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Author Topic: New here & new to Atripla  (Read 1109 times)

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Offline noregrets

  • Member
  • Posts: 18
New here & new to Atripla
« on: October 06, 2012, 02:43:07 PM »
Hi everyone,

Not sure if this is the best section but I figured I'd start someplace & this was about as good as any.  Regardless of what my profile name is, I'm having a pretty rough week (I think I was in a better place mentally when I set this account up a few weeks back).

Here's my quick story...

After being in denial for several years about getting tested (I had assumed I was probably Pos & was too scared to face it), I finally went and got tested last December.  A week before Christmas I got the results - positive. 

My story is a little complicated because I work in a pretty big regional medical center with an excellent HIV/ID department.  The bad news is the department I work in is "under" the management of the same group of departments that ID is under...& often times people I work with "float" in the ID department to fill in for people if they're out.  Well, I was concerned about confidentiality (for no real concrete reason, I was just being cautious) so I ended up going to an HIV/ID doctor here in town with his own practice.

Big Huge Mistake.  I honestly don't think he knew what the Hell he was doing.  Everytime I went to see him all he did was order up more lab work & tell me to "be careful with what you're doing and don't spread it".  After 8 months of this nonsense I decided to just go ahead & make an appointment with the HIV department at the hospital I work at and I have to say that it was the best decision I've made in a long time.  They really do a fantastic job of making a pretty awful situation easier to handle.  Instead of one doctor (who, I'm convinced is homophobic), I have a team of  doctors working with me (always 2, sometimes 3 at each visit), a social worker (whoís beyond wonderful) & access to a psychiatrist (who, luckily, I havenít neededÖyet!).

Oh top of the HIV infection I also found out I have Syphilis.  Thatís normally pretty easy to treat with Penicillin, but Iím allergic to that.  We did one round of treatment with Doxycycline and that didnít seem to work.  So, after two spinal taps to determine whether or not itís neurological (they say no Ė finally, some good news), Iíve got an appointment with an Allergy specialist later this month to see about ďde-sensitizingĒ me to Penicillin so I can be treated with that and hopefully knock that out.

Over the course of the past 10 months my CD4s have been going down and my VL has been going up.  We decided this week to go ahead and start me on Atripla. 

I havenít had ďtooĒ many bad side affects yet, but I can honestly say I  know why they call it AĒtripĒla nowÖI feel like Iím on a trip each night when I take it and the next morning I feel like Iíve been out all night drinking and partying (no such fun though!).  This wouldn't be so bad if the effects wore off early, but I feel like a drunkard till at least Noon.  Hopefully the side effects will lesson over time.

I think the first night I took the first pill the past few years of worry and anxiousness came to a headÖitís real now.  Iím positive and taking this fucking horse pill each night before bed (I hate taking pillsÖesp. big ones!).

Anyway, Iím sorry for the long post.  I just feel like I needed to post my story someplace.  Iím not having the best of times now dealing with it, but Iím working on that and I hope coming here more often will help.

Thanks for reading.
Joey

"Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind." - Dr. Seuss

Diagnosed:  Dec. 15, 2011
Jan. 2012:  CD4 - 584, VL - 104,000
July 2012:  CD4 - 435, VL - 265,000
Sept. 2012:  CD4 - 252, VL - 307,000
Started Atripla:  Oct. 2, 2012
Nov. 2012: CD4 - 563, VL - 8,440
Jan. 2013: CD4 - 540, VL - 436
April 2013: CD4 - 369, VL - 109
July 2013: CD4 - 721, VL - Undetectable (finally!)
Nov. 2013: CD4 - 795, VL - 21
Mar. 2014: CD4 - 759, VL - Undetectable

Offline Miss Philicia

  • Member
  • Posts: 23,558
  • celebrity poster, faker & poser
Re: New here & new to Atripla
« Reply #1 on: October 06, 2012, 03:08:39 PM »
All things considered, you sound like your dealing with all of this much better than you think. Starting off with a less than ideal doctor can make the first year of a diagnosis very difficult.
"Iíve slept with enough men to know that Iím not gay"

Offline tednlou2

  • Member
  • Posts: 4,604
Re: New here & new to Atripla
« Reply #2 on: October 06, 2012, 11:50:25 PM »
Welcome to the forums.  It's good you made the decision to make a change of docs.  I'm glad you're getting such good care now.  I keep planning to ditch my doc. 

Keep in touch and let us know how things are going. 

Ted   

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: New here & new to Atripla
« Reply #3 on: October 07, 2012, 07:11:15 AM »
Hi Joey, welcome to the forums.

Those drunk/trippy side effects you're feeling from the Sustiva in your Atripla should subside soon.

Have you been eating too close to when you take your pill? You should not eat two hours either side of taking it - at least until your body gets used to it. Many people only need to follow the empty stomach rule in the beginning. Also, eating a high-fat meal before your Atripla will increase the chance that you'll feel the side effects even more.

The side effects should still subside soon, but go easy on yourself and watch what and when you eat before your pill. You can still eat what you want earlier in the day, just be careful about what you're eating two hours before your pill.

I'm also glad to hear you ditched your first doctor and it sounds like your new set-up is great. If you're still worried about confidentiality, remember HIPAA laws and don't be shy about reminding others if you feel they're forgetting.

Good luck. You're going to be ok.

Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline HnyMustard

  • Member
  • Posts: 26
Re: New here & new to Atripla
« Reply #4 on: October 07, 2012, 11:13:08 AM »
I'm so glad you ditched that first doctor  :o Yikes...

Thanks so much for sharing your story.. things are rocky at first, but they smooth out over time  8)

Offline bufguy

  • Member
  • Posts: 159
Re: New here & new to Atripla
« Reply #5 on: October 07, 2012, 01:14:18 PM »
It will get better...Read my post from Friday...Atripla is your friend!
5/29/08 confirmed HIV+
6/23/08 Vl 47500  CD4 511/29% CD8 .60
start atripla
8/1/08 Vl 130  CD4 667/31% CD8 .70
9/18/08 Vl un  CD4 not tested
12/19/08 Vl un CD4 723/32% CD8 .80
4/3/09 Vl un CD4 615/36% CD8  .98
8/7/09 vl un CD4 689/35% CD8 .9
12/11/09 vl un CD4 712/38% CD8 .89
4/9/10 vl un CD4 796/39% CD8 1.0
8/20/10 vl un CD4 787/38% CD8 1.0
4/6/10 vl un CD4 865/35% CD8 .9
8/16/10 vl un CD4 924/37% CD8 1.0
12/23/10 vl un CD4 1006/35% CD8 .9
5/2/10 vl un CD4 1040/39% CD8 .9
8/7/13 vl un CD4 840/39% CD8 .9

Offline DiabloII

  • Member
  • Posts: 13
  • Life is a Battle Field
Re: New here & new to Atripla
« Reply #6 on: October 08, 2012, 12:17:15 AM »
Likewise, welcome to the forum!

I'm new here, diagnosed 6-6-12.  i also had a bad experience with my first doc, had to fire the ass hole after he gave me some meds that I was allergic to.  The idiot didn't read me chart to see that I was allergic to penicillin and sulfur drugs.  He started me on a regimen of 4 pills, one of which had sulfur in it.  After a week of letting it build up in my system, a friend finds me in bed, barely breathing and takes me to the hospital where I spent 24 hours.

I changed docs and doing much better now!  He started me on Atripla as well!  Boy was the first few days interesting!  I started tripping 20 mins after taking my meds and stayed fucked up for a while in the morning.  After a while, it went away to.  My biggest problem was the rash.  Had the rash from head to toe!  LOL!  But it also went away after 4 days.  The only thing that seems to linger is the dreams.  They get interesting at times.  None of them have ever caused me to worry or scare me.   Most are quite funny.  However, three nights ago, I had one that wasquite erotic.  I woke up with jizz all over the place!  Oh well, at least something good cum out of it!  LOL!

Not to make light of the situation..., hang in there! It will get better!  Thanks to many people on here, you learn your not alone!  These are good peeps in here!
Holla if you want to chat!

Offline noregrets

  • Member
  • Posts: 18
Re: New here & new to Atripla
« Reply #7 on: October 13, 2012, 03:09:54 PM »
Thanks everyone for the welcome, kind words, & advice.  I really appreciate it.

Last night was night 12 of Atripla and (thankfully), the side affects seem to have just about completely diminished.  No more drowsiness in the morning & even the dreams (which I didnít really mind, Iím just not used to remembering them) have just about gone away (at least Iím not remembering them as much now).

Iím a late eater and Iím trying these days to get into bed at a reasonable hour (something I have a hard time doing since Iím a night owl & like to stay up really late) and my main problem has been trying to eat early enough to give me enough time between my meal and taking my pill when I go to bed.  At least half of the time I end up eating and taking my meds less than an hour later.  But, luckily, Iím not having any bad effects with that.

One thing I have noticed is that my energy levels are up.  Iíve never gotten ďsickĒ so far, but Iíve not had any energy for about a year now.  I mean, just about anything wears me out and several times a week I just feel like crawling into bed when I get home at night & calling it a day.  For the past week or so Iíve noticed I have MUCH more energy than usual.  I donít know if the drugs are kicking in this fast (is that even possible??), or maybe mentally Iím just feeling better about things overall (finally taking control of things) and as a result Iím just feeling better which makes me less tired. 

Whatever it is, I just hope it keeps it up.  ;)
Joey

"Be who you are and say what you feel, because those who mind don't matter and those who matter don't mind." - Dr. Seuss

Diagnosed:  Dec. 15, 2011
Jan. 2012:  CD4 - 584, VL - 104,000
July 2012:  CD4 - 435, VL - 265,000
Sept. 2012:  CD4 - 252, VL - 307,000
Started Atripla:  Oct. 2, 2012
Nov. 2012: CD4 - 563, VL - 8,440
Jan. 2013: CD4 - 540, VL - 436
April 2013: CD4 - 369, VL - 109
July 2013: CD4 - 721, VL - Undetectable (finally!)
Nov. 2013: CD4 - 795, VL - 21
Mar. 2014: CD4 - 759, VL - Undetectable

Offline buginme2

  • Member
  • Posts: 2,744
  • Certified Life Coach
Re: New here & new to Atripla
« Reply #8 on: October 13, 2012, 03:25:51 PM »
Congrats on making it through the first 12 days with no issues.  Should be smooth sailing from here. 

After awhile you can start to relax that "take on an empty stomach" requirement if you dont have any issues.  You will have to experiment, if you do take it too close to a fatty meal you will know it.  Fortunately it doesnt affect the efficacy, but can increase side effects.

I think it is very reasonable for you to be feeling better even after 12 days.  You may not have been aware but your body has been fighting and that takes it tole. 

Its good to hear you have had such a good experience, I think some people worry so much about side effects they dont consider that they will actually feel better once going on meds.. Also, Atripla has some positive side effects too that people dont talk about much.  Some are quite enjoyable.
"All I need are some tasty waves, a cool buzz, and I'm fine."

http://www.youtube.com/watch?v=6e0gcEC1TWE

Offline Billy B

  • Member
  • Posts: 374
Re: New here & new to Atripla
« Reply #9 on: October 13, 2012, 03:30:17 PM »
Hello Joey,
Although I am not on Atripla I do take part of it since I am taking Truvada. In my situation the energy thing would come and go but eventually all that passed and I feel great 95% of the time. I am one of the older ones here and I think that my age in general accounts for the 5% of the time that I am dragging.
I guess the advice I have is if you are tired or sleepy get some rest. Your Atripla is fighting the virus so the first few weeks/months your body is undergoing a battle. After you become UD and you start to heal you will feel much much better.
Billy
VL 4420 CD4 340 CD4% 24   3/15/10 Started I&T
VL  UD   CD4 340 CD4% 26.5 05/13/10
VL  UD   CD4 360 CD4% 27.1 08/3/10
VL  UD   CD4 310 CD4% 28.4 11/22/10
VL  UD   CD4 420 CD4% 27.9 02/11/11
VL  UD   CD4 370 CD4% 26.4 06/08/11
VL  UD   CD4 360 CD4% 27.7 09/23/11
VL  UD   CD4 370 CD4% 28.3 01/20/12
VL  UD   CD4 430 CD4% 28.8 05/11/12
VL  UD   CD4 370 CD4% 28.1 09/07/12
VL  UD   CD4 390 CD4% 32.3 03/14/13

 


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