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Author Topic: ADAP Watch List Updates July 2012  (Read 2286 times)

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Offline leatherman

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ADAP Watch List Updates July 2012
« on: July 06, 2012, 12:53:34 PM »
ADAPs with Waiting Lists as of July 5, 2012
1,958 individuals in 9 states


STATEAMOUNTCHANGE
Alabama118+13
Florida45-3
Georgia52419
Idaho160
Louisiana**270+13
Montana10
Nebraska139-2
North Carolina275+10
Virginia570-3

**Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.


quoted from email by Julie Scofield, Exe Dir NASTAD
"The total number of individuals on waiting lists has decreased 79 percent since a high of 9,298 individuals on September 1, 2011. Regular FY2011 and FY2012 ADAP funding, along with FY2011 emergency funds, have helped to alleviate some of the waiting lists and other cost containment measures. Additional funding is still needed to further decrease or stabilize the waiting lists.

FY2012 emergency funding for ADAPs, including both the $35 million in new funding that President Obama announced on World AIDS Day and the $40 million in continuation funding for FY2012, was anticipated to be awarded by July 1, 2012. The $35 million in new funding was available for all Part B grantees. Awards will be capped at $7 million with a minimum award of $50,000. The $40 million in continuation funding was available for competition only for the 30 Part B grantees that received FY2011 ADAP emergency funding. The new funding is expected to further reduce ADAP waiting lists and other cost containment measures currently in place.

Regarding FY2013 funding, the Senate Appropriations Committee approved a Labor-HHS-Education Appropriations bill that includes a $30 million increase for ADAP over FY2012 funding levels while continuing the $35 million announced on World AIDS Day as part of the ADAP base funding.  President Obamaís FY2013 budget proposal included a $67 million increase for ADAP over FY2012 levels, for a total of $1 billion. The Presidentís FY2013 budget also includes the $35 million announced on World AIDS Day.  The House is expected to mark-up their Labor-HHS Appropriations bill after the holiday recess.   

As a result of the variability of ADAP enrollment and funding, waiting lists will likely remain and continue to fluctuate, particularly with increased efforts to identify new individuals living with HIV or re-engage individuals lost to care. Many ADAPs continue to struggle financially, including those without any cost-containment measures currently in place.  Four ADAPs currently anticipate the need to implement cost-containment measures or a waiting list during the ADAP FY2012 grant year (began April 1, 2012). "
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Watch List Updates July 2012
« Reply #1 on: July 17, 2012, 12:23:27 AM »
ADAPs with Waiting Lists as of July 12, 2012
2,030 individuals in 9 states


STATEAMOUNTCHANGE
Alabama100-18
Florida199+154
Georgia429-95
Idaho14-2
Louisiana**294+24
Montana10
Nebraska141+2
North Carolina273-2
Virginia579+9

ADAP July 12th Watch List
**Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline vaguesbleues

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Re: ADAP Watch List Updates July 2012
« Reply #2 on: July 17, 2012, 01:55:15 AM »
Whoa...What happened in Florida?!
03/10/2011 - Tested HIV negative
04/26/2011 - Inconclusive WB result
05/19/2011 - Confirmed HIV positive
                    VL < 50, T-Cell 747 (30%)
06/13/2011 - VL 345, T-Cell 841 (30%)
08/23/2011 - VL 50,100, T-Cell 1155 (19%) - CMV
09/18/2011 - Started Atripla!!
11/07/2011 - VL 489, T-Cell 881 (31%)
02/08/2012 - VL Undetectable!!, T-Cell 772 (34%)
08/08/2012 - VL UD, T-Cell 1070 (42%)
11/05/2012 - VL UD, T-Cell 1174 (35%)
03/18/2013 - VL UD, T-Cell 972 (28%)
10/04/2013 - VL UD, T-Cell 1025 (34%)

Offline leatherman

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Re: ADAP Watch List Updates July 2012
« Reply #3 on: July 17, 2012, 06:23:34 PM »
STATEAMOUNTCHANGE
Virginia579+9
thanks to a note from one of our members (thanks Gingin!!) I've learned something that wasn't announced in the lastest update from NASTAD, and it's GREAT news!

Virginia has worked some magic ("worked with pharmaceutical companies to facilitate wait-listed clientsí access to medications through pharmaceutical assistance programs...increased its ability to serve its current clients and to accommodate future program growth.") and will be closing out it's wait list by Sept 30, 2012. :D Receiving special recognition from the National Alliance of State and Territorial AIDS Directors (NASTAD) for the programís novel approach to ensure medication access when ADAP demand exceeded available resources, Virginia ADAP will soon be serving the 579 people on the wait list and any future applicants to the program.

http://www2.wsls.com/news/2012/jul/13/virginia-expands-eligibility-aids-drug-assistance--ar-2054897/
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Online phildinftlaudy

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  • sweet Ann what you think babe...
Re: ADAP Watch List Updates July 2012
« Reply #4 on: July 17, 2012, 06:35:49 PM »
Whoa...What happened in Florida?!

I could be politically incorrect and say it was that big party I had a few weeks ago - but I won't (oops, guess I already did)

Actually, it may have went up because we are now "out of season" - meaning a lot of people who work during the typical tourist months are laid off, which could translate into an increase in persons applying for ADAP here. Our tourist months usually run October - April.... I'm not sure if the list is "real time" or if it trails a couple of months behind due to reporting lapses, if that is the case, and there are lapses then the above explanation might make sense. If not, and it is real time data, than it could be the result of increased testing and diagnosis.

We also get an influx of persons moving/relocating here immediately after the winter months (around April - May), so this could also be a reason behind the increase....

It would be interesting to find out what the reason(s) are - but more importantly, I hope the trend doesn't continue - we were doing pretty good for a hot minute.
September 13, 2008 - diagnosed +
Labs:
Date    CD4    %   VL     Date  CD4  %   VL
10/08  636    35  510   9/09 473  38 2900  12/4/09 Atripla
12/09  540    30    60   
12/10  740    41  <48   
8/11    667    36  <20  
03/12  1,041  42  <20
05/12  1,241  47  <20
08/12   780    37  <20
11/12   549    35  <20
02/12  1,102  42  <20
11/12   549    35  <20

Offline leatherman

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Re: ADAP Watch List Updates July 2012
« Reply #5 on: July 17, 2012, 06:54:20 PM »
The NASTAD report is real time data, often literally up-to-date to just the day before the report is issued. The data is generated by the state's health dpt  Ryan White/ADAP department.

I haven't heard anything about why there was such a jump this report - maybe it's related to the recent brouhaha about the unreported TB cases. Maybe there were "misplaced" ADAP cases that have been found. If I find out more, I'll be sure to update here.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline SANJUANDUDE

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  • Posts: 125
Re: ADAP Watch List Updates July 2012
« Reply #6 on: July 18, 2012, 06:24:09 PM »
People move in and out of Florida constantly.  I've done it myself on 3 separate occasions.  I remember back in 2010 when their waiting list was 4000, maybe even a little over.  Nothing really surprises me with that state and their ADAP.  Anyone going there, may want to seek out an ASO right away. 
10/2011-CD-4-598-Undetectable
01/2012-CD-4-758-Undetectable
04/2012-CD$-780-70 Viral Load
08-2012-CD4-846--20 viral load
02/2013-CD$ 865----20 Undetectable Viral Load
08/2013- CD4-898----<20 undetectable viral load

Offline SANJUANDUDE

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Re: ADAP Watch List Updates July 2012
« Reply #7 on: July 18, 2012, 06:26:10 PM »
Montana looks ridiculous with -1- person on the list.  Can't they just clear that with the funds?  There is actually really good care in Billings or Missoula.
10/2011-CD-4-598-Undetectable
01/2012-CD-4-758-Undetectable
04/2012-CD$-780-70 Viral Load
08-2012-CD4-846--20 viral load
02/2013-CD$ 865----20 Undetectable Viral Load
08/2013- CD4-898----<20 undetectable viral load

Offline leatherman

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Re: ADAP Watch List Updates July 2012
« Reply #8 on: July 24, 2012, 10:21:27 AM »
ADAPs with Waiting Lists as of July 19, 2012
1,805 individuals in 9 states


STATEAMOUNTCHANGE
Alabama134+34
Florida27-172
Georgia445+16
Idaho140
Louisiana**299+5
Montana2+1
Nebraska47-94
North Carolina275+2
Virginia562-17

ADAP July 19th Watch List
**Louisiana has a capped enrollment on their program. This number is a representation of their current unmet need.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline leatherman

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Re: ADAP Watch List Updates July 2012
« Reply #9 on: July 24, 2012, 10:23:41 AM »
Montana looks ridiculous with -1- person on the list.  Can't they just clear that with the funds?
seems like they listened to you SanJuan. LOL only instead of clearing their list, they doubled it!! ::)
oh and NC added two back after clearing two last time. ::)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline SANJUANDUDE

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  • Posts: 125
Re: ADAP Watch List Updates July 2012
« Reply #10 on: July 24, 2012, 12:49:18 PM »
LOL!!!!!  Now, they are up to 2.   The only reason I made that comment was for the short time, about 18 months, that I lived in Wyoming, there was 1 person on their waiting list.  My case worker had said, "they will clear one person next month with funding, they won't leave 1 person on there." 

Montana is a tad bit different.  There are a fair amount of transplants there from California and Seattle.
10/2011-CD-4-598-Undetectable
01/2012-CD-4-758-Undetectable
04/2012-CD$-780-70 Viral Load
08-2012-CD4-846--20 viral load
02/2013-CD$ 865----20 Undetectable Viral Load
08/2013- CD4-898----<20 undetectable viral load

Offline metekrop

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  • Posts: 352
Re: ADAP Watch List Updates July 2012
« Reply #11 on: July 25, 2012, 02:57:42 PM »
I'm just curious what brought the VA waiting list from over one thousand back six months ago to five hundred numbers.  I was not in this forum for a while and I need now to know if there is any special reason for that.

Just need quick response.  TKs
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

Offline leatherman

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Re: ADAP Watch List Updates July 2012
« Reply #12 on: July 25, 2012, 06:58:16 PM »
I'm just curious what brought the VA waiting list from over one thousand back six months ago to five hundred numbers.  I was not in this forum for a while and I need now to know if there is any special reason for that.

Just need quick response.  TKs
federal funds were finally distributed and the state itself funded ADAP better.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline metekrop

  • Member
  • Posts: 352
Re: ADAP Watch List Updates July 2012
« Reply #13 on: July 26, 2012, 09:48:57 AM »
federal funds were finally distributed and the state itself funded ADAP better.

Thank you, Leatherman.  I live in that part of the world and I'm just planning to leave to a neighboring states like DC or MD that don't have a waiting list if in case I lost my job and hence my insurance coverage.  So if this is the case I might need to change my plan.
Diag on Dec 8, 2000, CD 440 VL 44K, No Meds
Dec/08 - Feb/09 CD< 50 & VL >500k hosp'z.
St. Atripla - July/09 CD 179, VL 197k
Oct/09 CD 300 VL UD Chol 267
Mar/10 CD 468 UD, Ch 220
Aug/10 CD 460 UD, Ch 195
Dec/10 CD 492 UD, Ch 172
Mar/11 CD 636 UD, Ch 201
Aug/11 CD 530 UD, Ch 98
Jan/12 cd 616 UD, ch 189
Jul/12 CD 640 UD, Ch ?
Dec/12 CD 669 Ud, Ch 125
May/7 CD711 Ud, Ch?
Nov/ 22 663 UD, Ch,
April 17 CD 797, UD

 


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