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Author Topic: Exhaustion & Dealing with it  (Read 1803 times)

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Offline Theyer

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  • Current ambition. Walk the Dog .
Exhaustion & Dealing with it
« on: May 08, 2013, 05:37:15 PM »
I have just had two very active days and as usual spent the last 20 hours sleeping.
This is my pattern following any increase in usual activity , I crash unable to stay awake , the record , without being in hospital , was 48 hours.

It can frighten me , as I wake remembering that I was determined to stay awake, coffee is often spilt on bed/chair as I have fallen asleep holding the cup.Even sitting on the toilet does not keep me awake during these periods.

I have sought advice the most repeated being control the level off energy when you have it, this is almost imposable for me as it means stopping what I am enjoying and probably leaving a task part finished. It also means being someone I am not. So I have got to the point off accepting it , playing it by fear , when I am scared enough I call on a friend who either stays on the phone on comes visit and after an hour or two I am usually OK.

Would be very interested in others experiences, I think I have now accepted this is my pattern and am building it in to life, however still feel a bit shaky after an episode.

So does this ring bells for you?

m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline aztecan

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  • 29 years positive, 57 years a pain in the butt
Re: Exhaustion & Dealing with it
« Reply #1 on: May 09, 2013, 12:55:17 AM »
Hey Michael,

I have been known to fall asleep at the drop of a hat, even when I try my best to stay awake.

I haven't slept for 48 hours consecutively, but there are days I think I could.

I wish I had something to help you battle this. The best I can offer is to try to maintain good sleep habits as best you can.

It isn't a cureall, but it does seem to help somewhat.

HUGS,

Mark
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

Offline BT65

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Re: Exhaustion & Dealing with it
« Reply #2 on: May 09, 2013, 05:12:03 AM »
Hi Michael,

When you say the longest was "48 hours," do you mean you slept for 48 hours?  I haven't slept for that amount of hours, but I'm like Mark, I can fall asleep at odd times.  Like when I was taking in-class classes, I would fall asleep while the professor was standing up lecturing.  My classmates would be awake, and I would all of a sudden jerk awake.

I wish I had some answers for you.  Aren't you just getting over some bouts of illness?  I was wondering if this is your body recovering, or if there's something more serious going on your doctor should examine.  Good luck with this, please let us know what's going on through the days ahead.

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Theyer

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Re: Exhaustion & Dealing with it
« Reply #3 on: May 09, 2013, 07:17:52 AM »
Dear Ones,

First to clarify, when i say 48 hours that was the period I was unable to stay awake in , I will wake struggle to stay awake then wake up to Begin it all again. I rarely ether sleep for More than 3 hours at a stretch. This has been so since startinging combo, it had a huge effect on sleeping including not being able to.

It,s midday now and I am finally awake , hopefully tomorrow I will be awake by 10 am.

With out these extremes I have always been a night owl.

Had my regular 3 monthly full bloods check up last week so if there is something in the woodshed it will show.

This has been the way since 2000 or so after my first bout off chemo.

As i thought I would not be alone in dealing with sleep issues thanks for the posts its good to start the day with them.

Hugs, Kisses on both cheeks
m

added-- This happens wether I am getting over illness or not.
« Last Edit: May 09, 2013, 07:20:08 AM by Theyer »
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline deibster

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Re: Exhaustion & Dealing with it
« Reply #4 on: May 28, 2013, 12:54:13 AM »
Hi Michael,
I Don't know if you are on any Psych medications. I became fatigued before I even got an hiv test, so it was Not mental from finding out I was Poz. The test was Poz and I was determined not to be depressed for years like my parents. I'm on antidepressants, less now than when I first started, and on Prescription speed. It has made a world of difference in my life. I'm retired now, but I worked for 12 years after I was diagnosed. Best wishes with it. How old are you?
Big hugs from Provincetown, Deiby
Poz since Dec 1992. Meds since 1995. Disability since 2005.

Prezista/Norvir, Epzicom, Cytomel, Prevacid, pravastatin, Fenofibrate, Remeron, Zoloft, Concerta, doxazosin, Allegra180, Nasocort, Centrum, Flax Oil, Fish Oil

Offline Theyer

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  • Current ambition. Walk the Dog .
Re: Exhaustion & Dealing with it
« Reply #5 on: May 31, 2013, 03:46:50 PM »
Quick up date dear hearts , I am on friends computer back up in the Orkney's and am very pleased to be here.

My energy levels are picking up , and I am more than pleased. The past 3 year's have been very hard and as is so often the case with on going situations it is only when change occurs that one realizes quite how awful things have been.

Thanks for the replies they do cheer, am Grandad sitting for a friend at the moment so will have to be brief.

over and out
m
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Jeff G

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  • How am I doing Beren ?
Re: Exhaustion & Dealing with it
« Reply #6 on: May 31, 2013, 03:55:15 PM »
Maybe I should try Orkney instead or bourbon to lift my spirits ... your update made it a better day , so thanks for that  .     

Offline bill33

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Re: Exhaustion & Dealing with it
« Reply #7 on: June 09, 2013, 07:38:08 AM »
I'm late to this topic but, could you be dealing with low "T". Testosterone supplements have given me a boost. I was always tired and as my T level dropped so did my energy. Just a thought.

Offline Theyer

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  • Current ambition. Walk the Dog .
Re: Exhaustion & Dealing with it
« Reply #8 on: June 13, 2013, 02:34:32 PM »
Welcome Bill ,yes at times my testosterone has been low and I have received both Gel and Depo injection , it affected the levels but I did not notice any change.

Jeff----You are welcome to both a Bourbon in Westray, you would need it today as its pretending to be winter.

Friends comp Quick messages.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline Fisher

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Re: Exhaustion & Dealing with it
« Reply #9 on: June 13, 2013, 04:01:23 PM »
Theyer

Started Atripla last fall and had major sleeping issues. The doc put me on Lunesta and that cleared up the sleeping issues for me.
- fisher
07/14 CD 391 %20 VL UD
04/14 CD 486 %23 VL <20
11/13 CD 351 %21  VL <20
10/13 CD 390 %16  VL <20
06/13 CD 315 %19  VL  22
02/13 CD 396 %14  VL <20
12/12 CD 392 %13  VL 320
11/12 CD 428 %13  VL 1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 Western Blot
05/83 04/98 - Monogamous Partner Being Negative
ARS - Los Angeles Dec '82

 


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