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Author Topic: Swollen lymph nodes  (Read 2159 times)

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Offline chico_mkd

  • Member
  • Posts: 21
Swollen lymph nodes
« on: March 27, 2012, 11:23:51 AM »
Hi all

I was infected 4 months ago and i found out that am positive before 1 month. Last 2 months i have problem with swollen lymph nodes on my neck, one on the right, one on the left and one on the back of my neck. They are same size from the beginning.

Should i do some additional examining or should i wait for a while? Anyone with this kind of experience? Is this normal period (2 months) to have swollen nodes if you are infected with hiv?

I would appreciate any kind of answer.
Cheers to all

Offline tednlou2

  • Member
  • Posts: 5,086
Re: Swollen lymph nodes
« Reply #1 on: March 27, 2012, 08:02:25 PM »
I had nodes swollen in neck, under chin, and in groin, when I became infected.  These nodes stayed swollen and sore for a few years actually.  The soreness went away after about one year, but I could still feel them for a good three years more.

Offline drewm

  • Member
  • Posts: 1,187
Re: Swollen lymph nodes
« Reply #2 on: March 27, 2012, 08:07:46 PM »
My lymph nodes in neck have been swollen for two years. Doc says nothing to worry about, meds are working.
Diagnosed in  May of 2010 with teh AIDS.

PCP Pneumonia . CD4 8 . VL 500,000

TRIUMEQ - VALTREX -  FLUOXETINE - FENOFIBRATE - PRAVASTATIN - CIALIS


Numbers consistent since 12/2010 - VL has remained undetectable and CD4 is anywhere from 275-325

Offline chico_mkd

  • Member
  • Posts: 21
Re: Swollen lymph nodes
« Reply #3 on: March 28, 2012, 10:26:55 AM »
Thank you tednlou2 and drewn for your replays.

I'm sorry that you had this kind of problem but it is a big relief for me now that i found out that this is maybe a normal situation for someone with hiv. I was very scared.

They are not big but they are very annoying and I feel very uncomfortable :(

Thank you again and I'll keep posting


Offline Miss Philicia

  • Member
  • Posts: 24,522
  • celebrity poster, faker & poser
Re: Swollen lymph nodes
« Reply #4 on: March 28, 2012, 01:30:41 PM »
The more you touch and fuss with them the larger they get.
"Iíve slept with enough men to know that Iím not gay"

Offline ATLpozbrother

  • Member
  • Posts: 26
  • I'm Sick and tired of being Sick and tired.
Re: Swollen lymph nodes
« Reply #5 on: March 31, 2012, 06:43:52 AM »
I am currently going through what you are going through, but at a much later stage of progression. I have a swollen lymph node under my chin and one on the left side of my neck. My Infectious Disease doctor told me, "I'm not concerned about it."  Well I was very concerned and did my research. It appears many doctors respond this, way and many infected people allow them to stay, well I cannot do that. What is your CD4 count and viral load?  I researched and found a top rated Infectious Disease doctor, he saw me and did a complete exam of my body searching for other nodes, none were found, he also re-did all my labs, and referred me to a Ear Nose and Throat (ENT) specialist who is a surgeon also, my doctor also arranged a CT scan. On my visit to the ENT he saw my nodes & immediatly did a biopsy of each node, & will be testing them to see if they are cancerous.  Lymphoma is very common with HIV/AIDs infection & you want to rule it out.  My ENT also stated often biopsy results are often negative & the true test is the full removal of the node.  He prescribed prednisone pack (corticosteroid) and an antibiotic, he rescheduled me to see him in a week, and if the nodes dont go down he will remove them. I am on track with him & I want them removed as they have caused anxiety & a big issue of self-counciousness.  My nodes have been present for a month & it's been really hard waking up to look at them.  Thank God I have found two doctors (Infectious Disease Doctor/ENT) who are welll recognized in their fields & who are just as concerned with my issues as I am.  I posted questions about removing lymph nodes surgically & some say dont remove them, I shared this with my ENT, his comment was: "BULLSHIT"  Check out this procedure, it's done very quick & recovery is two days, back to work:
http://www.youtube.com/watch?v=uPLT-iEoxGk


10/11 cd4 23, VL 125000-hospitalized PCP
1/12 started Gilead vaccine trial-The Quad Pill
1/12 cd4 40,   2% VL 445,000
2/12 cd4 153, 6% VL 43
3/12 cd4 248, 8%  VL 1023
4/12 cd4 215          VL 99
4/22 cd4 208, 8%  VL undetectable.
5/12 cd4 168, 9%  VL undetectable
9/12 cd4 176, 10% VL undetectable

Offline Hellraiser

  • Member
  • Posts: 4,143
  • Semi-misanthropic
Re: Swollen lymph nodes
« Reply #6 on: March 31, 2012, 09:46:54 AM »
I am currently going through what you are going through, but at a much later stage of progression. I have a swollen lymph node under my chin and one on the left side of my neck. My Infectious Disease doctor told me, "I'm not concerned about it."  Well I was very concerned and did my research. It appears many doctors respond this, way and many infected people allow them to stay, well I cannot do that. What is your CD4 count and viral load?  I researched and found a top rated Infectious Disease doctor, he saw me and did a complete exam of my body searching for other nodes, none were found, he also re-did all my labs, and referred me to a Ear Nose and Throat (ENT) specialist who is a surgeon also, my doctor also arranged a CT scan. On my visit to the ENT he saw my nodes & immediatly did a biopsy of each node, & will be testing them to see if they are cancerous.  Lymphoma is very common with HIV/AIDs infection & you want to rule it out.  My ENT also stated often biopsy results are often negative & the true test is the full removal of the node.  He prescribed prednisone pack (corticosteroid) and an antibiotic, he rescheduled me to see him in a week, and if the nodes dont go down he will remove them. I am on track with him & I want them removed as they have caused anxiety & a big issue of self-counciousness.  My nodes have been present for a month & it's been really hard waking up to look at them.  Thank God I have found two doctors (Infectious Disease Doctor/ENT) who are welll recognized in their fields & who are just as concerned with my issues as I am.  I posted questions about removing lymph nodes surgically & some say dont remove them, I shared this with my ENT, his comment was: "BULLSHIT"  Check out this procedure, it's done very quick & recovery is two days, back to work:
http://www.youtube.com/watch?v=uPLT-iEoxGk

Uh, this seems like an over reaction, extremely swollen lymph nodes are a hallmark of untreated disease progression, if you are taking meds and still have swollen lymph nodes for a while then this is something that needs to be looked at, but I think removing the lymph node without any indication of cancer seems...unnecessary.

Offline chico_mkd

  • Member
  • Posts: 21
Re: Swollen lymph nodes
« Reply #7 on: March 31, 2012, 10:12:21 AM »
I have to agree with Hellraiser.

Currently I'm not on meds,  CD4 - 412 (21%) and VL steel waiting the results. Last week i went to my ID and she told me nothing to worry about. It's a common situation.

I'll wait next couple of months just to see what will happen. If there is no changes maybe I'll do further examinations.

Thanks for replays. Cheers

 


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