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Author Topic: ADAP Watch List Updates September 2012  (Read 2032 times)

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Offline leatherman

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ADAP Watch List Updates September 2012
« on: September 07, 2012, 11:35:17 AM »
This is actually an end of August report and it's got some really good news. While the ADAP Watch List is down to only 6 states now, two of those states have a zero count leaving just 4 states maintaining an active ADAP Waiting List!

ADAPs with Waiting Lists as of August 30, 2012
170 individuals in 6 states


STATEAMOUNTCHANGE
Florida22-9
Georgia00
Louisiana**114-120
North Carolina25+16
South Dakota9+23
Virginia0-275

ADAP September 4th Watch List
**Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.


IMHO though it's a shame that HIV, and the ADAP wait list still in NC, got no comment in the main speeches at the DNC convention just held in NC. :( At least though HIV got a lot more mention in the Democratic party platform. (see What the Republican and Democratic Party 2012 Platforms say about HIV/AIDS)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline gadawg1979

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  • Posts: 142
Re: ADAP Watch List Updates September 2012
« Reply #1 on: September 13, 2012, 05:58:53 PM »
These numbers are looking great
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline vaguesbleues

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  • Posts: 93
Re: ADAP Watch List Updates September 2012
« Reply #2 on: September 13, 2012, 06:56:14 PM »
Looks awesome! 

One question though:  South Dakota only has 9 people on the list, so how can the number on the waiting list have added 23 people?
03/10/2011 - Tested HIV negative
04/26/2011 - Inconclusive WB result
05/19/2011 - Confirmed HIV positive
                    VL < 50, T-Cell 747 (30%)
06/13/2011 - VL 345, T-Cell 841 (30%)
08/23/2011 - VL 50,100, T-Cell 1155 (19%) - CMV
09/18/2011 - Started Atripla!!
11/07/2011 - VL 489, T-Cell 881 (31%)
02/08/2012 - VL Undetectable!!, T-Cell 772 (34%)
08/08/2012 - VL UD, T-Cell 1070 (42%)
11/05/2012 - VL UD, T-Cell 1174 (35%)
03/18/2013 - VL UD, T-Cell 972 (28%)
10/04/2013 - VL UD, T-Cell 1025 (34%)

Offline leatherman

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Re: ADAP Watch List Updates September 2012
« Reply #3 on: September 13, 2012, 07:44:26 PM »
23 people?
oops. typo ;)
last update was "+2" for SD;, this update should read:

+3 for South Dakota


thank you for paying attention, and sorry SD for sullying your good name. LOL
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline metekrop

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  • Posts: 354
Re: ADAP Watch List Updates September 2012
« Reply #4 on: September 14, 2012, 03:34:14 PM »
I say tanks God.  I'm living in the state of VA where there were nearly a thousand waiting list a year ago.  Now it is ZERO.  Thanks Again.

I am getting my meds from my insurance at my work.  The work situation these days is not that reliable.  I was always wondering what would I do if I lost my job.  Now I know I will be getting the meds from the state Health Dept. 

Do you have any information that they will put new applicants on the meds immediately?  How long it take to be enrolled in the program?  I am feeling now that I am cured of this nasty stuff.   ;D
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline leatherman

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Re: ADAP Watch List Updates September 2012
« Reply #5 on: September 14, 2012, 05:03:21 PM »
MORE GOOD NEWS!

ADAPs with Waiting Lists as of September13, 2012
88 individuals in 6 states


STATEAMOUNTCHANGE
Florida220
Georgia00
Louisiana**114-56
North Carolina0-25
South Dakota10+1
Virginia00

ADAP September 14th Watch List
**Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.


My first post in this forum about ADAP was on June 11, 2010 as the second national watch list was near it's beginnings. Although there were only 1,431 people on the list back then, we all watched as the numbers skyrocketed to 9,039 on August 4, 2011 (in part because FL ADAP went totally bankrupt and threw everyone off ADAP for 3 months). It's definitely a welcome relief to see the watch list almost back down to zero.

Thanks to everyone who has been concerned about this crisis and has participated in a rally; signed a petition; written, called, emailed, or visited their State and/or Federal Legislators and officials about ADAP funding. Of course though, the battle isn't totally over. ADAP will still be around for quite some time even after the Affordable Care Act takes full effect.  As ADAP adapts to it's new role, it'll be up to concerned citizens to tackle the newest issue - advocating for Medicaid Expansion to be implemented within their state.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Watch List Updates September 2012
« Reply #6 on: October 12, 2012, 11:35:54 AM »
I just wanted to point out that no update for the waiting list watch has come out from NASTAD since Sept 13. Hopefully this is because the last 88 people finally got ADAP coverage after President Obama in July dedicated $80 million to end the ADAP wait lists and so many of the other wait lists were cleared.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline mitch777

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Re: ADAP Watch List Updates September 2012
« Reply #7 on: October 16, 2012, 03:56:02 PM »
another reason to vote for obama.
i have really big doubts that the ADAP programs would survive a Romney/Ryan term.
31 years hiv+ (oct. 2013) with a curtsy.

Offline leatherman

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Re: ADAP Watch List Updates September 2012
« Reply #8 on: October 16, 2012, 10:03:03 PM »
ADAP is set for renewal in 2013 so everything about Ryan White is under suspect right now. Although it's believed that President Obama will continue to support it (we have no idea what a R/R administration will do; but I imagine the worst!), as long as the ACA remains in place, RW is sure to change in the future. As Medicaid Expansion and the Insurance Exchanges will begin to take care of more and more people, RW will fill in the "trouble spots". This is sure to "weaken" RW but as long as people are getting proper care, whether the money is spent in ACA or the RW plan really shouldn't matter.

Hopefully RW will be renewed as the Medicaid Expansion and Insurance Exchanges are put into place, putting off what to do with the RW program for several years until we know better what it needs to do. ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Watch List Updates September 2012
« Reply #9 on: October 16, 2012, 10:07:00 PM »
Dang! I spoke/wrote too soon. NASTAD has issued a watch list  - and the count went up a bit.  :(
There are only 3 states with "active" list right now though, and that's good.

ADAPs with Waiting Lists as of October 11, 2012
104 individuals in 5 states


STATEAMOUNTCHANGE
Florida5836
Georgia00
Louisiana**30-26
North Carolina00
South Dakota16+6

ADAP October 12th Watch List
**Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline gadawg1979

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  • Posts: 142
Re: ADAP Watch List Updates September 2012
« Reply #10 on: October 17, 2012, 01:52:47 AM »
I have wrote thank you emails in GA.  As someone who has a private insurance I still depend on ADAP to cover the 700 a month that my insurance does not cover. 
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline leatherman

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  • Google and HIV meds are Your Friends
Re: ADAP Watch List Updates September 2012
« Reply #11 on: October 17, 2012, 10:41:58 AM »
I have wrote thank you emails in GA.  As someone who has a private insurance I still depend on ADAP to cover the 700 a month that my insurance does not cover.

That's great G-Dawg!

Being part of the task force in SC that advocated for ADAP funding, I believe that things like that (thanking the folks) helps keep up the morale of workers who often fight hard to make our ungainly and unhelpful systems work. Do you know if there's any organization in GA that is advocating for ADAP funding? Like an ASO or a statewide Task Force? You might want to offer to help them out some.

At a special breakfast meeting, our task force members signed 100's of thank you card back in April and then a group hand-delivered them to state Legislators thanking them for passing a budget, against the Governor's veto, that adequately funded ADAP for 4 yrs. We got a lot of positive response back from many Legislators. Now we're hoping to parlay that positivity into getting our Legislators to override the Governor again and approve Medicaid Expansion and an Insurance Exchange in our state.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

 


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