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Author Topic: Eviplera  (Read 6686 times)

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Offline lina76

  • Member
  • Posts: 12
Eviplera
« on: August 03, 2012, 01:46:49 PM »
hello guys
I started taking drugs early this year...Truvada,Norvir and Reyataz. i started to experience the side effects e.g increased in breast size from 36D-36 F, weight gain and pain on my back. My viral load was UD.
I stopped the meds then  switched to a new med Eviplera..i  had a few side effects the 1st wk;-headaches and tummy pain then few wks later energetic..but now i feel tired,nausea..
Is there someone here who's been taking the same meds
17/12/10-tested Oz
03/03/11 cd4 370 vl 42000
06/04/11 cd4 330 vl 34000
20/04/11 cd4 317 vl 120000
28/04/11 cd4 403 vl --
04/05/11 see Dr to start meds

Offline britchick

  • Member
  • Posts: 446
Re: Eviplera
« Reply #1 on: August 05, 2012, 07:25:04 AM »
Hi lina76!

Im in the UK and also taking Eviplera.Im definetly not an expert re meds as  im a newbie .

I haven't taken any other HAART meds as  im so newly diagnosed.
I hear you on the fatigue side of things.(I made a post on that too....think its in Living With HIV thread here).
I keep having to go to bed early...and waking up during the night and early morning.....dodgy tummy/sore back and legs!!!!!



There are some good points......honest!!!!!!!!!I find that my nails and hair are growing lots and my skin is  better....no more sores on my scalp or hair falling out.

See every cloud has a silver lining!!!

I started writing a wee diary re symptoms ..lack of sleep etc so i can show it to my Consultant in September.

Im going to keep taking Eviplera as my  cd4 count has gone from 43 into the 336 range and viral load undetectable.(I have to remind myself of this on days when i feel crappy!)

All the best to you ....hope things settle down soon

Britchickx



Offline lina76

  • Member
  • Posts: 12
Re: Eviplera
« Reply #2 on: August 07, 2012, 11:14:48 AM »
Thanks Britc
its really strange with Eviplera. I'm still getting tired tired especially in the afternoon. I'll wait and see how it goes,i can't even have a run coz of my poor strength. I'll find out my viral load next wk.I'm really scared switching meds.

How are u getting on with it?
17/12/10-tested Oz
03/03/11 cd4 370 vl 42000
06/04/11 cd4 330 vl 34000
20/04/11 cd4 317 vl 120000
28/04/11 cd4 403 vl --
04/05/11 see Dr to start meds

Offline britchick

  • Member
  • Posts: 446
Re: Eviplera
« Reply #3 on: August 08, 2012, 01:46:15 PM »
lina76

Hi!

Im also really tired too.....seems to happen around 4 pm and 7 pm.

Tiredness where  I just want to lie down, but I cant!

I am going to keep trying with Eviplera...month to go to next clinic appt...but seeing my own GP on friday.
Please let me know how you get on !


Best Wishes!

Britchickx

Offline lina76

  • Member
  • Posts: 12
Re: Eviplera
« Reply #4 on: August 08, 2012, 02:36:22 PM »
Sorry to hear how you're feeling. i think this meds are too strong. I can't wait to see my viral load.
Today britc,i feel great,strong and happy. I hope it continues like this..So tomorrow i'll go for a run in the park,I have stayed at home for 3wks without exercise coz of this tiredness.
Try to drink lots of water in the morning hours when you wake up. i'll give you an update.
see ya

« Last Edit: August 08, 2012, 02:38:09 PM by lina76 »
17/12/10-tested Oz
03/03/11 cd4 370 vl 42000
06/04/11 cd4 330 vl 34000
20/04/11 cd4 317 vl 120000
28/04/11 cd4 403 vl --
04/05/11 see Dr to start meds

Offline britchick

  • Member
  • Posts: 446
Re: Eviplera
« Reply #5 on: August 09, 2012, 06:08:03 PM »
lina76

Wishing you all the best....hope you managed to get out for that run.You are def fitter than me!I walked up the road from town last wk....just a couple of miles and was huffing and puffing like an old lady!!

I had to walk quite a bit today re work.........so fingers crossed  it should get easier??!!!!!!!

Britchickx

Offline lina76

  • Member
  • Posts: 12
Re: Eviplera
« Reply #6 on: August 22, 2012, 08:55:32 AM »
Hi Britchick
How r u doing? I have realised this meds are too strong. I had an appoint recently with my Doc after i became sickly,weak as they thought my viral load would be low coz of the meds too. Doc was shocked abt the results that my viral load was not detected eventhough i was ill.
 Right now i feel better but my legs are abit tired...i think this meds are good but they have on and off side effects. lets hope they gonna be off. I have to wait for my next appoint for my CD4 results.

So how are you feeling now? see ya lina76 ;)
17/12/10-tested Oz
03/03/11 cd4 370 vl 42000
06/04/11 cd4 330 vl 34000
20/04/11 cd4 317 vl 120000
28/04/11 cd4 403 vl --
04/05/11 see Dr to start meds

Offline britchick

  • Member
  • Posts: 446
Re: Eviplera
« Reply #7 on: August 22, 2012, 01:09:06 PM »
Hi lina76!

Good to hear from you.I get you re the sore legs!Im also u/d.Im going to my clinic 5 Sept...so i've been keeping a wee diary re symptoms.

Since my last post to you...I was given another wk of sleeping tabs.... still waking around 5 am most days,  really , really tired, sore back and legs, cramp in left leg... no sickness or diarrh.
I know it could be much worse...hopefully a wee chat with my Specialist will throw up some suggestions....and  I can let you know what happens!
I cant take anti inflammatories so just using paracetemol!Here's the funny thing....my feet dont hurt anymore......so thats a bonus!!!!!!!!!!!
Maybe you could call the clinic and get your cd4 results quicker....I phoned them and got the results over the phone while  I was querying some side effects!

I still want to give Eviplera time.....im going to keep trying.
Cheers

Britchickx




Offline lina76

  • Member
  • Posts: 12
Re: Eviplera
« Reply #8 on: August 22, 2012, 07:10:04 PM »
thanks brit,
Happy to hear from you. I used to have sore feet be4 starting my meds,even putting on closed shoes was a big problem for me to walk. i think its bcoz of the high viral load and after starting the meds the pain left within a short time. i didn't have lack of sleep..i hope u r not stressed up abt your diagnosis.

I love this meds abt my skin is very soft,hair and nails growth but the bad side of it is the side effects which come and go. lets have hope that this side effects will come off and move on. I think my CD4 is great as the last one i had was 435 but not sure when they'll take my bloods for it again.

i'll continue taking eviplera coz i'm scared switching to another one then experience more side effects..i can't bare anymore. i'll update you too. have a lovely wk :)lina

17/12/10-tested Oz
03/03/11 cd4 370 vl 42000
06/04/11 cd4 330 vl 34000
20/04/11 cd4 317 vl 120000
28/04/11 cd4 403 vl --
04/05/11 see Dr to start meds

Offline britchick

  • Member
  • Posts: 446
Re: Eviplera
« Reply #9 on: August 23, 2012, 01:19:23 AM »
Hi lina76!

Seems like we have lot of the same side effects!
No...Im not stressed out anymore re diagnosis....I have good days and bad days.....but dont we all?????????!!!!!!!!!

I dont like the side effects.....but I'd rather have them than another bout of PCP ,  CMV and so on!!!!!!!!!!

Best wishes

Cheers

Britchickx

Offline britchick

  • Member
  • Posts: 446
Re: Eviplera
« Reply #10 on: September 08, 2012, 02:18:54 PM »
Hi lina76!

How are you doing?I said I would let you know what happened re my appt with my Consultant on 5 th Sept.

I took my diary/journal  with me!!!!!My Consultant is a very patient man!I explained re all the side effects  im having with Eviplera(oops just had a typo error and typed then deleted Evilplera LOL !!!!!!) that  I told you.My labs were CD4 count of 383 in April and then 336 in June and  vl  U/d...so will let you know when  I get results re Sept labs..next visit last week in November.

Im on a 14 day course of sleeping tablets(zopiclone)  and he is going to up the level of fluoxetine as well as keeping co-trixamole(septrin)to prevent  PCP reoccurring
..also fluconazole....and paracetemol........im like a walking disaster!
Im still waking up in the night and 5 pm......I seemed to crash and burn out about 2 wks ago.....just think I was weepy,  over tired and oversensitive!!!!!

The Consultant is going to keep an eye on me re the pain as I was diagnosed with fybromyalgia before  AIDS so....it could be both causing the pain!

I was going to pm you privately...but  by posting it might encourage other people taking Eviplera to chime in.

Please let me know how you are

Cheers

Britchickx

Offline lina76

  • Member
  • Posts: 12
Re: Eviplera
« Reply #11 on: September 09, 2012, 05:07:39 PM »
I'm sorry to hear that...that u are  still feeling unwell. I was told that eviplera is too strong but sadly it's side effects. Just realised that the good side of ,it works well with the viral load and cd4 and you become energetic after the sideeffects. Right now i feel great and strong. My viral load is not detectable ...just gonna wait for the CD4. i have got a Doc appointment this wk..i'll explain as well the side effects i had be4, as they have already dismissed at the moment. i will have to ask the doc to do my bloods to check my liver and the kidneys function.

You'll feel much better and stronger later on..trust me.. drink warm water after you wake up in the morning be4 breakfast then have a normal breakfast and eat well especially when you are taking eviplera..i'll be glad to chat more.   
« Last Edit: September 09, 2012, 05:13:10 PM by lina76 »
17/12/10-tested Oz
03/03/11 cd4 370 vl 42000
06/04/11 cd4 330 vl 34000
20/04/11 cd4 317 vl 120000
28/04/11 cd4 403 vl --
04/05/11 see Dr to start meds

Offline britchick

  • Member
  • Posts: 446
Re: Eviplera
« Reply #12 on: September 10, 2012, 01:19:19 AM »
Hi lina76!

Thanks for that and  I hope that things go well at your next appointment.
I know that im lucky to have the option to have treatment so Im definetly not giving it up!

Great  news that your side effects are getting better !!!!!

Cheers

Britchickx




 


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