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Author Topic: Med reserve on ADAP  (Read 2791 times)

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Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Med reserve on ADAP
« on: April 29, 2012, 09:37:30 PM »
Hey guys, it's been a while since I've last posted (school has been keeping me extremely busy).

I've been on ADAP for a couple of months now and no matter how much I try, I can't build up a reserve of emergency medications. Before I was on ADAP, I was getting my medications through Wellvista pharmacy's charity for people on the ADAP waiting list. I was able to build up a reserve of about 30 pills. But since I've gotten on ADAP, I've started noticing that they do re-orders a bit different. It's like they are pill-counting every refill I get and I am denied a refill until I have about a week's worth of pills left, and then I have to wait an obligatory 4-business-day period before they let me pick up the meds.

I mostly end up having about 3 pills as a buffer (which would usually count as going towards a reserve) but I'm always denied refills until I have about 7 pills total left.

Is anyone familiar with the way ADAP works (I'm in Florida btw)... and is there any way to build up a reserve?

PS: I asked a similar question a while back, and it worked when I was on Wellvista, but it's not working on ADAP.

“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Re: Med reserve on ADAP
« Reply #1 on: May 09, 2012, 04:33:07 PM »
Does anyone have any experience with making a reserve while on ADAP?
“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

Offline Hellraiser

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  • Posts: 4,136
  • Semi-misanthropic
Re: Med reserve on ADAP
« Reply #2 on: May 09, 2012, 08:03:55 PM »
Does anyone have any experience with making a reserve while on ADAP?

Yes, although ADAP is run by each state individually so the rules of your state may differ from the rules of mine.  When I was on ADAP I was able to refill one week early, which meant every month I would add a week's supply to my reserve.

Offline Miss Philicia

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  • Posts: 24,015
  • celebrity poster, faker & poser
Re: Med reserve on ADAP
« Reply #3 on: May 09, 2012, 08:04:39 PM »
Yes, although ADAP is run by each state individually so the rules of your state may differ from the rules of mine.  When I was on ADAP I was able to refill one week early, which meant every month I would add a week's supply to my reserve.

same in Pennsylvania and New York
"I’ve slept with enough men to know that I’m not gay"

Offline denb45

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  • Posts: 5,051
  • "1987 Classic Old School POZ+"
Re: Med reserve on ADAP
« Reply #4 on: May 09, 2012, 08:16:18 PM »
same in Pennsylvania and New York

Oh Yes, New Mexico is the same way as well, I've got a very nice stock-pile handy, however I'm not on ADAP I'm on BCBS
"it's so nice to be insane, cause no-one ask you to explain" Helen Reddy cc 1974

Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Re: Med reserve on ADAP
« Reply #5 on: May 10, 2012, 04:43:49 PM »
Thanks for your replies everyone.

Yes, although ADAP is run by each state individually so the rules of your state may differ from the rules of mine.  When I was on ADAP I was able to refill one week early, which meant every month I would add a week's supply to my reserve.

Hi Hellraiser. Do you mean you are able to refill when your current bottle has only a week of pills left (excluding any pills that you might have left over from a previous bottle?)

Because it seems like I'm only able to refill my prescription when, in TOTAL, I have about 7 pills left. And on top of that, I have to wait 4 days for the pills to be available at the health department's pharmacy. All other medication through the HD is available after an hour.
“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Med reserve on ADAP
« Reply #6 on: May 10, 2012, 10:43:53 PM »
Thanks for your replies everyone.

Hi Hellraiser. Do you mean you are able to refill when your current bottle has only a week of pills left (excluding any pills that you might have left over from a previous bottle?)

Because it seems like I'm only able to refill my prescription when, in TOTAL, I have about 7 pills left. And on top of that, I have to wait 4 days for the pills to be available at the health department's pharmacy. All other medication through the HD is available after an hour.

I was able to refill every 3 weeks like clock work.


Offline buginme2

  • Member
  • Posts: 2,841
Re: Med reserve on ADAP
« Reply #7 on: May 10, 2012, 10:56:14 PM »
Look into a pharmacy that specializes in HIV like "Moms pharmacy" or "AHC.". I use moms and they automatically refill my prescription on the earliest day my insurance allows and then ships them out to me at no charge.  I have several months built up now.

Offline Hellraiser

  • Member
  • Posts: 4,136
  • Semi-misanthropic
Re: Med reserve on ADAP
« Reply #8 on: May 10, 2012, 10:57:51 PM »
Look into a pharmacy that specializes in HIV like "Moms pharmacy" or "AHC.". I use moms and they automatically refill my prescription on the earliest day my insurance allows and then ships them out to me at no charge.  I have several months built up now.

If he's on ADAP he can only use certain pharmacies.

Offline Miss Philicia

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  • Posts: 24,015
  • celebrity poster, faker & poser
Re: Med reserve on ADAP
« Reply #9 on: May 11, 2012, 07:53:22 AM »
I think due to particulars in Florida with ADAP then Dan isn't going to get a good answer unless someone here from Florida that uses ADAP can tell him what to do -- the rest of us are shooting in the dark

Perhaps Dan should address his concerns to either some friend in a similar situation or discuss this with his case manager. There are limits to internet/forum usefulness.
"I’ve slept with enough men to know that I’m not gay"

Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Re: Med reserve on ADAP
« Reply #10 on: May 11, 2012, 04:24:34 PM »
Thanks again for your replies. There's so much that I don't know. I get my meds at the Health Department... I always thought being on ADAP meant that the HD was the only supplier for ADAP meds.
“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Re: Med reserve on ADAP
« Reply #11 on: May 11, 2012, 04:26:17 PM »
I think due to particulars in Florida with ADAP then Dan isn't going to get a good answer unless someone here from Florida that uses ADAP can tell him what to do -- the rest of us are shooting in the dark

Perhaps Dan should address his concerns to either some friend in a similar situation or discuss this with his case manager. There are limits to internet/forum usefulness.

I think you're right Miss P. Things vary so much from state to state.

BTW, should I have a case manager? I don't think that I have one. Is this supposed to be someone at the Health Department?
“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

Offline planonstaying

  • Member
  • Posts: 169
  • Hiv is the FOX,tcells the rabbit, CALL the HOUNDS!
Re: Med reserve on ADAP
« Reply #12 on: May 11, 2012, 04:57:09 PM »
my medical case  manager is through a local non profit. Especially if you struggle at all or  are  disabed I'd  suggust it if only so you can make sure you are getting all the benefits you qualify for
If someone tells you  potential consequences of a behavior  it  doesn't  mean they jude you or mit    they may just give a shit about you

Offline Plus30

  • Member
  • Posts: 26
Re: Med reserve on ADAP
« Reply #13 on: May 11, 2012, 06:58:31 PM »
I'm on ADAP, but the Heath Department where I get my meds will not give you meds ahead of time. If you order them too soon they only give you half the supply ordered, then you'd have to come back in two weeks to pick up the rest.

It's real hard to build up a good reserve of meds. I started to take two or three pills out of the bottle and keep them in the house or on me just in case. When the bottle was empty I'd order the refill and was still able to get a full month supply since I was only three days off by keeping the other pills stashed - but that's as vast as my supply ever gets.
...............CD4   %    VL
05/04/07   Tested Positive
10/24/07   343   18   141,000
03/12/08   327   17   120,000
05/08/08   286   13   16,529  Started Atripla
07/16/08   325   14   282 
10/14/08   317   19   72
06/10/09   392   21   <48
04/15/10   385   23   <48 New Dr
09/10/10   430   33   <48
11/29/10   540   28   <20
04/11/11   580   29   <20
06/24/11   465   31   70
01/06/12   427   26   <20
04/12/12   378   23   <20 Change to Truvada/Viramune
05/15/12   461   30   <20
10/02/12   678   28   <20
02/22/13   720   27   <20

Offline Ann

  • Administrator
  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Med reserve on ADAP
« Reply #14 on: May 12, 2012, 07:36:14 AM »
Dan, you can find an ASO or other hiv agency that might be able to help near you by using the directory at POZ.com. (NOT the "quick search", that's for testing.) Good luck!
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Re: Med reserve on ADAP
« Reply #15 on: May 13, 2012, 08:33:12 PM »
Dan, you can find an ASO or other hiv agency that might be able to help near you by using the directory at POZ.com. (NOT the "quick search", that's for testing.) Good luck!

Hey Ann, I didn't realize that "case management" was what the ASOs did. I used to go to one (that's where I found out I was poz) but since I started going to the Health Dept. I stopped going there... I didn't realize they did more things (I thought it was just support groups).

Thanks for the help.
“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

Offline leatherman

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  • Posts: 6,150
  • Google and HIV meds are Your Friends
Re: Med reserve on ADAP
« Reply #16 on: May 13, 2012, 08:38:35 PM »
I didn't realize they did more things (I thought it was just support groups).
some ASOs only test, some help with support services, some do case management (help with housing, doctor referrals, ryan white services like adap, etc), some handle treatment, and some do it all. You'll need to contact the ASO that's in your area (IF there is one in your area, not every area in America is covered) and see what services they do offer and what you're eligible for. ;)
leatherman (aka mIkIE)


chart from 1992-2013; updated 2/09/13  Reyataz/Norvir/Truvada

Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Re: Med reserve on ADAP
« Reply #17 on: May 13, 2012, 08:59:31 PM »
some ASOs only test, some help with support services, some do case management (help with housing, doctor referrals, ryan white services like adap, etc), some handle treatment, and some do it all. You'll need to contact the ASO that's in your area (IF there is one in your area, not every area in America is covered) and see what services they do offer and what you're eligible for. ;)

Thanks for that clarification.
“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

Offline Ann

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  • Member
  • Posts: 28,140
  • It just is, OK?
    • Num is sum qui mentiar tibi?
Re: Med reserve on ADAP
« Reply #18 on: May 14, 2012, 06:33:17 AM »
You're welcome, Dan. Good luck and let us know how you get on. :)
Condoms are a girl's best friend

Condom and Lube Info  



"...health will finally be seen not as a blessing to be wished for, but as a human right to be fought for." Kofi Annan

Nymphomaniac: a woman as obsessed with sex as an average man. Mignon McLaughlin

HIV is certainly character-building. It's made me see all of the shallow things we cling to, like ego and vanity. Of course, I'd rather have a few more T-cells and a little less character. Randy Shilts

Offline bmancanfly

  • Member
  • Posts: 564
  • Medicare For All !
Re: Med reserve on ADAP
« Reply #19 on: May 16, 2012, 11:45:11 AM »
Dan,  have you contacted Hope and Help?  http://www.hopeandhelp.org/about.php

They have been around in central FL for years and have done great work for the HIV community.    I would recommend getting in touch with them.
"The trouble with the world is that the stupid are cocksure and the intelligent are full of doubt."

 Bertrand Russell

Offline DanMo

  • Member
  • Posts: 235
  • Finally undetectable! ;D
Re: Med reserve on ADAP
« Reply #20 on: May 17, 2012, 04:54:03 PM »
Dan,  have you contacted Hope and Help?  http://www.hopeandhelp.org/about.php

They have been around in central FL for years and have done great work for the HIV community.    I would recommend getting in touch with them.

Thanks for the recommendation bman. There's another one in downtown Orlando (the one I went to initially) called Miracle of Love. They seem to be good. I looked at their website (and now that I know what to look for) they do indeed offer case management. But I'll keep an eye on Hope and Help too.
“I tried to drown my sorrows, but the bastards learned how to swim, and now I am overwhelmed by this decent and good feeling.” —Frida Kahlo

11 Feb 2011 - Preliminary positive
07 Mar 11 - Inconclusive WB
14 Mar 11 - Diagnosed positive
05 Apr 11 - 355 (21%) / VL: 186,054
27 Apr 11 - 390 (20%) / VL: 285,095
06 Jun 11 - 298 (19%) / VL:  78,380
01 Aug 11 - > STARTED ATRIPLA <
30 Aug 11 - 699 (31%) / VL: 1,938
03 Nov 11 -                / VL: 645
27 Dec 11 - 559 (35%) / VL: 1,189
11 Jan 12 -                 / VL: <20
09 Apr 12 - 686 (40%) / VL: UD
11 Jul 12 - 793 (37%) / VL: 25

 


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