Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
September 23, 2014, 10:20:26 AM

Login with username, password and session length


Members
Stats
  • Total Posts: 639854
  • Total Topics: 48575
  • Online Today: 212
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: 2 years  (Read 1155 times)

0 Members and 1 Guest are viewing this topic.

Offline klassykitty

  • Member
  • Posts: 381
2 years
« on: January 30, 2013, 09:35:21 PM »
YEA!!!!  2 years later my CD4 has gone above 100, (I know it was above 100 before, but it fell back way down so I don't count that).
My VL is still ud
My doctor still calls me his "mystery patient", and still says "see you in 3 months".( I told him he can use me as a test patient to find out why CD4 is such a bugger and VL is doing it's thing) .
There was talk of possibly adding Selzentry, I have 3 months to decide.
Nurse Vampire only got to take blood and didn't get to give shots.  I told her maybe this time next year.
Michelle 8)
How to handle stress like a dog:
If you can't eat it or play with it.....
then pee on it and walk away

Diagnosed 01-20-2011
01-23  CD4 32    VL 125,400
02-18        76     VL 189
03-14  no cd4 test done   VL-52
04-14   69  VL-UNDECTABLE  YEA!!
05-26   50  whoopsy  
06-27   71        %-7
08-15   64 WTF %-9 
10-16  80         %7  
2012  CD4  %Thing   VL-UD
01-18  87    7
04-18  93    8  
07-16  151  8         
10-18  83    9    VL-70
2013   CD4   %thing       VL-UD
01-28  121     9
04-24  148    11   
07-25  157    11   
10-22  185    13
2014   CD-4  %thing   VL-UD
02-07 201 YEA!!!!!!  12
06-03  205      12

Offline emeraldize

  • Member
  • Posts: 3,348
Re: 2 years
« Reply #1 on: January 30, 2013, 10:05:53 PM »
Congratulations KK -- glad you've got a devoted doc.

Offline Rev. Moon

  • Member
  • Posts: 3,782
  • Smart ass faggot ©
Re: 2 years
« Reply #2 on: January 30, 2013, 10:19:28 PM »
Happy AIDSaverssary to one of my favorite gals in this forum.

Hugs  :-*
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline tednlou2

  • Member
  • Posts: 4,888
Re: 2 years
« Reply #3 on: January 30, 2013, 11:03:58 PM »
Good to hear.  I've heard several people here say they weren't seeing much an increase for a few years, and then they saw increases. 

Offline wolfter

  • Member
  • Posts: 4,548
Re: 2 years
« Reply #4 on: January 30, 2013, 11:21:28 PM »
Congrats.  There have been several of us who were slow to see our numbers climb.  Mine eventually really started going up and I plan on having more cd4's than anyone.  :)

Wolfie
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline leatherman

  • Member
  • Posts: 6,204
  • Google and HIV meds are Your Friends
Re: 2 years
« Reply #5 on: January 31, 2013, 08:54:08 AM »
(I know it was above 100 before, but it fell back way down so I don't count that).
it's probably the "fell back way down" part that really counts. Studies have shown that people who reach a pretty low cd4 nadir (that's the lowest point) often have a hard time recovering cd4s, take a long time recovering, and often never recover very much.

I'll use myself as the example. Having hit some cd4s lows of 5, 17, 12 (these happened in the first 5 yrs of having AIDS), it took me 18 yrs to reach 300. And while 300 isn't all that high and I spent most of the last decade in the low 200s, I also haven't been back in the hospital in 14 yrs 10 months.

So it's not always about how many cd4s you have, but how well they work. ;)
It's really all about staying UD.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Online Jeff G

  • Administrator
  • Member
  • Posts: 11,810
  • How am I doing Beren ?
Re: 2 years
« Reply #6 on: January 31, 2013, 09:13:19 AM »
Congrats Michelle . I began treatment with a high viral load and low CD4 count and its taken me 13 or more years to get my numbers above 500 . It took about 5 years to see numbers consistently above 200 ish . Its a long haul but you most likely will get there soon enough . Its been pointed out and its true , its the big picture that counts and yours is looking good ! .   

Offline darryaz

  • Member
  • Posts: 450
Re: 2 years
« Reply #7 on: January 31, 2013, 09:30:06 AM »
I also haven't been back in the hospital in 14 yrs 10 months.

I'm glad to know I'm not the only one who counts months.  2 years 3 months here.

Offline OneTampa

  • Member
  • Posts: 2,204
  • "Butterflies are free."
Re: 2 years
« Reply #8 on: January 31, 2013, 04:37:38 PM »
Wonderful news for you Michelle!

 :)

Me: Total of 28 years this January HIV+.

I am another one where it took me over 15 years to get over 500 CD4 after starting out under 100.  Now undetectable over 12 years and running in the 700s-800s CD4.

So, improvement can indeed happen!

 :)

Take care.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline WillyWump

  • Member
  • Posts: 7,184
  • your ramblings bore Yamaguchi Kitteh
Re: 2 years
« Reply #9 on: January 31, 2013, 06:47:15 PM »
Congrats Michelle! Onward and upward my friend!

-Will
POZ since '08

Last Labs-
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline leatherman

  • Member
  • Posts: 6,204
  • Google and HIV meds are Your Friends
Re: 2 years
« Reply #10 on: January 31, 2013, 08:45:23 PM »
it took me 18 yrs to reach 300.
and 20 yrs to reach 430! I just got labs back today and in the last 4 months went from 310 to 430 - the highest I've ever had!! WooHoo!

so hang in there Michelle. I'm sure it won't take you decades  ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline oksikoko

  • Member
  • Posts: 680
  • Writing the congressman again
Re: 2 years
« Reply #11 on: February 01, 2013, 07:27:08 PM »
and 20 yrs to reach 430! I just got labs back today and in the last 4 months went from 310 to 430 - the highest I've ever had!! WooHoo!

Congratulations! And to you, Michelle. That's great news. :)
Code: [Select]
2013-10-03:                ☣ VL (?) off treatment ☣ CD4 (?) off treatment
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

If no one complains, nothing will ever change.

Offline mitch777

  • Member
  • Posts: 3,542
Re: 2 years
« Reply #12 on: February 01, 2013, 07:35:45 PM »
great news all around! :)
31 years hiv+ (oct. 2013) with a curtsy.

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.