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Author Topic: HIV Sucks  (Read 5216 times)

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Offline gadawg1979

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HIV Sucks
« on: June 29, 2012, 01:44:37 AM »
Okay now that I have your attention.  I am grateful for all the meds and all the support that we have now but hey it still sucks.  I have come to grips with things and yes there are lots of pills in my future that have to be taken at a certain time with a certain amount of food and if I do not do that then they do not work or I have massive uncontrolable shits... Yeah that is a great thing. 
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline Ac75088

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Re: HIV Sucks
« Reply #1 on: June 29, 2012, 01:48:57 AM »
Don't forget about the depression, crazy dreams, and periodic breakouts lol
01-12-08 Tested poz cd4 700 vl 8,000
04-25-11 Lowest cd4 count of 415 vl high at 250,000
05-03-11 Started Atripla
05-16-11 Hospitalized and treated for 2 weeks (neurosyphilis)
07-05-11 CD4 count 585 VL 550
10-04-11 CD4 count 700 VL 75
02-03-12 CD4 count 799 VL UD
08-08-12 CD4 count 838 VL UD

Offline Ac75088

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Re: HIV Sucks
« Reply #2 on: June 29, 2012, 01:55:01 AM »
It really is an awful disease to have, but just remember, we have HIV..HIV doesn't have US
01-12-08 Tested poz cd4 700 vl 8,000
04-25-11 Lowest cd4 count of 415 vl high at 250,000
05-03-11 Started Atripla
05-16-11 Hospitalized and treated for 2 weeks (neurosyphilis)
07-05-11 CD4 count 585 VL 550
10-04-11 CD4 count 700 VL 75
02-03-12 CD4 count 799 VL UD
08-08-12 CD4 count 838 VL UD

Offline gadawg1979

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Re: HIV Sucks
« Reply #3 on: June 29, 2012, 02:02:17 AM »
True there are things that can kill you faster and as long as we keep on our meds we are good
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline jkinatl2

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Re: HIV Sucks
« Reply #4 on: June 29, 2012, 02:08:22 AM »
I had no idea Complera was so restrictive. I take Norvir, Prezista, Isentress and Truvada twice a day with no dietary restrictions except for grapefruit.

My shits are quite controllable and my viral load is undetectable. Are you having massive problems with Complera? I know initial side effects can cause a rough few weeks, but in this day / age a newly diagnosed person really shouldn't suffer so.

Have you spoken to your doctor?

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline Miss Philicia

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Re: HIV Sucks
« Reply #5 on: June 29, 2012, 02:09:58 AM »
I eat grapefruit.
"Iíve slept with enough men to know that Iím not gay"

Offline jkinatl2

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Re: HIV Sucks
« Reply #6 on: June 29, 2012, 02:17:50 AM »
I eat grapefruit.

You are a rebel. If I eat it I get the squigglies like nobody's business.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline gadawg1979

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Re: HIV Sucks
« Reply #7 on: June 29, 2012, 02:26:35 AM »
Go back on the 18th so I will talk with the doc then,,,, I am okay with it as long as I eat the right amount.  Eat just at or under 400 calories and you need to buy stock in charmin. 
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline jkinatl2

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Re: HIV Sucks
« Reply #8 on: June 29, 2012, 02:44:58 AM »
Have you tried any of the tricks to regulate that stuff? For some folks, can't acid tablets (Tums) work, for me it's been loads of fiber. Metamucil makes a tasty fiber cookie.

This forum and the ferret rescue forums are the only ones I belong to, and both of them seem to have one thing in common; poop discussions

:)
"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline gadawg1979

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Re: HIV Sucks
« Reply #9 on: June 29, 2012, 02:57:57 AM »
LOL I just over eat at dinner now and that seems to work.... If I fail to do that I need a great book
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline mecch

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Re: HIV Sucks
« Reply #10 on: June 29, 2012, 08:08:26 AM »
http://en.wikipedia.org/wiki/Debbie_Downer

If you are in countries where you have some options as for drug combinations, and additional medicines, some of the side effects you two are having or worrying about can be avoided.
« Last Edit: June 29, 2012, 05:09:50 PM by mecch »
ďFrom each, according to his ability; to each, according to his needĒ 1875 K Marx

Offline Matty the Damned

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Re: HIV Sucks
« Reply #11 on: June 29, 2012, 08:38:52 AM »
I eat grapefruit.

Grapefruit makes my dog vomit.

I can has show you pictars?

MtD

Offline leatherman

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Re: HIV Sucks
« Reply #12 on: June 29, 2012, 10:24:48 AM »
i know several people, myself included at times, who regularly include Immodium as another daily medication because of similar issues/side effects.

when are you taking your meds? 400 calories isn't all that much. Surely you ingest more calories than that at dinner time. If not, add a dessert every night. LOL Also have you taken notice on whether the problem is worse or better with certain foods? Maybe you can just avoid certain things and resolve this issue.

do make sure to tell the Doc. in this day and age, with multiple ways to combat side effects, and multiple HIV regimens, there should be some way to help you.

Good luck!!
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Miss Philicia

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Re: HIV Sucks
« Reply #13 on: June 29, 2012, 10:42:31 AM »
You are a rebel. If I eat it I get the squigglies like nobody's business.


Not really a rebel. It isn't as if this is a daily thing. Mostly once a twice a month. And never grapefruit juice, only the fruit.
"Iíve slept with enough men to know that Iím not gay"

Offline Rev. Moon

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  • Smart ass faggot ©
Re: HIV Sucks
« Reply #14 on: June 29, 2012, 11:24:04 AM »
Not really a rebel. It isn't as if this is a daily thing. Mostly once a twice a month. And never grapefruit juice, only the fruit.

I drink the forbidden juice once every now and then.  The actual fruit is better though.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline gadawg1979

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Re: HIV Sucks
« Reply #15 on: June 29, 2012, 11:47:59 AM »
was never big on the Juice but like the fruit and I eat it still every now and then.  All things in moderation.
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline Miss Philicia

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Re: HIV Sucks
« Reply #16 on: June 29, 2012, 11:51:04 AM »
I drink the forbidden juice once every now and then.  The actual fruit is better though.

I kind of find the juice overwhelming, but then I barely drink juice of any kind. Except apricot nectar or passionfruit :)

As an aside, there are few things as delightful as a passion fruit daiquiri in a tropic setting, no? Very Bouvier from what I hear.
"Iíve slept with enough men to know that Iím not gay"

Offline Rev. Moon

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Re: HIV Sucks
« Reply #17 on: June 29, 2012, 11:53:53 AM »
As an aside, there are few things as delightful as a passion fruit daiquiri in a tropic setting, no? Very Bouvier from what I hear.


Anything with passion fruit, papaya, or mango gets an A+ on my list.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline spacebarsux

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Re: HIV Sucks
« Reply #18 on: June 29, 2012, 01:19:29 PM »

Anything with passion fruit, papaya, or mango gets an A+ on my list.

I find Papaya totally vile. It infects the taste of all other fruits.
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline Miss Philicia

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Re: HIV Sucks
« Reply #19 on: June 29, 2012, 01:31:22 PM »
I find Papaya totally vile. It infects the taste of all other fruits.

I agree... never have been able to develop a good appreciation for this.

Love mango however.

Anyone for guava? <3
« Last Edit: June 29, 2012, 01:33:29 PM by Miss Philicia »
"Iíve slept with enough men to know that Iím not gay"

Offline Jeff G

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  • How am I doing Beren ?
Re: HIV Sucks
« Reply #20 on: June 29, 2012, 01:36:58 PM »
The only fruit I cant stand is grapefruit and cantaloupe . cantaloupe is a melon I suppose but I almost retch at the smell of them at the grocery much less trying to put a bite of the vile stuff in my mouth .

Offline Miss Philicia

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Re: HIV Sucks
« Reply #21 on: June 29, 2012, 01:44:25 PM »
Cantaloupe is the worst. I'm so not huge on any type of melon though. I can handle green melon but that is only because it's often served with prosciutto.
"Iíve slept with enough men to know that Iím not gay"

Offline denb45

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Re: HIV Sucks
« Reply #22 on: June 29, 2012, 01:46:17 PM »
Damm you queers are way too exotic for me  ;D  anybody like black berries raspberries strawberries, bananas, cherries and watermelon, that is the only fruit I can eat w/ my G.I. disease, if i eat any of that others stuff, I'll run for the pooper many many times  :-[
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Rev. Moon

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Re: HIV Sucks
« Reply #23 on: June 29, 2012, 03:25:20 PM »
I find Papaya totally vile. It infects the taste of all other fruits.

I agree... never have been able to develop a good appreciation for this.

Love mango however.

Anyone for guava? <3


What kind of papaya have you queens been eating?  Well, in Space's case I think it is different variety.  If you buy it at the right time, when it is ripe and sweet (but not  too soft), it is delish.

Oh, and Philicia, did ya know that papaya is Cuban slang for poosay?

Ps./ J'adore guava and guava juice (and guava paste, especially with dulce de leche).


Damm you queers are way too exotic for me  ;D 

Chile, please.  If you want "exotic" you need to try dragon fruit , carambola, rambutan, mamoncillo, chirimoya, or purple mangosteen (lak totes oemgee!).

pps./ hey Space how do you like durian?  I find it totally vomititious.
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline Miss Philicia

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Re: HIV Sucks
« Reply #24 on: June 29, 2012, 04:16:20 PM »

pps./ hey Space how do you like durian?  I find it totally vomititious.

It's so nasty even Andrew Zimmern won't touch it.
"Iíve slept with enough men to know that Iím not gay"

Offline Raf

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Re: HIV Sucks
« Reply #25 on: June 29, 2012, 07:58:24 PM »
Dx: 05/14/2008
Latest HIV Meds combo I've been taking:

Kaletra + Combivir (since 05/16/2008 - today)

Offline gadawg1979

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Re: HIV Sucks
« Reply #26 on: July 02, 2012, 01:15:57 AM »
WEll I must say this week was MUCH better... Though I am not sure about my new adap pharm instead of mail they use a private currier and the new meds came with a currier and had to be signed for and on top of that the meds came with my name and the name of the meds on the outside of the package
Diagnosed March 2012
Initial CD4- 156 VL 200K (started Complera) Genotype test no resistance
First labs on meds CD4- 246 VL 2K Taken after 30 days on Complera
90 Day labs VL 306 No CD4 Drawn
8/21/2012 CD4 474 VL Undetectable (40) %20.6
11/27/2012 CD 4 522 VL Undetectable (40)
2/14/2013 CD 4 464 VL Undetecable (30) 19.6%
6/8/3013 CD 4 528 VL Undetectable (30)
9/24/2013 CD 4 546 VL Undetectable (40)
1/30/2014 CD4 560 VL Undetectable (40) 22 %
6/19/2014 CD4 584 Vl Undetecable (30)

Offline thunter34

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Re: HIV Sucks
« Reply #27 on: July 02, 2012, 12:24:50 PM »
The only fruit I cant stand is grapefruit and cantaloupe . cantaloupe is a melon I suppose but I almost retch at the smell of them at the grocery much less trying to put a bite of the vile stuff in my mouth .

I agree.  Other than those, I love just about any fruit you can mention - and I would drink juice to the exclusion of any and everything else.  I just adore juices.

I'm currently stocked with oranges, blueberries, blackberries, grapes, apples and a bit of watermelon.
AIDS isn't for sissies.

Offline Jeff G

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Re: HIV Sucks
« Reply #28 on: July 02, 2012, 12:44:40 PM »
I'm currently stocked with oranges, blueberries, blackberries, grapes, apples and a bit of watermelon.

There are excellent deals where I live right now on grapes and red plums . I have to watch it with the grapes though because they run my blood sugar up so high , then again if I wouldn't gorge on a pound at a time they may not LOL .

Offline thunter34

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Re: HIV Sucks
« Reply #29 on: July 02, 2012, 12:47:30 PM »
There are excellent deals where I live right now on grapes and red plums . I have to watch it with the grapes though because they run my blood sugar up so high , then again if I wouldn't gorge on a pound at a time they may not LOL .

I understand.  They can be totally addictive.  They are also supremely refreshing during thise oppressive heat.
AIDS isn't for sissies.

Offline Jeff G

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Re: HIV Sucks
« Reply #30 on: July 02, 2012, 12:51:29 PM »
I understand.  They can be totally addictive.  They are also supremely refreshing during thise oppressive heat.

Its also great entertainment watching my dog choke down grapes even though she hates them .

Offline leatherman

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Re: HIV Sucks
« Reply #31 on: July 02, 2012, 01:00:35 PM »
my dog choke down grapes even though she hates them .
grapes, and raisins, are known to cause renal failure in dogs.

the exact cause is yet unknown but larger amounts and certain breeds seem to make dogs more highly susceptible to this deadly problem. Xylitol (found in gum and other candies) along onions, garlic, chocolate and macadamia nuts are also highly poisonous to dogs.
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline Jeff G

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Re: HIV Sucks
« Reply #32 on: July 02, 2012, 01:05:41 PM »
grapes, and raisins, are known to cause renal failure in dogs.

the exact cause is yet unknown but larger amounts and certain breeds seem to make dogs more highly susceptible to this deadly problem. Xylitol (found in gum and other candies) along onions, garlic, chocolate and macadamia nuts are also highly poisonous to dogs.

I read that somewhere before ... good thing she spits them out most times . I don't give her chocolate but she eats onions and garlic all the time .

Offline leatherman

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Re: HIV Sucks
« Reply #33 on: July 02, 2012, 01:19:28 PM »
I read that somewhere before
info from the American Animal Hospital Association (AAHA) listing various poisons and the effects
http://www.healthypet.com/PetCare/PetCareArticle.aspx?title=Prevent_Poisonings
(onions/garlic are blood toxins)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline thunter34

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Re: HIV Sucks
« Reply #34 on: July 02, 2012, 01:24:34 PM »
Feeding a dog little bits of apples is terrific entertainment.
AIDS isn't for sissies.

Offline Buckmark

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Re: HIV Sucks
« Reply #35 on: July 02, 2012, 01:32:15 PM »
Feeding a dog little bits of apples is terrific entertainment.

If you want canine entertainment, put a fingerful of peanut butter on the roof of your dog's mouth.    :D
"Life in Lubbock, Texas, taught me two things:
     One is that God loves you and you're going to burn in hell.
     The other is that sex is the most awful, filthy thing on earth and you should save it for someone you love."
- Butch Hancock, Musician, The Flatlanders

 


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