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Author Topic: Is there any such thing as a LTS support group anymore?  (Read 2365 times)

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Offline jm1953

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  • Posts: 255
Is there any such thing as a LTS support group anymore?
« on: August 11, 2012, 09:03:26 PM »
Guess us long term survivors are kind of left out in the cold when it comes to support groups.  I've seen one or two of you have been fortunate to find one, but in big cities.  I live in a large city too, but nothing like NY, LA, SF, and maybe San Diego.  Found more support when living on a small Hawaiian island with a population of only 75,000.

For those of us who watched so many of our friends die in the 80's and early 90's and then ourselves become infected, how can newbies relate to this.  There now seem to be a stigma amongst HIV people where we just don't all connect like we used too.  I love this forum because I can interact and share experiences with other Long Term Survivor's that get it.  But it would be great to have actual face to face interaction and friendship with some in my city.  The ASO here is ineffectual.  And the docs can't really divulge their LTS patients I assume for confidentiality reasons. 

Love to find a group even if I had to move.  If you have any ideas or experiences along these lines, please let me know.

Best,

JM
Positive 25 years. 7/21/2012 Current CD 4: 780 Viral load: less than 50. 38 to 40%
Current drug regimen, Isentress, , Emtriva, Sustiva Wellbutrin, Klonipin, Allegra, Ambien, Testosterone, Nandrolone, Vicodin, Benedryl, Aspirin, lots of vitamin supplements.

Offline Pilot

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Re: Is there any such thing as a LTS support group anymore?
« Reply #1 on: August 12, 2012, 01:41:56 AM »
Hello Jim,
I do not know anything about Seattle but if there are any gay bars that have bar guides you might find a listing of local groups.  Maybe you could run a blind ad asking about it or maybe suggesting to start one. I am not sure if there is even such a group where I live.

Offline Miss Philicia

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Re: Is there any such thing as a LTS support group anymore?
« Reply #2 on: August 12, 2012, 01:47:36 AM »
Yes, I have belonged to a local LTS support group for the past six years. It actually began as a group sponsored by Roche for Fuzeon users, but once new meds came out all of us went off Fuzeon and continued the group as LTS, since kind of by definition anyone on Fuzeon was going to be an LTS. The group is rarely more than six people in attendance, but then again 3 people passed away in a 12 month period recently.

This is in Philadelphia, which is a metro area of 6 million, and that's all we can get to attend. Good luck trying this anywhere smaller.
« Last Edit: August 12, 2012, 01:52:20 AM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline konkrypton

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Re: Is there any such thing as a LTS support group anymore?
« Reply #3 on: August 13, 2012, 01:58:03 AM »
I can relate, JM. I tried a local HIV support group here in KC and found it was run like a seminar, not a place to rap and give support. I was severely disappointed.
KK
--
I distrust morning people. I suspect they setup the rules of life while the rest of us slept.

Offline LongTimeSurvivor

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  • I don'no...there may be Zombears...in theres...
Re: Is there any such thing as a LTS support group anymore?
« Reply #4 on: August 17, 2012, 07:21:37 PM »
Start one yourself. Go to the Center in Seattle and post a notice or whatever it is they allow you to do to get word out. You may have to settle for a small start and make sure anyone who shows up...keeps doing it.

Saw that you have http://sasgcc.org that lists support groups. One called Ageless might be a good place to find other LTS'...couldn't hurt to check.

Good luck...
Of course it's important. It's an email...

Offline denb45

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Re: Is there any such thing as a LTS support group anymore?
« Reply #5 on: August 17, 2012, 07:37:19 PM »
I wish I had the time for a support group, but unfortunately I don't

we have something here in ABQ called "Meals & Meds"  they ever serve Dinner

if they still even have it, I kinda doubt they do, with all of the recent cutting of
 AIDS funding going on  :-[


Hugs

DEN
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Buckmark

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Re: Is there any such thing as a LTS support group anymore?
« Reply #6 on: August 17, 2012, 07:51:02 PM »
I wish I had the time for a support group, but unfortunately I don't
...

What keeps you so busy, dear?

You have to make time for things that are important to you.
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

Offline denb45

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Re: Is there any such thing as a LTS support group anymore?
« Reply #7 on: August 17, 2012, 11:33:49 PM »
What keeps you so busy, dear?

You have to make time for things that are important to you.

 ;)  Your right, Henry, I'd really have to call you or PM you, to explain why I'm so busy with life as of late, but then again, I'd be making more excuses....thanks for your very kind insight and words of wisdom, it's appreciated more than you know  ;)

Hugs

DEN
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Miss Philicia

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Re: Is there any such thing as a LTS support group anymore?
« Reply #8 on: August 17, 2012, 11:39:09 PM »
Not to Henry: that means he's not really busy
"Iíve slept with enough men to know that Iím not gay"

Offline jm1953

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  • Posts: 255
Re: Is there any such thing as a LTS support group anymore?
« Reply #9 on: August 17, 2012, 11:52:24 PM »
Start one yourself. Go to the Center in Seattle and post a notice or whatever it is they allow you to do to get word out. You may have to settle for a small start and make sure anyone who shows up...keeps doing it.

Saw that you have http://sasgcc.org that lists support groups. One called Ageless might be a good place to find other LTS'...couldn't hurt to check.

Good luck...

Never thought of this.  Great idea.  I'll check it out.  Thanks a bunch!
Positive 25 years. 7/21/2012 Current CD 4: 780 Viral load: less than 50. 38 to 40%
Current drug regimen, Isentress, , Emtriva, Sustiva Wellbutrin, Klonipin, Allegra, Ambien, Testosterone, Nandrolone, Vicodin, Benedryl, Aspirin, lots of vitamin supplements.

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: Is there any such thing as a LTS support group anymore?
« Reply #10 on: August 18, 2012, 12:07:18 AM »
Not to Henry: that means he's not really busy

Awww... poor baby, what's the matter, you jealous cuz I reached to dear old Henry and not you....  I met him in D.C. and I thought he was a very nice chap, I don't even know you, cause you didn't even show up @ AMG 2012

Why don't you go drunk dial the Wumpette, if your feeling lonely  :-*

Hugs

DEN
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Solo_LTSurvivor

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Re: Is there any such thing as a LTS support group anymore?
« Reply #11 on: August 18, 2012, 01:02:51 PM »
Now Dennis,

I'm taking this opportunity to remind you that Philicia is recovering from some recent foot surgery so you couldn't have expected him to try and attend this year's AMG.

Can't you just show a bit of support for your fellow LTS on this forum  ;D
don't equate intelligence with lack of masculinity
Jim Phelps, Mission Impossible
____________________________

Seroconverted: Early 80s
Tested & confirmed what I already knew: early 90s

Current regimen: Atripla. 
Last regimen:  Epzicom, Sustiva (since its inception with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky ::))
Past regimens
Fun stuff (in the past):  HAV/HBV, crypto, shingles, AIDS, PCP

Jan 2012: 818/21%
Apr 2012: 964/22%
Jul. 2012: 890/21%
Oct. 2012: 920/23%

Still UD after all these years

Offline denb45

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  • "1987 Classic Old School POZ+"
Re: Is there any such thing as a LTS support group anymore?
« Reply #12 on: August 18, 2012, 01:46:41 PM »
And where were you what's your excuse  ;D  If go to this, I expect everyone to attend , the more the merrier

amiright  ;)

Hugs


DEN
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Theyer

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  • Current ambition. Walk the Dog .
Re: Is there any such thing as a LTS support group anymore?
« Reply #13 on: August 25, 2012, 07:56:29 AM »
For me this forum is my LTS support group. Yes I would like a physical one and will again start a search when I get back to London. I have thought about starting one but I am so unreliable now I hold off.

And therefore continue to contribute to my own dilemma.
"If we can find the money to kill people, we can find the money to help people ."  Tony Benn

Offline aztecan

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  • Posts: 5,384
  • 29 years positive, 56 years a pain in the butt
Re: Is there any such thing as a LTS support group anymore?
« Reply #14 on: August 28, 2012, 12:18:01 AM »
Yep, this is my support group.

There have been times when I don't know what I would have done without it.

Hey Dennis, I am sending you a PM.

HUGS,

Mark
« Last Edit: August 28, 2012, 12:19:48 AM by aztecan »
"May your life preach more loudly than your lips."
~ William Ellery Channing (Unitarian Minister)

 


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