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Author Topic: Good news time  (Read 1588 times)

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Offline bob_89q

  • Member
  • Posts: 29
Good news time
« on: January 23, 2013, 03:34:32 AM »
 :)
I just want the forum to know that my viral load is undetectable!
I was given the HIV diagnosis Oct 2012 with a viral load of nearly one million and a CD4 count of 123. I started Atripla in nov and now my cd4 count is 390.

My next battle is to try and sort my mind out. I see a psychiatrist on a very regular basis, but to be honest it will be time that heals.

Reading this forum has provided the support I have needed this far. So I think it important for readers to give their 'condition' time. I look forward to giving my next input to the forum in the near future.

Offline thunter34

  • Member
  • Posts: 7,317
  • His name is Carl.
Re: Good news time
« Reply #1 on: January 23, 2013, 11:54:30 AM »
Bob, congratulations!  So glad you've reached the UD status, and that you are availing yourself on help on the mental health front.  So many people around here don't - to their obvious peril.  Yes, it is going to take time, but you are doing something VERY important:  you are being proactive  in dealing with this disease.  It makes all the difference in your success with the disease (and I'd say in your success with these forums as well).

I'd also like to take a moment to say how happy I am to read of a new member who is having a positive experience on these boards and is finding it a valuable resource for them! 

Don't be a stranger, Bob!  Keep us updated on your progress!

My absolute best,

Tim
AIDS isn't for sissies.

Offline spacebarsux

  • Member
  • Posts: 1,350
  • Survival of the Fittest
Re: Good news time
« Reply #2 on: January 23, 2013, 12:23:45 PM »
Bob, congratulations!  So glad you've reached the UD status, and that you are availing yourself on help on the mental health front.  So many people around here don't - to their obvious peril.  Yes, it is going to take time, but you are doing something VERY important:  you are being proactive  in dealing with this disease.  It makes all the difference in your success with the disease (and I'd say in your success with these forums as well).

I'd also like to take a moment to say how happy I am to read of a new member who is having a positive experience on these boards and is finding it a valuable resource for them! 

Don't be a stranger, Bob!  Keep us updated on your progress!

My absolute best,

Tim

Ditto.  :)
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline jkinatl2

  • Member
  • Posts: 6,007
  • Doo. Dah. Dipp-ity.
Re: Good news time
« Reply #3 on: January 23, 2013, 02:38:10 PM »
This thread is a breath of fresh air.

Thanks for showing folks how it's done, Bob!

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline WillyWump

  • Member
  • Posts: 7,228
Re: Good news time
« Reply #4 on: January 23, 2013, 07:55:37 PM »
I love news like this! Congrats! Onward and upward now!

-Will
POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir
.

Offline wolfter

  • Member
  • Posts: 4,700
Re: Good news time
« Reply #5 on: January 23, 2013, 08:39:50 PM »
Great results!!!!  Continue the course and thanks for sharing your positive experience.

Wolfie
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Online tednlou2

  • Member
  • Posts: 5,045
Re: Good news time
« Reply #6 on: January 24, 2013, 01:50:10 AM »
Congrats, Bob.  All the best on continued success.

Offline bob_89q

  • Member
  • Posts: 29
Re: Good news time
« Reply #7 on: January 24, 2013, 07:10:27 AM »
Oh my.
I am so happy that people have commented.
I suppose I want to take control, and not let the condition control me.
Now, let me tell u that a health worker (and ex friend) took an unauthorised look at my medical notes then 'accidentally' disclosed my status. His defence - he was so shocked to see that I had HIV he had to tell people to reduce his shock!
When I found out and told the managers they just told him not to do it again! Now I don't feel I can work with him.

Offline thunter34

  • Member
  • Posts: 7,317
  • His name is Carl.
Re: Good news time
« Reply #8 on: January 24, 2013, 08:11:24 AM »
Oh my.
I suppose I want to take control, and not let the condition control me.


^ YES YES YES.


Now, let me tell u that a health worker (and ex friend) took an unauthorised look at my medical notes then 'accidentally' disclosed my status. His defence - he was so shocked to see that I had HIV he had to tell people to reduce his shock!


While not a medical worker, I have also had this experience...where people just had to put their needs first and soften the shock for themselves by blabbing to others.  Poor dears.
AIDS isn't for sissies.

Offline wolfter

  • Member
  • Posts: 4,700
Re: Good news time
« Reply #9 on: January 24, 2013, 01:32:55 PM »



While not a medical worker, I have also had this experience...where people just had to put their needs first and soften the shock for themselves by blabbing to others.  Poor dears.

I imagine a lot of have experienced this.  My own dear baby sister "outed" me to someone within our local area years ago.  A barmaid no less.  The next time I stopped at the pub, she asked me about my condition and inquired how I was doing.

I felt so terrible for my sis having to go through that pain. 
Complacency is the enemy.  ;)  Challenge yourself daily for maximum  return on investment.

Offline Souledout

  • Member
  • Posts: 145
Re: Good news time
« Reply #10 on: January 24, 2013, 03:40:42 PM »
That's outraged me. I had concerns over someone I know working at my doctors and word getting out without my say so. I had a very long chat with the doctor who put my mind at rest. She said she'd use a similar situation as part of the staff's training to highlight the need for discretion and also that she had never known of anyone to break confidentiality in that way. She did say it would be a sackable offence. I can't believe he still has his job.
Infection sometime April-August, no noticable seroconversion symptoms
Not currently on medication
13/09/12 CD4 672 (33%) VL <40 (diagnosis date)
18/09/12 CD4 ?               VL 43
27/09/12 CD4 ?               VL 127
19/11/12 CD4 676 (38%) VL 959
03/03/13 CD4 642 (32%) VL 291
04/07/13 CD4 791 (33%) VL 26,437 (active cold sore, tooth infection)
18/07/13 ------retest------VL 3704
18/11/13 CD4 802 (36%) VL 65

Offline emeraldize

  • Member
  • Posts: 3,362
Re: Good news time
« Reply #11 on: January 25, 2013, 07:58:46 AM »
Hi Bob,

I agree with everyone else -- this sure is a good read for many reasons.

Can you straighten me out on one item? "When I found out and told the managers they just told him not to do it again! Now I don't feel I can work with him."

Is this person on your care team? In what way would you "work" with him? And another question...are you in the US? I suspect not by the way you spell 'defence' but I could be wrong. Perhaps it's me, but I'm not understanding how you found out he did this. 

In the US, this sort of behavior can mess you up professionally.

Back to the good stuff...seeing a mental mechanic is definitely helpful and then the rest is up to you.

Em

Offline Fisher

  • Member
  • Posts: 283
Re: Good news time
« Reply #12 on: January 28, 2013, 09:13:39 AM »
Excellent news, Bob. Started Atripla about the same time as you.  Hoping for excellent news on my next round of tests. These first few months have been "quite the ride," but we've survived and managed them!
- fisher
09/22 CD 385 %22 VL UD
07/14 CD 391 %20 VL UD
04/14 CD 486 %23 VL <20
11/13 CD 351 %21  VL <20
10/13 CD 390 %16  VL <20
06/13 CD 315 %19  VL  22
02/13 CD 396 %14  VL <20
12/12 CD 392 %13  VL 320
11/12 CD 428 %13  VL 1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 Western Blot
05/83 04/98 - Monogamous Partner Being Negative
ARS - LA '82

Offline bob_89q

  • Member
  • Posts: 29
Re: Good news time
« Reply #13 on: January 31, 2013, 07:30:50 PM »
Hi every one and sorry for not replying sooner. Things have gotten busy for me as I will explain in a minute.
Em - I am a nurse and the person who looked at my records is also a nurse. However he has abosolutly nothing to do with my HIV care and had no autorisation to check my notes. Yes it is a serious breech of confidentiality and had told him on previouse occasions that it would be my worst nightmare if it was to happen. Get this, he is now angry that I could have got him sacked!
I am not in the US, and yes leaking my status would have very damaging consequences as its only a small area of nursing.
I am not at work due to the stress of this.
What I have been doing is applying for jobs over in Canada !
So is there anybody from Alberta here?

 


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