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Author Topic: Existing neurology and rapid test accuracy  (Read 2375 times)

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Offline worried2themax

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Existing neurology and rapid test accuracy
« on: April 20, 2012, 03:44:16 PM »
Guys,

Stupidly had sex with a prostitute from a dingy brothel on my mates stag do, can't remember much.  Reason to believe condom not used entire time because I tested positive for chlymidia at my full std check up last month (11months post exposure).

My dilemma is:

I have charcot-marie-tooth, it is a heredatory sensory neuropathy which affects my hands and feed because of a mutation in one or more genes and defects in neuoronal proteins.  I had an hiv rapid test at a private clinic here in the UK and it came up negative, the doctor said I had two hiv tests carried (results were within 20minutes).

Can I trust this result?  Giving my disorder surely its possible I may not produce hiv antibodies?  Or maybe that is just my ignorance in not understanding either illness.

Also I have worrying groin rash which has not responded to any treatment since the incident, it is quite prominent and never fades.

Is it still possible I have hiv after a negative test at 11months?  I read all these places online where people test positive down the line etc.

the clinician i went to see is well respected as an std expert, and he has said my results are definitely negative but I am wanting some further advice on this just in case.

Thanks

Offline jkinatl2

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  • Doo. Dah. Dipp-ity.
Re: Existing neurology and rapid test accuracy
« Reply #1 on: April 20, 2012, 04:53:38 PM »
You can absolutely trust your test results. You are HIV negative. Three months has been the gold standard for decade or so.

Also, it's quite possible to get an STD like chlamydia despite using a condom. Unlike HIV, other STDs are pretty robust and can be easily spread.

"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline worried2themax

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Re: Existing neurology and rapid test accuracy
« Reply #2 on: April 20, 2012, 05:33:48 PM »
Thanks for your reassuring words.

3 months with no exceptions then despite my rare medical condition?

Hopefully they find a cure someday, although the meds appear to give a hiv poz individual more or less the same life expectancy as a negative individual.

And again, thanks

Offline Andy Velez

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Re: Existing neurology and rapid test accuracy
« Reply #3 on: April 20, 2012, 05:42:00 PM »
The exceptions to tasting up to 6 months are when longterm intravenous drug use is involved or organ transplant or treatment for a disease such as cancer.

You don't qualify for any of those from what I can see. And even if you had, you tested negative at 11 months which is way long after any testing point.

You're HIV negative. Period. If you are having any troubling symptoms you should discuss them with your doctor. HIV is the problem.
Andy Velez

Offline jkinatl2

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  • Doo. Dah. Dipp-ity.
Re: Existing neurology and rapid test accuracy
« Reply #4 on: April 20, 2012, 05:43:29 PM »
While your disorder is rare (many people here who have been on older meds can sympathize with the neuropathy) it is NOT an illness that interferes in any way with the production of antibodies.

I hope they find a cure too. Probably a workable vaccine is more likely, at least in the short run. But medications are getting better and better. Still need to really work on the stigma, though.

However, you are reliably HIV negative. Use a condom for penetrative vaginal/anal sex, don't share IV drug needles, and you will stay that way :)
"Many people, especially in the gay community, turn to oral sex as a safer alternative in the age of AIDS. And with HIV rates rising, people need to remember that oral sex is safer sex. It's a reasonable alternative."

-Kimberly Page-Shafer, PhD, MPH

Welcome Thread

Offline worried2themax

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Re: Existing neurology and rapid test accuracy
« Reply #5 on: April 20, 2012, 06:21:55 PM »
your right there should be no stigma.  It probably stems from the early days of the epidemic when it wasnt really understood.  There are people from my home town (I live in a really small down in Northern Ireland with only a few thousand residents) who are actively standing up to be role models living with hiv, the way it should be.  People like that are attempting successfully to remove the stigma.

There are probably alot more famous people who won't come forward as having it, obviously theres Magic johnson and Tommy Morrison but no one else has really spoke up about it.


Offline worried2themax

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Re: Existing neurology and rapid test accuracy
« Reply #6 on: April 21, 2012, 08:39:06 AM »
one last thing, treatment resistant rash in groin area since exposure.  I had jock itch before the incident but wasn't really treating it but when i did it disappeared but ever since the prostitute incident it has not responded at all, or even faded.  It is quite large discolouration and ive tried terbinafine tablets, clotrimazole cream etc with no effect. 

Is this a worrying sign?

I keep trying to point to the fact that ive had a rapid test at 11 months, it just sounds ominous i think.

Maybe i could do with a viral load check or a test of another kind to be sure.

Offline Andy Velez

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Re: Existing neurology and rapid test accuracy
« Reply #7 on: April 21, 2012, 10:13:41 AM »
That is certainly not an HIV specific symptom. And having had a negative result at 11 months there is no sound basis for thinking HIV is an issue for you.

You should be discussing your rash and any other symptoms with your doctor. This is not an HIV situation. Period.
Andy Velez

Offline worried2themax

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KS & buffer solution
« Reply #8 on: April 28, 2012, 06:40:14 AM »
Guys,

Two quick questions that require your expertise:

1. KS lesions - is it possible to have a ks lesion after approx a year. Lesion in groin and has been checked by an std specialist who said it wasnt sarcoma but no biopsy and i have read that these lesions can commonly get mistaken for bruises or birthmarks etc.  Mine has been there at least a few months, isnt really raised purple/red in colour.

2. no buffer solution added to determine 1/2 ab/ag rapid test..the specialist simply took the blood from my finger and put it onto the test strip/kit as we waited for the results..is this correct or is buffer required?

The specialist I go to does seem knowledgeable just the no buffer situation worries me a bit so need clarification.

2 negative rapid tests at 11 and 12 months post exposure.

Thanks

Offline RapidRod

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Re: KS & buffer solution
« Reply #9 on: April 28, 2012, 06:56:44 AM »
Guys,

Two quick questions that require your expertise:

1. KS lesions - is it possible to have a ks lesion after approx a year. Lesion in groin and has been checked by an std specialist who said it wasnt sarcoma but no biopsy and i have read that these lesions can commonly get mistaken for bruises or birthmarks etc.  Mine has been there at least a few months, isnt really raised purple/red in colour.

2. no buffer solution added to determine 1/2 ab/ag rapid test..the specialist simply took the blood from my finger and put it onto the test strip/kit as we waited for the results..is this correct or is buffer required?

The specialist I go to does seem knowledgeable just the no buffer situation worries me a bit so need clarification.

2 negative rapid tests at 11 and 12 months post exposure.

Thanks
You don't have an HIV concern as you were previously advised in another forum.

Offline worried2themax

  • Member
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Re: KS & buffer solution
« Reply #10 on: April 28, 2012, 06:59:53 AM »
just want to make sure my test was performed right rod, ive spent several hundered pounds getting these tests.  Wouldnt like to think ive spent that and for the test to be done wrong you know, therefore asking for some expert opinion.

Offline RapidRod

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Re: KS & buffer solution
« Reply #11 on: April 28, 2012, 07:04:51 AM »
Please do not start a new thread every time you have another question or thought - regardless if you think your questions are related to each other or not. It helps us to help you when you keep all your thoughts or questions in one thread and it helps other readers to follow the discussion. Additional threads will be merged.



If you cannot find your thread, click on the "Show own posts" link in the left-hand column of any forum page, under your name.

Offline worried2themax

  • Member
  • Posts: 10
Re: Existing neurology and rapid test accuracy
« Reply #12 on: April 28, 2012, 07:17:40 AM »
Guys,

Two quick questions that require your expertise:

1. KS lesions - is it possible to have a ks lesion after approx a year. Lesion in groin and has been checked by an std specialist who said it wasnt sarcoma but no biopsy and i have read that these lesions can commonly get mistaken for bruises or birthmarks etc.  Mine has been there at least a few months, isnt really raised purple/red in colour.

2. no buffer solution added to determine 1/2 ab/ag rapid test..the specialist simply took the blood from my finger and put it onto the test strip/kit as we waited for the results..is this correct or is buffer required?

The specialist I go to does seem knowledgeable just the no buffer situation worries me a bit so need clarification.

2 negative rapid tests at 11 and 12 months post exposure.

Thanks

Offline Andy Velez

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  • Member
  • Posts: 24,623
Re: Existing neurology and rapid test accuracy
« Reply #13 on: April 28, 2012, 09:04:57 AM »
Listen, you are HIV negative. You have reliably tested negative and more than once.

Whatever the "lesion" on your skin is, it's not a result of HIV because that has been ruled out. If it persists you need to check it out with your doctor.

HIV is not your problem. Period. End of story.

And now I am going to caution you that if you continue to return with just one more doubt about your status, you are going to find yourself getting a Time Out from the site. HIV is not something for you to be concerned about. There is nothing more we can do for you here.

You had the experience that you did. You're a guy and you went straying a bit. That's part of your history now. See it, take a breath, let it go and get on with your life.

Andy Velez

Offline Andy Velez

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Re: Existing neurology and rapid test accuracy
« Reply #14 on: April 28, 2012, 09:08:48 AM »
And I have now merged your threads here. In the future please follow our rule as stated in the opening thread that members should keep all entries in one single thread.

Your fears about HIV are the problem. Not HIV itself. Move on now.
Andy Velez

Offline worried2themax

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  • Posts: 10
Re: Existing neurology and rapid test accuracy
« Reply #15 on: May 12, 2012, 11:39:37 AM »
Just wanted to post that I am currently waiting on full blood draw results, antibody and pcr tests are being completed.  I had the blood drew on wednesday at the nhs gum clinic, I could be waiting a total of 2 weeks for the results but if something shows up im sure I will hear before that.  I have had two determine rapid tests both negative well outside the window period.  If this comment doesn't get deleted I will post my results when I get them.  I just want to thank you guys for helping me with my anxiety over this troublesome period and encourage all the worried souls to heed your advice.

If the results are negative I certainly know to move on.

Offline Andy Velez

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Re: Existing neurology and rapid test accuracy
« Reply #16 on: May 12, 2012, 12:02:50 PM »
Duly noted. We're expecting a negative result of course.
Andy Velez

Offline worried2themax

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  • Posts: 10
Re: Existing neurology and rapid test accuracy
« Reply #17 on: May 16, 2012, 01:02:15 PM »
Got a call from the nhs gum clinic regarding my antibodies and pcr dna test.  Just posting my results which as you assured me - all negative!  Thanks for your expert advice it really helped me deal with the anxiety whilst waiting, and I urge all of the worried guys and girls on this forum to believe your advice and equally important believe their negative test if done at the correct interval! 

Thanks again and keep up the good work.

Offline Andy Velez

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Re: Existing neurology and rapid test accuracy
« Reply #18 on: May 16, 2012, 01:09:39 PM »
You're welcome. Happy to know you got the expected negative result.

Take a breath and get on with your life now and always remember to use condoms for intercourse. No exceptions.
Andy Velez

Offline worried2themax

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Re: Existing neurology and rapid test accuracy
« Reply #19 on: May 16, 2012, 03:17:12 PM »
I certainly will, You were a great help Andy.

God Bless.

Offline Andy Velez

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Re: Existing neurology and rapid test accuracy
« Reply #20 on: May 16, 2012, 03:28:58 PM »
You're welcome.

Glad to have been of help.
Andy Velez

 


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