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Author Topic: Drs office called said my test came back repeatedly reactive I am confused ?  (Read 5089 times)

0 Members and 1 Guest are viewing this topic.

Offline livelong

  • Member
  • Posts: 5
I need advise I am totally confused.  2 days before I left to go on tour for 8 months with my job, I went in to my doctors office for a routine physical, blood work and asked to have the HIV test as well. I gave the Dr. permission to give me my results over the phone because I would be gone for 8 months.

2 weeks later a nurse calls me and tells me I need to have follow up. It was like pulling teeth but she finally found out she had my permission to give results over the phone and she proceeded to tell me my Hiv 1/2 EIA with reflexes AB screen came back Repeatedly Reactive and proceeded to explain the lab ran the test
many times. I asked what are you saying she said you came back positive for the HIV test. At this point I was floored telling her I am out of state and wont be back until January she said you need to come back as soon as possible to follow up.  I immediately booked a flight scheduled to fly back in to see the Doctors 10 days later.  For the next 10 days No one to talk to of course I went through thinking this is a death sentence crying many times throughout the day.  I did find the Poz web site and this helped me tremendously to get through these 10 days till I would fly in to see my doctor again. I envisioned the day I would arrive at my doctors as I will break down and cry (I have known my doctor for over 10 years always joking with me about my traveling entertaining and profession, Not this time my doctors action kept me from breaking down he was running around like a chicken with his head cut off I never seen him like this before saying how did this happen this was a shock to him when my results came across his desk said over and over again were going to test again then he disappeared every time he would walk by the room I was in he would walk by fast glance in and sometimes poke his head in for  a second and say the nurses are on the phone with the lab trying to find out how we test again to make sure this isn't a false negative that can happen its rare but can happen he would say and fly out of the room again I believe he was nervous and scared for me this kept me calm because I would chuckle to myself and say I think this man is devastated for me. After and hour sitting in that room he came back and said the lab is unsure I said unsure I just flew 1500 miles lets test again and he said no the lab said no we have to wait six months but I am going to refer you to an infectious disease specialist. I tried to force him to retest me and he kept saying the Lab said no not for 6 months.  I flew back home to my doctors office expecting answers and instead I left there heading back to the airport more confused than before I went to my doctors. Prior to following up with my doctor it had been 10 days of hell, crying, lumps in my throat not being able to sleep and researching HIV trying to learn what it meant to be Hiv positive. am I or am I not HIV positive.  I  am still confused can anyone please help me understand. Below is the Lab results the doctors office gave me and I am waiting for the specialist my doctor wants me to see call to schedule an appointment so I can fly back to see him.

Can anyone please help with my confusion and tell me what these test results mean? Am I Hiv Positive? and why cant the lab tell me and wants to wait 6 months to retest?

My test results
Test results

HIV AB, HIV 1/2, EIA, WITH REFLEXES
HIV 1/2 EIA AB SCREEN results = REPEATEDLY REACTIVE (NON-REACTIVE) A

HIV 2 Ab, EIA W/REFL WESTERN BLOTQ
HIV 2 ANTIBODY, EIA results = Nonreactive (Nonreactive)

HIV ANTIBODY, HIV1, WESTERN BLOT
HIV WB INTERP results = NEGATIVE (NEGATIVE)

Also in the referal my doctor gave me to go see an infectious disease specialist my doctor wrote.

Please Evaluate and treat.

Diagnosis 790.6 - ABN BLOOD CHEMISTRY NEC

V01.79 - Exposure to Aids Virus/HIV/Viral Diseases

What does this 790.6 - ABN Blood Chemestry & the V01.79 - exposure to Aids Virus/HIV/VIRAL DISEASES diagnosis mean?

Thank you everyone in advance for your help.

« Last Edit: May 26, 2012, 10:54:57 PM by livelong »

Offline Matty the Damned

  • Member
  • Posts: 12,160
I need advise I am totally confused.  2 days before I left to go on tour for 8 months with my job, I went in to my doctors office for a routine physical, blood work and asked to have the HIV test as well. I gave the Dr. permission to give me my results over the phone because I would be gone for 8 months.

2 weeks later a nurse calls me and tells me I need to have follow up. It was like pulling teeth but she finally found out she had my permission to give results over the phone and she proceeded to tell me my Hiv 1/2 EIA with reflexes AB screen came back Repeatedly Reactive and proceeded to explain the lab ran the test
many times. I asked what are you saying she said you came back positive for the HIV test. At this point I was floored telling her I am out of state and wont be back until January she said you need to come back as soon as possible to follow up.  I immediately booked a flight scheduled to fly back in to see the Doctors 10 days later.  For the next 10 days No one to talk to of course I went through thinking this is a death sentence crying many times throughout the day.  I did find the Poz web site and this helped me tremendously to get through these 10 days till I would fly in to see my doctor again. I envisioned the day I would arrive at my doctors as I will break down and cry (I have known my doctor for over 10 years always joking with me about my traveling entertaining and profession, Not this time my doctors action kept me from breaking down he was running around like a chicken with his head cut off I never seen him like this before saying how did this happen this was a shock to him when my results came across his desk said over and over again were going to test again then he disappeared every time he would walk by the room I was in he would walk by fast glance in and sometimes poke his head in for  a second and say the nurses are on the phone with the lab trying to find out how we test again to make sure this isn't a false negative that can happen its rare but can happen he would say and fly out of the room again I believe he was nervous and scared for me this kept me calm because I would chuckle to myself and say I think this man is devastated for me. After and hour sitting in that room he came back and said the lab is unsure I said unsure I just flew 1500 miles lets test again and he said no the lab said no we have to wait six months but I am going to refer you to an infectious disease specialist. I tried to force him to retest me and he kept saying the Lab said no not for 6 months.  I flew back home to my doctors office expecting answers and instead I left there heading back to the airport more confused than before I went to my doctors. Prior to following up with my doctor it had been 10 days of hell, crying, lumps in my throat not being able to sleep and researching HIV trying to learn what it meant to be Hiv positive. am I or am I not HIV positive.  I  am still confused can anyone please help me understand. Below is the Lab results the doctors office gave me and I am waiting for the specialist my doctor wants me to see call to schedule an appointment so I can fly back to see him.

Can anyone please help with my confusion and tell me what these test results mean? Am I Hiv Positive? and why cant the lab tell me and wants to wait 6 months to retest?

My test results
Test results

HIV AB, HIV 1/2, EIA, WITH REFLEXES
HIV 1/2 EIA AB SCREEN results = REPEATEDLY REACTIVE (NON-REACTIVE) A

HIV 2 Ab, EIA W/REFL WESTERN BLOTQ
HIV 2 ANTIBODY, EIA results = Nonreactive (Nonreactive)

HIV ANTIBODY, HIV1, WESTERN BLOT
HIV WB INTERP results = NEGATIVE (NEGATIVE)

Also in the referal my doctor gave me to go see an infectious disease specialist my doctor wrote.

Please Evaluate and treat.

Diagnosis 790.6 - ABN BLOOD CHEMISTRY NEC

V01.79 - Exposure to Aids Virus/HIV/Viral Diseases

What does this 790.6 - ABN Blood Chemestry & the V01.79 - exposure to Aids Virus/HIV/VIRAL DISEASES diagnosis mean?

Thank you everyone in advance for your help.



These results would suggest that you are HIV negative. It's the Western Blot result that's the clincher and based on what you've posted here that says negative.

But I'm just some bloke on the internet. I think you need to get these results explained to you by a doctor -- your referral to an infectious diseases specialist is ideal for this.

MtD

Offline livelong

  • Member
  • Posts: 5
Thanks for the response. So if i am understanding what your saying the repeatedly reactive test result could be wrong?

Offline RapidRod

  • Member
  • Posts: 15,190
Thanks for the response. So if i am understanding what your saying the repeatedly reactive test result could be wrong?
Your positive tests was a false positive and it was confirmed by the western blot.

Offline Matty the Damned

  • Member
  • Posts: 12,160
Thanks for the response. So if i am understanding what your saying the repeatedly reactive test result could be wrong?

ELISA (sometimes called EIA) tests can return sometimes false positive results. For this reason they're often combined with another test called Western Blot.

Where ELISA is positive and WB is negative the overall result is negative.

I think this is what has happened to you.

Nevertheless you should discuss this with a doctor; the ID doctor you have a referral to see will be perfect for this.

MtD

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Livelong,

I removed your identical post from the Just Tested forum. You have NOT just tested poz so therefore you should not post in that forum.

I'm sorry you have a doctor who is so ill-informed when it comes to interpreting hiv test results. The reason the lab said you couldn't test again for six months is because you are hiv negative, as evidenced by the negative WB tests you have. They've already tested the cojones out of you so they don't want you back until it would be appropriate for you to have another routine test. ROUTINE test.

You may want your doctor to investigate further to see if you don't have an underlying, as-of-yet undiagnosed autoimmune problem. Autoimmune diseases can cause false positive antibody tests, and the false positive will be picked up by the WB test. Just like what happened to you.

For future reference, Here's what you need to know in order to avoid hiv infection:

You need to be using condoms for anal or vaginal intercourse, every time, no exceptions until such time as you are in a securely monogamous relationship where you have both tested for ALL sexually transmitted infections together.

To agree to have unprotected intercourse is to consent to the possibility of being infected with an STI. Sex without a condom lasts only a matter of minutes, but hiv is forever.

Have a look through the condom and lube links in my signature line so you can use condoms with confidence.

Anyone who is sexually active should be having a full sexual health care check-up, including but not limited to hiv testing, at least once a year and more often if unprotected intercourse occurs.

If you aren't already having regular, routine check-ups, now is the time to start. As long as you make sure condoms are being used for intercourse, you can fully expect your routine hiv tests to return with negative results.

This is the ROUTINE testing I spoke of earlier. Once a year is good, twice a year (ie "you can test again in six months") is better if you're very sexually active.

Don't forget to always get checked for all the other sexually transmitted infections as well, because they are MUCH easier to transmit than hiv. Some of the other STIs can be present with no obvious symptoms, so the only way to know for sure is to test.

Use condoms for anal or vaginal intercourse, correctly and consistently, and you will avoid hiv infection. It really is that simple!

Ann
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline livelong

  • Member
  • Posts: 5
What I dont understand I get tested once a year and the EIA has always turned up negative until this time and why no one will tell me I was not positive. And the Doctor said there is a very small chance its a false negative. Why when my doctors office was on the phone with the lab they could not give him a yes or no  answer except wait six months and retest.
« Last Edit: May 27, 2012, 11:19:27 AM by livelong »

Offline livelong

  • Member
  • Posts: 5
If what you are telling me is true this would make me verry happy. I went through that phone 2 weeks ago telling me I was positive and I went through the 10 horrific emotional days that followed and finally excepted I was HIV positive I have quit smoking started eating totally healthy. I still am confused as to why when the doctors office was on the phone with the Lab they would not tell him it was a false positive if infact it really is. I guess I will wait for the specialist to call this next week and fly back down and see him and pray he will give me the same answers you are. 

Thank you for your comments. I am sure I will come here everyday still searching out information and learning more about Hiv.

Offline Ann

  • Administrator
  • Member
  • Posts: 27,947
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Livelong,

Well, there's nothing wrong with quitting smoking and eating healthily. Keep it up and you just might live up to your screen-name, regardless of your hiv status.

As to why the lab refused to say much to your doctor, well, it actually makes sense to me. Labs do not (and are not qualified to) interpret test results. That's the doctor's job. Lab technicians do not have medical doctor degrees.

Your doctor seems to not know much about how hiv testing works or how to interpret the results - that's not the lab's fault. Your doctor is trying to get the lab to do his work for him and the lab is not playing along. I don't blame them.

Here's what I suggest you do: Instead of flying home again, go to poz.com's Health Services Directory and find a testing center near you - somewhere where they are used to giving and interpreting hiv test results. Going by your previous test results, you are just going to get another confirmation of your negative result.

By the way, have you actually had a risk for hiv infection? The only risks for an adult are unprotected anal or vaginal intercourse and sharing drug injecting equipment. That's all.

If you've been having unprotected anal or vaginal intercourse or sharing injecting equipment, how long ago was the last time? The window period for a conclusive negative result is three months - although the majority of people will test positive by six weeks.

If you have had a risk and you were early in the window period (one to three weeks), that could be what's caused your results. (An indeterminate result that is not yet triggering a positive WB)

Ann



edited to fix a glaring typo
« Last Edit: May 28, 2012, 05:47:50 AM by Ann »
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline livelong

  • Member
  • Posts: 5
Ann I have only performed oral sex on someone, Anal sex is something that has never done anything for me. I tried it many years ago and it just was not for me.  Thank you for your recommendation on saving funds I don't have flying home. I will take you up on your advise and search out a testing facility here in MA where I am currently working for the next two weeks.

Thank you again everyone for your advice.

 


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