Meds, Mind, Body & Benefits > Questions About Treatment & Side Effects

Bone scan and testosterone not provided at our clinic.

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CandyO:
Good evening all.I hope everyone's weekend is off to a good start.My husband and I live in a rural area and have no insurance so he is seen at a public health clinic for Hiv.We asked for them to include testosterone and thyroid test to his routine lab test and we were told since they don't treat Testosterone at the clinic they can't include it in his lab work.Also They do not have funding to provide bone scans.Does anyone know where we can have these tests done.We have no insurance and no savings .He is 56 and was diagnosed in 1996 with Hiv and Hep B.Any Ideas are greatly appreciated.We live in Texas.
Thanks so much
CandyO

leatherman:
is there a particular reason why you're asking for these tests? You don't have to been specific, I was just wondering if there was a problem behind the reason for wanting these tests.

Is your husband eligible for Medicaid in your state?
http://www.hhsc.state.tx.us/help/index.shtml
https://www.yourtexasbenefits.com/ssp/SSPHome/ssphome.jsp


edited to add:
poking through your past posts I do see why you're asking about the testosterone - because for over half a year you've been concerned about his libido and sexual function.

Can you visit a general practice clinic, rather than the HIV clinic, to check into this issue? This issue might - but might not be - HIV or med related. It could be age or some other problem.

CandyO:
Thank You Leatherman for your reply and the links.I filled out the forms online for medicaid just now.And I will follow up with a phone call monday.I am concerned about the link between low T and bone density as he has been having hip pain and is currently on zidovudine,The azt in it is a concern to us if there are other options.(We should get a copy of his latest geno this week and will proceed from there.)
As far as the no sex drive and inability to get an erection,He has not been able to get an erection in 13 years.He blames himself and thinks it is all in his head.I know it isn't because he has no nocturnal erections.He is 56 and I am concerned about cardiovascular risks and osteoperosis since he has been on hiv meds for many years and has taken some of the roughest hiv meds.Lately he has lost a lot of weight,His teeth were in horrible shape so we had them all pulled and bought him some dentures.I make sure to cook him 3 good meals a day to keep his strength up.
I am Hiv negative so I don't know how it feels to recieve the diagnosis.My best friend was poz since the early 80's so I attended as many seminars as I could and read as much as I could find out about this virus.Sadly my best friend died 2 years ago.NOT FROM HIV, but from drug addiction and a half gallon of canadian mist daily for years.I am determined to be an advocate for my husband and anyone else in this rural area who are to tired to fight this battle by themselves.
I am truely grateful for this forum and the fellowship that we all share.Every person on this forum is a blessing to me.
Thank you all
CandyO

leatherman:

--- Quote from: CandyO on February 23, 2013, 10:23:51 AM ---I am Hiv negative so I don't know how it feels to recieve the diagnosis.My best friend was poz since the early 80's so I attended as many seminars as I could and read as much as I could find out about this virus.Sadly my best friend died 2 years ago.NOT FROM HIV, but from drug addiction and a half gallon of canadian mist daily for years.I am determined to be an advocate for my husband and anyone else in this rural area who are to tired to fight this battle by themselves.

--- End quote ---
what a lucky man, your husband is; and what a wonderful person you are! Not only be being so pro-active for just your husband; but for others in your rural area.

Although I can't fix any of your problems (hopefully you will be able to get him onto Medicaid and that will be the start of fixing some of y'all's issues), I do hope from reading in these forums that you have seen that you are not alone. Several of us here have dealt with living through those earliest meds, and are still dealing with the consequences. (although I don't mind dealing with some long-term side effects - it sure beats the alternative of being dead without those early meds ;) ) My dental issues came years ago when those early meds had me throwing up daily and that acid destroyed my teeth. Now I'm hearing people are having dental issues that might be related with bone density issues. A bunch of us here live in rural areas too and can understand those hardships. While I'm lucky to have an ASO just 20 miles down the highway, some of my friends here from Missouri have to drive hundreds of miles back-n-forth to see their doctors.

And then of course, there are the financial problems of getting access to care. While some can poo-poo off how easy it is to live with HIV these days, some of us (you and your hubby included) who have dealt with it a long time, know it's only having adequate, consistent access to care that keeps HIV from being the same deadly killer it's always been.

I don't know if anyone else will come along with any other suggestions for you; but definitely keep on posting about the issues you and your husband have. You never know what kind of help you can get or what solutions someone else found until you ask  ;) Make sure to keep us informed about how the Medicaid application goes too! I don't know if that'll be your solution; but I've got my fingers crossed for you (and boy does that make typing much harder. LOL ;D )

aaware72:
While they did not do a bone scan before I started medication.  I did speak to my doctor about having my hormone levels checked to establish a base line.  It is my understanding that HIV medication may effect these hormones.  Seems like a good reason to have these tests done.  My doctor told me that he agree it was good to have these done.   

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