Quantcast

Subscribe to:
POZ magazine
Newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr Instagram
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
November 28, 2014, 07:09:14 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 647759
  • Total Topics: 49366
  • Online Today: 210
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online
Users: 6
Guests: 133
Total: 139

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: Hello and some questions  (Read 1516 times)

0 Members and 1 Guest are viewing this topic.

Offline BlueSkies

  • Member
  • Posts: 4
Hello and some questions
« on: December 03, 2012, 01:12:55 PM »
Hello all,
I was diagnosed in August and have been reading threads on here since then. This site and your threads have been a great source of information.  Thank you.  And thank you to the posters who are able to be funny even though this is a serious issue... the smiles are always appreciated.

It has been a roller coaster of emotions and thoughts since diagnosis, but seems to be evening out as time goes on.  Physically, I feel fine.  Any seroconversion sickness must have been mild.

I have some questions on my numbers below.  Have asked them to Doc, but curious what others around here have experienced.  Doc currently recommends holding off on treatment.  I have seen some posters on here with similar numbers who have waited and some who have started treatment.  Is there any harm in waiting?  Also, the VL number went up by 10x between 1st and 2nd/3rd tests.  The number still seems relatively low, but isn't a change that large significant? And I have read different stuff about the CD4%.  Some sources say it should be at around 30% and other sources say not to think too much about the % and focus on the CD4 count.  (My CD8 counts are very high at over 2200).
09/11: neg
08/12: poz
08/12: CD4 736, 23% VL 350
09/12: CD4 940, 23% VL 3060
11/12: CD4 740, 22% VL 2970

Offline anmlvrnyc

  • Member
  • Posts: 22
Re: Hello and some questions
« Reply #1 on: December 03, 2012, 02:12:36 PM »
hello blueskies,
sorry about your diagnosis.
My doctor keeps an eye on CD4% and CD8 as well as CD4 and VL. I'm not on meds yet.
She pays more attention to the pattern of how the numbers change over time. My CD4% had been decreasing from 40% to 30% last year. My doctor was very concerned about the decreasing but then it went back up to 35% earlier this year. If

My CD8 was 594 when I was diagnosed. It has been about 800 ever since. My doctor had explained that if your immune system is always active fighting back the virus, your CD8 goes up. and it's not good for your body. She said sooner or later your immune system will slow down and the virus will take control of your body.

My VL has been from 65 to 200, which is not a lot of fluctuation. But regardless of the low VL if my CD4% continuously decreases and CD8 increases, I'm in trouble. That means my immune system is slowing down and I should start treatment right away.

My initial reaction to treatment was a no. but if my body can't fight the virus any more, i will need to start treatment.

One more concern i have for my case is that they couldn't perform geno type test because my vl was too low. so they can't tell me what meds i should take unless my vl significantly increases.

i have met a lot of people who were not on meds for years. they all started treatment at some point and they are all healthy.

i hope this helps with your questions a little. take a deep breath. it's not the end of the world.
take care.

Offline tednlou2

  • Member
  • Posts: 5,054
Re: Hello and some questions
« Reply #2 on: December 03, 2012, 03:03:23 PM »
Your numbers are definitely not bad and not at a point where you need to make a quick decision.  It is clear you were infected less than year before your diagnosis.  You could have many more years of stable numbers.  Of course, you could progress more quickly.  If you're someone who wants to start meds right away, which is now becoming the expert recommendation, then you could do so.  If you need more time, like many of us, to process this and wait for a trend, your labs are not in an emergency situation by any means. 

Modified to add:  Welcome to the forums.  Keep in touch.  It is true that untreated virus can cause inflammation, as the immune system is working hard to fight the virus.  But, you may have been poz just a few months.  For all we know, you could see an improvement in your numbers.  Do you have any idea when you were infected?  Regardless, you know it's less than a year.  All the best.
« Last Edit: December 03, 2012, 03:10:36 PM by tednlou2 »

Offline Miss Philicia

  • Member
  • Posts: 24,427
  • celebrity poster, faker & poser
Re: Hello and some questions
« Reply #3 on: December 03, 2012, 03:16:25 PM »
Also, the VL number went up by 10x between 1st and 2nd/3rd tests.  The number still seems relatively low, but isn't a change that large significant?

1) the first number could be an outlier, you'll know more by a few more tests

2) it didn't actually increase by a multiple of 10, that's not how viral load is measured. Increases and decreases are measured in "logs" so the counting is more like 300 to 600 increase is only one log. 300 increasing to 1200 is two logs, etc. You're doctor really should have explained that to you to alleviate any anxiety.

3) your doctor is following standard treatment guidelines by recommending no treatment at this point.
"Iíve slept with enough men to know that Iím not gay"

Offline BlueSkies

  • Member
  • Posts: 4
Re: Hello and some questions
« Reply #4 on: December 04, 2012, 11:55:11 PM »
Thanks for the info everyone.  I guess I was just surprised at the Doc's wait and see approach for now.   Seems when you read a lot of people's signatures on here, treatment can come pretty quickly after diagnosis.  But you're right, not everyone's.  tednlou2, you asked if I knew when I got infected.  I think at most 6 months before the diagnosis, but I don't know for sure.
09/11: neg
08/12: poz
08/12: CD4 736, 23% VL 350
09/12: CD4 940, 23% VL 3060
11/12: CD4 740, 22% VL 2970

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.