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Author Topic: Update - Not looking good :(  (Read 2822 times)

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Offline RevMC

  • Member
  • Posts: 223
  • It's me!
    • Psychic AwakeningSchool.com
Update - Not looking good :(
« on: October 17, 2006, 10:39:14 PM »
Hi everyone, haven't been on in a short while, it's been a bit crazy.

Louie's not doing good at all.  He caught the flu or something 2 weeks ago and had his chemo treatment just the same.  His family has been coming over to see him and just wonder how in the world I'm able to handle what's going on.  None of them could believe how bad he is and how bad he looks.

Now it seems he's coming down with something else, can't keep anything down again, not even water.  He's on Zofran, Clonopin, Phenergan, Marinol and nothing is helping with the nausea.  Doc said that if he doesn't start getting a bit better in by tomorrow (Wednesday) he's going to have Home Health come in and administer a shot of some sort to hopefully help with the nausea.  I'm going to see if they still to TPN to feed him through his port.  At the beginning of the year he weighted 135#'s, now he's around 104#'s.  The nausea lately, especially today, has been so bad he's in a lot of pain, his throat, mouth and lips burn.

I try to ease his mind.  He's so worried about me, worried about me being alone and about me being able to survive on the roughly $1,000 I get between disability and working part time.  I keep telling him I'll be fine, heck his mother makes it on less than that.  Plus he reminds me I'll have his life insurance so he says that should help.  He's also worried because I still don't have my drivers license yet.  It was suspended for a DUI, last step is 12 week counceling that I'm required to go through.  The counselor said that the classes should also help me to deal with what's going on a bit easier.  Today was the 1'st class, only 11 more to go.  She told me she's going to talk to her supervisor to see if there is anyway to combine classes so I can get it done in a lot less time.  She's real nice and understanding.

He's reached a point where he's wanting to give up.  He tells me he's scared, he can't imagine not seeing me and holding me every day.  I told him not to worry about that he can look down on me from the spirit world and he can still touch me when he wants to.  I told him that I believe that he can come to me in my dreams and we can be together when I'm asleep.

It's getting rough, thank you everyone for being here to let me vent.

Love and Light,

Michael
 :(
Part of my story: "Sale Of A Lifetime" POZ December 2003
http://www.poz.com/articles/172_752.shtml

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE



Love and Light and Reiki sent your way,
Rev. Michae

Offline Teresa

  • Member
  • Posts: 1,753
Re: Update - Not looking good :(
« Reply #1 on: October 17, 2006, 10:58:10 PM »
Michael,

Im so sorry you and your partner are going thru this. You both will be in my thoughts and prayers.

Hugs
Teresa
Hubby HIV+ 5/5/06
CD4:320
  %: 26.7
 VL: <20
Atripla (started it 8/24/06)
 

Offline cubbybear

  • Member
  • Posts: 510
  • Joined August 2005.
Re: Update - Not looking good :(
« Reply #2 on: October 17, 2006, 11:17:29 PM »
Michael,

That brought tears to my eyes, I am thinking of you both.

xx
Matt
There's a bear in there!
Positive since 2000
Diagnosed 17/9/2005 CD4 35 VL 293,000
Meds 23/9/2005 Sustiva/Truvada
Currently CD4 232 VL Undetectable

Offline Life

  • Member
  • Posts: 2,388
  • Member 2005
Re: Update - Not looking good :(
« Reply #3 on: October 17, 2006, 11:20:06 PM »
Michael...

Some things are so out of our control and it just plain hurts of pain and sorrow..  Be strong for Louie. Michael be sure you have the support that you need to move thru this time...  I am so sorry that things are this way for you both..   Talk to Louie and ease his fear..  Hold him, love him and know that we are all sending your our prayers, good spirits and thoughts...   Stay close and let us know what we can do for you...

Love

Offline LatinAlexander

  • Member
  • Posts: 599
  • Bogota, Colombia
Re: Update - Not looking good :(
« Reply #4 on: October 17, 2006, 11:30:56 PM »
BIG HUG FOR YOU BOYZ!!!!!

Alex
Poz since Jul 19 2006
Initial numbers : CD4-250 VL 3500
First labs after HAART (Dec 04-2006) : CD4-432 VL-<40 (Undetectable)  cd4%=25.11%
Started HAART: Combivir+Efavirenz Aug 26 7:38 pm
Feb 08 2007 - Gradually stopping HAART cause of Myalgia. Protecting Efavirenz. Stopped Efavirenz, ahead with Combivir....
February 17 Combivir stopped.
April 3 -07 : Started ddi+3tc+efavirenz...
Gay and positive (What a lack of Identity...:) )
Looking for my Ben....

Offline Cheetara74

  • Member
  • Posts: 46
Re: Update - Not looking good :(
« Reply #5 on: October 17, 2006, 11:54:31 PM »
RevMC,
I read your story and I feel so bad.  My prayers are with you both.  We're all thinking of you. 

Hugs,
Cheetara74

Offline BKNYLivin

  • Member
  • Posts: 76
Re: Update - Not looking good :(
« Reply #6 on: October 18, 2006, 12:39:15 AM »
That was so moving. My thoughts and prayers are with u both.
Much Love
Diagnosed 9/18/06
10/13/06 - CD4:449, 33%,  VL:>500,000
11/20/06 - CD4: 392  VL:425,000
02/08/07 - CD4: 361, 16.9% VL:133,000
02/13/07 - Started HAART: Atripla
03/08/07 - CD4:401, 23.8% VL:643
06/05/07 - CD4:614, 33.6% VL:225
09/14/07 - CD4:612, 37%  VL: <50
12/14/07 - CD4:582, 38.5% VL:<50
4/11/08 - CD4: 658, VL: <50
3/5/09 - CD4: 847, 49% VL: <50
7/29/09 - CD4: 965, 50.1% VL: <50
12/28/09 - CD4: 925, 49.2% vl <50
9/16/10 - CD4: 1011 vl: <50

Offline frenchpat

  • Member
  • Posts: 516
  • Love your friends, don't eat them.
Re: Update - Not looking good :(
« Reply #7 on: October 18, 2006, 05:24:51 AM »
Hi Michael and Louie,

you are both in my thoughts. I am at a loss to say anything more that is meaningful.

((((((((((((((((((((HUG))))))))))))))))))

Pat
People have the power - Patti Smith

Offline JohnOso

  • Member
  • Posts: 816
Re: Update - Not looking good :(
« Reply #8 on: October 18, 2006, 05:56:34 AM »
Michael,

That brought tears to my eyes, I am thinking of you both.

xx
Matt

As it did mine. 

Do what you do best Michael.

Stay strong, hold him tight, tell him you love him, kiss him.

We're all sending out our prayers.

John


Offline Alain

  • Member
  • Posts: 680
  • I am.
Re: Update - Not looking good :(
« Reply #9 on: October 18, 2006, 08:11:22 AM »
.
« Last Edit: November 03, 2006, 06:48:53 PM by cowandalehouse »

Offline AlanBama

  • Member
  • Posts: 3,626
  • Alabama: the 'other' 3rd World Country!
Re: Update - Not looking good :(
« Reply #10 on: October 18, 2006, 10:15:49 AM »
Oh Michael, I am so sorry to hear that Louie is not doing well.   I pray that the love you have for each other will keep you both strong.

Sending love & hugs and healing energy......

Alan
"Remember my sentimental friend that a heart is not judged by how much you love, but by how much you are loved by others." - The Wizard of Oz

Offline Lisa

  • Member
  • Posts: 1,240
  • Formerly known as sweetieweasel/Joined Nov. 2004
    • http://www.myspace.com/lisanowak58
Re: Update - Not looking good :(
« Reply #11 on: October 18, 2006, 10:52:12 AM »
Wow! You definately have a lot on your plate. Just remember, that you need to take care of yourself in all of this too.
I am sending positive energy to both of you.
You can always come here, and let us prop you up. Even if all you need to do is vent. We understand.
Best wishes for both of you.
No Fear  No Shame  No Stigma
Happiness is not getting what you want, but wanting what you have.

Offline ademas

  • Member
  • Posts: 1,151
Re: Update - Not looking good :(
« Reply #12 on: October 18, 2006, 10:57:03 AM »
Dear Rev,
This is some rough stuff.
Sending my best thoughts to both of you.
Craig
xox

Offline cthonias

  • Member
  • Posts: 6
Re: Update - Not looking good :(
« Reply #13 on: October 18, 2006, 02:48:10 PM »
Thanks for sharing this with us. It did bring tears to my eyes, too, both for the pain and love you are both feeling. My prayers are with you both.

Offline Christine

  • Member
  • Posts: 1,069
Re: Update - Not looking good :(
« Reply #14 on: October 18, 2006, 05:43:32 PM »
Hi Michael,

I had horrible nausea this past year, and went though many of the same meds that Louie tried. None of them worked for me either. The doctor then tried Aloxi. It is an iv drug used mostly for chemo nausea. It worked really well.

Good thoughts and prayers going out to both of you.

Christine
Poz since '93. Currently on Procrit, Azithromax, Pentamidine, Valcyte, Levothyroxine, Zoloft, Epzicom, Prezista, Viread, Norvir, and GS-9137 study drug. As needed: Trazodone, Atavan, Diflucan, Zofran, Hydrocodone, Octreotide

5/30/07 t-cells 9; vl 275,000

Offline aztecan

  • Member
  • Posts: 5,398
  • 29 years positive, 57 years a pain in the butt
Re: Update - Not looking good :(
« Reply #15 on: October 18, 2006, 10:14:37 PM »
Michael,

I am sorry this is happening. You and Louie are in my thoughts and I will be sending healing energy your way.

(((((BIG HUG))))))

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline Eldon

  • Member
  • Posts: 2,664
Re: Update - Not looking good :(
« Reply #16 on: October 18, 2006, 10:21:44 PM »
Hello Michael,

I am sending you and yours my BEST wishes and prayers that the situation shall improve itself. It is truly a rough road that you are traveling on right now. Please DO continue to give your partner the love and support that you have been giving him.



Make the BEST of each Day!

Offline livingpositively

  • Member
  • Posts: 369
Re: Update - Not looking good :(
« Reply #17 on: October 18, 2006, 11:26:44 PM »
Michael,

I'm so sorry to hear of these events in your life.  Sounds like a very rough time.  Louie is lucky to have you by his side.  Take care of you, too.  Best wishes for you both

Shane
4/6/07   CD4 450, % 23, No VL
2/19/07 CD4 487, % 26, VL 47,500
1/4/07   CD4 357, % 27, No VL
10/3/06 CD4 500, % 26, VL 18,000
7/6/06   CD4 530, % 29, VL 83,800
4/6/06   CD4 555, % 28, VL 13,000

Offline Jeffreyj

  • Member
  • Posts: 1,403
Re: Update - Not looking good :(
« Reply #18 on: October 19, 2006, 10:40:38 PM »
Sorry for the rough times. Try to be brave. I know it is not easy. We are all pulling for you!
Positive since 1985

Offline RevMC

  • Member
  • Posts: 223
  • It's me!
    • Psychic AwakeningSchool.com
Re: Update 2- Not looking good :(
« Reply #19 on: October 19, 2006, 11:44:13 PM »
TY everyone for all your thoughts and prayers.  It truly helped me through this ordeal.

Well they admitted Louie to the hospital yesterday (Wednesday) and got him started on I.V. to get fluids in him.  Today they did an upper G.I. to see what's going on with his stomach.

He has thrush down his asophagus (sp) and a few sore spots on his stomach, doc said probably due to the nausea and vomitting.  So he's on a limited liquid diet for a few days, mostly water, drinking it with small sips.  They were doing 80cc's of water since last night for the I.V. liquids, now they have upped it to 200cc's for the drip flow.  He was badly dehydrated and it was starting to affect his kidneys a bit.  They are going to do diflucan through the I.V. for 1 day and then try him on the liquid form orally to get rid of the thrush.

If all goes well doc is hoping that in a few days he can start semi-solid foods for a few days and then what ever he wants to have.  He'll probably be on diflucan permanently to prevent this from happening again since he's had a history of oral thrush quite regularly.

There's planning on doing a barium X-Ray tomorrow (friday) to make sure there's nothing in his lower abdomen area and to see how his kidney's and such are looking.  Doc and the gastro doctor said that the thrush, because it was so bad would cause terrible vomitting and nausea.  Even just getting fluids through the I.V. and nothing orally he hasn't been quite as sick.  But his lips and mouth are sore from the vomitting, doc and the nurse said it was bile from his stomach so that's why he's sore.

He's also being given demoral and phenergan because all his joints are hurting so bad and he was in agony when he vomitted.  Now he's sleepy, which is a blessing, gives he and his mom some rest.  Though we still have long days.

I worked from 9-12 noon today and then off to the hospital until 10pm, took care of the dog and had to write to give everyone the good news!!

All of you are truly a blessing!!!  TY TY TY TY TY TY TY TY

May which ever god you believe in bless you and your family and watch over you.  I'll keep everyone updated.

Love and Light,
Rev. Michael
Part of my story: "Sale Of A Lifetime" POZ December 2003
http://www.poz.com/articles/172_752.shtml

Started on Truvada and Viramune on 2/15/07

Jan 8, 2007   t-cells 215  Viral Load 10,000  24%
March 26'th  T-cells 306   Viral Load  UNDETECTABLE
June 2007 t-cells 375 Viral Load UNDETECTABLE
August 2007 t-cells 290 Viral Load UNDETECTABLE



Love and Light and Reiki sent your way,
Rev. Michae

Offline Life

  • Member
  • Posts: 2,388
  • Member 2005
Re: Update - Not looking good :(
« Reply #20 on: October 20, 2006, 12:02:07 AM »
Sounds like Louie is in good care...  Get some sleep Michael...

Love

Offline PositivelyYours

  • Member
  • Posts: 133
Re: Update - Not looking good :(
« Reply #21 on: October 22, 2006, 09:00:34 PM »
Hello Michael and Louie, 

You are in all of our thoughts.  Please let us know if we can help you in any way.

God bless and keep the both of you!

Positively Yours
PositivelyYours

Diagnosed: 08/10/2006
08/31/06 CD4:240/VL:39,000
09/12/06 CD4:359/VL:50,000
11/16/06 CD4:509/VL:76,000 (Flu Shot)
02/13/07 CD4:270/VL:69,000
02/17/07 Developed the Shingles
02/20/07 CD4:326/VL (Not Tested)
03/20/07 CD4:484/VL:54,000
06/19/07 CD4:488/VL:51,000
09/18/07 CD4:372/VL:27,000
10/09/07 Took Flu Shot
12/18/07 CD4:408/VL:85,000
03/18/08 CD4:394/VL:116,000 (Still No Meds)
05/22/08 CD4:412/VL:63,000
08/13/08 CD4:362/VL:67,000
09/23/08 Took Flu Shot
10/15/08 CD4:340/VL:54,000
11/14/08 Started Atripla @ 9:45 p.m.
1/30/09 CD4:641/VL:<48 Copies
5/07/09 CD4:667/VL: Undetectable
12/02/09 CD4:759/VL: Undetectable
03/05/10 CD4:537/VL: Undetectable
03/16/10 Rec'd TB Skin Test, Pneumonia & Hep B Vac
04/15/10 Hep B & Tetanus Vac
6/10 CD4: 748 VL: Undet.

 


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