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Author Topic: what to expect?  (Read 2225 times)

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Offline texaninnyc87

  • Member
  • Posts: 247
what to expect?
« on: December 19, 2012, 09:00:36 PM »
So i was diagnosed in september. finally got all my counts and stuff a few weeks ago. i'm waiting to go on meds until i get back from traveling for the holidays. right now my cd4 is right around 300 and my vl is pretty high at 129,000. i've most likely been positive for years and not known. the past few years ive consistently had issues with random itchy dry patches of skin. other random ailments as well, such as days of just feeling weird and out of it, and issues with acne. can i expect these issues to go away as my cd4 count goes up and my vl goes down? i've mentioned all this to my doc who didnt seem worried about it, but im sure right now her primary goal is getting my hiv under control before she worries about my breakouts. i guess what i'm wondering is if most of this should clear up on its own when my counts are better or if it is something that needs to be adressed separately. will i physically feel "better" once my vl gets under  control? any advice would be much appreciated!
Dxd: 9/11/12
Blot confirmed: 11/12
12/12 cd4: 280 (20%) vl: 129,000
1/13 $tribild
2/13 cd4: 350 (26%) vl: 80
4/13 cd4: 510 (29%) vl:: 35
6/13cd4 350 (31%) vl: 21
9/13 cd4 492 (30%) vl: ud
12/13 cd4 846 (36%) vl: 100
1/14 cd4 480 (31%) vl: UD
3/14 cd4 650 (33%) vl: UD
6/14 cd4 410 (35%) vl: UD
9/14 cd4 439 (38%) vl: UD
12/14 cd4 551 (37%) vl: UD

Offline buginme2

  • Member
  • Posts: 3,426
Re: what to expect?
« Reply #1 on: December 19, 2012, 09:30:21 PM »
Initially you may experience a flare up of skin conditions as your immune system gets stronger and starts to react.  Then things will start to calm down.  Yes, After About 6 months on meds I remember thinking to myself "damn I havent felt this normal in a long time."  Bottom line, it may not happen over night but you will feel better.
Don't be fancy, just get dancey

Offline texaninnyc87

  • Member
  • Posts: 247
Re: what to expect?
« Reply #2 on: December 20, 2012, 08:47:23 PM »
i have a few recurring dry patches of skin that wont heal. im very fair and life guarded for 4 years when i was younger so i always tend to worry about skin cancer. they are very light pink and seem to go away for a while but then come back. they are very very light so that i am probably the only one who really notices them but they are definitely still there. one is on my nose and one is on my neck.
should i wait to see if meds help the patches go away as my immune system rebuilds or should i go see a dermatologist?
« Last Edit: December 20, 2012, 09:05:12 PM by texaninnyc87 »
Dxd: 9/11/12
Blot confirmed: 11/12
12/12 cd4: 280 (20%) vl: 129,000
1/13 $tribild
2/13 cd4: 350 (26%) vl: 80
4/13 cd4: 510 (29%) vl:: 35
6/13cd4 350 (31%) vl: 21
9/13 cd4 492 (30%) vl: ud
12/13 cd4 846 (36%) vl: 100
1/14 cd4 480 (31%) vl: UD
3/14 cd4 650 (33%) vl: UD
6/14 cd4 410 (35%) vl: UD
9/14 cd4 439 (38%) vl: UD
12/14 cd4 551 (37%) vl: UD

Offline lincoln6echo

  • Member
  • Posts: 109
Re: what to expect?
« Reply #3 on: December 29, 2012, 01:04:10 AM »
Hey Tex. My ID doc sent me to the Dermatologist right away pretty much.
She told me to expect skin issues off and on for a while and put me on a compound for my face.   
The name of it is: Elidel with 2% Ketoconazole
It's expensive but if you have insurance it may cover it. 

It's helping but I still get flare ups.

Offline WillyWump

  • Member
  • Posts: 7,367
Re: what to expect?
« Reply #4 on: December 29, 2012, 06:21:26 PM »
I had skin issues early on, weird dry and sometimes oily patches. They stuck around for about a year, but eventually went away completely.

POZ since '08

Last Labs-
11-6-14 CD4- 871, UD
6/3/14 CD4- 736, UD 34%
6/25/13 CD4- 1036, UD,
2/4/13, CD4 - 489, UD, 28%

Current Meds: Prezista/Epzicom/ Norvir

Offline Fisher

  • Member
  • Posts: 290
Re: what to expect?
« Reply #5 on: December 30, 2012, 06:47:43 PM »
Hey Tex:

What to expect? 

In my opinion. your CD4+ is on the low end of normal, very similar in VL and CD4+ when my immune system lost control of HIV.

What to expect?

A wonderful life, a wonderful future, which you've known all along, in the sincerity of your own heart and being . . . you've been all along . . . despite the strengths and weaknesses, the triumphs and failures.

Do not fear or have anxiety.  Easier said then done. 

But please trust that all is well.  You are in no danger.
- fisher
06/15 CD 365 %24 VL<20
01/15 CD 468 %24 VL<20
09/14 CD 385 %22 VL<20
07/14 CD 391 %20 VLUD
04/14 CD 486 %23 VL<20
11/13 CD 351 %21  VL<20
10/13 CD 390 %16  VL<20
06/13 CD 315 %19  VL 22
02/13 CD 396 %14  VL<20
12/12 CD 392 %13  VL320
11/12 CD 428 %13  VL1200
*Started Meds: Atripla
10/12 CD 427 %11  VL 139000 -- 09/12 CD 408 %13 VL 92928
09/11 CD 745 %27 VL CLOT -- 10/10 CD 863 %29 VL 2782
10/09 CD 597 %30 VL 2537 -- 05/08 CD 809 %28 VL 1504
04/07 CD 797 %25 VL 3558 -- 11/06 CD 720 %28 VL 1214
06/05 CD 731 %25 VL 1575 -- 12/04 CD 1176 %30 VL 1329
01/04 CD 959 %26 VL 1011 -- 11/03 CD 1000 %28 VL 1581
12/02 CD 748 %28 -- 10/01 CD 860 %25
08/00 CD 1022 %28 -- 04/99 CD 854 %27
11/98 CD 899 %28 -- 02/97 CD 1400 %37
11/96 CD 1325  VL <500 -- 09/96 Western Blot
05/83 04/98 - Mon - Pa

Offline mikeyb39

  • Member
  • Posts: 980
Re: what to expect?
« Reply #6 on: December 30, 2012, 11:55:34 PM »
i get those eczema flare-up still from time to time, mostly around my beard and eye-brows.  I tried Elidel, but it made my face burn, so doctor switched me to a cortizone prescription cream.  It has 3 types of medications in it and they also have it in generic as well.   i only use it when i get a flare-up.

you will do fine, it just will take a while to get into the groove of things.
11/02/2010  cd4-251, vl-591000
12/09/2010  started Atripla
02/18/2011  cd4-425, vl-800
06/10/2011  cd4-447, vl-70
10/10/2011  cd4-666, vl-80
01/05/2012  swiched med (prezista,norvir ,isentress, )
02/10/2012  cd4-733, vl-UD  Viread removed
06/10/2012  cd4-614, vl-UD
12/14/2012  cd4-764, vl-UD
09/01/2013  cd4-785, vl-UD
03/06/2014. cd4- 1078, VL-UD
09/05/2014  cd4-850 , VL-UD
09/05/2014 switched meds isentress, prezcobix -still only two antivirals
10/14/2015  cd4-600 , VL-UD


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