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Author Topic: bactrim  (Read 2132 times)

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Offline Incognito12

  • Member
  • Posts: 30
bactrim
« on: May 19, 2012, 11:35:12 PM »
I value your opinions so please tell me what would be a safe cd4 number to stop taking trimethoprim/sulphamethoxazole ? Please don't suggest going to a doctor.

Offline J.R.E.

  • Member
  • Posts: 7,161
  • Joined Dec-2003 Living positive, since 1985.
Re: bactrim
« Reply #1 on: May 20, 2012, 12:03:54 AM »

When I was on Dapsone,( the equivalent)  My doctor told me that once I got to 200  t-cells and maintained that for two consecutive readings, that I would be able to stop it. That's what I did. I stopped it, when the doctor recommended that I stop it But I believe a person could remain on it longer, depends on what the doctor see's in the reports, and see's in the patient.

Whats the problem with talking to a doctor about this ? What meds are you currently on, and what was your lowest CD count prior to starting. Have you experienced any opportunistic infections ?

Ray
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Miss Philicia

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  • celebrity poster, faker & poser
Re: bactrim
« Reply #2 on: May 20, 2012, 12:19:02 AM »
I think my doctor used at least above 250, but yes on more than one single test. Remember that cd4 counts can fluctuate +/-100 so there's a chance that a reading of 200 isn't really 200 but lower. I would tend to be conservative on this issue unless you're having some huge issue with a side effect, and in that case you would need to go to the doctor regardless of whether or not you want to, because then they should see about putting you on another medication.
"Iíve slept with enough men to know that Iím not gay"

Offline J.R.E.

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  • Posts: 7,161
  • Joined Dec-2003 Living positive, since 1985.
Re: bactrim
« Reply #3 on: May 20, 2012, 12:24:49 AM »
Incog,

Here's a chart that will give you a little more info.  It's from 2000, so I am not sure if there have been changes applied :

http://www.thebody.com/content/art14578.html


Ray

Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Incognito12

  • Member
  • Posts: 30
Re: bactrim
« Reply #4 on: May 20, 2012, 12:45:12 AM »
Thank you so much for your helpful replies.
The reason I asked is That I would have to take a round trip of 6 hours,wait another hour to ask the doctor what I've asked you. I've been taking bactrim since oct 2012 when my cd4 count was 10.  It is now 210 and I would like to stop taking it ASAP because of side effects.
I also take stocrin and tenofovir, also fluconazole. I will NOT stop taking these.
Be well.

Offline J.R.E.

  • Member
  • Posts: 7,161
  • Joined Dec-2003 Living positive, since 1985.
Re: bactrim
« Reply #5 on: May 20, 2012, 01:05:37 AM »
I've been taking bactrim since oct 2012 when my cd4 count was 10.

Do you mean 2011 ?   ;)


I started Dapsone 11/2003 , I was on Dapsone for about a little over a year
 ( notice my percentages were very low) :


I quit taking it around December of 2004.  These were my numbers back then...


MONTH/YEAR

10/03---CD-4- 16     VIRAL LOAD--500,000   PERCENTAGE <4% ( From October of 03)

12/03---CD-4- 48     VIRAL LOAD- <50    PERCENTAGE--- 4%

1/04-----CD-4- 76     VIRAL LOAD--155    PERCENTAGE--6%

2/04-----CD-4-87      VIRAL LOAD--89      PERCENTAGE--5%

3/04-----CD-4- 125   VIRAL LOAD--<50    PERCENTAGE--6%

5/04-----CD4--139    VIRAL LOAD--<50    PERCENTAGE--7%

6/04-----CD4--150    VIRAL LOAD--150    PERCENTAGE--6%

8/04-----CD4--199    VIRAL LOAD-- 96     PERCENTAGE--8%

11/04---CD4--253    VIRAL LOAD--<50    PERCENTAGE--8%

Stopped Dapsone at this point

2/05----CD4--239     VIRAL LOAD--<50   PERCENTAGE--7%

5/05----CD4- 213     VIRAL LOAD--<50    PERCENTAGE--7%

8/05----CD4--333     VIRAL LOAD--<50    PERCENTAGE--7%


Ray



« Last Edit: May 20, 2012, 05:43:28 AM by J.R.E. »
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Incognito12

  • Member
  • Posts: 30
Re: bactrim
« Reply #6 on: May 20, 2012, 01:17:06 AM »
I mean oct 2011...!

Offline tednlou2

  • Member
  • Posts: 4,886
Re: bactrim
« Reply #7 on: May 20, 2012, 01:30:26 AM »
Thank you so much for your helpful replies.
The reason I asked is That I would have to take a round trip of 6 hours,wait another hour to ask the doctor what I've asked you.

6 hour round trip?  I often forget how far many fellow pozzies have to travel for treatment.  Your doc does make himself/herself available by phone for possible serious issues that come up? 

Offline Incognito12

  • Member
  • Posts: 30
Re: bactrim
« Reply #8 on: May 20, 2012, 04:50:12 AM »
Doctor is based in a hospital and therefore no incoming phone calls.

Offline Incognito12

  • Member
  • Posts: 30
Re: bactrim
« Reply #9 on: May 20, 2012, 04:55:10 AM »
Judging by your replies I think I am on the right track by thinking that a stable cd4 reading of around 250 for about 3 months should be a safe time, (under normal circumstances) to say bye-bye to bactrim. :D

Offline J.R.E.

  • Member
  • Posts: 7,161
  • Joined Dec-2003 Living positive, since 1985.
Re: bactrim
« Reply #10 on: May 20, 2012, 05:31:42 AM »
Judging by your replies I think I am on the right track by thinking that a stable cd4 reading of around 250 for about 3 months should be a safe time...



Some doctors say up to 6 months. So, lets say between 3 and 6 months, depending on any other health issues going on.

I can only share with you my experiences, and what my doctor told me.      He's the one that had the chart in front of him, and had all the necessary information to make that decision.  After stopping the Dapsone, I did pretty well, but there were a couple times after stopping, ( a few months later) that I restarted, on a three week cycle, because I just wasn't feeling right. Mostly respiratory related.

 And because my percentages were so low at that time, I wasn't going to take any chances. I already pushed my health to the limits back then, by not starting on meds, when I should have started.

Ray


Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline J.R.E.

  • Member
  • Posts: 7,161
  • Joined Dec-2003 Living positive, since 1985.
Re: bactrim
« Reply #11 on: May 20, 2012, 05:41:06 AM »
Incog

PS:  If your looking for a " Go ahead and stop the Bactrim" from me, You won't get it.    That's a decision you and your doctor will  have to make.

Good luck to you though, and stay well !

 Ray 


I just want to say one more thing.  There were plenty of times almost immediately after starting on meds, that I felt I wanted to drop the Dapsone, or the zithromax, or both.  But I am glad I didn't !  ;)
Current Meds ; Viramune, Epzicom, 40mg of simvastatin, 12.5mg of Hydrochlorothiazide.
Metoprolol tartrate 25mg



http://forums.poz.com/index.php?topic=40802.0

http://forums.poz.com/index.php?topic=45159.0

http://forums.poz.com/index.php?topic=39722.msg495621;topicseen#msg495621

http://forums.poz.com/index.php?topic=46806.0

http://forums.poz.com/index.php?topic=39414.msg491701#msg491701


 In October of 2003, My t-cell count was 16, Viral load was over 500,000, Percentage at that time was 5%. I started my first  HAART regimen  on October 24th,03.

 As of 8/2514,  t-cells are at 402, Viral load <40

 Current % is at 11%

  
 62 years young.

Offline Incognito12

  • Member
  • Posts: 30
Re: bactrim
« Reply #12 on: May 20, 2012, 07:10:40 AM »
Understood and thanks.

Offline miked

  • Member
  • Posts: 12
Re: bactrim
« Reply #13 on: May 21, 2012, 01:38:58 PM »
I've started Bactrim a couple of times.  its been when T cells drop below 200.  I stay on until they are back over 250 and they see an improvement in the % also.  Its not going to be a fixed number and will vary on what else with going on with your health.

Offline darryaz

  • Member
  • Posts: 450
Re: bactrim
« Reply #14 on: May 21, 2012, 07:37:37 PM »
If Bactrim doesn't agree with you, talk to your doc about changing to Dapsone (this is what I did a few years ago when I was in your shoes).  It's (usually) much easier to tolerate.  See if  your doc will make the change without an office visit - bactrim is notorious for side effects.  Also Dapsone is VERY inexpensive.

Edit - Missed the part about not being able to access your doc by phone.  You should try though.  Maybe someone else takes calls for him.
« Last Edit: May 21, 2012, 07:40:57 PM by darryaz »

 


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