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Author Topic: Is Bactrim to be taken forever?  (Read 1814 times)

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Offline bobsmth

  • Member
  • Posts: 8
Is Bactrim to be taken forever?
« on: November 07, 2012, 09:44:18 PM »
Hi, after reading several posts it looks like taking Bactrim for PCP is an ongoing thing.
I've just been diagnosed + and my ID doc put me on Bactrim already. We're awaiting testing compatibility or whatever it is to see what drugs I'll be on. So my Question is does everyone on bactrim take it long term?
This is my second post and  I'm very glad I found this site, everyone is so understanding and helpful.

CD4s 206
  %   12.1
 VL  57,000

Offline gadawg1979

  • Member
  • Posts: 121
Re: Is Bactrim to be taken forever?
« Reply #1 on: November 07, 2012, 09:52:05 PM »
You seem to be in my boat.... With your CD4 you will be on it until you get above 250 .....
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 660 VL Undetectable (40) 22 %

Offline leatherman

  • Member
  • Posts: 5,920
  • Google and HIV meds are Your Friends
Re: Is Bactrim to be taken forever?
« Reply #2 on: November 07, 2012, 10:29:06 PM »
technically Bactrim is to be taken as a prophylaxis anytime a person has a cd4  count under 200 to prevent PCP.

several people here have taken bactrim for quite some time. I took bactrim for 10 years. During the last 9 months I did have a cd4 count that hovered from 225 to 245; but I kept taking Bactrim. Because almost dying twice from PCP was quite enough for me, I continued to take Bactrim until I "felt" I go continue on without it.

with your viral load and cd4 count just barely over that 200 mark, I sure would keep taking that bactrim if I were you. ;)
leatherman (aka mIkIE)

chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Oh my friends, my friends forgive me
That I live and you are gone.
There's a grief that can't be spoken.
There's a pain goes on and on.
Empty chairs at empty tables
Where my friends will meet no more.

"Empty Chairs at Empty Tables" from Les Miserables

Offline Common_ground

  • Member
  • Posts: 288
Re: Is Bactrim to be taken forever?
« Reply #3 on: November 07, 2012, 11:02:27 PM »
Bob, I had similar numbers at diagnosis but I was however not put on any Bactrim.
2011 May - Neg.
2012 June CD4:205, 16% VL:2676 Start Truvada/Stocrin
2012 July  CD4:234, 18% VL:88
2012 Sep  CD4:238, 17% VL:UD
2013 Feb  CD4:257, 24% VL:UD -viramune/truvada
2013 May CD4:276, 26% VL:UD

Offline bobsmth

  • Member
  • Posts: 8
Re: Is Bactrim to be taken forever?
« Reply #4 on: November 08, 2012, 12:11:59 AM »
Thanks for the responses everyone that clears up my question.

Offline bobsmth

  • Member
  • Posts: 8
Re: Well.. couldn't handle the Bactrim.
« Reply #5 on: November 20, 2012, 09:50:31 PM »
 After seven days I developed a severe rash and itch. Stopped Bactrim 10 days ago now, and starting my first AVR tonight. ID Dr. is starting me out on Atripla. I wont test again till January 4th.

   10/29/12  CD4 206  VL 57970
   11/02/12        228   no test

Offline joeyg624

  • Member
  • Posts: 30
Re: Is Bactrim to be taken forever?
« Reply #6 on: November 25, 2012, 01:17:20 AM »
i took bactrim only until i had two cd4 readings above 200
Apr 10 CD4 60 VL 256,000
May 10 CD4 130 VL 724
Aug 10 CD4 188  VL <75
Nov 10 CD4 170  VL <75
Mar 11 CD4 272 VL <48
Aug 11 CD4 272 VL <20
Nov 11 CD4 267 VL <20
Mar 12 CD4 297 VL <20
Nov 12 CD4 312 VL <20

Offline Mrmojorisin

  • Member
  • Posts: 197
    • My Blog
Re: Is Bactrim to be taken forever?
« Reply #7 on: November 25, 2012, 04:57:15 AM »
I have been taking Bactrim from day one..My doctor has not said anything about going off bactrim. I had a minor fling with pneumonia a month after diagnosis and do not want that again.  My numbers are getting stronger..I may ask my doc about Bactrim on my next visit in Jan...
Started Meds On 5/1/2012 Norvair, Truvada, Prezista, and Bactrim

4/17/2012--CD4 83/ VL 353,000  7.0%
5/15/2012--CD4 218/ VL 4,970    14.1%
6/27/2012--CD4 146/ VL 420      6.1%
10/11/2012-CD4-223/ VL-62       9.5%
2/14/2013--CD4-215/ VL-119      13.6%
7/3/2013---CD4-256/ VL-UD       18.0%
10/18/2013 CD4-223/ VL-UD       22.2%
01/23/2014-CD4-381/VL-UD       25.3%

"arrrrhhhhh ahhrrhhhhh aaaarrhhh"- Chewbacca

Offline David_CA

  • Member
  • Posts: 3,232
  • Joined: March 2006
Re: Is Bactrim to be taken forever?
« Reply #8 on: November 29, 2012, 01:02:25 PM »
I took Bactrim for many months following my bout with PCP with numbers in the mid-200's.  It's not an infection I'd recommend, by the way.  Fortunately, I finally became undetectable after 18 months and stopped the Bactrim.  As for its side effects, I only had a slight bit of sun sensitivity.  Good luck with the Atripla; it's what I take and has worked well for me.
Black Friday 03-03-2006
03-23-06 CD4 359 @27.4% VL 75,938
06-01-06 CD4 462 @24.3% VL > 100,000
08-15-06 CD4 388 @22.8% VL >  "
10-21-06 CD4 285 @21.9% VL >  "
  Atripla started 12-01-2006
01-08-07 CD4 429 @26.8% VL 1872!
05-08-07 CD4 478 @28.1% VL 740
08-03-07 CD4 509 @31.8% VL 370
11-06-07 CD4 570 @30.0% VL 140
02-21-08 CD4 648 @32.4% VL 600
05-19-08 CD4 695 @33.1% VL < 48 undetectable!
08-21-08 CD4 725 @34.5%
11-11-08 CD4 672 @39.5%
02-11-09 CD4 773 @36.8%
05-11-09 CD4 615 @36.2%
08-19-09 CD4 770 @38.5%
11-19-09 CD4 944 @33.7%
02-17-10 CD4 678 @39.9%  
06-03-10 CD4 768 @34.9%
09-21-10 CD4 685 @40.3%
01-10-11 CD4 908 @36.3%
05-23-11 CD4 846 @36.8% VL 80
02-13-12 CD4 911 @41.4% VL<20
You must be the change you want to see in the world.  Mahatma Gandhi

Offline RapidRod

  • Member
  • Posts: 15,193
Re: Is Bactrim to be taken forever?
« Reply #9 on: November 29, 2012, 03:52:50 PM »
I took it for 7 years until my levels were over 200 for 3 visits which amounted to 9 months after the first 200 level.

Offline britchick

  • Member
  • Posts: 389
Re: Is Bactrim to be taken forever?
« Reply #10 on: November 29, 2012, 04:11:50 PM »
Hi bobsmth

I was told to take Bactrim....a.k.a Co-Trixamole for at least a yr after having PCP.Its worked so far....It helped me fight off fluey type virus (before it could develop further about a month ago!)

Just had my flu jab and appt at clinic yesterday and got another 3 months supply of Bactrim.My CD4 count is okay now..and 436 in Sept.....will hear my november results soon.


Offline idee

  • Member
  • Posts: 202
  • Hi...
Re: Is Bactrim to be taken forever?
« Reply #11 on: November 30, 2012, 02:27:52 PM »
Not for eveyone. My Husband used to take Bactrim and they took him off of it. I like to think it is because I made him so happy. I am 14 years younger than him and well I cook good as well.


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