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Author Topic: Undetectables....I have a question  (Read 2618 times)

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Offline racingmind

  • Member
  • Posts: 236
Undetectables....I have a question
« on: October 13, 2006, 05:07:48 PM »
For those of you out there with undetectable viral loads....

Did you feel better after your viral load diminished?  I am not on any meds yet, but I have been dealing with inflamed lymph nodes, periods of slight dizziness, and general fatigue.  I have a viral load of 100,000+. (CD4:442 (28%). It's almost as if I can feel the virus going to town on my body sometimes.

Do you think that I might feel better after going on meds and getting my viral load down? 

Any experiences would be appreciated.

Thanks,
Dxx

Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline blondbeauty

  • Member
  • Posts: 1,785
Re: Undetectables....I have a question
« Reply #1 on: October 13, 2006, 05:12:54 PM »
I feel better since starting meds but I am not undetectable.
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933

Offline newt

  • Member
  • Posts: 3,887
  • the one and original newt
Re: Undetectables....I have a question
« Reply #2 on: October 13, 2006, 05:35:41 PM »
Better since meds, like world's better after 5 days.

a viral infection, flu whatever, makes you feel tired

- matt
"The object is to be a well patient, not a good patient"

Offline J.R.E.

  • Member
  • Posts: 7,275
  • Joined Dec-2003 Living positive, since 1985.
Re: Undetectables....I have a question
« Reply #3 on: October 13, 2006, 06:19:13 PM »
For those of you out there with undetectable viral loads....

Did you feel better after your viral load diminished? 



Hello Racing ,

ABSOLUTELY ! I went from a viral load of 500,000 to <50, within 7 weeks of starting meds, back in 2003. My percentage at that time was around 3%. T-cells were at 16.

 I was also fortunate enough not to suffer any ill effects from the medication. I started feeling better, within a couple days of starting meds. The issues of fatigue/dizziness started diminishing. I started sleeping better. The grogginess went away. I was functioning again ! Couldn't stop eating either !!



Ray

Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 25 mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


Diagnosed positive in 1985,.. In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started on  HAART on October 24th, 2003.

 As of 8/25/14,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 63 years young.

Offline blondbeauty

  • Member
  • Posts: 1,785
Re: Undetectables....I have a question
« Reply #4 on: October 13, 2006, 07:00:42 PM »
I agree with Ray. I have been sleeping better than in the last five years.
The only member in these forums approved by WINBA: World International Nail and Beauty Association.
Epstein Barr +; CMV +; Toxoplasmosis +; HIV-1 +.
Counts when starting treatment:
V.L.:80.200 copies. CD4: 25%=503
Started Sustiva-Truvada 14/August/2006
Last V.L.count (Oct 2013): Undetectable
Last CD4 count (OCT 2013): 52%= 933

Offline racingmind

  • Member
  • Posts: 236
Re: Undetectables....I have a question
« Reply #5 on: October 13, 2006, 07:52:51 PM »
THANKS for your replies....it makes me feel so much better to know that I am not always going to feel like I do now....


 ;D

Dxx
Tested Negative: 5/06
Tested Positive: 9/06 
9/06: CD4: 442 (28%) VL: +100,000
10/06: CD4: 323 (25%) VL: 243,440
11/06: CD4: 405 (28%) VL: 124,324
12/06: CD4: 450 (29%) VL: 114,600
1/07: CD4: 440 (27%) VL: 75,286
3/07: CD4: 459 (30%) VL: 44,860
5/07: CD4: 353 (24%) VL: 50,852
7/07: CD4: 437 (29%) VL: 39,475
9/07: CD4: 237 (32%) VL: 372,774
10/07: CD4: 324 (27%) VL: 115,454 
Started Atripla: 10/07
11/07: CD4: 524 (?%) VL: Undetectable!
2/08: CD4: 653 (35%) VL: undetectable
5/08: CD4: 822 (40%) VL: undetectable
8/08: CD4: 626 (35%) VL: undetectable
12/08: CD4: 619 (36%) VL: undetectable
3/09: CD4: 802 (38%) VL: undetectable
7/09: CD4: 1027 (43%) VL: not tested
10/09: CD4: 1045 (43%) VL: undetectable

Offline whizzer

  • Member
  • Posts: 364
Re: Undetectables....I have a question
« Reply #6 on: October 13, 2006, 08:59:51 PM »
I felt better about two weeks after starting meds. A few weeks after becoming undetectable (which took me six months), I really started to feel like my old self.  The extreme tiredness was no longer a problem.  I was back to sleeping all night and resting soundly.   I got back in the groove of exercising again, after many failed attempts because I was just too damn tired.  I feel really good now.

Some say meds are a curse, to me they are a godsend.  I am lucky to have very few side effects from my regimen.  I just hope this keeps up.

Offline Blixer

  • Member
  • Posts: 712
Re: Undetectables....I have a question
« Reply #7 on: October 15, 2006, 10:08:01 PM »
I had significantly swollen lymph nodes prior to beginning treatment.  That was actually what led my doctor to do the HIV test in the first place.  Within two months of starting meds my lymph nodes had pretty much returned to normal size.  I never had the fatigue factor though.  So I can't address that issue.  I pretty much am keeping up with my old schedule which includes an average of 6 hours of sleep per night and I'm doing fine.
David
Diagnosed 1/9/06
8/27/2007 CD4 598, 29%, VL 58 (72 wks)
11/19/2007 CD4 609, 30%, VL < 50 (84 wks)
2/11/2008 CD4 439, 27%, VL <50 (96 wks)
5/5/2008 CD4 535, 28%, VL <50 (108 wks)
10/20/2008 CD4 680, 28%, VL <50 (132 wks)
Changed to Atripla in 2012
1/14/2013 CD4 855, 35%, VL <40

Offline catwoman

  • Member
  • Posts: 111
Re: Undetectables....I have a question
« Reply #8 on: October 16, 2006, 11:31:30 AM »
I felt better about a week after I started my meds (Jan. '06).  When I was diagnosed (Dec. '05), I had 5 T-cells and my VL was 48,000.  Now, my VL is undetectable and my T-cells are over 200.  I just feel stronger and stronger as time passes.

Offline megasept

  • Member
  • Posts: 478
  • Steven here...
Re: Undetectables....Changing VLs...But never could "tell" the difference
« Reply #9 on: October 23, 2006, 01:58:38 AM »
Dxx: I have never "felt" my HIV. Over 16 years with a VL 43,000 down to as low as undetectable, I have never noticed a change in feeling. I have treated my HIV (no treatment for the last 6 years) so it won't kill me soon or diminish my capacity to enjoy life. I am not always in perfect health. So, if your higher VL is a sign of slightly higher disease progression, then you may well "feel" the improvement in a huge VL drop due to meds, but I have not. Common things like lymph node changes are not the kind of thing I remember months or years later. Good luck! Get treated when it seems best.  8)
-megasept

Offline Ihavehope

  • Member
  • Posts: 1,366
  • Yes, I'm a cry baby, AND WHAT?
Re: Undetectables....I have a question
« Reply #10 on: December 12, 2006, 10:08:53 AM »
Wow Mega

sounds like you have it under control. I was diagnosed last week with the virus and believe I got it about 1 year ago or less. I feel a little different and night sweats but my immune system has been good all my life so I have a good outlook.
Infected: April 2005
12/6/06 - Diagnosed HIV positive
12/19/06 - CD4 = 240  22% VL = 26,300
1/4/07 - CD4 = 200 16% VL = ?
2/9/07 = Started Kaletra/Truvada
3/13/07 = CD4 = 386 22% VL ?

Offline David_CA

  • Member
  • Posts: 3,246
  • Joined: March 2006
Re: Undetectables....I have a question
« Reply #11 on: December 13, 2006, 10:05:38 PM »
For those of you out there with undetectable viral loads....

Did you feel better after your viral load diminished?  I am not on any meds yet, but I have been dealing with inflamed lymph nodes, periods of slight dizziness, and general fatigue.  I have a viral load of 100,000+. (CD4:442 (28%). It's almost as if I can feel the virus going to town on my body sometimes.

Do you think that I might feel better after going on meds and getting my viral load down? 

My numbers were similar to yours... they bounced up and down a bit, but weren't far off.  I was having night sweats, fatigue, a few skin issues, and most recently ended up in the hospital for 8 days with PCP.  I wouldn't have thought I was a 'candidate' for PCP with my CD4's and %, but it happened. 

I've been taking Atripla for about two weeks now with minimal side effects.  I'm on so many other meds at the moment I don't blame a whole lot on the Atripla, 'cept the drunk feeling when I get up in the night to take a leak.  Also, if I take it too early before bed, it's hard to get to sleep. 

The short answer is yes, I feel TONS better since going on meds, even with the few side effects.

David
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

 


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