Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
October 24, 2014, 09:41:40 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 643489
  • Total Topics: 48961
  • Online Today: 196
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Assistance With Meds  (Read 1491 times)

0 Members and 1 Guest are viewing this topic.

Offline tysonchicken

  • Member
  • Posts: 8
Assistance With Meds
« on: February 11, 2013, 03:41:26 PM »
I was diagnosed with HIV on April 7, 2012. I found out when I got a call from the Red Cross letting me know that my blood had been rejected because I had tested positive. When I found out, my heart dropped. The Red Cross told me that I would receive a packet in the mail, but no guidance was given as to what programs were available or how to go about finding a Dr. I felt like I was all alone.
After I graduated in May, I decided to enter case management and began to see a Dr. After further testing the Dr told me that I had AIDS. Once I received my results I talked to my case manager about starting medication. She informed me that I needed to fill out paperwork to get the ball rolling. At the time, I was going to be starting a job, so I had to wait until I get my first months paycheck stub in order to complete the application process. After a month went by I gave my case manager my info (including insurance card) and was about to be approved when I was in a car wreck. To make a long story short, I ended up disclosing my status to my boss..one thing led to another...and I was forced to resign. At this point everything was placed on hold and I was told to apply for Medicaid before the program could help. While waiting for this to process, I was eventually able to find another job. Afraid of a similar outcome I put treatment on hold until I had saved up enough sick days for Dr's appointments.
I just recently decided to give treatment another whirl. As of December my t-cells were at 170 and my viral load was at 50,000. My case manager just contacted me last week and told me that I do not qualify for the Ryan White program because I make a little over the income requirement, however my insurance has denied payment for my lab work that was done stating that it was "experimental" in nature and my insurance will only cover up to 25% of my medications. 
Once again, I find myself at a standstill. I am starting to get nervous because I have notice my body getting sicker. I recently started getting sores on my body and I am starting to have more days that I feel crappy then good days. Does anyone know of any assistance programs that may help me with medications. My Dr wants to place me on Atripla (which is quite expensive to my understanding). I am afraid that something may happen before I am able to figure all of the stuff out that I need to to be placed on meds. Any information that someone might be able to share would be greatly appreciated.


Tyson

Online Jeff G

  • Administrator
  • Member
  • Posts: 12,186
  • How am I doing Beren ?
Re: Assistance With Meds
« Reply #1 on: February 11, 2013, 04:01:41 PM »
Hi Tyson welcome to the forum and I'm a fan of your chicken .

The question you asked about meds is quite simply a heartbreaking one to read and even worse one to deal with in your life . I have struggled with access to meds before and I know how overwhelming it can seem .

At the top of the forum you will see the word treatment , if you hover or click on it , it will provide information for drug assistance programs , its a start at least . You can also google Atripla drug assistance program for additional info . Hope this helps . Jeff .

Offline tysonchicken

  • Member
  • Posts: 8
Re: Assistance With Meds
« Reply #2 on: February 11, 2013, 04:09:10 PM »
Jeff-
I appreciate it. It is a start (for that I am thankful). Yeah, it definitely felt like someone had ripped out my heart when I was told I didn't qualify for the program. Keeping my head up tho.

Online Jeff G

  • Administrator
  • Member
  • Posts: 12,186
  • How am I doing Beren ?
Re: Assistance With Meds
« Reply #3 on: February 11, 2013, 04:22:42 PM »
Its a tough thing and Im hoping you keep on it until you get what you need . In the meantime I am confident that the other members here will be a source of support while you find your way . It may help if you keep a journal so you can write down what you have found or searched for while looking for resources , this way you wont waste precious time contacting or researching in places that you have already been . You will get through this , it just takes time .

Offline bmancanfly

  • Member
  • Posts: 592
  • Medicare For All !
Re: Assistance With Meds
« Reply #4 on: February 11, 2013, 04:45:40 PM »
Sorry about your troubles,  I hate sutuations like this.

While Atripla is a fine med there are other,  cheaper ,  meds available.  The recently off-patent Viramune comes to mind.

Have you discussed with your doc the possibility of contructing a combo of off-patent meds.  Or at least partially off-patent combo.  That would be substantially cheaper and partially covered by your insurance.

You also might want to look at this thread
http://forums.poz.com/index.php?topic=32850.0

Best of luck
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline tysonchicken

  • Member
  • Posts: 8
Re: Assistance With Meds
« Reply #5 on: February 11, 2013, 05:05:09 PM »
Thank you so much bmancanfly. I didn't know that there were "generic" HIV drugs out there. That is definitely something that I will bring up at my Dr appointment within the next two weeks.

Also, I hate to keep asking questions, but I was recently was diagnosed with HPV in my rectal region as well. Does this bring possible complications with my status? Thanks so much.

Offline buginme2

  • Member
  • Posts: 3,131
Re: Assistance With Meds
« Reply #6 on: February 11, 2013, 05:15:13 PM »
Thank you so much bmancanfly. I didn't know that there were "generic" HIV drugs out there. That is definitely something that I will bring up at my Dr appointment within the next two weeks.

Also, I hate to keep asking questions, but I was recently was diagnosed with HPV in my rectal region as well. Does this bring possible complications with my status? Thanks so much.

I have the HPV thing going on as well.  At this point > dont worry about it<.   First things first.  Getting the HIV treatment squared away is the priority.  Once thats done and your stable they will start HPV treatment.  Its not going to affect you anytime soon. It takes awhile to progress.  You have time on that.

Offline Newguy

  • Member
  • Posts: 127
Re: Assistance With Meds
« Reply #7 on: February 11, 2013, 05:21:04 PM »
Thank you so much bmancanfly. I didn't know that there were "generic" HIV drugs out there. That is definitely something that I will bring up at my Dr appointment within the next two weeks.

Also, I hate to keep asking questions, but I was recently was diagnosed with HPV in my rectal region as well. Does this bring possible complications with my status? Thanks so much.

ASK ALL YOU WANT!

First off, regarding the HPV, you said you were recently diagnosed with HPV? Do you mean anal warts? If so then you need to get them treated. I don't know where you are but first line therapies usually are liquid nitrogen burning. Are there any clinics providing this service for free near your area? HPV can be a bitch but rest assure it gets much better once your immune system starts to recover. I had a bitch of a time trying to get rid of them from my penis. After giving up on liquid nitrogen, I tried aldara and got the HPV shot. I don't know if it was a combination of the aldara, HPV vaccine or my immune system recovering (I had recently started the meds) but it worked beautifully. Now I don't think you can use aldara for anal treatment but speak to your doctor. I know you have lots on your mind but focus on getting on those meds. Meanwhile you can look to try to get those warts burned off. Once you are stable and you have taken all this in, and you will be stable! You can think of getting the HPV vaccine. It is not meant to treat what you have now but it can protect you for future infections.

GOOD LUCK


Offline bmancanfly

  • Member
  • Posts: 592
  • Medicare For All !
Re: Assistance With Meds
« Reply #8 on: February 11, 2013, 05:38:42 PM »
Your welcome

A company called Cipla makes a generic version of Atripla called Viraday.   It is not currently available legally in the U.S.

There have been rumors the some members here buy it online and have it shipped to them <gasp>.   But that is not legal.

Have you checked with your local AIDS  Services  Organization?
There may be some local help available that people here aren't aware of.

 Hopefully you'll find a quick resolution to your situation.  The sooner you get on meds the better.



"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline buginme2

  • Member
  • Posts: 3,131
Re: Assistance With Meds
« Reply #9 on: February 11, 2013, 05:41:30 PM »
Lets not get side tracked here.  First things first. Getting you HIV treatment.

HPV is a lot more than just warts.  Its causes anal intraepithilial neoplasia which is a precancerous condition that can lead to anal cancer.  Its common in HIV positive individuals especially men who have sex with men.  There are numerous treatments. 

Again dont worry about it now. It takes years to progress and sometimes years to treat.  I have been treated for it for close to two years and still going through treatment.

Newguy or anyone else with HPV questions lets start a different thread. Until then lets shelve it and focus on getting the OP into HIV care.

Offline Newguy

  • Member
  • Posts: 127
Re: Assistance With Meds
« Reply #10 on: February 11, 2013, 05:44:22 PM »
Lets not get side tracked here.  First things first. Getting you HIV treatment.

HPV is a lot more than just warts.  Its causes anal intraepithilial neoplasia which is a precancerous condition that can lead to anal cancer.  Its common in HIV positive individuals especially men who have sex with men.  There are numerous treatments. 

Again dont worry about it now. It takes years to progress and sometimes years to treat.  I have been treated for it for close to two years and still going through treatment.

Newguy or anyone else with HPV questions lets start a different thread. Until then lets shelve it and focus on getting the OP into HIV care.

Agreed! Getting on those ARV's is number one priority!

Good Luck

Offline tysonchicken

  • Member
  • Posts: 8
Re: Assistance With Meds
« Reply #11 on: February 11, 2013, 05:48:10 PM »
My Dr. wants me to see a specialist within the next few months for the HPV thing. In regards to the medication topic. Thank you guys so much. I have thought about posting on this site for a while, but was scared for some reason. I am glad that I mustered enough courage to finally post. It helps knowing that I can talk to people who are going through the same thing.

Offline tysonchicken

  • Member
  • Posts: 8
Re: Assistance With Meds
« Reply #12 on: February 11, 2013, 05:48:41 PM »
I will definitely keep you guys posted.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.