Meds, Mind, Body & Benefits > Insurance, Benefits Programs & HIV

Just started SSDI Process & very scared.

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darryaz:

--- Quote from: Jeff G on July 03, 2013, 09:37:24 AM ---I wish I had not gotten those benefits because it was like I signed away my rights to live any other way than abject poverty .

--- End quote ---

Just thinking out loud here, but I'm wondering if Jeff's experience occurred before the Americans with Disabilities Act went into effect in 1990.  And I'm curious if ADA changed the climate at all.


Jeff G:

--- Quote from: darryaz on July 04, 2013, 09:19:21 AM ---Just thinking out loud here, but I'm wondering if Jeff's experience occurred before the Americans with Disabilities Act went into effect in 1990.  And I'm curious if ADA changed the climate at all.




--- End quote ---

Nothing in the ADA that I am aware addressed the issue .

The best program put forth is the back to work program Betty was talking about . At one point I was living on $870 a month and many times ran out of food the last week before payday . I checked into getting onto food stamps but as a single person I could only get $20 a month in assistance so I never bothered . I tried to find work but no one would hire me in the community where I lived because I was out about my HIV status ... in Alabama .

There are ways to navigate the system but I just wanted to start a conversation about the what living on disability can mean , especially  to the young adult with many years ahead of them . I may have created a hijack of the OP's thread if none of this applies to him but I just thought it needed to be discussed .

The truth is in my situation , I really needed to be on disability many times , and there were times I was able to work if I could have found employment so Betty brought up good suggestions and alternatives .   

jkinatl2:

--- Quote from: darryaz on July 04, 2013, 09:19:21 AM ---Just thinking out loud here, but I'm wondering if Jeff's experience occurred before the Americans with Disabilities Act went into effect in 1990.  And I'm curious if ADA changed the climate at all.




--- End quote ---

ADA did not change the climate. I went on disability in 1994 and currently live off of a little over $700 a month. It is poverty, stigma, and fear. Every year I must prive I have nothing, in triplicate, in appointments I do not schedule and dare not change. I would not recommend it for anyone who wishes to live any sort of meaningful life.

It keeps me from being homeless, and I have internet access.

BT65:

--- Quote from: Jeff G on July 04, 2013, 10:27:28 AM ---Nothing in the ADA that I am aware addressed the issue .

The best program put forth is the back to work program Betty was talking about .

--- End quote ---

This is actually the "ticket to work" program, but I did not use this.  I simply went back to school, got an undergrad degree, and started volunteering.  I also worked with an employment specialist at Goodwill who gave me the lead on that church where I worked with the homeless. 

I was already associated with the ASO where I currently work.  The director closed my case and I could not be a client for a year for them to offer me a job, which happened.  I started out part time, then tried full time, but went back to part time. 

I've heard mixed reviews about the ticket to work program.  I would, if anyone would want to find part time employment and keep their benefits, suggest talking with a benefits specialist which SSA can provide the info in one's area.  Then you will learn the nuts and bolts of going back to work while attempting to keep benefits.

Since I was in the extended period of eligibility, when I worked full time and went back to part time, I only had to go one month without my disability check being reinstated.  When a person is in that period and the work drops to below SGA, the disability gets reinstated quickly.  Now, when that period is up, I have no idea what will happen, if I will be reviewed, if I will be cut off, or what. 

I do know that while one's applying for disability it is suggested the person not work any job where taxes are being taken out, even if it's only 2 hours a week.  Once one is actually receiving disability it's a little different story.

leatherman:

--- Quote from: jkinatl2 on July 04, 2013, 01:07:43 PM ---ADA did not change the climate. I went on disability in 1994 and currently live off of a little over $700 a month. It is poverty, stigma, and fear. Every year I must prive I have nothing, in triplicate, in appointments I do not schedule and dare not change. I would not recommend it for anyone who wishes to live any sort of meaningful life.

It keeps me from being homeless, and I have internet access.

--- End quote ---
preach brother!

however, I have only had net access when I lived with roommates, partners, or family. during my alone yrs without partners or roomies, I had to close my internet account to keep the roof over my head.

living on disability is not for the faint of heart;
but being this poor does keep my access to medications every month.

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