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Author Topic: Just tested POS in June w/ full blown aids  (Read 4245 times)

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Offline Jimalee

  • Member
  • Posts: 4
Just tested POS in June w/ full blown aids
« on: October 02, 2012, 12:10:56 PM »
I had been sick since January but because my doc didn't ever expect HIV I went Through multiple docs, and MRI's etc.  I basically fell apart in May and was put in the hospital.  I don't know for sure but think they found out then I was Pos but I went on the respirator on and off for another 4wks.  I lost 60lbs and was sent to Indianapolis a bigger hospital.  The family was told I wasn't likely to make it. 
I got my bearings back to me end of June or July still fuzzy on detail.  The HIV doc came in and gave me the news.  I wasn't blown away, I new with my prior history that it had just caught up with me.  The only thing I find odd is they told me I was pos for at least 4yrs.  That would've been the last time I tested on my own.  How can they put a time frame on such a thing.  My #'s going in was really low  3% and my viral load was 650,000 the doc said.  I am still learning but know that wasn't good.  goes back to death bed. 
So they sent me to rehab cause I lost all muscle and couldn't even stand at end of June?  They sent me with cdiff that I had gotten in the hospital 2 wks prior.  I was in isolation at rehab for 90% of my stay.  It took 2 bouts of meds to cure the cdiff.   I told my roommate to either come and get me or I was walking home.  So I made it home holiday weekend.  I am pretty healthy I gained a lot of my wgt back.  Mentally I find it challenging because the two people that know my status are in denial of me beyond taking meds.    This is to long I am sorry.

Offline Jeff G

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  • Member
  • Posts: 13,206
  • How am I doing Beren ?
Re: Just tested POS in June w/ full blown aids
« Reply #1 on: October 02, 2012, 12:45:08 PM »
Welcome to the forums Jimalee . I'm sorry you have had such a rough go of it but it sounds like you are responding well to the meds and on the mend .

You will find the forum a great source of support and information . I'm not the best at answering some of the questions you asked in your first post but I wanted to welcome you . In the mean time you can check out the lessions section at the top of the page , there is info there on the life cycle of HIV and many other topics you might want to check out .   

Offline mecch

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  • Posts: 12,160
  • red pill? or blue pill?
Re: Just tested POS in June w/ full blown aids
« Reply #2 on: October 02, 2012, 12:55:18 PM »
Your post is hardly too long, considering the dramatic and epic events of the past year!  Cut yourself some slack. 

Its not so important when your infection date was.  I mean, you know already the last time you tested negative, and now you know where you are in the infection.  People can progress in a few short years, or much longer. It's a crap shoot.  The present and the future is what's important.

I am sorry you had to go through all this.

I am sorry that you don't have the support you need yet.  What's the plan there?  You have a therapist, social worker, a place or person to help you plug into supportive networks? 

I don't really get what you mean about your 2 people who know, who are in denial??? 
« Last Edit: October 02, 2012, 01:17:35 PM by mecch »
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline Jimalee

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  • Posts: 4
Re: Just tested POS in June w/ full blown aids
« Reply #3 on: October 02, 2012, 02:23:13 PM »
Believe it or not, my brother and I married sisters.  I divorced and came out after 6yrs.  Oddly enough my best friend is my ex wife.  She stayed with me 3 wks in the hosp when they said I wasn't going to make it.  So I told her my HIV status and she and the kids all went and tested neg.  Her sister, my sis n law was told by her cause during all this she to came and went way out of her way for me.  We live 2hrs from the hosp I was in. 
I mention to my ex I wanted to join a HIV support group and she was like "do you really think you need that?" so I dropped the subject.
I just got a call an hour ago that I am no longer eligible for a surgery to remove a tumor.  I ask temp or perm decision they said perm.  So I am learning HIV can have major impact when least expected.

Offline drewm

  • Member
  • Posts: 1,186
Re: Just tested POS in June w/ full blown aids
« Reply #4 on: October 02, 2012, 03:11:40 PM »
Welcome to the forums. Sorry about the DX. Looks like we went down similar paths. It does sound like the meds are working. Hang in there!  ;)
Diagnosed in  May of 2010 with teh AIDS.

PCP Pneumonia . CD4 8 . VL 500,000

ATRIPLA - VALTREX -  FLUOXETINE - FENOFIBRATE


Numbers consistent since 12/2010 - VL has remained undetectable and CD4 is anywhere from 275-325

Offline mecch

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  • Posts: 12,160
  • red pill? or blue pill?
Re: Just tested POS in June w/ full blown aids
« Reply #5 on: October 03, 2012, 05:25:41 AM »
What country are you in, please?
Because you have HIV, you are not forbidden from certain medical treatments?
A couple of months ago a member here from Turkey explained that he couldn't get surgery anymore because of HIV.  What an awful situation.

So your ex and your ex-sister in law, they know, but you think from now going forward they don't want to talk about it anymore?  And, or, they want you to keep a low profile as HIV+ and don't want you to have public support.  Is it something about not wanting "the family" to be tarnished with the stigma of HIV/AiDS?
“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline weasel

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  • Posts: 1,723
Re: Just tested POS in June w/ full blown aids
« Reply #6 on: October 05, 2012, 08:16:47 PM »


           Welcome Jimalee  ,

                                       Hope you are doing better , Try not to think about when .  Doctors seem to know from the numbers .

    Sounds like you are gaining weight that is good . I am sure Indiana  has some good Hospitals .

   Many people go for lots of years with out knowing they are HIV POZ .

                                       be well , I hope you are able to find a good support group , They really do help !

                                                       Weasel   
" Live and let Live "

Offline zach

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  • Posts: 1,905
Re: Just tested POS in June w/ full blown aids
« Reply #7 on: October 05, 2012, 08:36:37 PM »
Jim, I was also diagnosed full blown a couple years ago. Hang in there, learn as much as you can, write more than you ever have. Welcome, here you will find.. Listeners, shoulders, support, brutal honesty, and acceptance.

Love

Offline harleymc

  • Member
  • Posts: 254
Re: Just tested POS in June w/ full blown aids
« Reply #8 on: October 06, 2012, 01:31:21 AM »
Hi Jimalee,

Hang in there. It will get better, stick with the medications.

And get assertive (not aggressive) with your doctors, always ask lots of questions.
If you can find a support group go for it, they can be amazingly good.

Let us all know how you are progressing.

Big Hugs

 


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