a week of convalesce at my aged parents in the Hunt Country of Virginia, but will endure it all in my forth floor walk up in lovely Filthydelphia, where we recently had a grown man run naked during the say a mere block from my apartment. Sad man was arrested for simply living as God intended before the evil entreaties of Eve and Lucifer.

Hopefully this recovery will only last 3-4 weeks, and only the first 10 days will I have to be a recluse in my lovely penthouse, while I have two metal pins in two of my toes to make them sit flat -- during the second foot surgery they never sat down flat like they were supposed to do.

Oh, and my last nerve conduction test seemed to show I have some horrible nerve of which I forgot the name that runs up from my toes all the way up my leg and buttocks so I've now gone on Lyrica. Seems to help half way so I'll see if my doctor will increase the dose. Not sure how high that can go.
"Iíve slept with enough men to know that Iím not gay"

Offline Jody

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Re: GLORY HALLELUJAH!
« Reply #1 on: July 24, 2013, 10:48:48 PM »
So sorry Miss Philly that you have had to endure such torture with your foot and all those surgeries.  You have been so brave and you endure the pain and the procedures with humor and wit.  It's all you can do.   Being on the fourth floor in a walk up is quaint and fun but with foot issues it sucks.  I hope this next one will do the trick and you will be getting around your city of brotherly love better than ever.

Jody 
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline weasel

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Re: GLORY HALLELUJAH!
« Reply #2 on: July 24, 2013, 11:48:28 PM »

  Sounds dreadful .   I hope you recover quickly .

                                                Weasel

    P.s I love stairs , They keep us young  ;)
" Live and let Live "

Offline tednlou2

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Re: GLORY HALLELUJAH!
« Reply #3 on: July 25, 2013, 12:23:53 AM »
I will come take care of you, in Kathy Bates fashion. 

Offline BT65

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Re: GLORY HALLELUJAH!
« Reply #4 on: July 25, 2013, 05:18:15 AM »
God, that's awful.  I know you've struggled with these foot issues.  I hope this is the last surgery you have to have for a long time (if ever).

I take Lyrica for neuropathy, 150 mgs twice a day.  I don't know what the maximum dose is, but I started on, I believe, 50 mgs twice a day.  It doesn't get rid of it, but it does help, better than Gabapentin.

Good luck with everything, you have my number.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline mitch777

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Re: GLORY HALLELUJAH!
« Reply #5 on: July 25, 2013, 08:07:15 AM »
Ugh! Sorry you need to go through surgery again. Will this enable you to walk better and/or relieve some pain? I hope it's the last surgery and it works wonders for you. It certainly nice of Ted to offer his help. :)
I've had sciatic nerve pain that sounds similar to what you described. It was very painful. It took time and many visits to a chiropractor to get relief. Did the doc have a solution to your nerve issue other than pain relief? Hope you get this worked out before being laid up with your foot surgery.
32 years hiv+ (oct. 2013) with a curtsy.

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #6 on: July 25, 2013, 08:35:58 AM »
God, that's awful.  I know you've struggled with these foot issues.  I hope this is the last surgery you have to have for a long time (if ever).

I take Lyrica for neuropathy, 150 mgs twice a day.  I don't know what the maximum dose is, but I started on, I believe, 50 mgs twice a day.  It doesn't get rid of it, but it does help, better than Gabapentin.

Good luck with everything, you have my number.

My podiatrist started me on 50mg three times a day so when my refill is up and he sees that there's an improvement maybe he'll bump it up to what you have. I think the half-life is only 6.5 hours so maybe that's why he prefers a 3/day dosing, but I'd be glad to double the dose to 300mg/day like you, Bettina.
"Iíve slept with enough men to know that Iím not gay"

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #7 on: July 25, 2013, 08:42:37 AM »
Ugh! Sorry you need to go through surgery again. Will this enable you to walk better and/or relieve some pain? I hope it's the last surgery and it works wonders for you. It certainly nice of Ted to offer his help. :)
I've had sciatic nerve pain that sounds similar to what you described. It was very painful. It took time and many visits to a chiropractor to get relief. Did the doc have a solution to your nerve issue other than pain relief? Hope you get this worked out before being laid up with your foot surgery.

I think sciatic nerve pain is part of what I have -- but I'll clarify it when I go back to the podiatrist.

Frankly I'm not convinced it's all due to HIV -- partially perhaps, but mostly from this long-term undiagnosed high arch issue that I assume I've had my entire life. But hey, that's part of the fun right -- not know what is causing what! :) When you have HIV and then non-HIV stuff happens it's near impossible to sort out what's causing what. The best a doctor can do is try a bunch of different things and see what sticks.

Maybe I should consider see a neurologist next, but you know I'm TOTALLY sick of specialists now. I've lost count with how many I've seen in the past five years (or longer if I count back in NYC when I spent five years also seeing a lot of them).

At least I don't have to travel a lot to go to any of them. With my health I'm stuck living in a city until I croak.

ps: This upcoming foot surgery shouldn't be as bad as the last two (or so they tell me) -- I'll take it easy for 7-10 days, not two months, then be able to do grocery shopping with one of those little bootie thingies. I think the metal pins will come out in 3-4 weeks and hopefully the toes will be sitting down flat and I'll be good to go.

Naturally Miss P will be happy to provide photo documentation for the forums.
« Last Edit: July 25, 2013, 08:45:14 AM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline wolfter

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Re: GLORY HALLELUJAH!
« Reply #8 on: July 25, 2013, 09:03:04 AM »
I hope this finally gets you some relief.  My Bill suffered terribly from Sciatica.  The pain generated all the his right leg and his hip pain was horrendous.  He finally underwent some treatment that allowed him a tremendous amount of relief.  Wish I could recall what it was.

W
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #9 on: July 26, 2013, 12:18:08 PM »

I've had sciatic nerve pain that sounds similar to what you described. It was very painful. It took time and many visits to a chiropractor to get relief. Did the doc have a solution to your nerve issue other than pain relief? Hope you get this worked out before being laid up with your foot surgery.

Yeah, I think that is what it is -- also causes a lot of weakness up my legs and even to my buttocks. I vaguely recall him mentioning MOAR surgery, but he wants to try other non-obtrusive things first. It's generally most bad in my feet, but I think it's also what has caused weak knees now for over a decade. Basically I'm somewhat a mess from the waist down, but it's sporadic. I mean I do at least get around for basic tasks, shopping, traveling, etc. But I worry about it getting worst seeing as how I am only 48.

Just goes to show that a high cd4 count mean diddly, doesn't it?

ps: ooopsie, I already replied to you... damn klonnie! :) lol
"Iíve slept with enough men to know that Iím not gay"

Offline WillyWump

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Re: GLORY HALLELUJAH!
« Reply #10 on: July 26, 2013, 12:41:13 PM »


ps: ooopsie, I already replied to you... damn klonnie! :) lol

I thought you had taken all those 2 nights ago when you called me thinking I was  Tech support in India. You didn't even say hello, all I heard was "reinstall"... "Voice over protocol" and other slurred techy things.

But to your foot problem...I am sorry you are going through this again. I would be happy to come up there and push you around in your wheelchair. But in return I'm going to require a bevy of young Italian boy toys and copious amounts of Cocaine.
« Last Edit: July 26, 2013, 12:46:14 PM by WillyWump »
POZ since '08

Last Labs-
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Current Meds: Prezista/Epzicom/ Norvir
.

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #11 on: July 26, 2013, 01:45:25 PM »
I thought you had taken all those 2 nights ago when you called me thinking I was  Tech support in India. You didn't even say hello, all I heard was "reinstall"... "Voice over protocol" and other slurred techy things.

Must have been my attempts at using my iPad to make calls -- sucker

http://www.talkatone.com/index.html
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: GLORY HALLELUJAH!
« Reply #12 on: July 26, 2013, 02:52:26 PM »
Hope all goes to plan Miss P ---with luck your behaviour when coming around from anesthetic will not minmic my own which is that off a severely emotional opera Queen winning at an awards ceremony.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline OneTampa

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Re: GLORY HALLELUJAH!
« Reply #13 on: July 26, 2013, 10:30:30 PM »
Ms. P. here is wishing you an excellent recovery from your upcoming foot surgery.  I hope this will be the last one.

And Honey, with your tough survivor spirit, I just know you will be OK.

Best.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline mitch777

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Re: GLORY HALLELUJAH!
« Reply #14 on: July 27, 2013, 09:33:08 AM »


Frankly I'm not convinced it's all due to HIV -- partially perhaps, but mostly from this long-term undiagnosed high arch issue that I assume I've had my entire life. But hey, that's part of the fun right -- not know what is causing what! :) When you have HIV and then non-HIV stuff happens it's near impossible to sort out what's causing what. The best a doctor can do is try a bunch of different things and see what sticks.

Maybe I should consider see a neurologist next, but you know I'm TOTALLY sick of specialists now. I've lost count with how many I've seen in the past five years (or longer if I count back in NYC when I spent five years also seeing a lot of them).

Ya, sometimes it's hard to tell if health issues are related to HIV. I would think your sciatic nerve problem originates from your lower back pinching the nerve. Your foot problem might have been the culprit by putting stress on your back. Just a guess. Have you considered a chiropractor? Maybe the damage needs more than what a chiropractor can do.

I'm sick of specialists too and I'm sure I haven't seen nearly as many as you. Seems we really don't have much choice in most cases.

ps: This upcoming foot surgery shouldn't be as bad as the last two (or so they tell me) -- I'll take it easy for 7-10 days, not two months, then be able to do grocery shopping with one of those little bootie thingies. I think the metal pins will come out in 3-4 weeks and hopefully the toes will be sitting down flat and I'll be good to go.

This sounds encouraging! :)

Yeah, I think that is what it is -- also causes a lot of weakness up my legs and even to my buttocks. I vaguely recall him mentioning MOAR surgery, but he wants to try other non-obtrusive things first. It's generally most bad in my feet, but I think it's also what has caused weak knees now for over a decade. Basically I'm somewhat a mess from the waist down, but it's sporadic. I mean I do at least get around for basic tasks, shopping, traveling, etc. But I worry about it getting worst seeing as how I am only 48.

ps: ooopsie, I already replied to you... damn klonnie! :) lol
Your description sounds familiar. Has this been going on sporadically for over a decade? Do you have any sharp pains in your lower back too? (it did with me) Sheesh. You are a mess! Good luck with all of this crapola. :) 
32 years hiv+ (oct. 2013) with a curtsy.

Offline harleymc

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Re: GLORY HALLELUJAH!
« Reply #15 on: July 27, 2013, 09:23:01 PM »
Eat your din dins.

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #16 on: August 23, 2013, 05:50:50 PM »
God, that's awful.  I know you've struggled with these foot issues.  I hope this is the last surgery you have to have for a long time (if ever).

I take Lyrica for neuropathy, 150 mgs twice a day.  I don't know what the maximum dose is, but I started on, I believe, 50 mgs twice a day.  It doesn't get rid of it, but it does help, better than Gabapentin.

Good luck with everything, you have my number.

My doctor started me at 50mg three times a day for one month, and now I am on 75mg three times a day for a total of 225mg. The maximum one should be prescribed is what you are on -- 300mg either in two doses or three. I've read that it only lasts for six hours or so before running though your body so I'd prefer to take three times a day. I will see if I can up it to 100mg three times a day if I find it necessary.

Do you really find it works well for you? I'm just concerned because mine isn't run-of-the-mill neuropathy, but sciatic which can mean that I also have a herniated disc. I suppose they might send me for an MRI, but sometimes they skip that from what I read and send you to a physical therapist (oh glory! My insurance don't pay for all of that as my previous experience post-foot surgeries showed). The good news is that most people heal this without any surgery, though 1 in 10 do actually have to have surgery. Since I'm a surgery expert and possess a Santeria curse from 15 years ago I'm totally sure I'll end up having to go under the knife (again).

ps: Don't smoke. Smoking increases the risk of a disc injury.

ORLY

ps: I'm surprised that a couple of close friends offered no moral support in this thread. Some things speak volumes. 'nuf said.
"Iíve slept with enough men to know that Iím not gay"

Offline mecch

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Re: GLORY HALLELUJAH!
« Reply #17 on: August 23, 2013, 06:05:43 PM »

I am virtually burning this candle for you to remove the curse. I have put green glitter in it for healing and french lavender and lebanese juniper oil to sooth the nerves.
I hope you find relief soon.  :) :)
ďFrom each, according to his ability; to each, according to his needĒ 1875 K Marx

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #18 on: August 23, 2013, 06:19:59 PM »
I need to get a Puerto Rican friend to take me up to North Philly to a Botanica and find some hex spray, or I guess I could make use of this:

http://www.originalbotanica.com/index.php

... specifically this item: http://www.originalbotanica.com/jinx-removing-spray-p-25631.html

"Iíve slept with enough men to know that Iím not gay"

Offline BT65

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Re: GLORY HALLELUJAH!
« Reply #19 on: August 23, 2013, 06:27:20 PM »
Do you really find it works well for you?

Well, it doesn't get rid of it but I like it better than Gabapentin.  My right foot, for some reason, is worse, pain wise, than my left.  On the bottom it always feels like there's a hot plate under it, and I have shooting pain through the toes on and off during the day.  Of course my left foot is more numb than my right.  That's why I had to give up that 5-speed car I had-I couldn't feel the clutch.

How do you like the Lyrica?  How is your pain?  Sorry about the curse.  I would burn sage. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #20 on: August 23, 2013, 06:40:01 PM »
Yes, I have the hot plate, but then it turns totally cold too. And same intense electrical shock down to my large toes but seems to start in my buttocks. On top of it all my leg muscles feel like I just had a 10 hour workout at a gym but of course I haven't, and my lower back can then flare up to a bad ache. What's odd is that it all can vary day by day -- the pains always there but it manifests itself in slightly different ways. There's never a day when I don't feel really tired.

Oh, get this -- after my insomnia last night I got to bed at 3am. At 7:30am I found myself asleep sitting on the toilet. I only woke up because sitting on the toilet rim for longer than 10 seconds activates the most dreadful nerve pains.

And people here wonder why I'm on disability. I'm also finally hitting my doctor up for some Trazadone because I'm just done with this insomnia issue. I've avoided sleeping pills now for over a decade.
"Iíve slept with enough men to know that Iím not gay"

Offline BT65

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Re: GLORY HALLELUJAH!
« Reply #21 on: August 23, 2013, 06:48:38 PM »
Insomnia's the worst.  I don't have it as bad since switching to Stribild; aren't you on Isentress?  Even though I get a bit more sleep, I'm always still up around 4:00 am. 

Falling asleep on the toilet and not remembering going in there?  That sounds like you're very sleep deprived.  I get it, I hope the Trazadone helps.  My doctor prescribed Rozerem but I rarely take it.  I was on Trazadone previously and may try it again. 
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline oksikoko

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Re: GLORY HALLELUJAH!
« Reply #22 on: August 23, 2013, 06:53:45 PM »
I need to get a Puerto Rican friend to take me up to North Philly to a Botanica and find some hex spray, or I guess I could make use of this:

I find "Go Away Evil" to be the best anti-hex spray. I think I've mentioned it before.



https://www.wisdomproducts.com/product/6585

It freshens the air, and you get 20% more than...something. It even has what appears to be a Native American on the can. That means it's good for the environment too.
Code: [Select]
2014-11-14: CD4 Wars Episode II: Return of the Stribild (released in Europe as Stribild II: Werewolf Bitch)
2014-11-06:                ☣ VL (→) 12,627      ☣ CD4 (→) 639
2014-??-??: off treatment  ☣ VL (?)              ☣ CD4 (?)
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

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Offline mecch

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Re: GLORY HALLELUJAH!
« Reply #23 on: August 23, 2013, 08:02:40 PM »
I went to one somewhere on Flatbush Ave at the corner of Prospect Park near Parkside Ave.  I was sold on Santeria when the lovely clerk told me what color glitter to sprinkle in my candle for the first love spell I went looking for.
ďFrom each, according to his ability; to each, according to his needĒ 1875 K Marx

Offline mitch777

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Re: GLORY HALLELUJAH!
« Reply #24 on: August 23, 2013, 08:17:31 PM »
David,
Hope you can find some relief. I've slept with a pillow between my knees for over a decade. It does help. Can't sleep on my back either. I don't have the complication of neuropathy but I know what disk problems are like. It got so bad once that I was immobilized and Kenny had to call the ambulance for my first and only ride. The pain was unbearable. 
Wish I could help.
m.
32 years hiv+ (oct. 2013) with a curtsy.

Offline tednlou2

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Re: GLORY HALLELUJAH!
« Reply #25 on: August 24, 2013, 01:29:22 AM »
I hope you can get some relief, as well.  A lot going on at once.  The toilet thing made me think of our roommate.  He always falls asleep on the toilet.  Weird hearing snoring and pissing, at the same time.  Then, he will get up and fall down, because his legs fell asleep.  But, his is from taking too many meds.  He has bad sciatica.  But, I suppose he is sleep deprived, from the pain.

Offline wolfter

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Re: GLORY HALLELUJAH!
« Reply #26 on: August 24, 2013, 06:03:51 AM »
Sorry you're dealing with all the pain issues and insomnia.  I started on Trazadone for sleep issues and it started out ok.  50mg allowed restful sleep.  Suddenly I had to bump it up, then again, and again.  I finally quit taking it after 200 mg a night didn't work.

Wolfie
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Fisher

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Re: GLORY HALLELUJAH!
« Reply #27 on: August 26, 2013, 08:47:04 PM »
You've got a lot of nerve running up your butt, granted. . .and duly noted.
- fisher
09/22 CD 385 %22 VL UD
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ARS - LA '82

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #28 on: September 27, 2013, 08:52:34 AM »
so UPDATE: I had my third surgery 11 days ago and it seems to have gone well, at least according to multiple x-rays. However my surgeon had to do double the amount that he was expected to do, which means instead of a week secluded and recovering in my apartment I have to stay in for three weeks. Bummer!

I did, however, manage to go to an appointment with my HIV doctor yesterday because my sciatic pain issue has been progressing so quickly that I can only get to sleep for 3 hours each night. Every position in bed results in sharp pain shooting down my legs and out through my feet. And I couldn't sit at my computer for for more than 30-45 minutes without becoming nauseas from the resultant pain in my spine. Alas spinal pain is directly related to sciatic pain so I guess that's to be expected even if it's a new pain for me. Furthermore, he seems to believe I'm suffering from multiple herniated discs due to years of favoring one foot over the other when walking, pre-dating my past couple years of surgery. And as stated earlier this Lyrica I've been taken might as well be a placebo as it doesn't help at all.

So my HIV doctor gave me a physical applying pressure points on my back and buttocks and listening to me yelp out loud from the pain. He's now put me on a course of Endocet, Cyclobenzaprine and a dermal patch called Lidoderm -- plus I'm also still on higher than normal (i.e. OTC drug amount) of Ibuprofen.

I'm now finally able to sleep again for 8 hours, and float on a cloud during waking hours.

I get my ~30 stitches removed next Friday and the metal rods removed, then they want to send me off for x-rays on my spine and figure out a treatment plan which I'm sure will mean a lot of physical therapy.
"Iíve slept with enough men to know that Iím not gay"

Offline WillyWump

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Re: GLORY HALLELUJAH!
« Reply #29 on: September 27, 2013, 10:46:47 PM »
so UPDATE: I had my third surgery 11 days ago and it seems to have gone well, at least according to multiple x-rays. However my surgeon had to do double the amount that he was expected to do, which means instead of a week secluded and recovering in my apartment I have to stay in for three weeks. Bummer!

I did, however, manage to go to an appointment with my HIV doctor yesterday because my sciatic pain issue has been progressing so quickly that I can only get to sleep for 3 hours each night. Every position in bed results in sharp pain shooting down my legs and out through my feet. And I couldn't sit at my computer for for more than 30-45 minutes without becoming nauseas from the resultant pain in my spine. Alas spinal pain is directly related to sciatic pain so I guess that's to be expected even if it's a new pain for me. Furthermore, he seems to believe I'm suffering from multiple herniated discs due to years of favoring one foot over the other when walking, pre-dating my past couple years of surgery. And as stated earlier this Lyrica I've been taken might as well be a placebo as it doesn't help at all.

So my HIV doctor gave me a physical applying pressure points on my back and buttocks and listening to me yelp out loud from the pain. He's now put me on a course of Endocet, Cyclobenzaprine and a dermal patch called Lidoderm -- plus I'm also still on higher than normal (i.e. OTC drug amount) of Ibuprofen.

I'm now finally able to sleep again for 8 hours, and float on a cloud during waking hours.

I get my ~30 stitches removed next Friday and the metal rods removed, then they want to send me off for x-rays on my spine and figure out a treatment plan which I'm sure will mean a lot of physical therapy.

Ghurl. the things you go through. I feel for you.

But just add a shot of Kentucky Straight Bourbon to that pill cocktail and you'll be just fine ;)
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline anniebc

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Re: GLORY HALLELUJAH!
« Reply #30 on: September 27, 2013, 11:48:16 PM »
Hoping you get back on your feet sooner rather than later, and manage to get a descent amount of sleep very night, really sounds like you need it.

Thinking of you.

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Online Jeff G

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Re: GLORY HALLELUJAH!
« Reply #31 on: September 27, 2013, 11:58:07 PM »
Get well soon Miss P , hope you are done with these painful surgery's .

Offline spacebarsux

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Re: GLORY HALLELUJAH!
« Reply #32 on: September 28, 2013, 01:37:40 AM »
Sounds bloody painful. Get well soon Miss P!
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #33 on: September 28, 2013, 07:56:12 AM »
I woke up this morning and I was asleep on the toilet. :(
"Iíve slept with enough men to know that Iím not gay"

Offline Dachshund

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Re: GLORY HALLELUJAH!
« Reply #34 on: September 28, 2013, 08:08:17 AM »
I woke up this morning and I was asleep on the toilet. :(

the more things change the more they stay the same

Offline mikeyb39

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Re: GLORY HALLELUJAH!
« Reply #35 on: September 28, 2013, 10:12:57 AM »
Be careful with that toilet.  I heard the toilets have caused many injuries to people.  Didnt Elvis croak on the toilet?
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD

Offline buginme2

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Re: GLORY HALLELUJAH!
« Reply #36 on: September 28, 2013, 02:04:53 PM »
I woke up this morning and I was asleep on the toilet. :(

Now that's class
Don't be fancy, just get dancey

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #37 on: September 28, 2013, 02:47:08 PM »
One thing I have to say though is that this medication has worked with my spine issues for the most part, and it did it in less than six hours. I'm hoping that I've caught this on the early side so once I go into physical rehab it won't be so gruesome. Plus I'll be able to combine it with whatever I'll need to do with my newly operated on feet.
 
I actually think it's all connected, year upon year of not being able to walk correctly due to podiatry issues. I don't believe it's at all HIV-related though maybe slightly due to inflammation and lipoatrophy causing me to have no fat padding on my extremities. But who knows -- suffice to say it royally sucks and I've been dealing with now for five years.
"Iíve slept with enough men to know that Iím not gay"

Offline mitch777

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Re: GLORY HALLELUJAH!
« Reply #38 on: September 28, 2013, 06:38:51 PM »
The best from me too. A good nights sleep makes it a bit easier. Still....
32 years hiv+ (oct. 2013) with a curtsy.

Offline wolfter

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Re: GLORY HALLELUJAH!
« Reply #39 on: September 28, 2013, 09:40:16 PM »
Sorry, but I had a vision of the 2 of us hobbling around together at an AMG walking around like old men instead of the sturdy young men we should be.   ;D

Hope you'll soon get this all behind you and you can finally have relief.

Wolfie
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Theyer

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Re: GLORY HALLELUJAH!
« Reply #40 on: September 29, 2013, 04:42:21 AM »
It is what it is , gruelling.
Hope that from now on its progress all the way. Ballet Rambert are doing dance for health at Chealsea and Westminster, physio gym was the best gym time I have ever had .
Anyway good luck with it all you deserve it.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline buginme2

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Re: GLORY HALLELUJAH!
« Reply #41 on: September 29, 2013, 08:18:16 AM »
Miss p. I'm sorry about all this it sounds really horrible and I hope they can fix it.  A few years back I had horrible sciatic pain (pre HIV) and ended up having a discectomy and laminotomy.  As far as surgery's go it was super easy, done outpatient, and I was at home watching oprah just a few hours after surgery with very little recovery time.  Sciatic pain is a horrible thing because there isn't any position you can take to get it to go away.   

You really have been through a lot with this I hope you feel better soon.
Don't be fancy, just get dancey

Offline WillyWump

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Re: GLORY HALLELUJAH!
« Reply #42 on: September 29, 2013, 09:19:11 AM »
I havent heard from MissP this morning yet. Should I call her and wake her up from the toilet?
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Online Jeff G

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Re: GLORY HALLELUJAH!
« Reply #43 on: September 29, 2013, 09:30:48 AM »
I havent heard from MissP this morning yet. Should I call her and wake her up from the toilet?

Send a python up the pipe , that should do it .

Offline WillyWump

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Re: GLORY HALLELUJAH!
« Reply #44 on: September 29, 2013, 09:33:17 AM »
Send a python up the pipe , that should do it .

No, she would never leave then.
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline bear60

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Re: GLORY HALLELUJAH!
« Reply #45 on: September 29, 2013, 01:18:08 PM »
Hi David...
I fall asleep at the computer...lol. But toilet is a possibility.  I think I told you about my sciatic pains.
We must do cocktails soon.
Poz Bear Type in Philadelphia

Offline phillypinko

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Re: GLORY HALLELUJAH!
« Reply #46 on: September 29, 2013, 02:54:32 PM »
Be careful with that toilet.  I heard the toilets have caused many injuries to people.  Didnt Elvis croak on the toilet?
Elvis is an example of why the doctor says to never strain on the toilet.

Offline oksikoko

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Re: GLORY HALLELUJAH!
« Reply #47 on: September 29, 2013, 05:31:13 PM »
Elvis is an example of why the doctor says to never strain on the toilet.

Sounds to me like he couldn't be more relaxed on the toilet. ;) I'm getting my python now. It's only like an hour and a half to Philly.
Code: [Select]
2014-11-14: CD4 Wars Episode II: Return of the Stribild (released in Europe as Stribild II: Werewolf Bitch)
2014-11-06:                ☣ VL (→) 12,627      ☣ CD4 (→) 639
2014-??-??: off treatment  ☣ VL (?)              ☣ CD4 (?)
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

If no one complains, nothing will ever change.

Offline mitch777

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Re: GLORY HALLELUJAH!
« Reply #48 on: September 29, 2013, 07:32:57 PM »
Sounds to me like he couldn't be more relaxed on the toilet. ;) I'm getting my python now. It's only like an hour and a half to Philly.

Ok, it's been about 2 hours now since the python release. Getting nervous.
32 years hiv+ (oct. 2013) with a curtsy.

Offline Theyer

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Re: GLORY HALLELUJAH!
« Reply #49 on: October 10, 2013, 09:00:37 AM »
So Miss P how is it all getting along, improving most off us hope , give us an up date when your ready , hope your at least able to get down the stairs.

All the best
Michael
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #50 on: October 22, 2013, 10:34:26 AM »
Sorry, I have been meaning to update this but things unrelated to my foot surgery have thrown me for a loop.

But first my foot: they removed my stitches on 4 Oct but decided it was still too early to remove the metal rods, so those stayed in until 11 Oct. Surprisingly I've been able to begin walking with a minimum amount of pain, and just yesterday managed errands of at least a dozen city blocks so that equals about one mile of walking.

Second, my back and nerve pain that I mentioned three weeks ago: after my initial one week course of cyclobenzaprine (a muscle relaxer), endocet (pain reliever) and lidocaine patches (local anesthetic) everything flared up after several days off all of that and I went an entire weekend with barely any sleep -- it was like someone had plunged a giant knife into my back and additionally muscle spasms in my legs and arms. Basically at the time it seemed the worst period since I was diagnosed with HIV.

So when Monday arrived, even though I'd not slept at all, I hopped in a taxi (mind you I still had those pieces of metal sticking out of my two toes and in a podiatry booty) I went to my HIV/GP doctor first thing when he opened as a walk-in and saw him straight away. At that point I'd still not gone for my spine x-rays because of my foot, but he insisted I go ASAP because he couldn't pinpoint what was still going on without them. He refilled my scripts for another week, though he gave me a month script for the cyclobenzaprine. After catching up finally on some sleep (though even with all of those pills I would only manage four hours nightly for a few days) I hopped in another taxi and went to the hospital for the xrays.

Oh, and to make matters worse at the same time I think I caught some kind of virus -- like the flu except even though I felt feverish my temperature always was normal, but I spent one day vomiting any food, then it took at least five days to get my appetite back only existing on oatmeal and small servings of soup.

My back pain became more manageable so that I was only taking the endocet before bedtime, so I could stretch out the week's prescription for two weeks. Oh, and he also put me on an anti-depressant, citalopram (Celexa) as that is one that works well with pain relief meds. They just bumped me up on that from 10mg to 20mg yesterday, and I have to say it's been the easiest SSRI that I've ever taken, as usually I find them intolerable.

I go see my HIV specialist a week from today and will get the report on my xrays. Though even if it says I don't have any disc problems there is definitely something (or several things) new going on with my entire body. Possibly arthritis in some joints and/or muscular myositis -- all inflamation issues which would be from long term HIV infection, probably partly caused by those nasty "d" drugs and AZT many of us had to take back in the 90's which resulted in mitochondrial issues in our cells.

In closing, I will add that my sleep has greatly improved and I am regularly getting 7-8 hours nightly without waking up in the middle. And thus far today my back seems better, though I can still feel something when I bend over to tie my shoe, etc. Knees still are achy and wobbly on stairs and legs overall are weak and somewhat hurt, but the best scenario is that they just send me to have physical therapy. But who knows, they might send me for more testing like a lumbar puncture or something. I will know more in a week's time.
« Last Edit: October 22, 2013, 11:01:51 AM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: GLORY HALLELUJAH!
« Reply #51 on: October 22, 2013, 02:57:37 PM »
Well that was not what I hoped to hear.

At the risk off teaching you to suck eggs be aware off the culminative affect off a many problems , evan if addressed , its been a hard time.

I hope the fact your sleep is good means that the other event you mention is OK.

Here,s hoping that you are truly over the worst and can start building up your strength, I am glad you have a Doc who understands pain control and another useful drug has been added to your armoury.

Take care and the best off luck with it all.
m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline BT65

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Re: GLORY HALLELUJAH!
« Reply #52 on: October 22, 2013, 03:06:03 PM »
I'm so sorry all that is happening!  I know about several viruses going around right now in various areas of the country.  It sounds like you caught a horrible one.

I sincerely hope the doctor can get the muscle/bone issues sorted out.  I know how frustrating it can be.  I hope it's nothing serious and doesn't require much intervention.  I'm thinking of you dear; call me some time. :-*
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline OneTampa

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Re: GLORY HALLELUJAH!
« Reply #53 on: October 23, 2013, 08:45:06 PM »
Ms. P. sorry to read about your challenges. I can imagine how difficult it has been.  Good to know that you are now at least able to get 7-8 hours sleep. That's a good thing. 

You are a soldier, that's for sure.

Wishing you the best.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaŪto frito."

Offline Theyer

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Re: GLORY HALLELUJAH!
« Reply #54 on: October 26, 2013, 03:15:49 PM »
Here,s hoping that the news you get this week is what you want , m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Online Jeff G

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Re: GLORY HALLELUJAH!
« Reply #55 on: October 26, 2013, 03:55:13 PM »
Any updates Miss P ? . Hoping for the best .

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #56 on: October 26, 2013, 06:43:09 PM »
For the past two days my back pain has magically disappeared to the point that it's strange that it could do that considering how bad it was.

My foot's great -- I didn't go out today, but yesterday I went to the dentist and took a walk after that which must have been 3/4 mile. But I've had to ice my foot a couple of times since then as it got kind of pinkish and swelled a bit, but it looks OK now.

My legs and arms are still odd, like a general muscle weakness. Overall obviously something is going on but what it is I don't know, but I am sleeping well so that's good. Maybe it's some musculoskeletal and arthritis issue, who knows.

Thanks for asking.
"Iíve slept with enough men to know that Iím not gay"

Offline Theyer

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Re: GLORY HALLELUJAH!
« Reply #57 on: October 27, 2013, 06:44:56 PM »
Well with the improvements it could be that you are recovering from your skeleton and muscle configuration having what amounts to a car crash trauma , settling down and healing . Lets hope the tests confirm that. Is your mood OK ? Anyway let us know how it goes with the appointments next week , Best of the Best to you.
m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #58 on: October 27, 2013, 08:29:21 PM »
Yes, my mood is fine. I went on a new anti-depressant and it's one that doesn't make me feel like I am on speed so that's good, nor does it make me foggy.

I go to my HIV specialist in two days and discuss my spinal X-rays so perhaps I'll know more by then.
"Iíve slept with enough men to know that Iím not gay"

Offline Jody

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Re: GLORY HALLELUJAH!
« Reply #59 on: October 27, 2013, 09:22:21 PM »
Glad to hear your foot, back and mood are all better David.  Your feet have been such an issue for you and back pain is the pits.  Keeping our minds in good shape may be the most difficult task of all.  Keep on truckin'.

Jody :)
"Wake up to find out that you are the eyes of the world".
 "Try to discover that you are the song that the morning brings."

Grateful Dead

Offline Miss Philicia

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Re: GLORY HALLELUJAH!
« Reply #60 on: October 29, 2013, 05:09:59 PM »
My doctor's visit today revealed good news that nothing is wrong with my spine as per the x-rays, aside from some arthritis in my neck (arthritis at 48 isn't fetch considering my father didn't get it until he was 78 -- Hooray for AIDS!). So the thinking is that I have some as-yet-not-determined musculoskeletal issue which I suppose isn't that uncommon for us LTS coffin dodgers (to borrow Matilda's delightfully offensive term).

For now he's not going to send me off to a specialist, as my back pain has now disappeared. I'm still getting muscle spasms at times in my legs and arms, and my knees I'm fairly sure have arthritis as do my feet, so I am staying on cyclobenzaprine (muscle relaxer) for a while longer and adding rozerem to help me get to sleep at night, though fucking Wellcare required "pre-approval" for that so I couldn't pick it up at the pharmacy this afternoon. Hopefully tomorrow or the next day, but even then it supposedly takes a few doses to build up in one's system and start allowing your insomnia to lessen.

I feel better though and that's what counts, and by next week will feel even better.
"Iíve slept with enough men to know that Iím not gay"

Online Jeff G

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Re: GLORY HALLELUJAH!
« Reply #61 on: October 29, 2013, 05:22:39 PM »
That's great news , I get a little concerned when a fellow coffin dodger starts have consistent pain , so its good its eased off . 

Offline GSOgymrat

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Re: GLORY HALLELUJAH!
« Reply #62 on: October 30, 2013, 09:10:10 AM »
I'm glad things are improving. One thing I admire about you is your tenacity regarding your medical issues. You meet them head on, go to the doctors and follow treatment. So many people, and I'm primarily thinking of people who are not HIV+, ignore symptoms and avoid getting proper care even when they have insurance.

Offline Theyer

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Re: GLORY HALLELUJAH!
« Reply #63 on: October 30, 2013, 09:40:44 AM »
Very Good news, haven,t heard coffin dodger for a long time , has a ring to it.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

 


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