Quantcast

Subscribe to:
POZ magazine
E-newsletters
Join POZ: Facebook MySpace Twitter Pinterest
Tumblr Google+ Flickr MySpace
POZ Personals
Sign In / Join
Username:
Password:
Welcome, Guest. Please login or register.
April 16, 2014, 09:39:19 PM

Login with username, password and session length


Members
Stats
  • Total Posts: 619910
  • Total Topics: 46702
  • Online Today: 258
  • Online Ever: 585
  • (January 07, 2014, 02:31:47 PM)
Users Online

Welcome


Welcome to the POZ/AIDSmeds Community Forums, a round-the-clock discussion area for people with HIV/AIDS, their friends/family/caregivers, and others concerned about HIV/AIDS.  Click on the links below to browse our various forums; scroll down for a glance at the most recent posts; or join in the conversation yourself by registering on the left side of this page.

Privacy Warning:  Please realize that these forums are open to all, and are fully searchable via Google and other search engines. If you are HIV positive and disclose this in our forums, then it is almost the same thing as telling the whole world (or at least the World Wide Web). If this concerns you, then do not use a username or avatar that are self-identifying in any way. We do not allow the deletion of anything you post in these forums, so think before you post.

  • The information shared in these forums, by moderators and members, is designed to complement, not replace, the relationship between an individual and his/her own physician.

  • All members of these forums are, by default, not considered to be licensed medical providers. If otherwise, users must clearly define themselves as such.

  • Forums members must behave at all times with respect and honesty. Posting guidelines, including time-out and banning policies, have been established by the moderators of these forums. Click here for “Am I Infected?” posting guidelines. Click here for posting guidelines pertaining to all other POZ/AIDSmeds community forums.

  • We ask all forums members to provide references for health/medical/scientific information they provide, when it is not a personal experience being discussed. Please provide hyperlinks with full URLs or full citations of published works not available via the Internet. Additionally, all forums members must post information which are true and correct to their knowledge.

  • Product advertisement—including links; banners; editorial content; and clinical trial, study or survey participation—is strictly prohibited by forums members unless permission has been secured from POZ.

To change forums navigation language settings, click here (members only), Register now

Para cambiar sus preferencias de los foros en español, haz clic aquí (sólo miembros), Regístrate ahora

Finished Reading This? You can collapse this or any other box on this page by clicking the symbol in each box.

Author Topic: My values. Advice  (Read 1370 times)

0 Members and 1 Guest are viewing this topic.

Offline LOSTBOYZ

  • Member
  • Posts: 5
My values. Advice
« on: May 15, 2012, 02:11:42 PM »
Hi all.!!!

I'm 39 yo and I write from Italy. I was tested poz in September 2011. ( I suppose my infection is dated 2009).

Here my values

Oct 2011   CD4 594  %29 VL 3300
Jan 2012   CD4 794  %29 VL 31000
Apr 2012   CD4 531  %26 VL 147000

I'm not on meds

Next labs in July.

It is better to anticipate the analysis of one month due to VL and go on meds?

Since the viral load increased some lymph nodes in my neck are swollen but Doctor said it's normal. It's a reaction to the virus.

I'm often tired and i have pains in my feet and legs like cramps.

I'm positive because I loved a person who has ever told the truth about his past and that makes me sad.

Thanks to all.

Fred

Offline ad2san

  • Member
  • Posts: 182
Re: My values. Advice
« Reply #1 on: May 15, 2012, 02:19:06 PM »
Ciao Fred, welcome to the forum.

Well, your labs are not ugly ... but you should listen to your body and if you feel like it advance the appointment with the doc.
You'll find a lot of good advices on this forum related to medication, how to cop with  the med and handle day to day stress related to the meds.

Take care
Feb   2009 CD4 358 VL 2000 16%
May  2009 CD4 305 VL 3069  14% <---- Started TVD+ATZ/r
Jul  2009 CD4 512 VL <50   18%
Jul 2010 CD4 418 VL <50 24%                     
Switched to Kivexa (Epzicom) + Norvir + Reyataz (due to sleep problem)
Aug 2010 CD4 606 VL <50 25%
Apr 2011 CD4 523 UD 21%
Jul 2011 CD4 494 UD 23%
Switched to Kivexa (Epzicom) + Viramune XR (due to kidney problems)
January 2012 CD4 564 UD 31%
October 2012 CD4 684 UD 29%
January 2013 CD4 594 UD 26%
Switched to Kivexa (Epzicom) + Isentress due to BIG increase GammaGT
Feb 2013 CD4 699 UD 28%
May 2013 CD4 385 UD 28%
July 2013 CD4 CD4 636 UD 25%
Oct 2013 CD4 588 UD 39%

Offline LOSTBOYZ

  • Member
  • Posts: 5
Re: My values. Advice
« Reply #2 on: May 15, 2012, 02:25:55 PM »
Ciao Fred, welcome to the forum.

Well, your labs are not ugly ... but you should listen to your body and if you feel like it advance the appointment with the doc.
You'll find a lot of good advices on this forum related to medication, how to cop with  the med and handle day to day stress related to the meds.

Take care


Thanks for your answer, my concern is the VL. My body is fighting but I feel fatigue and lack of energy in addition to some pain and swollen lymph node in the neck.
TKS

Offline ad2san

  • Member
  • Posts: 182
Re: My values. Advice
« Reply #3 on: May 15, 2012, 02:52:40 PM »
well fred, your VL ist not that high, by some people it reaches million ... but it is better with undetectable I fully agree.

As I said you should listen to your body and advance the appointment with your doc to discuss the topic with him if you feel like it but there is no emergency.

Take care
Feb   2009 CD4 358 VL 2000 16%
May  2009 CD4 305 VL 3069  14% <---- Started TVD+ATZ/r
Jul  2009 CD4 512 VL <50   18%
Jul 2010 CD4 418 VL <50 24%                     
Switched to Kivexa (Epzicom) + Norvir + Reyataz (due to sleep problem)
Aug 2010 CD4 606 VL <50 25%
Apr 2011 CD4 523 UD 21%
Jul 2011 CD4 494 UD 23%
Switched to Kivexa (Epzicom) + Viramune XR (due to kidney problems)
January 2012 CD4 564 UD 31%
October 2012 CD4 684 UD 29%
January 2013 CD4 594 UD 26%
Switched to Kivexa (Epzicom) + Isentress due to BIG increase GammaGT
Feb 2013 CD4 699 UD 28%
May 2013 CD4 385 UD 28%
July 2013 CD4 CD4 636 UD 25%
Oct 2013 CD4 588 UD 39%

Offline water duck

  • Member
  • Posts: 397
Re: My values. Advice
« Reply #4 on: May 15, 2012, 05:17:38 PM »
Hi, your body is 'lost' for the moment  ;) give it time to 'find' itself again.

I guess lots of members around here would ask you not to worry too much about your VL , what is more important is your cd4 numbers , and it is the value of this that decide if you go on meds or not.

I guess more important is getting over this 'sadness' about the one you had loved who had given you this 'gift' , will this remained a curse or will this becomes a blessing, the choice is yours now. Hope you can find the courage to bring about a change.

Offline eric48

  • Member
  • Posts: 1,010
  • @HIVPharmaCure & tinyurl.com/HIVPharmaCure
Re: My values. Advice
« Reply #5 on: May 15, 2012, 06:56:42 PM »
Hi and welcome,

Diagnosis can be a real shock and I sympathize.

Since infection and starting meds (10 months after), I have a had a bit of minor complications (that have all resolved) , therefore  have met a number of real first-in-class , expert, long timer doctors (in various fields) and my experience with it have teached me a few things:
- modern meds are nothing like the older meds
- body needs time to adjust and age extends that time: expect 1-2 year max (icluding fact that sometimes the first combo needs to be changed for another one)
- whenever I expressed some concerns with those experts, they all kind of ignore them with a discourse that my numbers are good etc. etc. and everytime they end with this comment , that in their eye seems to close the discussion: they always say : ... and you started early ... (with a sense of relief in their eyes)

Unless one has a free ticket to join the exclusive club of elite crontrollers, the more I think about it the more I think earlier you start better off you are.

Hope this helps

Eric


Offline Lad_Liam

  • Member
  • Posts: 56
  • it's a hitchhiker, not a hijacker
Re: My values. Advice
« Reply #6 on: June 24, 2012, 10:09:13 AM »
Love shmlove. Take the drugs.

I know that may sound harsh, but I'm in a decisive mood and personally am angry that my shock and fear of HIV lost me a few months of mounting my own attack against it. I want to share that message of rise up against it.

I wish I had of begun treatment immediately, as in my case I tested just after seroconvertion, so caught it as it arrived. That's just me personally, and is about how my brain and psychology works too. I can handle the idea of taking drugs better than I could handle the idea of having untreated HIV.

That said, in your case if Harry has been a passenger since 2009 another month won't hurt, and your cell counts are above range and healthy, and a genotype and resistance test is a good idea before starting meds.

Good luck to you, and thanks for sharing your story.

Liam
« Last Edit: June 24, 2012, 10:10:50 AM by Lad_Liam »
a new dark passenger joins the ride

Offline mecch

  • Member
  • Posts: 10,710
  • red pill? or blue pill?
Re: My values. Advice
« Reply #7 on: June 24, 2012, 11:10:24 AM »
It is better to anticipate the analysis of one month due to VL and go on meds?

I am not sure I understand what you mean.  You want to move up your labs to now, and see if its time to go on meds now?
Or you want to go on meds now, before you next labs?

Why not take the appoint for the labs as soon as possible, and discuss both the lab results and your fatigue and other issues with the doctor, considering the new numbers... 

Oh, and welcome to the forum.

And try to put that person who makes you sad out of you mind.  He is out of you life since then??  If so, then its the past.  You'll find a better type next time, and you'll also know to take full control of your own actions and anticipate that even our beloveds can be absolute jerks!!! So protect yourself.

“From each, according to his ability; to each, according to his need” 1875 K Marx

Offline newt

  • Member
  • Posts: 3,867
  • the one and original newt
Re: My values. Advice
« Reply #8 on: June 24, 2012, 03:04:02 PM »
Feeling tired all the time is a good reason to go on meds, for treatment tends to knock this on the head.

Guidelines suggest your CD4 count is above the level where treatment is recommended (within normal range,even).

Your call.

- matt
"The object is to be a well patient, not a good patient"

 


Terms of Membership for these forums
 

© 2014 Smart + Strong. All Rights Reserved.   terms of use and your privacy
Smart + Strong® is a registered trademark of CDM Publishing, LLC.