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Author Topic: STRIBILD - A NEW 1 PILL DRUG side effects  (Read 28168 times)

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Offline Casinokiwi

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #50 on: February 06, 2013, 07:26:37 AM »
You are right buginme, the person I was having a conversation with is considered an "elite controller".  She actually participated in a bunch of research because of her situation.  I don't think I am and I know the odds are small but it would be nice to know (even if there was a small chance) that I could fight this without taking meds. 

In regards to all the comments on the high viral load.  I had an awful sero conversion.  I spent over a week in the hospital and they asked my wife if I had a living will.  I thought I was going to die.  Because I didn't really understand all the lingo and was in a bit of a fog once I heard I had HIV I didn't take too close of notes.  In fact i burned all my notes and medical information when i got home because i was so embarrassed (real mature i know).  It was either 35 million or 55 million, i have a drs appointment next week and I will update the post with the exact number.  I don't remember what my cd4 count was and I will get that figure as well.  The infectious disease dr said I had the second highest viral load he had ever seen and my new dr (who actually has HIV) told me it was the highest that he has seen. 

I have another post about the high viral load figure in another forum and it is higher than most everyone's.  I have kind of accepted that it is a good thing because we caught it early but I would be lying if I didn't say it scares the crap out of me that I had that much HIV in me for any period of time. 

I will get the exact figure and provide an update.  I don't want to be throwing mis-information around. 

Offline Ann

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #51 on: February 06, 2013, 08:05:19 AM »
You can read more about Long Term Non-Progressors (LTNP) and Elite Controllers at the Zephyr Foundation.
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"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

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HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline bear66

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #52 on: February 15, 2013, 01:13:01 PM »
Hi, I'm Bear, and new to this site. I tested positive in 1995 after being sexually active with men for only 2 years, bummer! I remained undetectable for 5 years, and then teetered between 5k and 10k until November 2012. My VL shot up to 185K a month later I retested and my VL was at 128K, at that time I went on Stribild (first time in meds). I had no side effects other than some very vivid dreams. After 1 month on Stribild my VL was 126 copies. Not a 126K, but 126!!!
I'll be starting my 3rd month on Stribild in 2 weeks and still no side effects. I'm very pleased with the results.   

Offline texaninnyc87

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #53 on: February 15, 2013, 01:14:59 PM »
Hey bear, welcome to the forums! I just found out yesterday that after 3 weeks on stribild my Vl went from 129,000 to 80! Woohoo! I haven't had any side effects either. As long as my kidneys dont fall out or anything im gonna go ahead and say i think stribild is an awesome drug.  ;D
Dxd: 9/11/12
Blot confirmed: 11/12
12/12 cd4: 280 (20%) vl: 129,000
1/13 $tribild
2/13 cd4: 350 (26%) vl: 80
4/13 cd4: 510 (29%) vl:: 35
6/13cd4 350 (31%) vl: 21
9/13 cd4 492 (30%) vl: ud
12/13 cd4 846 (36%) vl: 100
1/14 cd4 480 (31%) vl: UD
3/14 cd4 650 (33%) vl: UD
6/14 cd4 410 (35%) vl: UD
9/14 cd4 439 (38%) vl: UD
12/14 cd4 551 (37%) vl: UD

Offline oksikoko

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #54 on: February 15, 2013, 01:18:21 PM »
Hey bear, welcome to the forums! I just found out yesterday that after 3 weeks on stribild my Vl went from 129,000 to 80! Woohoo! I haven't had any side effects either. As long as my kidneys dont fall out or anything im gonna go ahead and say i think stribild is an awesome drug.  ;D

Ha! If you just jinxed me, I'll be haunting you a la Jacob Marley (with dialysis machine instead of chains) in about two weeks.

Hey, bear. Welcome to the forums. :)
Code: [Select]
2014-11-14: CD4 Wars Episode II: Return of the Stribild (released in Europe as Stribild II: Werewolf Bitch)
2014-11-06:                ☣ VL (→) 12,627      ☣ CD4 (→) 639
2014-??-??: off treatment  ☣ VL (?)              ☣ CD4 (?)
2013-10-03:                ☣ VL (=) undetectable ☣ CD4 (+) 1105
2013-05-23:                ☣ VL (=) undetectable ☣ CD4 (-) 945
2013-02-25:                ☣ VL (-) undetectable ☣ CD4 (+) 1123
2012-12-16: Enter Stribild
2012-11-20: HIV+           ☣ VL (→) 132,683      ☣ CD4 (→) 920
2012-04-01: HIV-
Dates in this signature file conform to ISO 8601. ;-)

If no one complains, nothing will ever change.

Offline bear66

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #55 on: February 15, 2013, 01:31:29 PM »
Great news NYC, we'll have to follow each others progress on this new "wonderdrug"

Offline bear66

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #56 on: February 19, 2013, 11:24:53 AM »
Everyone has "killer t-cells."  CD8 T cells are called "killer T-cells" because they recognize cells that have been infected by viruses, attatch themselves to the infected cell, and kill it.  However, this doesnt work so well with HIV infected cells.

I think the person you met meant to say they were a long term non-progressor.

There are a small group of HIV infected people that can maintain an undetectable viral load without the need for going on medication.  They are called long term non-progressors (or elite controllers).  There is a lot of research going on to determine how these people are able to control their HIV infection on their own.  Hopefully if researchers can figure out exactly how their immune system can control their infection they can benefit everyone else.

So how can you tell if you are a long term non-progressor if you start medication right away?  Well you cant.  However, chances are you are not.  Long term non progressors account for a small amount of patients maybe 1%.  Which means there is a 99% chance that your not one.  Since you had a viral load in the millions, you probably made the right choice starting meds.

Offline bear66

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #57 on: February 19, 2013, 11:34:58 AM »
I have been positive for 18 years with an indictable VL for 15 years with no medications. Three years ago my immune system stopped fighting the virus (according to Physician) and my VL was 5k for a year, 8k for a year and then the whopping 128K in Nov, 2012. However, I just went through the most stressful year of my life, my best friend of 20 years, and first lover committed suicide, my dog of 12 years had to put to sleep, and I had to quit school due to my partners job transfer. I'm not sure how much the stress played in the sudden increase of the VL, but after going on stribild in Jan, 2013 I was UD after 3 weeks, and no side effects.   

Offline texaninnyc87

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #58 on: February 19, 2013, 12:01:53 PM »
im sorry that everything went downhill at once for you, but its great that you didnt have to worry about any complications from the meds and that they worked so well for you! im having pretty good luck with stribild myself. i must admit im jealous you spent so many years without meds living healthily. youre a lucky guy in that regards! hopefully everything will keep on getting better from here on out.
Dxd: 9/11/12
Blot confirmed: 11/12
12/12 cd4: 280 (20%) vl: 129,000
1/13 $tribild
2/13 cd4: 350 (26%) vl: 80
4/13 cd4: 510 (29%) vl:: 35
6/13cd4 350 (31%) vl: 21
9/13 cd4 492 (30%) vl: ud
12/13 cd4 846 (36%) vl: 100
1/14 cd4 480 (31%) vl: UD
3/14 cd4 650 (33%) vl: UD
6/14 cd4 410 (35%) vl: UD
9/14 cd4 439 (38%) vl: UD
12/14 cd4 551 (37%) vl: UD

Offline JWR

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  • Posts: 3
Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #59 on: July 04, 2014, 09:11:26 PM »
Been on Stribild for almost 2weeks. Mmmm am having non stop gas .. I could probably supply a city lol..... I am having nausea but I am also currently on BACTRIM DS for PCP tx that I was recently hospitalized for... So it may be contributing to the nausea also... My cd4 count was 10 and viral load > 200000 prior to starting tx.... I have been having vivid dreams also and some mild insomnia although that seems to be getting better every night .... The morning after I took my first dose I did vomit a large amt of un digested food but again I should of been a little more conservative with what I ate the night before especially starting a new drug... It does cause dry mouth and extreme thirst which I already suffered from cause I take an SSrI for depression... Go back to ID for follow up labs at the end of month will be interesting to see my progress.... I guess the side effects are mild compared to the alternative that would be death... Not complaining just sharing my experience so far on this drug... And I never was on any other HIV med before

Offline InquisitHIV

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #60 on: July 16, 2014, 04:49:58 AM »
Antacids, including natural antacid foods taken with Stribild, could be the cause of side effects or ineffective treatment.

Antacid natural foods include bananas, milk, yogurt and prob other dairy products. Best to avoid these in the few hours before or after taking Stribild.


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Explore it. Poke at it. Question it. And turn it inside out.

Offline BT65

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #61 on: July 16, 2014, 05:39:00 AM »
Been on Stribild for almost 2weeks. Mmmm am having non stop gas .. I could probably supply a city lol....

The cause of this is the Truvada component of Stribild.  It is a very common side effect.  I try to avoid foods that could possibly contribute to this, or if I will be eating something I know would make me more prone to flatulence, I take a Beano (seriously). 

The nausea I'm not really sure of. I did notice a little nausea when starting Stribild, but that has gone away. 

I do know this is one of the easiest HIV meds I've ever taken, and I've been on several since the early 90's.  So I try to work with the med and possible side effects, so I won't have to switch to another med. 

Betty
I've never killed anyone, but I frequently get satisfaction reading the obituary notices.-Clarence Darrow

Offline Miss Philicia

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Re: STRIBILD - A NEW 1 PILL DRUG side effects
« Reply #62 on: July 16, 2014, 06:35:54 AM »
Nausea is a common side effect from the tenofovir (viread) component.
"Iíve slept with enough men to know that Iím not gay"

 


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