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Author Topic: Shiny, Happy AIDS  (Read 1959 times)

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Offline thunter34

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  • Posts: 7,310
  • His name is Carl.
Shiny, Happy AIDS
« on: May 30, 2012, 11:38:19 AM »
I don't usually do these sort of posts, but feel compelled as I have recently had two milestones in my dance with HIV.  The first is that I recently crossed over the 10 year mark since seroconversion.  I am at eight years since actual diagnosis with HIV.  The second is that I just got labs back yesterday and got the news that, after my first real blip last fall, I have returned to UD and have achieved a CD 4 of 744. 

This last part is a pretty big deal to me because it has been such a long time in coming, starting from pretty close to scratch.  I bring this up for a few reasons.  One, for all the people who keep sticking their heads in the sand about how manageable HIV is.  Do note that I went from infection to "full bown AIDS" in a matter of two years and change.  Also, when I had a paperwork issue with ADAP a couple of years back and had a treatment interruption of only about 10 weeks, my numbers tanked almost instantly.  While I am pleased that I have reached this milestone in the CD 4 department, I remain ever mindful of just how fast those numbers can run the other way...and how that reversal can be little more than a pen stroke away.

While others might dismiss the value of listening to the insight of others as just "words on a screen", this site has been a key ingredient to my recipe for success with dealing with HIV.  Time after time, my own medical team has marvelled at how informed I was about the disease, my treatment options and the potential advantages and consequences of each.  And something else.  Along the way, many of the others here transformed from simply fellow posters to actual friends - living, breathing, actual friends that I've laughed and cried with in the flesh.   

But making the choice to let these folks in has not come without a price.  It troubles me greatly that I can no longer count on one hand the people on this very site, dear to me,  that have been lost along the way.  All within the last five years, all within industrialized countries (mostly the USA) with complete access to treatment, and all from this totally manageable disease that no one dies from anymore.

I'm not even sure what my point is in posting this.  I guess it's just that, for some reason, when the severity of this disease gets dismissed, it somehow makes me miss them even more.  It also makes me frustrated and angry at the people who make those posts - while also being afraid for them and their influence to others as well.

For all our advances, this disease is still no joke.  If you try to make it one, the last laugh will be on you. 
« Last Edit: May 30, 2012, 11:40:31 AM by thunter34 »
AIDS isn't for sissies.

Offline Jeff G

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  • How am I doing Beren ?
Re: Shiny, Happy AIDS
« Reply #1 on: May 30, 2012, 11:56:20 AM »
Your post is beautiful . Congratulations on your latest labs and thanks for reminding us what this all about .

Offline emeraldize

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Re: Shiny, Happy AIDS
« Reply #2 on: May 30, 2012, 12:05:12 PM »
Congrats on the CD4 and a post with a meaningful punch.
Em

Offline Joe K

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  • 31 Years Poz
Re: Shiny, Happy AIDS
« Reply #3 on: May 30, 2012, 01:40:49 PM »
While others might dismiss the value of listening to the insight of others as just "words on a screen", this site has been a key ingredient to my recipe for success with dealing with HIV.  Time after time, my own medical team has marvelled at how informed I was about the disease, my treatment options and the potential advantages and consequences of each.  And something else.  Along the way, many of the others here transformed from simply fellow posters to actual friends - living, breathing, actual friends that I've laughed and cried with in the flesh.   

What a beautiful tribute to what this place means, to so many of us.

Joe

Offline spacebarsux

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  • Posts: 1,350
  • Survival of the Fittest
Re: Shiny, Happy AIDS
« Reply #4 on: May 30, 2012, 01:49:31 PM »
Great post. Many congrats on your anniversary as well as on your good labs.
Infected-  2005 or early 2006; Diagnosed- Jan 28th, 2011; Feb '11- CD4 754 @34%, VL- 39K; July '11- CD4 907@26%,  VL-81K; Feb '12- CD4 713 @31%, VL- 41K, Nov '12- CD4- 827@31%

Offline anniebc

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Re: Shiny, Happy AIDS
« Reply #5 on: May 30, 2012, 05:41:10 PM »
Love you Tim...beautiful post.

Aroha
Jan :-*
-----------------------------------------------------------------------
Never knock on deaths door..ring the bell and run..he really hates that.

Offline Matty the Damned

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Re: Shiny, Happy AIDS
« Reply #6 on: May 30, 2012, 07:18:00 PM »
Youth Pastor Tim,

:-*

MtD

Offline Solo_LTSurvivor

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  • Twerk Baby Twerk
Re: Shiny, Happy AIDS
« Reply #7 on: May 30, 2012, 07:27:33 PM »
Absolutely awesome, Tim.

Thank you for taking the time to put things in perspective so eloquently.
don't equate intelligence with lack of masculinity
Jim Phelps, Mission Impossible
____________________________

Seroconverted: Early 80s
Tested & confirmed what I already knew: early 90s

Current regimen: Atripla. 
Last regimen:  Epzicom, Sustiva (since its inception with NO adverse side effects: no vivid dreams and NONE of the problems people who can't tolerate this drug may experience: color me lucky ::))
Past regimens
Fun stuff (in the past):  HAV/HBV, crypto, shingles, AIDS, PCP

Jan 2012: 818/21%
Apr 2012: 964/22%
Jul. 2012: 890/21%
Oct. 2012: 920/23%

Still UD after all these years

Offline denb45

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Re: Shiny, Happy AIDS
« Reply #8 on: May 30, 2012, 07:38:28 PM »
"Preach" Brother Tim  :-*
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline Bbnb

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  • say Hi! I love to chat !
Re: Shiny, Happy AIDS
« Reply #9 on: May 30, 2012, 07:54:25 PM »
 Your statements are very true and congrats on your present health!


Just looking to socialized with like minded people.

Offline OneTampa

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  • Posts: 2,173
  • "Butterflies are free."
Re: Shiny, Happy AIDS
« Reply #10 on: May 30, 2012, 09:54:17 PM »
Alright! I am waving my church pew fan!  Excellent post.
"He is my oldest child. The shy and retiring one over there with the Haitian headdress serving pescaíto frito."

Offline Rev. Moon

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  • Smart ass faggot ©
Re: Shiny, Happy AIDS
« Reply #11 on: May 30, 2012, 10:19:07 PM »
Congrats on the milestones, my dear Tim. Ya know I luffs ya  :-*
"I have tried hard--but life is difficult, and I am a very useless person. I can hardly be said to have an independent existence. I was just a screw or a cog in the great machine I called life, and when I dropped out of it I found I was of no use anywhere else."

Offline tednlou2

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Re: Shiny, Happy AIDS
« Reply #12 on: May 31, 2012, 01:07:09 AM »
Congrats on the labs and getting through the milestones.  All the best!

Offline leatherman

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Re: Shiny, Happy AIDS
« Reply #13 on: May 31, 2012, 10:05:05 AM »
Happy 10th aidsaversary and all that!  :-*
Just think you're well on your way now to celebrating 20 yrs with the HIV ;D ROFL

really nice and thoughtful post too ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline pozniceguy

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  • Posts: 1,176
  • Niceguy Dallas
Re: Shiny, Happy AIDS
« Reply #14 on: June 01, 2012, 12:40:06 PM »
great   Post  Tim... congrats on the  Milestones... a poignant  reminder  that we all have  faced and will  continue to face..

Nick
remember the good times...honor the past but don't live there
Le stelle la notte sono grandie luminose, nel cuore profondo del Texas

Offline Lugzsoo

  • Member
  • Posts: 183
Re: Shiny, Happy AIDS
« Reply #15 on: June 01, 2012, 04:07:30 PM »
Good post it people like you that  when I need to know something  guys like u give me hope that my numbers will go up . And the wisdom you bring thanxs . ;)

 


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