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Author Topic: Life-threatening illness: To tell or not to tell?  (Read 1856 times)

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Offline ds4146

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Life-threatening illness: To tell or not to tell?
« on: July 26, 2012, 12:06:03 AM »
Interesting item and one that many of us have considered, and seems still so of importance and prevalent to many. Still hits home, but I am happy that I shared and still do with those who matter. 

http://www.msnbc.msn.com/id/48321493/ns/health-cancer/?__utma=14933801.414079725.1342410892.1343267996.1343274781.39&__utmb=14933801.1.10.1343274781&__utmc=14933801&__utmx=-&__utmz=14933801.1342410892.1.1.utmcsr=(direct)|utmccn=(direct)|utmcmd=(none)&__utmv=14933801.|8=Earned%20By=msnbc%7Ccover=1^12=Landing%20Content=Mixed=1^13=Landing%20Hostname=www.nbcnews.com=1^30=Visit%20Type%20to%20Content=Earned%20to%20Mixed=1&__utmk=139500979#.UBC_WrSvJ8E

Online leatherman

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Re: Life-threatening illness: To tell or not to tell?
« Reply #1 on: July 26, 2012, 10:43:14 AM »
I am just going to read this article now; but here's a tinyurl.com link to fix the one ds4146 posted
(use tinyurl.com anything you get a long url or a url with special characters in it ;) that way it won't break, or expand off the page.)

http://tinyurl.com/dyjyhom
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Mishma

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    • Marquis de Vauban
Re: Life-threatening illness: To tell or not to tell?
« Reply #2 on: July 26, 2012, 01:44:06 PM »
I've got no problem telling people I have cancer and heart disease but after being rejected/spurned after confiding my HIV status I am highly selective. One example will suffice. After revealing to a colleague that I was HIV positvie I was told not to get within 100 feet of his child!
2016 CD4 25% UD (less than 20). 27+ years positive. Isentress, Truvada, Acyclovir, Clonazepam, Zolpidem, Bupropion, Lisinopril, Pravastatin, Quetiapine, Doxcycline, Testosterone, Suatriptan/Naproxen, Restasis, Dorzolamide, Latanoprost, Asprin, lortab, Levothyroxine, Fioricet, Restasis, Triamclinolone, Nitrostat.

Offline Dr.Strangelove

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Re: Life-threatening illness: To tell or not to tell?
« Reply #3 on: July 26, 2012, 06:17:53 PM »
OMG, are you serious? I'm sorry to hear that.
I don't deal too well with reactions like those. It really drags me down. This is why I have told only very few of my close friends. I tend to be more open to people I know I will probably never meet again. If they react in a bad way, I can handle it.

Offline surf18

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Re: Life-threatening illness: To tell or not to tell?
« Reply #4 on: July 26, 2012, 10:46:40 PM »
Great article,
But again it's so sad how HIV patients mostly suffer in silence.
But yet for me I resonate with the person in the article who didnt want to be treated differently or have pity.
But sometimes I want some damn sympathy.
Now I certainly don't want something but we all know if we were dx'd with most anything else we would have all pretty much disclosed

Offline Ann

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    • Num is sum qui mentiar tibi?
Re: Life-threatening illness: To tell or not to tell?
« Reply #5 on: July 27, 2012, 06:08:09 AM »

After revealing to a colleague that I was HIV positvie I was told not to get within 100 feet of his child!


Good lord, people are so ignorant. Whenever I encounter a reaction like that, I give them chapter and verse on transmission - and of course I always ask them when was the last time they tested. If they tell me they've not been at risk, I say "Oh, you've never had a bare fuck in your life? Poor you." That always gets them worried. ;D
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline surf18

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Re: Life-threatening illness: To tell or not to tell?
« Reply #6 on: July 27, 2012, 07:52:59 AM »
ha i like that ann!!!

Offline britchick

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Re: Life-threatening illness: To tell or not to tell?
« Reply #7 on: July 27, 2012, 09:37:06 AM »
Hi!

Good one Ann!!!!!!!!!!

Britchickx

Offline Rockin

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  • Posts: 491
Re: Life-threatening illness: To tell or not to tell?
« Reply #8 on: July 27, 2012, 03:28:08 PM »
I completely understand this. I hate being treated differently and people are generally ignorant when it comes to HIV. They have no idea what being UND means and what the medicine does. Can't blame them, this is not widespread information.

It's quite ridiculous that we are in 2012 and people will still look at you thinking you'll die soon. "Oh poor thing".

Offline surf18

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Re: Life-threatening illness: To tell or not to tell?
« Reply #9 on: July 27, 2012, 04:44:26 PM »
But we have to remember these people don't have this thing. They don't read up on it or see a dr on it every 3 months. They are completely blissfully ignorant on it. To be honest I didn't know shit about this disease or its treatments until I was dx'd with it. The general public just is nt informed on this as they are on other diseases.

Offline jkinatl2

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  • Doo. Dah. Dipp-ity.
Re: Life-threatening illness: To tell or not to tell?
« Reply #10 on: July 27, 2012, 05:14:17 PM »
But we have to remember these people don't have this thing. They don't read up on it or see a dr on it every 3 months. They are completely blissfully ignorant on it. To be honest I didn't know shit about this disease or its treatments until I was dx'd with it. The general public just is nt informed on this as they are on other diseases.

So they've been in a coma since 1980? How tragic.

I do not for a moment buy ignorance as an excuse. Not for a moment.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline vaguesbleues

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  • Posts: 93
Re: Life-threatening illness: To tell or not to tell?
« Reply #11 on: July 27, 2012, 05:15:23 PM »
I know for me, I've disclosed to a very limited subset of supportive friends.  Even that was immediately after diagnosis, as I just needed the help and support and hugs and whatnot.  I still haven't told ANY of my family, and I don't envision ever telling them.  When I first came out to my family, I was told that they were concerned I'd die young & alone of AIDS and go to hell.  I just don't need the "I told you so" comments from them...
03/10/2011 - Tested HIV negative
04/26/2011 - Inconclusive WB result
05/19/2011 - Confirmed HIV positive
                    VL < 50, T-Cell 747 (30%)
06/13/2011 - VL 345, T-Cell 841 (30%)
08/23/2011 - VL 50,100, T-Cell 1155 (19%) - CMV
09/18/2011 - Started Atripla!!
11/07/2011 - VL 489, T-Cell 881 (31%)
02/08/2012 - VL Undetectable!!, T-Cell 772 (34%)
08/08/2012 - VL UD, T-Cell 1070 (42%)
11/05/2012 - VL UD, T-Cell 1174 (35%)
03/18/2013 - VL UD, T-Cell 972 (28%)
10/04/2013 - VL UD, T-Cell 1025 (34%)

Offline Common_ground

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Re: Life-threatening illness: To tell or not to tell?
« Reply #12 on: July 27, 2012, 05:16:52 PM »
People dont believe me when I say I got HIV, because "You dont look sick" and when they know, they act like we will never meet again, kind of " Is there anything I can do before you pass away?" This is people I see regularly, several times a week.

Just like you point out surf, they dont know about HIV and what it really is. When I asked my friends(straight, if that matters) before they knew I was + what they would do if they turned out to be positive all said they would try to get a hold of all the money they could and just party hard, go crazy kind of stuff, most also said that if they were +, they rather live with it unknowing and then just die.
2011 May - Neg.
2012 June CD4:205, 16% VL:2676 Start Truvada/Stocrin
2012 July  CD4:234, 18% VL:88
2012 Sep  CD4:238, 17% VL:UD
2013 Feb  CD4:257, 24% VL:UD -viramune/truvada
2013 May CD4:276, 26% VL:UD

 


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