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Author Topic: Medicade and Georgia  (Read 1506 times)

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Offline HAGGAR

  • Member
  • Posts: 4
Medicade and Georgia
« on: November 14, 2012, 03:35:19 PM »
 I am at the last medications I can take...I am also VERY pissed off..Living in Georgia with hiv is horrible..HMO medicade has denied me the right to keep on living. This is the new medication,Stribild ( which I am a little scared to take because of the side affects)which they WILL NOT approve..and I could use some suggestions on how to get this med.. My t-cell count is 279,Vl,43,840... >:( :'(
HAGGAR

Offline BT65

  • Global Moderator
  • Member
  • Posts: 10,054
Re: Medicade and Georgia
« Reply #1 on: November 14, 2012, 05:50:51 PM »
Haggar, I would suggest getting in touch with the nearest Aids service organization in your area.  Here's a link, you can look until you find the one nearest you:

http://directory.poz.com/aso_search.shtml?searchaction=zipcodesearch&milage=0+and+10&zipcode=&searchaction=namesearch&query=&searchaction=contactsearch&contactquery=&orgcategory%5B%5D=12&Submit=Search+Directory

I think that's the link that will help you, though it seems long.  Anyway, if you can get someone at an organization, they can help you get patient assistance, which would pay for the Strilbid.  Or there may be someone at your doctors that can help you.  Or, go on the manufacturer's website and look for a patient assistance program you can apply for.  That's my suggestion.  By the way, I take Strilbid, and have had nothing emaciating.  It's been liveable.  good luck.
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline jkinatl2

  • Member
  • Posts: 6,007
  • Doo. Dah. Dipp-ity.
Re: Medicade and Georgia
« Reply #2 on: November 14, 2012, 07:37:17 PM »
I live in Georgia, and have a little understanding regarding the situation you describe.

Are you on Medicare and Medicaid? Ryan White? Do you have a case worker? If not, cal AID Atlanta as soon as you can. Even if they are not serving your actual area, they can point you towards a local ASO that can set you up with a case manager. If you do not have medicare/Ryan White, you will absolutely need a case manager to help you.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline gadawg1979

  • Member
  • Posts: 142
Re: Medicade and Georgia
« Reply #3 on: November 15, 2012, 10:30:35 PM »
In Ga also here.  Aids Athens can also help. One great thing in Ga is you can us any clinic once you are in the system.  The Specialty care in Athens has been amazing and I was approved for adap in less than 90 days.  They also made sure I had welvista to cover my meds until adap went through. 
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline HAGGAR

  • Member
  • Posts: 4
Re: Medicade and Georgia
« Reply #4 on: November 15, 2012, 11:40:06 PM »
Thank you all fro all the info..I went to AID atlanta when I got here and was told they could not do anything for me because I live in the subburg(douglasville) I did not need housing,..I have Medicaid...and by they way I had an out of state phone number and I did get a new one. I have been calling AID atl and never got a response or I missed it. I am looking for a new doctor. And here is the depressing stuff..I gave my doctor's office my new number..the called me on my tract phone which I cannot hear out of: I was to that my pharmcy put the wrong code in.I called them and they have no idea what I was talking about. So I know it's one of the so called nurses there..and I reported them to the State medical department.
HAGGAR

Offline mewithu

  • Member
  • Posts: 160
  • mewithu
Re: Medicade and Georgia
« Reply #5 on: November 16, 2012, 11:14:42 AM »
You have to go in person to some of these places to get them to know you because there is a lot of false or information gets wrong if you don't go in person. I hope you know what I am saying . The AID Atlanta has to be careful to know you are who you say you are as to get benefits started . Hope the best for you . Jerry
1997 is when I found out, being deathly ill. I had to go to the hospital due to extreme headache and fever. I fell coma like,  two months later weighing 95 pounds and in extreme pain and awoke to knowledge of Pancreatis, Cryptococcal Meningitis, Thrush,Severe Diarea,  Wasting, PCP pneumonia. No eating, only through tpn. Very sick, I was lucky I had good insurance with the company I worked for. I was in the hospital for three months that time. 
(2010 Now doing OK cd4=210  VL= < 75)
I have become resistant to many nukes and non nukes, Now on Reyataz, , Combivir. Working well for me not too many side effects.  I have the wasting syndrome, Fatigue  . Hard to deal with but believe it or not I have been through worse. Three Pulmonary Embolism's in my life. 2012 520 t's <20 V load

Offline thunter34

  • Member
  • Posts: 7,318
  • His name is Carl.
Re: Medicade and Georgia
« Reply #6 on: November 16, 2012, 11:35:47 AM »
Something's not right here.  Douglas county is covered in the service area for the Grady Infectious Disease Program.  You should be able to get services there, although I don't think people are referred to Grady IDP from AID Atlanta unless they are below the magic 200 mark...so it may be one of those wonderful things about our fucked up health system where you may have to sit tight until you're low enough to fall under their scope.  Don't ask me to defend this...I'm just explaining.

If you want to send me a private message here, go ahead.  I know people I can direct this situation to who can likely give more absolute answers.

http://www.aidatlanta.org/Page.aspx?pid=295

I otherwise echo JK and mewithu's posts.  You need a case manager, and you need to go in person to these places however many times it takes.
AIDS isn't for sissies.

Offline gadawg1979

  • Member
  • Posts: 142
Re: Medicade and Georgia
« Reply #7 on: November 20, 2012, 04:29:03 PM »
Also in Ga you can move from one ASO to another if you are not happy.  I have friends that come out to Athens for privacy and because they like the staff there. 
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

 


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