Meds, Mind, Body & Benefits > Research News & Studies

CD4 Only Needed Once A Year When UD, Another Study Says

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buginme2:

--- Quote from: jkinatl2 on February 02, 2013, 03:59:15 PM ---But a 500 point drop IS worthy of a conversation, no?

--- End quote ---

Yes, bad example on my part.


--- Quote from: jkinatl2 on February 02, 2013, 04:16:46 PM ---The major issue I have with it is terror masked as bravado, and willful ignorance cloaked in dismissive arrogance.

 this forum is rather replete with cautionary tales from people in their early twenties who disavow knowledge of and participation in their treatment.



--- End quote ---

I agree.  I don't get it (and I was diagnosed a few years ago although I'm no longer in my twenties).  However, it's not everyone newly diagnosed.  I go to the doctor no less than 6 times a year.  Twice a year to the HIV doc, once a year to the dermatologist, and three times a year to the anal dysplasia clinic which is part of the HIV program at the medical center I go to.  And those are just routine appointments, if I am sick it goes up.  I am very engaged in my care and stay on top of my treatment. 


Newguy:

--- Quote from: jkinatl2 on February 02, 2013, 01:19:23 AM ---Please do. I smell a really strong bias. From what I have read, this mode of operation works only with newly infected people, and only for those with the socioeconomic status to maintain drug adherence and availability over a sustained length of time.

This is, of course, barring unforeseen resistance, lipid and other issues.

I might be reading a lot into Newguy's writing, but I detect a level of condescension towards those who fall outside that rather narrow class of HIV infected persons that is difficult to ignore.

Is this the wave of the future? Probably. Along with treatment-as-prevention in lieu of condoms, and other advances. But I rather thinkit's arrogant to proclaim that one person's extraordinary luck with HIV treatment means that everyone else is doing it wrong.

Also, and in order to maintain my status as the grandmother who reminisces about WW2, extraordinary luck tends to run out. I hope that Newguy will take over the reigns at an ASO, or fight like hell to get the antiquated HIV criminalization laws stripped from the books, or perform services similar to the dinosaurs on whose shoulders he proudly stands.

Like running this forum, and stuff.

--- End quote ---

WOW! I had no idea my sharing my personal experience with HIV treatment would cause such a fuss. One more time I will walk you through this.

I have an HIV infection. This means that I need to take medications to suppress the virus. Currently I am taking Truvada and Isentress. I have a year supply of prescription and pay for them via an insurance program here in Ontario. It is like 5% of my income. Secondly I have two doctors, my ID specialist and my family doctor. I don't like visiting the doctors every three months, it gives me anxiety! I hate taking the time off work and it costs me money. I have to pay for parking and so on and so forth. So, I asked him if he can give me a supply of requisite forms and I will go get my blood panel done and should there be any problems with CD4, Viral, sugar, lipids, liver and the other 10 biochemistry tests he looks at he will give me a call. How is this any different than going to see him in person to get the results? If I have some other problem, I go see my family doctor. I take my pills religiously and have been 100% compliant. I don't mess with the medication as I clearly understand the consequences. The less I see my ID doc the more time he can devote to cases that are more serious. I am still in treatment, very much engaged and I take my HEALTH VERY VERY VERY VERY seriously.

This thread was a research article stating that once a year CD4 monitoring might be fine. I feel more comfortable with twice a year blood panel but I do trust the scientists and doctors in control. I think this is great news for many people since it takes away the stigma that although HIV can still be very serious it can be managed if properly treated.

And as far as your ASO comment? I would never join one (I have my reasons) I am one. I have managed to get three guys to stop hard drug use and start treatment just in the last 6 months. All people with HIV should be walking ASO organizations, and help one another even if it is with just compassionate chat, it helps immensely! From experience.

Best

Jeff G:
I hope it didn't seem like a fuss , its just more of the same of what we do here and that's exchange information and opinion .

anniebc:

--- Quote from: jg1962 on February 02, 2013, 07:02:18 PM ---I hope it didn't seem like a fuss , its just more of the same of what we do here and that's exchange information and opinion .

--- End quote ---

I didn't see any fuss, just great advise and information from JK and the other old dinosaurs who know the ropes and tell it like it is, they don't talk to us like we are children, nor do they patronise us, like some people I could mention, I really like that about them.

Aroha
Jan :-*

wolfter:

--- Quote from: jg1962 on February 02, 2013, 04:41:39 PM ---
Many of us old dinosaurs or aidsosaurus as I'm fond calling us sometime didn't get where we are because we are stuck in the past and refuse to adapt . I think its not accurate to paint us like that at all because most of us have reinvented ourselves more times than we can remember . To be honest , the optimist in me likes the fact that I appear old and out of touch because I was told I would never get old much less so old I'm out of touch .

--- End quote ---

Major win....thank you!!!!  And though I appreciate perspectives from newbies, to be dismissed is a great disservice. 

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